Guest guest Posted November 7, 2010 Report Share Posted November 7, 2010 Marla, I believe it is the other way around. Increased cortisol can be a factor for hypothyroidism. http://www.royalrife.com/hypothyroid.html <>Roni Immortality exists! It's called knowledge! Just because something isn't seen doesn't mean it's not there<> From: flatwoodfarms <marlum@...> Subject: Re: The Latest hypothyroidism Date: Sunday, November 7, 2010, 9:38 AM Unfortunately it seems that anything one does involving the thyroid can cause hair loss; any change in hormone up or down, on or off, any " intrusion " into the gland such as FNA or surgery. It's all very sensitive. Personally, about 20 minutes after a FNA, I go into a heavy brain fog, to the point that I can't remember how to navigate the streets to find my way home. Hypothyroid can cause increased cortisol, which can drive up the pulse directly, or through the involvement of adrenalin. It's all so freakin' complex... Marla > > > Thanks . It seemed to be working well, except for the fact I've been losing so much hair on such a small dose. Do you think there are other forms that might not have that side effect? I didn't notice much hair loss until after going on the medication. > > Barb > > Re: The Latest > > > > > Bear in mind that levothyroxine is T4, which is what a healthy thyroid > gland produces. It just makes sense as a first approach to replace > exactly what is missing. That appears to work well for 90% or 95% of > people; but you're the proof that it doesn't work for everyone. > > Best, > > . > . > > > Posted by: " Roni Molin " matchermaam@... > > <mailto:matchermaam@...?Subject=%20Re%3A%20The%20Latest> > > matchermaam <matchermaam> > > > > > > Sat Nov 6, 2010 2:44 pm (PDT) > > > > > > > > I think the levothyroxine is only good for some people. For others, > > like me, it creates all kinds of > > reactions. I know Chuck won't agree with me, but if it was me I would > > stop the levothyroxine. When I got so sick on the Armour which has > > both levothyroxine and liothyronine, I stopped the > > medicaton as soon as I realized what was causing it. My wonderful > > Rheumy had me tested for everything to find out what was making me so > > sick. When we found out that my body was turning the T4 into RT3 > > instead of mostly T3, he rxd T3 only for me. I'm still on it and I > > feel better. I think > > it's worth a try. Your body will continue to have the levo in your > > system for weeks anyway. By then, if the nodules are not cancerous, T3 > > treatment might be the way for you to go without having to > > have any operations. > > > > <>Roni > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2010 Report Share Posted November 7, 2010 I know doctors that check TSH do not put people on enough of T4. Betty ________________________________ From: Roni Molin <matchermaam@...> hypothyroidism Sent: Sun, November 7, 2010 2:19:43 PM Subject: Re: Re: The Latest , your estimation of how manyn people are not being adequately treated with T4 alone I believe is skewed. There are more and more people who have troubles with it alone. <>Roni Immortality exists! It's called knowledge! Just because something isn't seen doesn't mean it's not there<> From: <res075oh@...> Subject: Re: The Latest hypothyroidism Date: Sunday, November 7, 2010, 7:51 AM Bear in mind that levothyroxine is T4, which is what a healthy thyroid gland produces. It just makes sense as a first approach to replace exactly what is missing. That appears to work well for 90% or 95% of people; but you're the proof that it doesn't work for everyone. Best, .. .. > Posted by: " Roni Molin " matchermaam@... > <mailto:matchermaam@...?Subject=%20Re%3A%20The%20Latest> > matchermaam <matchermaam> > > > Sat Nov 6, 2010 2:44 pm (PDT) > > > > I think the levothyroxine is only good for some people. For others, > like me, it creates all kinds of > reactions. I know Chuck won't agree with me, but if it was me I would > stop the levothyroxine. When I got so sick on the Armour which has > both levothyroxine and liothyronine, I stopped the > medicaton as soon as I realized what was causing it. My wonderful > Rheumy had me tested for everything to find out what was making me so > sick. When we found out that my body was turning the T4 into RT3 > instead of mostly T3, he rxd T3 only for me. I'm still on it and I > feel better. I think > it's worth a try. Your body will continue to have the levo in your > system for weeks anyway. By then, if the nodules are not cancerous, T3 > treatment might be the way for you to go without having to > have any operations. > > <>Roni ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2010 Report Share Posted November 7, 2010 On 11/5/2010 10:54 PM, H wrote: > > Thanks Chuck. I had already made that decision and planned to have it > this week, until I found out I couldn't. Now it can't be done until > November 30th, because that's the first available appointment after > three weeks without the meds. > > I read today that a needle biopsy is the best and only way to check for > Cancer. So when I go to the endocronoligist on the 17th, I plan to ask > him about that. > > " * Consider early referral to a endocrinologist specialist for FNAB of > the thyroid before performing any diagnostic imaging. I believe that is what I have been saying. The move to an imaging test before a biopsy still seems premature. The fact that your doctor also did not know to take you off T4 prior to either procedure makes me wonder whether he has a good justification, or indeed any justification, for giving you 3 mCi of radioactive iodine so he can have an image that may not tell him anything. Doctors are supposed to do a risk benefit analysis for such procedures. The fact that no one you asked could explain why this procedure was ordered also gives me pause, although it is consistent with no one knowing who was supposed to schedule it. Again, the ultrasound and uptake tests can tell you if a biopsy is really warranted. If growth is very slow or nil, size from palpation and ultrasound is small, and T4 output responds normally to iodine, it says the biopsy is probably not needed. It is an " ordinary " goiter. It does not make sense to me to concurrently order a test that could rule out the need for a biopsy and one that would normally come after a biopsy has come up positive. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2010 Report Share Posted November 7, 2010 Barb, You wrote: > ... Does it seem strange that the lump appeared two months > later? I think it was Chuck who said it could be the result of > undertreatment. I don't exactly recall saying that, but a goiter can definitely come from a chronically high TSH. A fatty deposit or cyst away from the thyroid is another matter, although being hypoT can cause all sorts of minor metabolic malfunctions, so it might be indirectly related. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2010 Report Share Posted November 7, 2010 Thanks so much for replying Chuck. All of this must seem very petty compared to what you have been going through with you son, but you take the time to respond anyway. I appreciate it. Barb Re: The Latest On 11/5/2010 10:54 PM, H wrote: > > Thanks Chuck. I had already made that decision and planned to have it > this week, until I found out I couldn't. Now it can't be done until > November 30th, because that's the first available appointment after > three weeks without the meds. > > I read today that a needle biopsy is the best and only way to check for > Cancer. So when I go to the endocronoligist on the 17th, I plan to ask > him about that. > > " * Consider early referral to a endocrinologist specialist for FNAB of > the thyroid before performing any diagnostic imaging. I believe that is what I have been saying. The move to an imaging test before a biopsy still seems premature. The fact that your doctor also did not know to take you off T4 prior to either procedure makes me wonder whether he has a good justification, or indeed any justification, for giving you 3 mCi of radioactive iodine so he can have an image that may not tell him anything. Doctors are supposed to do a risk benefit analysis for such procedures. The fact that no one you asked could explain why this procedure was ordered also gives me pause, although it is consistent with no one knowing who was supposed to schedule it. Again, the ultrasound and uptake tests can tell you if a biopsy is really warranted. If growth is very slow or nil, size from palpation and ultrasound is small, and T4 output responds normally to iodine, it says the biopsy is probably not needed. It is an " ordinary " goiter. It does not make sense to me to concurrently order a test that could rule out the need for a biopsy and one that would normally come after a biopsy has come up positive. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2010 Report Share Posted November 7, 2010 That could explain why I got the enlarged thyroid, or goiter, or whatever it is, after taking Levothyroxin for two months. Thanks, Barb Re: The Latest hypothyroidism Date: Sunday, November 7, 2010, 7:51 AM Bear in mind that levothyroxine is T4, which is what a healthy thyroid gland produces. It just makes sense as a first approach to replace exactly what is missing. That appears to work well for 90% or 95% of people; but you're the proof that it doesn't work for everyone. Best, .. .. > Posted by: " Roni Molin " matchermaam@... > <mailto:matchermaam@...?Subject=%20Re%3A%20The%20Latest> > matchermaam <matchermaam> > > > Sat Nov 6, 2010 2:44 pm (PDT) > > > > I think the levothyroxine is only good for some people. For others, > like me, it creates all kinds of > reactions. I know Chuck won't agree with me, but if it was me I would > stop the levothyroxine. When I got so sick on the Armour which has > both levothyroxine and liothyronine, I stopped the > medicaton as soon as I realized what was causing it. My wonderful > Rheumy had me tested for everything to find out what was making me so > sick. When we found out that my body was turning the T4 into RT3 > instead of mostly T3, he rxd T3 only for me. I'm still on it and I > feel better. I think > it's worth a try. Your body will continue to have the levo in your > system for weeks anyway. By then, if the nodules are not cancerous, T3 > treatment might be the way for you to go without having to > have any operations. > > <>Roni ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2010 Report Share Posted November 8, 2010 On 11/7/2010 10:31 AM, H wrote: > > Thanks . It seemed to be working well, except for the fact I've > been losing so much hair on such a small dose. Do you think there are > other forms that might not have that side effect? I didn't notice much > hair loss until after going on the medication. Barb, Before dropping the T4, I would recommend you get the T4 dose right, get the TSH below 2. Then, if you still have symptoms consider the alternative. I think you are in the category of never getting a proper dose. That is consistent with all the other incompetencies which have been inflicted on you. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2010 Report Share Posted November 8, 2010 Thanks again Chuck. Re: Re: The Latest Barb, You wrote: > ... Does it seem strange that the lump appeared two months > later? I think it was Chuck who said it could be the result of > undertreatment. I don't exactly recall saying that, but a goiter can definitely come from a chronically high TSH. A fatty deposit or cyst away from the thyroid is another matter, although being hypoT can cause all sorts of minor metabolic malfunctions, so it might be indirectly related. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2010 Report Share Posted November 8, 2010 On 11/7/2010 4:41 PM, Betty wrote: > I know doctors that check TSH do not put people on enough of T4. That is not at all true for the dozen or so doctors that have treated hypoT people in my family. Out of six of us, two eventually tried T3. Only one is still on it. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2010 Report Share Posted November 8, 2010 In my neck of the woods they only look at TSH.How stupid huh? Thats why I am my own doctor and loving it.LOL Betty ________________________________ From: ChuckB <gumboyaya@...> hypothyroidism Sent: Sun, November 7, 2010 6:04:28 PM Subject: Re: Re: The Latest On 11/7/2010 4:41 PM, Betty wrote: > I know doctors that check TSH do not put people on enough of T4. That is not at all true for the dozen or so doctors that have treated hypoT people in my family. Out of six of us, two eventually tried T3. Only one is still on it. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2010 Report Share Posted November 8, 2010 Only considering the TSH may be a little primitive these days when there are credible theories of TSH suppression with a high Reverse T3. In other words, a low TSH does not always indicate a flood of useable hormone at the cellular level. Marla > > I know doctors that check TSH do not put people on enough of T4. > > That is not at all true for the dozen or so doctors that have treated > hypoT people in my family. Out of six of us, two eventually tried T3. > Only one is still on it. > > Chuck > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2010 Report Share Posted November 8, 2010 Roni, I think the cortisol/thyroid interchange runs both ways. Certainly if the metabolism is sluggish, the adrenals may kick into a higher gear to compensate. Marla > > > > > > Thanks . It seemed to be working well, except for the fact I've been losing so much hair on such a small dose. Do you think there are other forms that might not have that side effect? I didn't notice much hair loss until after going on the medication. > > > > Barb > > > > Re: The Latest > > > > > > > > > > Bear in mind that levothyroxine is T4, which is what a healthy thyroid > > gland produces. It just makes sense as a first approach to replace > > exactly what is missing. That appears to work well for 90% or 95% of > > people; but you're the proof that it doesn't work for everyone. > > > > Best, > > > > . > > . > > > > > Posted by: " Roni Molin " matchermaam@ > > > <mailto:matchermaam@?Subject=%20Re%3A%20The%20Latest> > > > matchermaam <matchermaam> > > > > > > > > > Sat Nov 6, 2010 2:44 pm (PDT) > > > > > > > > > > > > I think the levothyroxine is only good for some people. For others, > > > like me, it creates all kinds of > > > reactions. I know Chuck won't agree with me, but if it was me I would > > > stop the levothyroxine. When I got so sick on the Armour which has > > > both levothyroxine and liothyronine, I stopped the > > > medicaton as soon as I realized what was causing it. My wonderful > > > Rheumy had me tested for everything to find out what was making me so > > > sick. When we found out that my body was turning the T4 into RT3 > > > instead of mostly T3, he rxd T3 only for me. I'm still on it and I > > > feel better. I think > > > it's worth a try. Your body will continue to have the levo in your > > > system for weeks anyway. By then, if the nodules are not cancerous, T3 > > > treatment might be the way for you to go without having to > > > have any operations. > > > > > > <>Roni > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2010 Report Share Posted November 8, 2010 All of the T4 in all of the hypothyroid medications are bioidentical AFAIK; as is that from the thyroid of an animal such as a pig or cow. The main difference between medications is that some are T3 rather than T4; or may be a combination of T3 and T4. The only difference I know of between different brands of T4 may be the fillers, binders, coloring agents and so on. These are typically chosen to be inert as far as possible. Best, .. .. > Posted by: " H " macbarb0503@... > <mailto:macbarb0503@...?Subject=%20Re%3A%20The%20Latest> > westieabbey <westieabbey> > > > Sun Nov 7, 2010 8:32 am (PST) > > > > > Thanks . It seemed to be working well, except for the fact I've > been losing so much hair on such a small dose. Do you think there are > other forms that might not have that side effect? I didn't notice much > hair loss until after going on the medication. > > Barb > > Re: The Latest > > Bear in mind that levothyroxine is T4, which is what a healthy thyroid > gland produces. It just makes sense as a first approach to replace > exactly what is missing. That appears to work well for 90% or 95% of > people; but you're the proof that it doesn't work for everyone. > > Best, > > . > . > > > Posted by: " Roni Molin " matchermaam@... > <mailto:matchermaam%40> > > <mailto:matchermaam@... > <mailto:matchermaam%40>?Subject=%20Re% > 3A%20The%20Latest> > > matchermaam <matchermaam > <matchermaam>> > > > > > > Sat Nov 6, 2010 2:44 pm (PDT) > > > > > > > > I think the levothyroxine is only good for some people. For others, > > like me, it creates all kinds of > > reactions. I know Chuck won't agree with me, but if it was me I would > > stop the levothyroxine. When I got so sick on the Armour which has > > both levothyroxine and liothyronine, I stopped the > > medicaton as soon as I realized what was causing it. My wonderful > > Rheumy had me tested for everything to find out what was making me so > > sick. When we found out that my body was turning the T4 into RT3 > > instead of mostly T3, he rxd T3 only for me. I'm still on it and I > > feel better. I think > > it's worth a try. Your body will continue to have the levo in your > > system for weeks anyway. By then, if the nodules are not cancerous, T3 > > treatment might be the way for you to go without having to > > have any operations. > > > > <>Roni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2010 Report Share Posted November 8, 2010 TSH is the only test I've ever had. That is typical of most hypothyroid patients, who then take T4 only and have no other problems. Mostly it's only those who continue to have symptoms who go for further testing. I know; I'm one of the lucky ones... .. .. > > Posted by: " Roni Molin " matchermaam@... > <mailto:matchermaam@...?Subject=%20Re%3A%20The%20Latest> > matchermaam <matchermaam> > > > Sun Nov 7, 2010 12:17 pm (PST) > > > > , is that all you were ever tested for? Have you ever been tested > for freeT3, freeT4 > which shows how much of the hormome is in your blood, not your cells? > > <>Roni > Immortality exists! > It's called knowledge! > > Just because something isn't seen > doesn't mean it's not there<> > > > > From: <res075oh@... <mailto:res075oh%40verizon.net>> > Subject: Re: The Latest > hypothyroidism > <mailto:hypothyroidism%40> > Date: Sunday, November 7, 2010, 7:41 AM > > When I was diagnosed as hypothyroid my wife exclaimed: You CAN'T be > hypOthyroid; everything about you screams hypErthyroid. I've always had > a fast pulse rate and a hyperactive mind that I cannot quite no matter > how I try. > > I do think my hypothyroidism was discovered _very_ early because I never > had any specific symptoms of it; just the high TSH readings in my annual > exam bloodwork. > > Best, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2010 Report Share Posted November 8, 2010 Our opinions differ on that matter and that's okay. My opinion may not be totally accurate; I'm no expert on anything. I believe Chuck has about the same opinion and that he has posted the number of doses sold of some of the most popular medications which seem to support that view. It is IMHO this and similar groups that present a skewed view. They tend to self-select for those who DO have problems with standard treatment due to the simple fact that most people who get excellent results from same do not tend to spend nearly as much time learning about the condition as those who have problems. In any event: There is little doubt that some number of hypothyroid patients DO NOT get desirable results from T4 alone. Whether that is due to some form of the disease that is different in some way from most others or whether it is due to some other ailment or combination of ailments that may or may not be properly diagnosed is IMHO not clearly established. Regards, .. .. > Posted by: " Roni Molin " matchermaam@... > <mailto:matchermaam@...?Subject=%20Re%3A%20The%20Latest> > matchermaam <matchermaam> > > > Sun Nov 7, 2010 12:19 pm (PST) > > > > , your estimation of how manyn people are not being adequately > treated with T4 alone I believe is skewed. There are more and more > people who have troubles with it alone. > > <>Roni > Immortality exists! > It's called knowledge! > > Just because something isn't seen > doesn't mean it's not there<> > > > > From: <res075oh@... <mailto:res075oh%40verizon.net>> > Subject: Re: The Latest > hypothyroidism > <mailto:hypothyroidism%40> > Date: Sunday, November 7, 2010, 7:51 AM > > Bear in mind that levothyroxine is T4, which is what a healthy thyroid > gland produces. It just makes sense as a first approach to replace > exactly what is missing. That appears to work well for 90% or 95% of > people; but you're the proof that it doesn't work for everyone. > > Best, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2010 Report Share Posted November 8, 2010 It sounds like you are , and I hope you continue to be one of the lucky ones. Barb Re: The Latest > hypothyroidism > <mailto:hypothyroidism%40>; > Date: Sunday, November 7, 2010, 7:41 AM > > When I was diagnosed as hypothyroid my wife exclaimed: You CAN'T be > hypOthyroid; everything about you screams hypErthyroid. I've always had > a fast pulse rate and a hyperactive mind that I cannot quite no matter > how I try. > > I do think my hypothyroidism was discovered _very_ early because I never > had any specific symptoms of it; just the high TSH readings in my annual > exam bloodwork. > > Best, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2010 Report Share Posted November 8, 2010 , There is no doubt that people who get excellent results from standard treatments, are much less likely to be here learning about why they're still not feeling well, or what their latest symptoms might mean. They are probably out doing other things, and don't even think about thyroid problems until it's time to take their pill a day. I'm happy for them. Barb Re: The Latest > hypothyroidism > <mailto:hypothyroidism%40>; > Date: Sunday, November 7, 2010, 7:51 AM > > Bear in mind that levothyroxine is T4, which is what a healthy thyroid > gland produces. It just makes sense as a first approach to replace > exactly what is missing. That appears to work well for 90% or 95% of > people; but you're the proof that it doesn't work for everyone. > > Best, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2010 Report Share Posted November 8, 2010 That is so true. In my case the low TSH was because my body was not converting the T4 to T3 and so it was just flowing around in my blood and never getting into the cells. <>Roni Immortality exists! It's called knowledge! Just because something isn't seen doesn't mean it's not there<> From: flatwoodfarms <marlum@...> Subject: Re: The Latest hypothyroidism Date: Monday, November 8, 2010, 7:27 AM Only considering the TSH may be a little primitive these days when there are credible theories of TSH suppression with a high Reverse T3. In other words, a low TSH does not always indicate a flood of useable hormone at the cellular level. Marla > > I know doctors that check TSH do not put people on enough of T4. > > That is not at all true for the dozen or so doctors that have treated > hypoT people in my family. Out of six of us, two eventually tried T3. > Only one is still on it. > > Chuck > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2010 Report Share Posted November 8, 2010 Cortisol levels are produced by adrenal glands and then work with thyroid hormones. http://www.virginiahopkinstestkits.com/cortisolzava.html <>Roni Immortality exists! It's called knowledge! Just because something isn't seen doesn't mean it's not there<> From: flatwoodfarms <marlum@...> Subject: Re: The Latest hypothyroidism Date: Monday, November 8, 2010, 7:32 AM Roni, I think the cortisol/thyroid interchange runs both ways. Certainly if the metabolism is sluggish, the adrenals may kick into a higher gear to compensate. Marla > > > > > > Thanks . It seemed to be working well, except for the fact I've been losing so much hair on such a small dose. Do you think there are other forms that might not have that side effect? I didn't notice much hair loss until after going on the medication. > > > > Barb > > > > Re: The Latest > > > > > > > > > > Bear in mind that levothyroxine is T4, which is what a healthy thyroid > > gland produces. It just makes sense as a first approach to replace > > exactly what is missing. That appears to work well for 90% or 95% of > > people; but you're the proof that it doesn't work for everyone. > > > > Best, > > > > . > > . > > > > > Posted by: " Roni Molin " matchermaam@ > > > <mailto:matchermaam@?Subject=%20Re%3A%20The%20Latest> > > > matchermaam <matchermaam> > > > > > > > > > Sat Nov 6, 2010 2:44 pm (PDT) > > > > > > > > > > > > I think the levothyroxine is only good for some people. For others, > > > like me, it creates all kinds of > > > reactions. I know Chuck won't agree with me, but if it was me I would > > > stop the levothyroxine. When I got so sick on the Armour which has > > > both levothyroxine and liothyronine, I stopped the > > > medicaton as soon as I realized what was causing it. My wonderful > > > Rheumy had me tested for everything to find out what was making me so > > > sick. When we found out that my body was turning the T4 into RT3 > > > instead of mostly T3, he rxd T3 only for me. I'm still on it and I > > > feel better. I think > > > it's worth a try. Your body will continue to have the levo in your > > > system for weeks anyway. By then, if the nodules are not cancerous, T3 > > > treatment might be the way for you to go without having to > > > have any operations. > > > > > > <>Roni > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2010 Report Share Posted November 9, 2010 Where does your referencecome from for how many people are PROPERLY treated on T4 alone? There are many people that are not feeling well and attribute it to other things, not even realizing that it's because of an undertreated thyroid. <>Roni Immortality exists! It's called knowledge! Just because something isn't seen doesn't mean it's not there<> From: <res075oh@...> Subject: Re: The Latest hypothyroidism Date: Tuesday, November 9, 2010, 7:07 AM OTOH when a patient has symptoms that indicate possible hypothyroidism and a blood test indicates elevated TSH and T4 is prescribed and titrated to the proper TSH level and the symptoms disappear [as happens with about 95% of patients] then there is little incentive [or need] to continue testing. From everything I've seen I suspect the percentage of hypo patients with a reverse T3 problem is probably in the low single digits. If anyone has any different info on that I'd appreciate a reference. .. .. > Posted by: " flatwoodfarms " marlum@... > <mailto:marlum@...?Subject=%20Re%3A%20The%20Latest> > flatwoodfarms <flatwoodfarms> > > > Mon Nov 8, 2010 7:27 am (PST) > > > > Only considering the TSH may be a little primitive these days when > there are credible theories of TSH suppression with a high Reverse T3. > In other words, a low TSH does not always indicate a flood of useable > hormone at the cellular level. > Marla > > > > > I know doctors that check TSH do not put people on enough of T4. > > > > That is not at all true for the dozen or so doctors that have treated > > hypoT people in my family. Out of six of us, two eventually tried T3. > > Only one is still on it. > > > > Chuck ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2010 Report Share Posted November 9, 2010 On 11/9/2010 11:46 AM, Roni Molin wrote: > Where does your referencecome from for how many people are PROPERLY > treated on T4 alone?... About 10 years ago, Armour grossly dominated the dessicated market. In that period the number of levothyroxine prescriptions filled each year was more than 20:1 over Armour. That means more than 95% use T4. If you look up the most commonly prescribed drugs, they group Synthroid and all the generics together. They don't do the same for T3 or dessicated types. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2010 Report Share Posted November 10, 2010 Of course they don't. The prevailing attitude of the AMA is that the only thing to give hypothyroid patients is one of the synthroid meds (T4). However, if a patient is not converting the T4, they are not getting anything (or hardly anything). Under those circumstances I and many others like me become very ill, and if left that way long enough could die. <>Roni Immortality exists! It's called knowledge! Just because something isn't seen doesn't mean it's not there<> > Where does your referencecome from for how many people are PROPERLY > treated on T4 alone?... About 10 years ago, Armour grossly dominated the dessicated market. In that period the number of levothyroxine prescriptions filled each year was more than 20:1 over Armour. That means more than 95% use T4. If you look up the most commonly prescribed drugs, they group Synthroid and all the generics together. They don't do the same for T3 or dessicated types. Chuck ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2010 Report Share Posted November 10, 2010 I don't know if my cortisol was high or not; but I certainly had the high metabolic rate. It never showed in any blood work but I don't know if it is tested in routine check-ups. However, it is unlikely that my thyroid was " languishing " because it was caught when the TSH was just barely above " normal " and then it increased before the next test several weeks later. That's one of the reason I suspect it was caught very early; if my TSH had been increasing at that rate for very long it would have been much higher. Plus I presume I would have developed some of the symptoms often reported. Luck, .. .. > Posted by: " flatwoodfarms " marlum@... > <mailto:marlum@...?Subject=%20Re%3A%20The%20Latest> > flatwoodfarms <flatwoodfarms> > > > Tue Nov 9, 2010 7:53 am (PST) > > > > But it sounds like this was your situation; the higher heart rate may > have been due to high cortisol levels and their effect on the > metabolism, even while the thyroid was languishing. > Marla > > > > > > That certainly was not the case with me. My metabolism was high with > > the higher heart rate that one would expect from a patient who is hypEr > > rather than hypO. We're probably all different in one way or another. > > > > Given the extreme problems that some here have I frankly sometimes have > > a hard time believing I even have the same illness... Despite the > > repeated high TSH results. No symptoms , ever; and I only take 75 > > mcg/day of T4. > > > > It does seem very probable that my hypothyroidism was caught VERY > > early; if I had gone longer with no treatment it's quite possible I > > would have developed the sluggish metabolism and other symptoms. > > > > Luck, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2010 Report Share Posted November 10, 2010 The most definitive info I have is that quoted by Chuck for the number of prescriptions of T4 alone compared to those of Armour when Armour pretty much dominated the T4/T3 combination market. If you're asking if I can PROVE that everyone taking T4 alone is properly treated then you know the answer if you are aware of the nature of scientific " proof " . However, it does seem reasonable to assume that most likely when someone has symptoms of hypothyroidism and go to the doctor and are treated with T4 alone and are sufficiently satisfied with that treatment that they do not seek further treatment that the treatment is most likely effective. There is considerable credible research that supports the fact that if T4 is given to a patient deficient in it it will correct the underlying problem in the majority of cases. I would truly like to see some numbers for the number of patients who have an RT3 problem. I don't doubt they exist but I suspect they are so small that the typical doctor has never run into one... And thus is very unlikely to even think about testing for it. Please, if anyone has any credible info post it here. Regards, .. .. > Posted by: " Roni Molin " matchermaam@... > <mailto:matchermaam@...?Subject=%20Re%3A%20The%20Latest> > matchermaam <matchermaam> > > > Tue Nov 9, 2010 9:46 am (PST) > > > > Where does your reference come from for how many people are PROPERLY > treated on T4 alone? > There are many people that are not feeling well and attribute it to > other things, not even > realizing that it's because of an undertreated thyroid. > > <>Roni > Immortality exists! > It's called knowledge! > > Just because something isn't seen > doesn't mean it's not there<> > > > > From: <res075oh@... <mailto:res075oh%40verizon.net>> > Subject: Re: The Latest > hypothyroidism > <mailto:hypothyroidism%40> > Date: Tuesday, November 9, 2010, 7:07 AM > > OTOH when a patient has symptoms that indicate possible hypothyroidism > and a blood test indicates elevated TSH and T4 is prescribed and > titrated to the proper TSH level and the symptoms disappear [as happens > with about 95% of patients] then there is little incentive [or need] to > continue testing. From everything I've seen I suspect the percentage of > hypo patients with a reverse T3 problem is probably in the low single > digits. If anyone has any different info on that I'd appreciate a > reference. > > > . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2010 Report Share Posted November 10, 2010 That is of course the sad result. It's very painful for you to experience and for those who care about you to know about. And I think you know there are a number here who do in fact care about you, even though we have never met you. Unfortunately I don't have a solution. Personally I suspect the number of hypo patients with an RT3 problem is probably less than one percent; simply based upon the reports I've seen. I don't have any credible source giving an actual number; but am basing it pretty much completely on the absence of any positive evidence. It is possible of course that the number would be shown to be quite a bit higher if everyone were tested for it. It is also possible that there are available numbers and I just haven't seen them. Regards, .. .. > Posted by: " Roni Molin " matchermaam@... > <mailto:matchermaam@...?Subject=%20Re%3A%20The%20Latest> > matchermaam <matchermaam> > > > Tue Nov 9, 2010 4:41 pm (PST) > > > > Of course they don't. The prevailing attitude of the AMA is that the > only thing to give > hypothyroid patients is one of the synthroid meds (T4). However, if a > patient is not > converting the T4, they are not getting anything (or hardly anything). > Under those circumstances I and many others like me become very ill, > and if left that way long enough could die. > > <>Roni > Immortality exists! > It's called knowledge! > > Just because something isn't seen > doesn't mean it's not there<> > > > > Where does your referencecome from for how many people are PROPERLY > > treated on T4 alone?... > > About 10 years ago, Armour grossly dominated the dessicated market. In > that period the number of levothyroxine prescriptions filled each year > was more than 20:1 over Armour. That means more than 95% use T4. If you > look up the most commonly prescribed drugs, they group Synthroid and all > the generics together. They don't do the same for T3 or dessicated types. > > Chuck Quote Link to comment Share on other sites More sharing options...
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