the latest

[Guest guest]

Finally had my appointment today with the infectious dis. doc

at UCSF. And the final word is I will be on Amoxicillin and Clavulanate

Potassium for life. I will have to have blood work at least every

3 months to keep an eye on things so to speak.

The antibiotics are to supress the infections. As the bacteria

wants to attack the hardware, and I will always have my hardware,

I will always have antibiotics.

Dr. Phin~hong also said when I go in for my iliac screw removal,

I may be put on intravenous antibiotic the day before and the day

after surgery so makes it sound like it one be the one day affair

that I had hoped.

I was pretty much prepared for this news, still kinda made me

feel downhearted for a bit. But I have beaten the infections,

and knowing that staph can kill, well I'm feeling pretty good.

Next appt., the 25h with Dr. Hu to see how I have healed so

I can get these screws out.

And that is that!

[Guest guest]

Barb: I feel as you do. Waiting for test and appt's has taken up a lot of our

time. I hate to see it when the new Health Plan goes in fully 2014. Like in

Canada, they comes here, for they will be on a waiting list up to 6 mths or

more, but some do not have the money to do that.

Hope you get results soon as for me, it is a waiting game. ANN

________________________________

From: H <macbarb0503@...>

hypothyroidism

Sent: Wed, November 3, 2010 5:38:28 PM

Subject: The Latest

I called this morning to see whether or not to take a thyroid pill before the

radioactive uptake test and scan tomorrow. The person who answered said I was

supposed to stop taking Levothyroxin 3 weeks ago! The test was scheduled one

week ago, and neither my doctor's office nor the person who called from

Radiology to inform me the test and been scheduled ever mentioned medications.

I was only told to fast from midnight tonight, go there, take a pill, leave for

two hours but not eat, go back, then leave for four more hours and return again.

Now the test can't be done for another 3 weeks.

The reason I called to ask about the Levothyroxin this morning is that I had

read the information below last night. My health care provider knew what

medication I was taking because he prescribed it.

How to Prepare for the Test

You must sign a consent form. You may be told not to eat after midnight the

night before the exam. Tell your health care provider if you are taking any

medications that may need to be adjusted, such as thyroid medication and

anything with iodine in it.

http://www.nlm.nih.gov/medlineplus/ency/article/003829.htm

How do I prepare for the test?

For about a week before a thyroid scan, your doctor may ask you to avoid certain

foods and medicines that can interfere with the results, including thyroid

hormones and shellfish (which contain iodine). You might have to fast entirely

for several hours beforehand if you'll be given a radioactive iodine pill for

the test.You might also need to have blood tests that check thyroid function.

http://www.health.harvard.edu/diagnostic-tests/thyroid-scan.htm

If I hadn't read this or called, I would have gone for the test tomorrow

morning, only to be told they couldn't do it because I've been taking thyroid

medication. Now by the time this test is rescheduled, it will be over four

months since I first became aware of the thyroid problem, and I'm still waiting

to find out exactly what's wrong and how it should be treated.

This afternoon radiology called back to say, " My doctor said he was sorry that

he didn't know Levothyroxin was supposed to be stopped three weeks prior to the

test. " No one from his office called.

I'm fed up. I called the Mayo Clinic in ville, gave them my insurance

information, received a patient number, and faxed them a copy of my bloodwork

and the results of the ultrasound that found the nodules. At the rate things

are going, I might be able to get an appointment in ville before I find

out anything in this town.

Thanks for being here,

Barb

[Guest guest]

Thank you Ann. I hope you get the results from your second opinion soon, so you

can have the surgery, heal, and move on with your life. It will be so good to

have it all behind you.

I talked with a friend at Curves today who was having terrible nerve pain in her

back. After one doctor appointment and x-ray, she went in for micro surgery,

was out within five hours, took a nap, and went back to her normal activities

with no pain! I'm glad her problem was resolved so quickly, and wish ours could

be too. But since wishing won't make it so, we'll have to keep plugging away.

Keep in touch and let us know how you are.

Barb

The Latest

I called this morning to see whether or not to take a thyroid pill before the

radioactive uptake test and scan tomorrow. The person who answered said I was

supposed to stop taking Levothyroxin 3 weeks ago! The test was scheduled one

week ago, and neither my doctor's office nor the person who called from

Radiology to inform me the test and been scheduled ever mentioned medications.

I was only told to fast from midnight tonight, go there, take a pill, leave for

two hours but not eat, go back, then leave for four more hours and return again.

Now the test can't be done for another 3 weeks.

The reason I called to ask about the Levothyroxin this morning is that I had

read the information below last night. My health care provider knew what

medication I was taking because he prescribed it.

How to Prepare for the Test

You must sign a consent form. You may be told not to eat after midnight the

night before the exam. Tell your health care provider if you are taking any

medications that may need to be adjusted, such as thyroid medication and

anything with iodine in it.

http://www.nlm.nih.gov/medlineplus/ency/article/003829.htm

How do I prepare for the test?

For about a week before a thyroid scan, your doctor may ask you to avoid certain

foods and medicines that can interfere with the results, including thyroid

hormones and shellfish (which contain iodine). You might have to fast entirely

for several hours beforehand if you'll be given a radioactive iodine pill for

the test.You might also need to have blood tests that check thyroid function.

http://www.health.harvard.edu/diagnostic-tests/thyroid-scan.htm

If I hadn't read this or called, I would have gone for the test tomorrow

morning, only to be told they couldn't do it because I've been taking thyroid

medication. Now by the time this test is rescheduled, it will be over four

months since I first became aware of the thyroid problem, and I'm still waiting

to find out exactly what's wrong and how it should be treated.

This afternoon radiology called back to say, " My doctor said he was sorry that

he didn't know Levothyroxin was supposed to be stopped three weeks prior to the

test. " No one from his office called.

I'm fed up. I called the Mayo Clinic in ville, gave them my insurance

information, received a patient number, and faxed them a copy of my bloodwork

and the results of the ultrasound that found the nodules. At the rate things

are going, I might be able to get an appointment in ville before I find

out anything in this town.

Thanks for being here,

Barb

[Guest guest]

On 11/3/2010 4:38 PM, H wrote:

>

> I called this morning to see whether or not to take a thyroid pill

> before the radioactive uptake test and scan tomorrow. The person who

> answered said I was supposed to stop taking Levothyroxin 3 weeks ago!

> The test was scheduled one week ago, and neither my doctor's office nor

> the person who called from Radiology to inform me the test and been

> scheduled ever mentioned medications....

Amazing. Sorry you are having to deal with this.

At least the doctor admitted to not knowing the proper procedure.

Chuck

[Guest guest]

Good for you that you looked up the info and called and good for you that you

contacted  the MAYO CLINIC. This is one of the things that drives me crazy about

doctors. They don't seem to know what they are doing. I think the ones like that

are really dangerous.

<>Roni

Immortality exists!

It's called knowledge!

 

Just because something isn't seen

doesn't mean it's not there<>

From: H <macbarb0503@...>

Subject: The Latest

hypothyroidism

Date: Wednesday, November 3, 2010, 2:38 PM

I called this morning to see whether or not to take a thyroid pill before the

radioactive uptake test and scan tomorrow.  The person who answered said I was

supposed to stop taking Levothyroxin 3 weeks ago!  The test was scheduled one

week ago, and neither my doctor's office nor the person who called from

Radiology to inform me the test and been scheduled ever mentioned medications. 

I was only told to fast from midnight tonight, go there, take a pill, leave for

two hours but not eat, go back, then leave for four more hours and return

again.  Now the test can't be done for another 3 weeks.

The reason I called to ask about the Levothyroxin this morning is that I had

read the information below last night.  My health care provider knew what

medication I was taking because he prescribed it.

How to Prepare for the Test

You must sign a consent form. You may be told not to eat after midnight the

night before the exam.  Tell your health care provider if you are taking any

medications that may need to be adjusted, such as thyroid medication and

anything with iodine in it.

http://www.nlm.nih.gov/medlineplus/ency/article/003829.htm

How do I prepare for the test?

For about a week before a thyroid scan, your doctor may ask you to avoid certain

foods and medicines that can interfere with the results, including thyroid

hormones and shellfish (which contain iodine). You might have to fast entirely

for several hours beforehand if you'll be given a radioactive iodine pill for

the test.You might also need to have blood tests that check thyroid function.

http://www.health.harvard.edu/diagnostic-tests/thyroid-scan.htm

If I hadn't read this or called, I would have gone for the test tomorrow

morning, only to be told they couldn't do it because I've been taking thyroid

medication.  Now by the time this test is rescheduled, it will be over four

months since I first became aware of the thyroid problem, and I'm still waiting

to find out exactly what's wrong and how it should be treated.

This afternoon radiology called back to say, " My doctor said he was sorry that

he didn't know Levothyroxin was supposed to be stopped three weeks prior to the

test. "   No one from his office called.

I'm fed up.  I called the Mayo Clinic in ville, gave them my insurance

information, received a patient number, and faxed them a copy of my bloodwork

and the results of the ultrasound that found the nodules.  At the rate things

are going, I might be able to get an appointment in ville before I find

out anything in this town.

Thanks for being here,

Barb

[Guest guest]

Barb,

You wrote:

>

> ... Unless

> somehow I get an appointment at the Mayo Clinic sooner, which doesn't

> seem likely, we will be into December before the uptake test and scan

> results are known. If a needle biopsy is required after that, it could

> be next year before a diagnosis is made, since there are so many

> vacations from Thanksgiving through the New Year. By then it will be

> going on five months since the first blood test showed there was a

> thyroid problem....

You make a good case for just going ahead with the test. The difference

between 3 mCi and 0.1 mCi is pretty nil, considering how rapidly iodine

clears from the system. I would consider the risk of waiting to be

worse, even though the nodules are most likely to be benign.

Chuck

[Guest guest]

Thanks Chuck. I had already made that decision and planned to have it this

week, until I found out I couldn't. Now it can't be done until November 30th,

because that's the first available appointment after three weeks without the

meds.

I read today that a needle biopsy is the best and only way to check for Cancer.

So when I go to the endocronoligist on the 17th, I plan to ask him about that.

" * Consider early referral to a endocrinologist specialist for FNAB of the

thyroid before performing any diagnostic imaging.

Obtain thyroid FNAB through consultation with an endocrinologist, pathologist,

or surgeon.

Consult a radiologist or endocrinologist for guidance on ultrasonography or

ultrasound-directed FNAB. "

http://enotes.tripod.com/thyroid-nodule.htm

What do you think?

Barb

" * Consider early referral to a endocrinologist specialist for FNAB of the

thyroid before performing any diagnostic imaging.

Obtain thyroid FNAB through consultation with an endocrinologist, pathologist,

or surgeon.

Consult a radiologist or endocrinologist for guidance on ultrasonography or

ultrasound-directed FNAB. "

http://enotes.tripod.com/thyroid-nodule.htm

What do you think?

Barb

Re: The Latest

Barb,

You wrote:

>

> ... Unless

> somehow I get an appointment at the Mayo Clinic sooner, which doesn't

> seem likely, we will be into December before the uptake test and scan

> results are known. If a needle biopsy is required after that, it could

> be next year before a diagnosis is made, since there are so many

> vacations from Thanksgiving through the New Year. By then it will be

> going on five months since the first blood test showed there was a

> thyroid problem....

You make a good case for just going ahead with the test. The difference

between 3 mCi and 0.1 mCi is pretty nil, considering how rapidly iodine

clears from the system. I would consider the risk of waiting to be

worse, even though the nodules are most likely to be benign.

Chuck

[Guest guest]

Not to add to your worries but I've read that needle biopsy is not 100%

accurate. I read of a case in which it was negative and yet the nodule

was later found to be malignant. Unfortunately I don't know how often

that could happen.

Please keep in mind: 1] Most nodules are benign; and 2] When they are

not it's one of the most easily treated cancers.

Luck,

..

..

>

> Posted by: " H " macbarb0503@...

> <mailto:macbarb0503@...?Subject=%20Re%3A%20The%20Latest>

> westieabbey <westieabbey>

>

>

> Fri Nov 5, 2010 8:55 pm (PDT)

>

>

>

>

> Thanks Chuck. I had already made that decision and planned to have it

> this week, until I found out I couldn't. Now it can't be done until

> November 30th, because that's the first available appointment after

> three weeks without the meds.

>

> I read today that a needle biopsy is the best and only way to check

> for Cancer. So when I go to the endocronoligist on the 17th, I plan to

> ask him about that.

[Guest guest]

Thanks . I am keeping those things in mind, and knowing them helps me to

stay calm while waiting for further diagnosis.

After reading the information below, it just seemed to make sense to do the

biopsy before the iodine uptake test and scan. In the minority of cases where

there is a malignancy, the thyroid will be removed anyway, and in those cases

who cares how it's functioning? It might also be removed because of a

multi-nodular goiter.

Since my doctor appended the ultrasound report by adding he was referring me to

an endocronologist for a multi-nodular goiter, and to make sure the nodules are

benign, it seems the first priority would be to do a biopsy. At least that's

what the following quote implies.

" Multi-nodular goiter: patients with multiple thyroid nodules have the same

risk of malignancy as those with solitary nodule. A diagnostic ultrasound

should be performed to delineate the nodules. In the presence of two or more

thyroid nodules larger than 1-1.5 cm, those with a suspicious sonographic

appearance should be aspirated preferentially.

* Consider early referral to a endocrinologist specialist for FNAB of the

thyroid before performing any diagnostic imaging.

Obtain thyroid FNAB through consultation with an endocrinologist, pathologist,

or surgeon.

Consult a radiologist or endocrinologist for guidance on ultrasonography or

ultrasound-directed FNAB. "

http://enotes.tripod.com/thyroid-nodule.htm

My report says the largest nodule is 1.7 x 1.1 x 1.0 cm., and that there are

several small nodules bilaterally. Strangely, the report gives larger

measurements for the right side of the thyroid than the left. The noticable

bump on my neck is on the left. Another thing that seems inconsistent, is being

diagnosed with Hypothyroidism and having an fast pulse rate, instead of a slower

one.

I hope I'm not boring you with all of this,but I also saw something else that

seems like it might be relevant yesteday. It's series of videos on how to do a

thyroid exam. The one at the bottom, #7 shows thumping the chest under the

thyroid, which is exactly why I went to the doctor back in August. That is the

area where I developed a raised area about the size of an egg, but only slightly

raised. When I asked the doctor if it had anything to do with my thyroid he

said no, and pointed out where the thyroid is located, which I already knew. He

said it was a fatty tumor, but did no test on it. Even after viewing the video,

I don't understand how it relates to thyroid disease. The video is very short.

If anyone takes the time to watch the video and understands what it means, or

how it's related, I would appreciate your input. In fact, I appreciate all

feedback.

http://stanford25.wordpress.com/thyroid-exam/

It would have been good if there had been a prompt and thorough diagnosis, so I

wouldn't be doing Internet searches and trying to figure things out while

waiting for appointments and tests. LOL! The good news is, I'm learning and

hope others are too.

Thanks,

Barb

Re: The Latest

Not to add to your worries but I've read that needle biopsy is not 100%

accurate. I read of a case in which it was negative and yet the nodule

was later found to be malignant. Unfortunately I don't know how often

that could happen.

Please keep in mind: 1] Most nodules are benign; and 2] When they are

not it's one of the most easily treated cancers.

Luck,

..

..

>

> Posted by: " H " macbarb0503@...

> <mailto:macbarb0503@...?Subject=%20Re%3A%20The%20Latest>

> westieabbey <westieabbey>

>

>

> Fri Nov 5, 2010 8:55 pm (PDT)

>

>

>

>

> Thanks Chuck. I had already made that decision and planned to have it

> this week, until I found out I couldn't. Now it can't be done until

> November 30th, because that's the first available appointment after

> three weeks without the meds.

>

> I read today that a needle biopsy is the best and only way to check

> for Cancer. So when I go to the endocronoligist on the 17th, I plan to

> ask him about that.

[Guest guest]

Barb this video doesn't seem done for patients but rather for doctors. His name

gave me a start too (Dr. G-d bless you) which is what his name means in German.

The whole thing just didn't impress me as something I would bet on, even though

his  examining techniques were correct.

<>Roni

Immortality exists!

It's called knowledge!

 

Just because something isn't seen

doesn't mean it's not there<>

From: H <macbarb0503@...>

Subject: Re: Re: The Latest

hypothyroidism

Date: Saturday, November 6, 2010, 9:37 AM

Thanks .  I am keeping those things in mind, and knowing them helps me to

stay calm while waiting for further diagnosis.

After reading the information below, it just seemed to make sense to do the

biopsy before the iodine uptake test and scan.  In the minority of cases where

there is a malignancy, the thyroid will be removed anyway, and in those cases

who cares how it's functioning?  It might also be removed because of a

multi-nodular goiter.

Since my doctor appended the ultrasound report by adding he was referring me to

an endocronologist for a multi-nodular goiter, and to make sure the nodules are

benign, it seems the first priority would be to do a biopsy.  At least that's

what the following quote implies.

" Multi-nodular goiter:  patients with multiple thyroid nodules have the same

risk of malignancy as those with solitary nodule.  A diagnostic ultrasound

should be performed to delineate the nodules.  In the presence of two or more

thyroid nodules larger than 1-1.5 cm, those with a suspicious sonographic

appearance should be aspirated preferentially.

* Consider early referral to a endocrinologist specialist for FNAB of the

thyroid before performing any diagnostic imaging.

Obtain thyroid FNAB through consultation with an endocrinologist, pathologist,

or surgeon.

Consult a radiologist or endocrinologist for guidance on ultrasonography or

ultrasound-directed FNAB. "

http://enotes.tripod.com/thyroid-nodule.htm

My report says the largest nodule is 1.7 x 1.1 x 1.0 cm., and that there are

several small nodules bilaterally.  Strangely, the report gives larger

measurements for the right side of the thyroid than the left.  The noticable

bump on my neck is on the left.  Another thing that seems inconsistent, is being

diagnosed with Hypothyroidism and having an fast pulse rate, instead of a slower

one.

I hope I'm not boring you with all of this,but  I also saw something else that

seems like it might be relevant yesteday.  It's series of videos on how to do a

thyroid exam.  The one at the bottom, #7 shows thumping the chest under the

thyroid, which is exactly why I went to the doctor back in August.  That is the

area where I developed a raised area about the size of an egg, but only slightly

raised.  When I asked the doctor if it had anything to do with my thyroid he

said no, and pointed out where the thyroid is located, which I already knew.  He

said it was a fatty tumor, but did no test on it.  Even after viewing the video,

I don't understand how it relates to thyroid disease.  The video is very short. 

If anyone takes the time to watch the video and understands what it means, or

how it's related, I would appreciate your input.  In fact, I appreciate all

feedback.

http://stanford25.wordpress.com/thyroid-exam/

It would have been good if there had been a prompt and thorough diagnosis, so I

wouldn't be doing Internet searches and trying to figure things out while

waiting for appointments and tests.  LOL!  The good news is, I'm learning and

hope others are too.

Thanks,

Barb

Re: The Latest

Not to add to your worries but I've read that needle biopsy is not 100%

accurate. I read of a case in which it was negative and yet the nodule

was later found to be malignant. Unfortunately I don't know how often

that could happen.

Please keep in mind: 1] Most nodules are benign; and 2] When they are

not it's one of the most easily treated cancers.

Luck,

..

..

>

> Posted by: " H " macbarb0503@...

> <mailto:macbarb0503@...?Subject=%20Re%3A%20The%20Latest>

> westieabbey <westieabbey>

>

>

> Fri Nov 5, 2010 8:55 pm (PDT)

>

>

>

>

> Thanks Chuck. I had already made that decision and planned to have it

> this week, until I found out I couldn't. Now it can't be done until

> November 30th, because that's the first available appointment after

> three weeks without the meds.

>

> I read today that a needle biopsy is the best and only way to check

> for Cancer. So when I go to the endocronoligist on the 17th, I plan to

> ask him about that.

[Guest guest]

Thanks Roni. I got the impression that it was done for doctors also, which

makes me feel better about not understanding that last video. I didn't notice

his name. Thanks for pointing that out. He said when he tapped his fingers in

that area, it was resonant. I noticed by tapping my fingers there my upper

chest is resonant too, but not where the hump is. I wondered if it could be a

soft goiter down there. Obviously, I don't have a clue. LOL!

Re: The Latest

Not to add to your worries but I've read that needle biopsy is not 100%

accurate. I read of a case in which it was negative and yet the nodule

was later found to be malignant. Unfortunately I don't know how often

that could happen.

Please keep in mind: 1] Most nodules are benign; and 2] When they are

not it's one of the most easily treated cancers.

Luck,

..

..

>

> Posted by: " H " macbarb0503@...

> <mailto:macbarb0503@...?Subject=%20Re%3A%20The%20Latest>

> westieabbey <westieabbey>

>

>

> Fri Nov 5, 2010 8:55 pm (PDT)

>

>

>

>

> Thanks Chuck. I had already made that decision and planned to have it

> this week, until I found out I couldn't. Now it can't be done until

> November 30th, because that's the first available appointment after

> three weeks without the meds.

>

> I read today that a needle biopsy is the best and only way to check

> for Cancer. So when I go to the endocronoligist on the 17th, I plan to

> ask him about that.

[Guest guest]

Not everyone has to have a non cancerous goiter removed. By suppressing the TSH

with T3, the

goiter has a good chance of shrinking and going away. I still would not get the

needle biopsy first. As Chuck said, you don't want to open the capsule in case

it is cancerous. I would wait for the

radiography tests to be done. These things are very slow growning, no matter if

they are malignant or not, so there is no huge rush. If the doctors felt it was

necessary, I'm sure they would have ordered it first.

 

 

<>Roni

Immortality exists!

It's called knowledge!

 

Just because something isn't seen

doesn't mean it's not there<>

From: H <macbarb0503@...>

Subject: Re: Re: The Latest

hypothyroidism

Date: Saturday, November 6, 2010, 9:37 AM

Thanks .  I am keeping those things in mind, and knowing them helps me to

stay calm while waiting for further diagnosis.

After reading the information below, it just seemed to make sense to do the

biopsy before the iodine uptake test and scan.  In the minority of cases where

there is a malignancy, the thyroid will be removed anyway, and in those cases

who cares how it's functioning?  It might also be removed because of a

multi-nodular goiter.

Since my doctor appended the ultrasound report by adding he was referring me to

an endocronologist for a multi-nodular goiter, and to make sure the nodules are

benign, it seems the first priority would be to do a biopsy.  At least that's

what the following quote implies.

" Multi-nodular goiter:  patients with multiple thyroid nodules have the same

risk of malignancy as those with solitary nodule.  A diagnostic ultrasound

should be performed to delineate the nodules.  In the presence of two or more

thyroid nodules larger than 1-1.5 cm, those with a suspicious sonographic

appearance should be aspirated preferentially.

* Consider early referral to a endocrinologist specialist for FNAB of the

thyroid before performing any diagnostic imaging.

Obtain thyroid FNAB through consultation with an endocrinologist, pathologist,

or surgeon.

Consult a radiologist or endocrinologist for guidance on ultrasonography or

ultrasound-directed FNAB. "

http://enotes.tripod.com/thyroid-nodule.htm

My report says the largest nodule is 1.7 x 1.1 x 1.0 cm., and that there are

several small nodules bilaterally.  Strangely, the report gives larger

measurements for the right side of the thyroid than the left.  The noticable

bump on my neck is on the left.  Another thing that seems inconsistent, is being

diagnosed with Hypothyroidism and having an fast pulse rate, instead of a slower

one.

I hope I'm not boring you with all of this,but  I also saw something else that

seems like it might be relevant yesteday.  It's series of videos on how to do a

thyroid exam.  The one at the bottom, #7 shows thumping the chest under the

thyroid, which is exactly why I went to the doctor back in August.  That is the

area where I developed a raised area about the size of an egg, but only slightly

raised.  When I asked the doctor if it had anything to do with my thyroid he

said no, and pointed out where the thyroid is located, which I already knew.  He

said it was a fatty tumor, but did no test on it.  Even after viewing the video,

I don't understand how it relates to thyroid disease.  The video is very short. 

If anyone takes the time to watch the video and understands what it means, or

how it's related, I would appreciate your input.  In fact, I appreciate all

feedback.

http://stanford25.wordpress.com/thyroid-exam/

It would have been good if there had been a prompt and thorough diagnosis, so I

wouldn't be doing Internet searches and trying to figure things out while

waiting for appointments and tests.  LOL!  The good news is, I'm learning and

hope others are too.

Thanks,

Barb

Re: The Latest

Not to add to your worries but I've read that needle biopsy is not 100%

accurate. I read of a case in which it was negative and yet the nodule

was later found to be malignant. Unfortunately I don't know how often

that could happen.

Please keep in mind: 1] Most nodules are benign; and 2] When they are

not it's one of the most easily treated cancers.

Luck,

..

..

>

> Posted by: " H " macbarb0503@...

> <mailto:macbarb0503@...?Subject=%20Re%3A%20The%20Latest>

> westieabbey <westieabbey>

>

>

> Fri Nov 5, 2010 8:55 pm (PDT)

>

>

>

>

> Thanks Chuck. I had already made that decision and planned to have it

> this week, until I found out I couldn't. Now it can't be done until

> November 30th, because that's the first available appointment after

> three weeks without the meds.

>

> I read today that a needle biopsy is the best and only way to check

> for Cancer. So when I go to the endocronoligist on the 17th, I plan to

> ask him about that.

[Guest guest]

Thanks Roni. That makes sense. The funny thing is, I didn't get the bump on my

neck until the middle of October. The doctor examined my neck in the middle of

August, and there was nothing unusual, so he prescribed Levothyroxin. Does it

seem strange that the lump appeared two months later? I think it was Chuck who

said it could be the result of undertreatment.

Barb

Re: The Latest

Not to add to your worries but I've read that needle biopsy is not 100%

accurate. I read of a case in which it was negative and yet the nodule

was later found to be malignant. Unfortunately I don't know how often

that could happen.

Please keep in mind: 1] Most nodules are benign; and 2] When they are

not it's one of the most easily treated cancers.

Luck,

..

..

>

> Posted by: " H " macbarb0503@...

> <mailto:macbarb0503@...?Subject=%20Re%3A%20The%20Latest>

> westieabbey <westieabbey>

>

>

> Fri Nov 5, 2010 8:55 pm (PDT)

>

>

>

>

> Thanks Chuck. I had already made that decision and planned to have it

> this week, until I found out I couldn't. Now it can't be done until

> November 30th, because that's the first available appointment after

> three weeks without the meds.

>

> I read today that a needle biopsy is the best and only way to check

> for Cancer. So when I go to the endocronoligist on the 17th, I plan to

> ask him about that.

[Guest guest]

I think the levothyroxine is only good for some people. For others, like me, it

creates all kinds of

reactions. I know Chuck won't agree with me, but if it was me I would stop the

levothyroxine. When I got so sick on the Armour which has both levothyroxine and

liothyronine, I stopped the

medicaton as soon as I realized what was causing it. My wonderful Rheumy had me

tested for everything to find out what was making me so sick. When we found out

that my body was turning the T4 into RT3 instead of mostly T3, he rxd T3 only

for me. I'm still on it and I feel better. I think

it's worth a try. Your body will continue to have the levo in your system for

weeks anyway. By then, if the nodules are not cancerous, T3 treatment might be

the way for you to go without having to

have any operations.

<>Roni

Immortality exists!

It's called knowledge!

 

Just because something isn't seen

doesn't mean it's not there<>

From: H <macbarb0503@...>

Subject: Re: Re: The Latest

hypothyroidism

Date: Saturday, November 6, 2010, 9:37 AM

Thanks .  I am keeping those things in mind, and knowing them helps me to

stay calm while waiting for further diagnosis.

After reading the information below, it just seemed to make sense to do the

biopsy before the iodine uptake test and scan.  In the minority of cases where

there is a malignancy, the thyroid will be removed anyway, and in those cases

who cares how it's functioning?  It might also be removed because of a

multi-nodular goiter.

Since my doctor appended the ultrasound report by adding he was referring me to

an endocronologist for a multi-nodular goiter, and to make sure the nodules are

benign, it seems the first priority would be to do a biopsy.  At least that's

what the following quote implies.

" Multi-nodular goiter:  patients with multiple thyroid nodules have the same

risk of malignancy as those with solitary nodule.  A diagnostic ultrasound

should be performed to delineate the nodules.  In the presence of two or more

thyroid nodules larger than 1-1.5 cm, those with a suspicious sonographic

appearance should be aspirated preferentially.

* Consider early referral to a endocrinologist specialist for FNAB of the

thyroid before performing any diagnostic imaging.

Obtain thyroid FNAB through consultation with an endocrinologist, pathologist,

or surgeon.

Consult a radiologist or endocrinologist for guidance on ultrasonography or

ultrasound-directed FNAB. "

http://enotes.tripod.com/thyroid-nodule.htm

My report says the largest nodule is 1.7 x 1.1 x 1.0 cm., and that there are

several small nodules bilaterally.  Strangely, the report gives larger

measurements for the right side of the thyroid than the left.  The noticable

bump on my neck is on the left.  Another thing that seems inconsistent, is being

diagnosed with Hypothyroidism and having an fast pulse rate, instead of a slower

one.

I hope I'm not boring you with all of this,but  I also saw something else that

seems like it might be relevant yesteday.  It's series of videos on how to do a

thyroid exam.  The one at the bottom, #7 shows thumping the chest under the

thyroid, which is exactly why I went to the doctor back in August.  That is the

area where I developed a raised area about the size of an egg, but only slightly

raised.  When I asked the doctor if it had anything to do with my thyroid he

said no, and pointed out where the thyroid is located, which I already knew.  He

said it was a fatty tumor, but did no test on it.  Even after viewing the video,

I don't understand how it relates to thyroid disease.  The video is very short. 

If anyone takes the time to watch the video and understands what it means, or

how it's related, I would appreciate your input.  In fact, I appreciate all

feedback.

http://stanford25.wordpress.com/thyroid-exam/

It would have been good if there had been a prompt and thorough diagnosis, so I

wouldn't be doing Internet searches and trying to figure things out while

waiting for appointments and tests.  LOL!  The good news is, I'm learning and

hope others are too.

Thanks,

Barb

Re: The Latest

Not to add to your worries but I've read that needle biopsy is not 100%

accurate. I read of a case in which it was negative and yet the nodule

was later found to be malignant. Unfortunately I don't know how often

that could happen.

Please keep in mind: 1] Most nodules are benign; and 2] When they are

not it's one of the most easily treated cancers.

Luck,

..

..

>

> Posted by: " H " macbarb0503@...

> <mailto:macbarb0503@...?Subject=%20Re%3A%20The%20Latest>

> westieabbey <westieabbey>

>

>

> Fri Nov 5, 2010 8:55 pm (PDT)

>

>

>

>

> Thanks Chuck. I had already made that decision and planned to have it

> this week, until I found out I couldn't. Now it can't be done until

> November 30th, because that's the first available appointment after

> three weeks without the meds.

>

> I read today that a needle biopsy is the best and only way to check

> for Cancer. So when I go to the endocronoligist on the 17th, I plan to

> ask him about that.

[Guest guest]

Roni,

I'm glad you stopped the medication when you realized it was causing problems,

and best of all, you're feeling beter! It's good your doctor cared enough to

order tests that isolated the problem, and prescribed something that works

better for you.

I did stop the Levothyroxin. Since I read yesterday that a listed side effect

is hair loss, and if you're experiencing that you should ask for a different

medication, I stopped it a few days early. My hair had been thinning very

gradually over the years, which is not unusual. Since I've been on Levothyroxin

it's been coming out in my hairbrush like never before. So, after further

testing and whatever follows, I will ask for a different medication.

Thanks,

Barb

Re: The Latest

Not to add to your worries but I've read that needle biopsy is not 100%

accurate. I read of a case in which it was negative and yet the nodule

was later found to be malignant. Unfortunately I don't know how often

that could happen.

Please keep in mind: 1] Most nodules are benign; and 2] When they are

not it's one of the most easily treated cancers.

Luck,

..

..

>

> Posted by: " H " macbarb0503@...

> <mailto:macbarb0503@...?Subject=%20Re%3A%20The%20Latest>

> westieabbey <westieabbey>

>

>

> Fri Nov 5, 2010 8:55 pm (PDT)

>

>

>

>

> Thanks Chuck. I had already made that decision and planned to have it

> this week, until I found out I couldn't. Now it can't be done until

> November 30th, because that's the first available appointment after

> three weeks without the meds.

>

> I read today that a needle biopsy is the best and only way to check

> for Cancer. So when I go to the endocronoligist on the 17th, I plan to

> ask him about that.

[Guest guest]

Cytomel or the generic Liothyronine is the only hormone without levothyroxine in

it. It has to be administered differently and the dose started very slowly and

then increased about every two weeks or so. I started with 5 mcg. Here's a site

that talks about it. There are other sites too.

 

http://www.drugs.com/pro/cytomel.html

<>Roni

Immortality exists!

It's called knowledge!

 

Just because something isn't seen

doesn't mean it's not there<>

From: H <macbarb0503@...>

Subject: Re: Re: The Latest

hypothyroidism

Date: Saturday, November 6, 2010, 9:37 AM

Thanks .  I am keeping those things in mind, and knowing them helps me to

stay calm while waiting for further diagnosis.

After reading the information below, it just seemed to make sense to do the

biopsy before the iodine uptake test and scan.  In the minority of cases where

there is a malignancy, the thyroid will be removed anyway, and in those cases

who cares how it's functioning?  It might also be removed because of a

multi-nodular goiter.

Since my doctor appended the ultrasound report by adding he was referring me to

an endocronologist for a multi-nodular goiter, and to make sure the nodules are

benign, it seems the first priority would be to do a biopsy.  At least that's

what the following quote implies.

" Multi-nodular goiter:  patients with multiple thyroid nodules have the same

risk of malignancy as those with solitary nodule.  A diagnostic ultrasound

should be performed to delineate the nodules.  In the presence of two or more

thyroid nodules larger than 1-1.5 cm, those with a suspicious sonographic

appearance should be aspirated preferentially.

* Consider early referral to a endocrinologist specialist for FNAB of the

thyroid before performing any diagnostic imaging.

Obtain thyroid FNAB through consultation with an endocrinologist, pathologist,

or surgeon.

Consult a radiologist or endocrinologist for guidance on ultrasonography or

ultrasound-directed FNAB. "

http://enotes.tripod.com/thyroid-nodule.htm

My report says the largest nodule is 1.7 x 1.1 x 1.0 cm., and that there are

several small nodules bilaterally.  Strangely, the report gives larger

measurements for the right side of the thyroid than the left.  The noticable

bump on my neck is on the left.  Another thing that seems inconsistent, is being

diagnosed with Hypothyroidism and having an fast pulse rate, instead of a slower

one.

I hope I'm not boring you with all of this,but  I also saw something else that

seems like it might be relevant yesteday.  It's series of videos on how to do a

thyroid exam.  The one at the bottom, #7 shows thumping the chest under the

thyroid, which is exactly why I went to the doctor back in August.  That is the

area where I developed a raised area about the size of an egg, but only slightly

raised.  When I asked the doctor if it had anything to do with my thyroid he

said no, and pointed out where the thyroid is located, which I already knew.  He

said it was a fatty tumor, but did no test on it.  Even after viewing the video,

I don't understand how it relates to thyroid disease.  The video is very short. 

If anyone takes the time to watch the video and understands what it means, or

how it's related, I would appreciate your input.  In fact, I appreciate all

feedback.

http://stanford25.wordpress.com/thyroid-exam/

It would have been good if there had been a prompt and thorough diagnosis, so I

wouldn't be doing Internet searches and trying to figure things out while

waiting for appointments and tests.  LOL!  The good news is, I'm learning and

hope others are too.

Thanks,

Barb

Re: The Latest

Not to add to your worries but I've read that needle biopsy is not 100%

accurate. I read of a case in which it was negative and yet the nodule

was later found to be malignant. Unfortunately I don't know how often

that could happen.

Please keep in mind: 1] Most nodules are benign; and 2] When they are

not it's one of the most easily treated cancers.

Luck,

..

..

>

> Posted by: " H " macbarb0503@...

> <mailto:macbarb0503@...?Subject=%20Re%3A%20The%20Latest>

> westieabbey <westieabbey>

>

>

> Fri Nov 5, 2010 8:55 pm (PDT)

>

>

>

>

> Thanks Chuck. I had already made that decision and planned to have it

> this week, until I found out I couldn't. Now it can't be done until

> November 30th, because that's the first available appointment after

> three weeks without the meds.

>

> I read today that a needle biopsy is the best and only way to check

> for Cancer. So when I go to the endocronoligist on the 17th, I plan to

> ask him about that.

[Guest guest]

Thanks Roni. I've saved the information. There is so much to learn!

Barb

Re: The Latest

Not to add to your worries but I've read that needle biopsy is not 100%

accurate. I read of a case in which it was negative and yet the nodule

was later found to be malignant. Unfortunately I don't know how often

that could happen.

Please keep in mind: 1] Most nodules are benign; and 2] When they are

not it's one of the most easily treated cancers.

Luck,

..

..

>

> Posted by: " H " macbarb0503@...

> <mailto:macbarb0503@...?Subject=%20Re%3A%20The%20Latest>

> westieabbey <westieabbey>

>

>

> Fri Nov 5, 2010 8:55 pm (PDT)

>

>

>

>

> Thanks Chuck. I had already made that decision and planned to have it

> this week, until I found out I couldn't. Now it can't be done until

> November 30th, because that's the first available appointment after

> three weeks without the meds.

>

> I read today that a needle biopsy is the best and only way to check

> for Cancer. So when I go to the endocronoligist on the 17th, I plan to

> ask him about that.

[Guest guest]

I know, it's really mind boggling. I'hope you paid particular attention to the

part that said suppression of the TSH could be used to strink and treat single

and multinodular lumps.

<>Roni

Immortality exists!

It's called knowledge!

 

Just because something isn't seen

doesn't mean it's not there<>

From: H <macbarb0503@...>

Subject: Re: Re: The Latest

hypothyroidism

Date: Saturday, November 6, 2010, 9:37 AM

Thanks .  I am keeping those things in mind, and knowing them helps me to

stay calm while waiting for further diagnosis.

After reading the information below, it just seemed to make sense to do the

biopsy before the iodine uptake test and scan.  In the minority of cases where

there is a malignancy, the thyroid will be removed anyway, and in those cases

who cares how it's functioning?  It might also be removed because of a

multi-nodular goiter.

Since my doctor appended the ultrasound report by adding he was referring me to

an endocronologist for a multi-nodular goiter, and to make sure the nodules are

benign, it seems the first priority would be to do a biopsy.  At least that's

what the following quote implies.

" Multi-nodular goiter:  patients with multiple thyroid nodules have the same

risk of malignancy as those with solitary nodule.  A diagnostic ultrasound

should be performed to delineate the nodules.  In the presence of two or more

thyroid nodules larger than 1-1.5 cm, those with a suspicious sonographic

appearance should be aspirated preferentially.

* Consider early referral to a endocrinologist specialist for FNAB of the

thyroid before performing any diagnostic imaging.

Obtain thyroid FNAB through consultation with an endocrinologist, pathologist,

or surgeon.

Consult a radiologist or endocrinologist for guidance on ultrasonography or

ultrasound-directed FNAB. "

http://enotes.tripod.com/thyroid-nodule.htm

My report says the largest nodule is 1.7 x 1.1 x 1.0 cm., and that there are

several small nodules bilaterally.  Strangely, the report gives larger

measurements for the right side of the thyroid than the left.  The noticable

bump on my neck is on the left.  Another thing that seems inconsistent, is being

diagnosed with Hypothyroidism and having an fast pulse rate, instead of a slower

one.

I hope I'm not boring you with all of this,but  I also saw something else that

seems like it might be relevant yesteday.  It's series of videos on how to do a

thyroid exam.  The one at the bottom, #7 shows thumping the chest under the

thyroid, which is exactly why I went to the doctor back in August.  That is the

area where I developed a raised area about the size of an egg, but only slightly

raised.  When I asked the doctor if it had anything to do with my thyroid he

said no, and pointed out where the thyroid is located, which I already knew.  He

said it was a fatty tumor, but did no test on it.  Even after viewing the video,

I don't understand how it relates to thyroid disease.  The video is very short. 

If anyone takes the time to watch the video and understands what it means, or

how it's related, I would appreciate your input.  In fact, I appreciate all

feedback.

http://stanford25.wordpress.com/thyroid-exam/

It would have been good if there had been a prompt and thorough diagnosis, so I

wouldn't be doing Internet searches and trying to figure things out while

waiting for appointments and tests.  LOL!  The good news is, I'm learning and

hope others are too.

Thanks,

Barb

Re: The Latest

Not to add to your worries but I've read that needle biopsy is not 100%

accurate. I read of a case in which it was negative and yet the nodule

was later found to be malignant. Unfortunately I don't know how often

that could happen.

Please keep in mind: 1] Most nodules are benign; and 2] When they are

not it's one of the most easily treated cancers.

Luck,

..

..

>

> Posted by: " H " macbarb0503@...

> <mailto:macbarb0503@...?Subject=%20Re%3A%20The%20Latest>

> westieabbey <westieabbey>

>

>

> Fri Nov 5, 2010 8:55 pm (PDT)

>

>

>

>

> Thanks Chuck. I had already made that decision and planned to have it

> this week, until I found out I couldn't. Now it can't be done until

> November 30th, because that's the first available appointment after

> three weeks without the meds.

>

> I read today that a needle biopsy is the best and only way to check

> for Cancer. So when I go to the endocronoligist on the 17th, I plan to

> ask him about that.

[Guest guest]

When I was diagnosed as hypothyroid my wife exclaimed: You CAN'T be

hypOthyroid; everything about you screams hypErthyroid. I've always had

a fast pulse rate and a hyperactive mind that I cannot quite no matter

how I try.

I do think my hypothyroidism was discovered _very_ early because I never

had any specific symptoms of it; just the high TSH readings in my annual

exam bloodwork.

Best,

..

..

>

> Posted by: " H " macbarb0503@...

> <mailto:macbarb0503@...?Subject=%20Re%3A%20The%20Latest>

> westieabbey <westieabbey>

>

>

> Sat Nov 6, 2010 9:38 am (PDT)

>

>

> Another thing that seems inconsistent, is being diagnosed with

> Hypothyroidism and having an fast pulse rate, instead of a slower one.

[Guest guest]

Bear in mind that levothyroxine is T4, which is what a healthy thyroid

gland produces. It just makes sense as a first approach to replace

exactly what is missing. That appears to work well for 90% or 95% of

people; but you're the proof that it doesn't work for everyone.

Best,

..

..

> Posted by: " Roni Molin " matchermaam@...

> <mailto:matchermaam@...?Subject=%20Re%3A%20The%20Latest>

> matchermaam <matchermaam>

>

>

> Sat Nov 6, 2010 2:44 pm (PDT)

>

>

>

> I think the levothyroxine is only good for some people. For others,

> like me, it creates all kinds of

> reactions. I know Chuck won't agree with me, but if it was me I would

> stop the levothyroxine. When I got so sick on the Armour which has

> both levothyroxine and liothyronine, I stopped the

> medicaton as soon as I realized what was causing it. My wonderful

> Rheumy had me tested for everything to find out what was making me so

> sick. When we found out that my body was turning the T4 into RT3

> instead of mostly T3, he rxd T3 only for me. I'm still on it and I

> feel better. I think

> it's worth a try. Your body will continue to have the levo in your

> system for weeks anyway. By then, if the nodules are not cancerous, T3

> treatment might be the way for you to go without having to

> have any operations.

>

> <>Roni

[Guest guest]

Thanks . It seemed to be working well, except for the fact I've been

losing so much hair on such a small dose. Do you think there are other forms

that might not have that side effect? I didn't notice much hair loss until

after going on the medication.

Barb

Re: The Latest

Bear in mind that levothyroxine is T4, which is what a healthy thyroid

gland produces. It just makes sense as a first approach to replace

exactly what is missing. That appears to work well for 90% or 95% of

people; but you're the proof that it doesn't work for everyone.

Best,

..

..

> Posted by: " Roni Molin " matchermaam@...

> <mailto:matchermaam@...?Subject=%20Re%3A%20The%20Latest>

> matchermaam <matchermaam>

>

>

> Sat Nov 6, 2010 2:44 pm (PDT)

>

>

>

> I think the levothyroxine is only good for some people. For others,

> like me, it creates all kinds of

> reactions. I know Chuck won't agree with me, but if it was me I would

> stop the levothyroxine. When I got so sick on the Armour which has

> both levothyroxine and liothyronine, I stopped the

> medicaton as soon as I realized what was causing it. My wonderful

> Rheumy had me tested for everything to find out what was making me so

> sick. When we found out that my body was turning the T4 into RT3

> instead of mostly T3, he rxd T3 only for me. I'm still on it and I

> feel better. I think

> it's worth a try. Your body will continue to have the levo in your

> system for weeks anyway. By then, if the nodules are not cancerous, T3

> treatment might be the way for you to go without having to

> have any operations.

>

> <>Roni

[Guest guest]

Unfortunately it seems that anything one does involving the thyroid can cause

hair loss; any change in hormone up or down, on or off, any " intrusion " into the

gland such as FNA or surgery. It's all very sensitive. Personally, about 20

minutes after a FNA, I go into a heavy brain fog, to the point that I can't

remember how to navigate the streets to find my way home.

Hypothyroid can cause increased cortisol, which can drive up the pulse directly,

or through the involvement of adrenalin. It's all so freakin' complex...

Marla

>

>

> Thanks . It seemed to be working well, except for the fact I've been

losing so much hair on such a small dose. Do you think there are other forms

that might not have that side effect? I didn't notice much hair loss until

after going on the medication.

>

> Barb

>

> Re: The Latest

>

>

>

>

> Bear in mind that levothyroxine is T4, which is what a healthy thyroid

> gland produces. It just makes sense as a first approach to replace

> exactly what is missing. That appears to work well for 90% or 95% of

> people; but you're the proof that it doesn't work for everyone.

>

> Best,

>

> .

> .

>

> > Posted by: " Roni Molin " matchermaam@...

> > <mailto:matchermaam@...?Subject=%20Re%3A%20The%20Latest>

> > matchermaam <matchermaam>

> >

> >

> > Sat Nov 6, 2010 2:44 pm (PDT)

> >

> >

> >

> > I think the levothyroxine is only good for some people. For others,

> > like me, it creates all kinds of

> > reactions. I know Chuck won't agree with me, but if it was me I would

> > stop the levothyroxine. When I got so sick on the Armour which has

> > both levothyroxine and liothyronine, I stopped the

> > medicaton as soon as I realized what was causing it. My wonderful

> > Rheumy had me tested for everything to find out what was making me so

> > sick. When we found out that my body was turning the T4 into RT3

> > instead of mostly T3, he rxd T3 only for me. I'm still on it and I

> > feel better. I think

> > it's worth a try. Your body will continue to have the levo in your

> > system for weeks anyway. By then, if the nodules are not cancerous, T3

> > treatment might be the way for you to go without having to

> > have any operations.

> >

> > <>Roni

>

>

>

>

>

>

>

>

[Guest guest]

, is that all you were ever tested for? Have you ever been tested for

freeT3, freeT4

which shows how much of the hormome is in your blood, not your cells?

<>Roni

Immortality exists!

It's called knowledge!

 

Just because something isn't seen

doesn't mean it's not there<>

From: <res075oh@...>

Subject: Re: The Latest

hypothyroidism

Date: Sunday, November 7, 2010, 7:41 AM

When I was diagnosed as hypothyroid my wife exclaimed: You CAN'T be

hypOthyroid; everything about you screams hypErthyroid.  I've always had

a fast pulse rate and a hyperactive mind that I cannot quite no matter

how I try.

I do think my hypothyroidism was discovered _very_ early because I never

had any specific symptoms of it; just the high TSH readings in my annual

exam bloodwork.

Best,

..

..

>

>       Posted by: " H " macbarb0503@...

>       <mailto:macbarb0503@...?Subject=%20Re%3A%20The%20Latest>

>       westieabbey <westieabbey>

>

>

>         Sat Nov 6, 2010 9:38 am (PDT)

>

>

> Another thing that seems inconsistent, is being diagnosed with

> Hypothyroidism and having an fast pulse rate, instead of a slower one.

------------------------------------

[Guest guest]

, your estimation of how manyn people are not being adequately treated with

T4 alone I believe is skewed. There are more and more people who have troubles

with it alone.

<>Roni

Immortality exists!

It's called knowledge!

 

Just because something isn't seen

doesn't mean it's not there<>

From: <res075oh@...>

Subject: Re: The Latest

hypothyroidism

Date: Sunday, November 7, 2010, 7:51 AM

Bear in mind that levothyroxine is T4, which is what a healthy thyroid

gland produces.  It just makes sense as a first approach to replace

exactly what is missing.  That appears to work well for 90% or 95% of

people; but you're the proof that it doesn't work for everyone.

Best,

..

..

>       Posted by: " Roni Molin " matchermaam@...

>       <mailto:matchermaam@...?Subject=%20Re%3A%20The%20Latest>

>       matchermaam <matchermaam>

>

>

>         Sat Nov 6, 2010 2:44 pm (PDT)

>

>

>

> I think the levothyroxine is only good for some people. For others,

> like me, it creates all kinds of

> reactions. I know Chuck won't agree with me, but if it was me I would

> stop the levothyroxine. When I got so sick on the Armour which has

> both levothyroxine and liothyronine, I stopped the

> medicaton as soon as I realized what was causing it. My wonderful

> Rheumy had me tested for everything to find out what was making me so

> sick. When we found out that my body was turning the T4 into RT3

> instead of mostly T3, he rxd T3 only for me. I'm still on it and I

> feel better. I think

> it's worth a try. Your body will continue to have the levo in your

> system for weeks anyway. By then, if the nodules are not cancerous, T3

> treatment might be the way for you to go without having to

> have any operations.

>

> <>Roni

------------------------------------

[Guest guest]

Since going on the T3 only, the hair loss has almost stopped, and some has been

growing back.

<>Roni

Immortality exists!

It's called knowledge!

 

Just because something isn't seen

doesn't mean it's not there<>

From: H <macbarb0503@...>

Subject: Re: Re: The Latest

hypothyroidism

Date: Sunday, November 7, 2010, 8:31 AM

Thanks .  It seemed to be working well, except for the fact I've been

losing so much hair on such a small dose.  Do you think there are other forms

that might not have that side effect?  I didn't notice much hair loss until

after going on the medication.

Barb

Re: The Latest

Bear in mind that levothyroxine is T4, which is what a healthy thyroid

gland produces. It just makes sense as a first approach to replace

exactly what is missing. That appears to work well for 90% or 95% of

people; but you're the proof that it doesn't work for everyone.

Best,

..

..

> Posted by: " Roni Molin " matchermaam@...

> <mailto:matchermaam@...?Subject=%20Re%3A%20The%20Latest>

> matchermaam <matchermaam>

>

>

> Sat Nov 6, 2010 2:44 pm (PDT)

>

>

>

> I think the levothyroxine is only good for some people. For others,

> like me, it creates all kinds of

> reactions. I know Chuck won't agree with me, but if it was me I would

> stop the levothyroxine. When I got so sick on the Armour which has

> both levothyroxine and liothyronine, I stopped the

> medicaton as soon as I realized what was causing it. My wonderful

> Rheumy had me tested for everything to find out what was making me so

> sick. When we found out that my body was turning the T4 into RT3

> instead of mostly T3, he rxd T3 only for me. I'm still on it and I

> feel better. I think

> it's worth a try. Your body will continue to have the levo in your

> system for weeks anyway. By then, if the nodules are not cancerous, T3

> treatment might be the way for you to go without having to

> have any operations.

>

> <>Roni