Guest guest Posted June 30, 2001 Report Share Posted June 30, 2001 All my friends, moms and dads with AIH and those whose kids are sick, My son Danny and I want to thank all the good wishes you have sent. On Mon. (July2), Dan will undergo a 2 1/2 surgery to reconstruct his right ankle...I will be staying with him in the hospital (prob till Wed or Thur). They were going to put him in Pediatrics since he is 16, but I explained to them that I was on immunosuppressants, so they will try to put him in a private room in Orthopedics. (hope they can). Please send some extra prayers for him. Oh, BTW, this is the same hospital where I had my hysterectomy and I"ve noticed some postings about hot flashes...yes, I started getting warm after beginning Pred and had some night sweats, but the hot flashes from "surgical menopause" are an incredible nuisance. I keep the A/C at 70 degrees with a fan at my desk. The kids don't complain...but it's funny how they always have a jacket or sweater on!! My love and prayers to you all, God bless you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2001 Report Share Posted July 1, 2001 Hello Hope Dannys operation goes well and tha he will soon be home from hospital love Anne (UK) Re: [ ] Danny All my friends, moms and dads with AIH and those whose kids are sick, My son Danny and I want to thank all the good wishes you have sent. On Mon. (July2), Dan will undergo a 2 1/2 surgery to reconstruct his right ankle...I will be staying with him in the hospital (prob till Wed or Thur). They were going to put him in Pediatrics since he is 16, but I explained to them that I was on immunosuppressants, so they will try to put him in a private room in Orthopedics. (hope they can). Please send some extra prayers for him. Oh, BTW, this is the same hospital where I had my hysterectomy and I"ve noticed some postings about hot flashes...yes, I started getting warm after beginning Pred and had some night sweats, but the hot flashes from "surgical menopause" are an incredible nuisance. I keep the A/C at 70 degrees with a fan at my desk. The kids don't complain...but it's funny how they always have a jacket or sweater on!! My love and prayers to you all, God bless you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2011 Report Share Posted April 22, 2011 Hi SuziQ, my husband has no symptons and has had hep c since the seventies. The hep doc we saw said that it might take another twenty years before he gets to the next stage. Because of the cost we have been wondering if he should just be monitored but really don't know how that works.He has had a biopsy and has stage two inflamation. Have you had a biopsy? and what are you doing to follow your hepC? I hope that isn't intrusive, I am just really confused. Thank you. Diane > > > > Well, here. Am again. My name is Tommy and my husband Danny went the doc today and confirmed he has hep c. Well, where do we go from here? Doc said treatment is 6 to 12 months and $5000. Holy shit! Yep, that's what I said. We're trying for Medicaid but he probably makes too much. Not poor enough for indigent care and too rich for assistance. We don't have insurance through our business. Checked and he's self employed and they won't cover him. I love him and our kids need him around for a long life. I just want to crawl under a rock. Just venting to anyone who will hear me. Sincerely, Mrs. Tommy Clifton > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2011 Report Share Posted April 22, 2011 Thanks suzi Q. That gives me hope. My hubby is 46. Has no symptoms. He is getting an ultrasound and some more bloodwork. Then we will move forward after that. For right now it's just kinda a waiting game. We are doing research and I have bought so many books I'll never be able to read them all. Even the treatments sound horrible with the side effects and he works so hard with his job, he wouldn't do them if they gave him any downtime. Thanks for taking the time to leave me some insight.}*{ Country Girl }*{On Apr 22, 2011, at 8:00 AM, "dianedellicarpini" <dellcar9@...> wrote: Hi SuziQ, my husband has no symptons and has had hep c since the seventies. The hep doc we saw said that it might take another twenty years before he gets to the next stage. Because of the cost we have been wondering if he should just be monitored but really don't know how that works.He has had a biopsy and has stage two inflamation. Have you had a biopsy? and what are you doing to follow your hepC? I hope that isn't intrusive, I am just really confused. Thank you. Diane > > > > Well, here. Am again. My name is Tommy and my husband Danny went the doc today and confirmed he has hep c. Well, where do we go from here? Doc said treatment is 6 to 12 months and $5000. Holy shit! Yep, that's what I said. We're trying for Medicaid but he probably makes too much. Not poor enough for indigent care and too rich for assistance. We don't have insurance through our business. Checked and he's self employed and they won't cover him. I love him and our kids need him around for a long life. I just want to crawl under a rock. Just venting to anyone who will hear me. Sincerely, Mrs. Tommy Clifton > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2011 Report Share Posted April 22, 2011 This is very interesting, my husband is 1b also and at stage 2 and as I said before the hep doc said it could take another twenty years at least before he moved on to another stage. I have read about the new pills and the doc told me that it would most likely be five years before they were available. My husband used to like a beer when he came home but he does not have any now. The only meds he is on are also high blood pressure meds. I do have him taking milk thistle ,ala, and nac now but will check out the others. I, like others here am very afraid of the treatment and its side effects and have no idea how to afford it. I am going to have him read this post, it is very easy for the docs to say start treatment and one we saw was angry when I questioned the cost. The hepatologist was the one who said it could take another twenty years before any progression of the disease. He is also the one who told us it was best to wait for the new meds.I appreciate the info SuziQ thank you for sharing. My husband is 60 now. In , " SuziQ " <ancientkron@...> wrote: > > Hi Diane and Tommy. > > I had a biopsy in 1999 and was stage 2 genotype 1b. My disease has not progressed much since then. Still at stage 2 according to Fibrosure test, but they are not super accurate. Had an ultrasound a couple of months ago at my gastro office. They called back and left message saying it was fine--need to follow that up with a phone call and be sure what she meant. I was told I had liver disease in 1966. > > I don't drink and ONLY use meds for diabetes and high blood pressure--just for the last year. I take Dr Berkson's supplements(inexpensive)--you can google him or email me direct and I will send info. I also take a number of vitamins. There are a number of articles on Dr B in the link section of this forum as well. Some control their Hep C with other types of alternative supplements. Alcohol is the #1 NO_NO. It speeds liver damage very quickly. > > The current treatments are very difficult and cost is $5,000 per month--not for full treatment. ( It is chemo for a year) There are several NEW meds coming in the summer and even more being considered that are more effective and less than a year of treatment. I believe (and hope) that in the near future there will be meds with few side effects that will stop Hep C virus completely. One being considered in France is only a 2 week treatment. > > Hep C is a disease, and like with diabetes, good health habits help with most people--especially if their liver is not severely damaged. Don't jump into treatment until you are fully aware of the side effects and what other options you might have or wish to pursue. AND have read about the new treatments coming up. MOST doctors have no knowledge of supplements or what might help. Most will not prescribe supps as there is no drug company to back them in case they don't help you and you decide to sue them. Fear of lawsuit really runs what most doctors are willing to do. Current treatment is less than 50% effective on patients with Type 1 genotype. > > There are no alternatives yet that cure Hep C.(to my knowledge) They DO help keep the damage to a minimum until a REALLY effective treatment can be found. > > So relax, learn all you can and join us on our journey. > > SuziQ > > > > > > > > > Hi SuziQ, my husband has no symptons and has had hep c since the seventies. The hep doc we saw said that it might take another twenty years before he gets to the next stage. Because of the cost we have been wondering if he should just be monitored but really don't know how that works.He has had a biopsy and has stage two inflamation. Have you had a biopsy? and what are you doing to follow your hepC? I hope that isn't intrusive, I am just really confused. Thank you. > > > Diane > Quote Link to comment Share on other sites More sharing options...
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