Guest guest Posted October 3, 2000 Report Share Posted October 3, 2000 Loes, why didn't they start you on meds when they found out you had AIH? Thank God you went back. Genny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2000 Report Share Posted October 4, 2000 Hi Joan and Genny, I can understand that not being treated while being diagnosed sound very strange to you. When I was diagnosed with AIH last year I was so shocked my whole world crashed down. I could not accept the fact that this had overcome me, I just could not handle it, I was very confused and did not get the answers I needed. The idea of taking prednison in combination with Imuran for at least a minimum period of two years frightened me, especially the long term side affects. I am very skinny, I weigh 58 kilo's (height 1.68) and I was very worried about loss of bonestructure in the long run. The internist I was then seeing was so arrogant to say; What do you think is worse? Being in a wheelchair in 5 years or dead? So I did not have to much faith in him! Where there no other options?? What about children, what about my job, my life, my partner, our lives? All these questions and suddenly my whole perspective on things and life changed. The confrontation with your own mortality can be a real wake up call. The things that used to be important to me seemed less relevant. I also realised that my job was nice and the income was even better, but that I would give it all up if I could have children. It is very strange, but the only thing I could suddenly think of were children. Nothing seemed more important. So I hoped to be able to control AIH with alternative treatment. I have tried several herbs, tea, special diet, massages, injections etc . Some things were helping a little but nothing was able to control it. They kept monitoring me the whole year through. Fortunately I now have another hepatologist in an Academic Hospital with a lot more experience, I know feel good about taking the medication. It was a choice, my choice! And for know we will see how my body is adapting, getting my live back in order and we will just take in one step at a time and just enjoy every minute of it! Please take care everyone Greetings Loes, AIH The Netherlands Re: [ ] Loes > Loes, why didn't they start you on meds when they found out you had AIH? > Thank God you went back. > Genny > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2000 Report Share Posted October 16, 2000 Loes, In the usa it is called a sunlamp. How long would you stay under the lamp? Rosemary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2001 Report Share Posted January 9, 2001 Loes, tell Sylvana we are thinking only good thoughts for her and sending up those prayers. Take care and God bless, Genny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2001 Report Share Posted May 6, 2001 Loes... you rascal you! A GREAT BIG CONGRADULATIONS !!! . We haven`t heard much from you for awhile now we know what you`ve been up to !... I wish you all the happiness in the world. A special prayer for a healthy, happy baby. Keep in touch more often ... it`s not like you`re a half a world away or something. xxooxxoo Jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2003 Report Share Posted June 17, 2003 I missed the new picture of your daughter... could you please resend it? Thanks, Cheryl & Randy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2003 Report Share Posted June 17, 2003 Hi Cheryl, Here is the picture again! With love from us both! Re: [ ]Loes I missed the new picture of your daughter... could you please resend it?Thanks,Cheryl & Randy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2003 Report Share Posted June 17, 2003 Loes, What a baby doll. Thanks for sending it again as I missed it too. She is too pretty. Looks just like her MOM. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2003 Report Share Posted June 17, 2003 Loes your daughter is beautiful but of course so is the mom. As the mother of 2 sons and no daughters I can't wait to get a grand daughter to play with. the WV hillbilly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2003 Report Share Posted June 18, 2003 Hi , Hope there is a granddaughter on the way for you! With love Loes The Netherlands Re: [ ]Loes Loes your daughter is beautiful but of course so is the mom. As the mother of 2 sons and no daughters I can't wait to get a grand daughter to play with. the WV hillbilly Quote Link to comment Share on other sites More sharing options...
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