Guest guest Posted January 24, 2009 Report Share Posted January 24, 2009 , I have had 2 neck fusion one in 97 and 1 in 2004 I am still in so much pain with my neck. I guess its aurthic. I use a tens unit about everyday and take a pain pill. I have lots of problems with my back and have had for years. The last thing I want is to do surgery on my back. I started to several times and that when they said my neck was worse and they would have to fuse my neck first before I could have back surgery.I do need to take off 50 lbs and I am 67 years old. Good luck to you. Marilyn from Ohio > > > WOW > I have had surgery once on the neck with fusion almost EXACTLY 6 years ago.. I have an appt next week with neurosurgeon.. I just want the pain to go away.. I have been laying flat most of the time but my back hurts more now where they kept sticking the needles that I am icing that. He said he thinks I have bone spurs on the back and that is why he had a hard time getting the needle in.. > > Where do you live? > I am in Missouri.. > > http://windowslive.com/howitworks? ocid=TXT_TAGLM_WL_t2_hm_justgotbetter_howitworks_012009 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2009 Report Share Posted January 25, 2009 Why would I have surgery? And surgery on what? LOL. ************************ >> > I had a mylegram today and I don't think I EVER want another one of these. I see the neurosurgeon on Wed. I already have fusion of c4-5 and now they are looking at fusion of c2-4. Will this keep me from turning my neck at all? > __________________________________________________________> Windows Live™ Hotmail®:…more than just e-mail. > http://windowslive.com/ explore?ocid=TXT_TAGLM_WL_t2_hm_justgotbetter_explore_012009> > [Non- text portions of this message have been removed]> > > > > > > _________________________________________________________________ > Windows Live™ Hotmail®…more than just e-mail. > http://windowslive.com/howitworks? ocid=TXT_TAGLM_WL_t2_hm_justgotbetter_howitworks_012009 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2009 Report Share Posted March 2, 2009 When you get ready to do this test, ask them to take and record an opening pressure. That measurement is important for anyone facing surgery or that has headaches. Good luck and God bless, Lexie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2009 Report Share Posted March 2, 2009 > > I have had good relief from RFL, but sadly it doesn't last long enough for me to be a viable source of pain relief. I only get about 2 -3 weeks relief and you can do it no sooner than 3 months apart on the same side. --- > I had mine the last week in December and it took a few weeks for the pain to subside. I don't have half as much burning pain in my arms as I once did. I hope mine lasts a while. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2009 Report Share Posted March 2, 2009 I do too! Most people get much longer of relief than what I get. But also, for me I only had pain for a few days after the RFL. I have to wonder if the technique of my doc is up to par? Yikes...that's a hard pill to swallow. I chose very carefully when I chose this doc.--- From: uca79iii <uca79iii@...> Subject: Re: Myelogram spinal problems Date: Monday, March 2, 2009, 9:58 PM > > I have had good relief from RFL, but sadly it doesn't last long enough for me to be a viable source of pain relief. I only get about 2 -3 weeks relief and you can do it no sooner than 3 months apart on the same side. --- > I had mine the last week in December and it took a few weeks for the pain to subside. I don't have half as much burning pain in my arms as I once did. I hope mine lasts a while. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2009 Report Share Posted September 24, 2009 I have had to have mine do, once before surgery, and once after Robin From: Babbitt <tpowell1977@...> Subject: Re: Myelogram spinal problems Date: Thursday, September 24, 2009, 2:02 AM Honestly they are a little outdated...and I've never heard of someone needing more than one. Not sure I would go through one again! --- Babbitt ____________ _________ _________ __ From: <ljorichardson0912@ hotmail.com> painintheneck- back@groups .com; spinedisorderssuppo rtgroup@gro ups.com Sent: Wednesday, September 23, 2009 5:07:24 PM Subject: Myelogram I had surgery anterior fusion surgery in Feb and still have pain. I went to a different neurosurgeon today and he wants to do a myelogram.. I had one before my last surgery in Feb. Why would I have to have another one.. He said it was to see if there was any nerves that are squeezed.. I thought the last myelogram was painful.. Not sure what I should do.. anyone have any idea for me? Thanks ____________ _________ _________ _________ _________ _________ _ Hotmail: Powerful Free email with security by Microsoft. http://clk.atdmt. com/GBL/go/ 171222986/ direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2009 Report Share Posted September 24, 2009 please switch me to daily digest robin From: Babbitt <tpowell1977@...> Subject: Re: Myelogram spinal problems Date: Thursday, September 24, 2009, 2:02 AM Honestly they are a little outdated...and I've never heard of someone needing more than one. Not sure I would go through one again! --- Babbitt ____________ _________ _________ __ From: <ljorichardson0912@ hotmail.com> painintheneck- back@groups .com; spinedisorderssuppo rtgroup@gro ups.com Sent: Wednesday, September 23, 2009 5:07:24 PM Subject: Myelogram I had surgery anterior fusion surgery in Feb and still have pain. I went to a different neurosurgeon today and he wants to do a myelogram.. I had one before my last surgery in Feb. Why would I have to have another one.. He said it was to see if there was any nerves that are squeezed.. I thought the last myelogram was painful.. Not sure what I should do.. anyone have any idea for me? Thanks ____________ _________ _________ _________ _________ _________ _ Hotmail: Powerful Free email with security by Microsoft. http://clk.atdmt. com/GBL/go/ 171222986/ direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2009 Report Share Posted September 24, 2009 Did it show anything different? spinal problems From: robymill@... Date: Thu, 24 Sep 2009 04:58:14 -0700 Subject: Re: Myelogram I have had to have mine do, once before surgery, and once after Robin From: Babbitt <tpowell1977@...> Subject: Re: Myelogram spinal problems Date: Thursday, September 24, 2009, 2:02 AM Honestly they are a little outdated...and I've never heard of someone needing more than one. Not sure I would go through one again! --- Babbitt ____________ _________ _________ __ From: <ljorichardson0912@ hotmail.com> painintheneck- back@groups .com; spinedisorderssuppo rtgroup@gro ups.com Sent: Wednesday, September 23, 2009 5:07:24 PM Subject: Myelogram I had surgery anterior fusion surgery in Feb and still have pain. I went to a different neurosurgeon today and he wants to do a myelogram.. I had one before my last surgery in Feb. Why would I have to have another one.. He said it was to see if there was any nerves that are squeezed.. I thought the last myelogram was painful.. Not sure what I should do.. anyone have any idea for me? Thanks ____________ _________ _________ _________ _________ _________ _ Hotmail: Powerful Free email with security by Microsoft. http://clk.atdmt. com/GBL/go/ 171222986/ direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2009 Report Share Posted September 24, 2009 Robin: I don't mean to make something out of nothing, but there is a great deal of information out there concerning the dangers of myleograms. The older dyes can cause something called arachnoiditis -- which is a life time of pain. Read the Burton Report before you consent. I'm sure there are other alternatives for testing (CT scan or MRI). I had compressed nerves at C6-C7 and a CT scan was most sufficient. Kathy > > > From: Babbitt <tpowell1977@...> > Subject: Re: Myelogram > spinal problems > Date: Thursday, September 24, 2009, 2:02 AM > > > > > > > Honestly they are a little outdated...and I've never heard of someone needing more than one. Not sure I would go through one again! > --- Babbitt > > ____________ _________ _________ __ > From: <ljorichardson0912@ hotmail.com> > painintheneck- back@groups .com; spinedisorderssuppo rtgroup@gro ups.com > Sent: Wednesday, September 23, 2009 5:07:24 PM > Subject: Myelogram > > > > I had surgery anterior fusion surgery in Feb and still have pain. I went to a different neurosurgeon today and he wants to do a myelogram.. I had one before my last surgery in Feb. Why would I have to have another one.. He said it was to see if there was any nerves that are squeezed.. I thought the last myelogram was painful.. Not sure what I should do.. anyone have any idea for me? > > Thanks > > > ____________ _________ _________ _________ _________ _________ _ > Hotmail: Powerful Free email with security by Microsoft. > http://clk.atdmt. com/GBL/go/ 171222986/ direct/01/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2009 Report Share Posted September 25, 2009 I'd also add that there can be financial morbidity as well. When I had mine I had to pay $200 to walk in the door (with the other bills coming later. The neurosurgeon did the dye injection himself and was rough -- like he's used to being able to be with a patient who is under anesthesia (maybe they're always like that? I don't know, having only gone through the ordeal once). The roughness may not have been the cause, but I got a whopper of a headache from the spinal leak. Because I knew that I had to pay another $200 to walk back into the hospital for a blood patch, and another series of the ancillary bills, I waited a week before relenting and getting the blood patch. I had to: I was scheduled for surgery in 7 days and couldn't see going for spinal surgery with a prexisting leak. (Yes, I'm aware how stupid I was waiting that long... but I was basically unable to think for myself after the first couple of days.) I think it's a very good idea to know ahead of time PRECISELY what the doc wants to find out from the myelogram, and if there is any other way to get the same data. BTW-- do they tend to use the same location for myelograms, lumbar punctures, etc? That's something I'd like to know, to avoid complications from repeated punture at the same location. All best, > > Kathy is correct. With the advanced radiology techniques available today that are COMPLETELY non-invasive...the use of myelogram is plummeting. It has too many risks and the more you have the higher your risk is. The cerabrospinal fluis is in a delicate balance. Foreign substances can cause a host of problems as well as offsetting the exact amount of fluid you have. This test requires a radiopaque dye to be injected into the fluid that surrounds the of your spinal cord, is is considered part of the spinal cord. This fluid is continuous with the fluid in your brain. the dye will also suround your brain...as well as any bacteria that may get in. > I have not heard of a person going through that many myelograms. > --- Babbitt > > ________________________________ > From: Kathy <kathy.thun@...> > spinal problems > Sent: Thursday, September 24, 2009 9:28:37 AM > Subject: Re: Myelogram > > > Robin: > > I don't mean to make something out of nothing, but there is a great deal of information out there concerning the dangers of myleograms. The older dyes can cause something called arachnoiditis -- which is a life time of pain. Read the Burton Report before you consent. I'm sure there are other alternatives for testing (CT scan or MRI). I had compressed nerves at C6-C7 and a CT scan was most sufficient. > > Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2009 Report Share Posted September 25, 2009 I had a myleogram years ago and the headache lasted for about ten days. It would go away if I was laying down or lowered my head. We had just bought a new pick up and I had to ride about 30 miles to the dealers so I could sign. I kept my head down all the way, walked in and had to put my head down in front of the dealer. So embarassing but the pain was unrelenting then it just went away. About two years ago on neurologist wanted to do it again and I refused as I knew I would not have another surgery unless it was life threatening. Lois On 9/25/09, mamawolf33 <vendetta33@...> wrote: > I'd also add that there can be financial morbidity as well. > > When I had mine I had to pay $200 to walk in the door (with the other bills > coming later. The neurosurgeon did the dye injection himself and was rough > -- like he's used to being able to be with a patient who is under anesthesia > (maybe they're always like that? I don't know, having only gone through the > ordeal once). The roughness may not have been the cause, but I got a whopper > of a headache from the spinal leak. > > Because I knew that I had to pay another $200 to walk back into the hospital > for a blood patch, and another series of the ancillary bills, I waited a > week before relenting and getting the blood patch. I had to: I was scheduled > for surgery in 7 days and couldn't see going for spinal surgery with a > prexisting leak. (Yes, I'm aware how stupid I was waiting that long... but I > was basically unable to think for myself after the first couple of days.) > > I think it's a very good idea to know ahead of time PRECISELY what the doc > wants to find out from the myelogram, and if there is any other way to get > the same data. > > BTW-- do they tend to use the same location for myelograms, lumbar > punctures, etc? That's something I'd like to know, to avoid complications > from repeated punture at the same location. > > All best, > > > > >> >> Kathy is correct. With the advanced radiology techniques available today >> that are COMPLETELY non-invasive...the use of myelogram is plummeting. It >> has too many risks and the more you have the higher your risk is. >> The cerabrospinal fluis is in a delicate balance. Foreign substances can >> cause a host of problems as well as offsetting the exact amount of fluid >> you have. This test requires a radiopaque dye to be injected into the >> fluid that surrounds the of your spinal cord, is is considered part of the >> spinal cord. This fluid is continuous with the fluid in your brain. the >> dye will also suround your brain...as well as any bacteria that may get >> in. >> I have not heard of a person going through that many myelograms. >> --- Babbitt >> >> > ________________________________ >> From: Kathy <kathy.thun@...> >> spinal problems >> Sent: Thursday, September 24, 2009 9:28:37 AM >> Subject: Re: Myelogram >> >> >> Robin: >> >> I don't mean to make something out of nothing, but there is a great deal >> of information out there concerning the dangers of myleograms. The older >> dyes can cause something called arachnoiditis -- which is a life time of >> pain. Read the Burton Report before you consent. I'm sure there are other >> alternatives for testing (CT scan or MRI). I had compressed nerves at >> C6-C7 and a CT scan was most sufficient. >> >> Kathy > > -- Lois Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2009 Report Share Posted September 26, 2009 That was a spinal headache due to the needle hole not sealing up, you lose some of the cerebrospinal fluid. It is treatable with a blood patch...immediate relief. I hate that docs make people suffer that way when they can fix it. --- Babbitt ________________________________ From: Lois Churchill <mickyk13@...> spinal problems Sent: Friday, September 25, 2009 11:53:29 PM Subject: Re: Re: Myelogram I had a myleogram years ago and the headache lasted for about ten days. It would go away if I was laying down or lowered my head. We had just bought a new pick up and I had to ride about 30 miles to the dealers so I could sign. I kept my head down all the way, walked in and had to put my head down in front of the dealer. So embarassing but the pain was unrelenting then it just went away. About two years ago on neurologist wanted to do it again and I refused as I knew I would not have another surgery unless it was life threatening. Lois On 9/25/09, mamawolf33 <vendetta33comcast (DOT) net> wrote: > I'd also add that there can be financial morbidity as well. > > When I had mine I had to pay $200 to walk in the door (with the other bills > coming later. The neurosurgeon did the dye injection himself and was rough > -- like he's used to being able to be with a patient who is under anesthesia > (maybe they're always like that? I don't know, having only gone through the > ordeal once). The roughness may not have been the cause, but I got a whopper > of a headache from the spinal leak. > > Because I knew that I had to pay another $200 to walk back into the hospital > for a blood patch, and another series of the ancillary bills, I waited a > week before relenting and getting the blood patch. I had to: I was scheduled > for surgery in 7 days and couldn't see going for spinal surgery with a > prexisting leak. (Yes, I'm aware how stupid I was waiting that long... but I > was basically unable to think for myself after the first couple of days.) > > I think it's a very good idea to know ahead of time PRECISELY what the doc > wants to find out from the myelogram, and if there is any other way to get > the same data. > > BTW-- do they tend to use the same location for myelograms, lumbar > punctures, etc? That's something I'd like to know, to avoid complications > from repeated punture at the same location. > > All best, > > > > >> >> Kathy is correct. With the advanced radiology techniques available today >> that are COMPLETELY non-invasive. ..the use of myelogram is plummeting. It >> has too many risks and the more you have the higher your risk is. >> The cerabrospinal fluis is in a delicate balance. Foreign substances can >> cause a host of problems as well as offsetting the exact amount of fluid >> you have. This test requires a radiopaque dye to be injected into the >> fluid that surrounds the of your spinal cord, is is considered part of the >> spinal cord. This fluid is continuous with the fluid in your brain. the >> dye will also suround your brain...as well as any bacteria that may get >> in. >> I have not heard of a person going through that many myelograms. >> --- Babbitt >> >> > ____________ _________ _________ __ >> From: Kathy <kathy.thun@ ...> >> spinedisorderssuppo rtgroup@gro ups.com >> Sent: Thursday, September 24, 2009 9:28:37 AM >> Subject: Re: Myelogram >> >> >> Robin: >> >> I don't mean to make something out of nothing, but there is a great deal >> of information out there concerning the dangers of myleograms. The older >> dyes can cause something called arachnoiditis -- which is a life time of >> pain. Read the Burton Report before you consent. I'm sure there are other >> alternatives for testing (CT scan or MRI). I had compressed nerves at >> C6-C7 and a CT scan was most sufficient. >> >> Kathy > > -- Lois Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2009 Report Share Posted October 2, 2009 > I am so sorry that you are hurting. The headache should be gone in a few days. I have had 4 of them and I know that every one is different and I hope you get better soon. They should have found what they are looking for so I don't think that you will need another one. The best thing for the headache is sleep and total darkness. I hope you get better soon. Be strong. great5kids > > > I had a cervical myelogram today.. Oh my goodness that was painful and I have a TERRIBLE headache. I hope they find the news they need to because I won't do that again.. > > > > > > > > > _________________________________________________________________ > Hotmail: Free, trusted and rich email service. > http://clk.atdmt.com/GBL/go/171222984/direct/01/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2009 Report Share Posted October 3, 2009 , You probably have a spinal headache, which comes from the spinal fluid leaking out the puncture hole in the dura. It will probably not get better quickly. Some will heal on their own in a few days to a few weeks. Were you kept flat for at least an hour after the test? Did you lie flat for the rest of the day today? you are supposed to do that for a day after to reduce the liklihood of spinal headache. In the liklihood that it gets worse or does not improve with time...you need to contact your doc who did the procedure and ask for a blood patch. For this they withdraw some blood from your arm and inject it into your back where it seals up the hole and you get immediate relief. --- Babbitt ________________________________ From: <ljorichardson0912@...> spinal problems Sent: Fri, October 2, 2009 8:04:07 PM Subject: RE: Myelogram I had a cervical myelogram today.. Oh my goodness that was painful and I have a TERRIBLE headache. I hope they find the news they need to because I won't do that again.. ____________ _________ _________ _________ _________ _________ _ Hotmail: Free, trusted and rich email service. http://clk.atdmt. com/GBL/go/ 171222984/ direct/01/ Quote Link to comment Share on other sites More sharing options...
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