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I was wondering if any of you have pain from the bone harvesting from

your original harrington rod procedures. 21 years out I still have so

much pain from the bone graph site in my lower left hip in the back.

My curve was low enough in my back that Dr. Dawson was able to take

bone out of my backside instead of the front of my hip. Dr. LaGrone

said that there is nothing he can do for this pain. Is anyone

suffering from this? Does anyone have suggestions on how to ease this

pain? Dr. LaGrone also said that he would use cadaver bone for the

revision surgery. Is there any concern about contracting disease?

Does anyone know how this cadaver bone is cleaned/prepared before it's

inserted into our backs?

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In case you have interest in how common the problem is:

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstra\

ct & list_uids=16439918 & query_hl=1 & itool=pubmed_docsum

>

> I was wondering if any of you have pain from the bone harvesting from

> your original harrington rod procedures. 21 years out I still have so

> much pain from the bone graph site in my lower left hip in the back.

> My curve was low enough in my back that Dr. Dawson was able to take

> bone out of my backside instead of the front of my hip. Dr. LaGrone

> said that there is nothing he can do for this pain. Is anyone

> suffering from this? Does anyone have suggestions on how to ease this

> pain? Dr. LaGrone also said that he would use cadaver bone for the

> revision surgery. Is there any concern about contracting disease?

> Does anyone know how this cadaver bone is cleaned/prepared before it's

> inserted into our backs?

>

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Are there any sites that talk about this pain in adults. I'm on the

brink of tears today it's hurting so much. I'm also feeling

emotional as I read everyone's stories, examine the pictures and

think about my future with surgery scheduled for 6/26. I don't

think I realized just how big and profound this is. There is real

truth behind the statement " ingornace is bliss " . Could I ask you to

pray for me, I'm a mess today. My kids are in Mississippi on a

mission trip with church rebuilding homes for Katrina victims and my

husband is at work. I'm alone today with my thoughts which I would

normally embrace because I don't get much alone time (I homeschool

my daughter), but today the house is just too quiet. - Your Sister

in Scoliosis......

Alpine

> >

> > I was wondering if any of you have pain from the bone

harvesting from

> > your original harrington rod procedures. 21 years out I still

have so

> > much pain from the bone graph site in my lower left hip in the

back.

> > My curve was low enough in my back that Dr. Dawson was able to

take

> > bone out of my backside instead of the front of my hip. Dr.

LaGrone

> > said that there is nothing he can do for this pain. Is anyone

> > suffering from this? Does anyone have suggestions on how to

ease this

> > pain? Dr. LaGrone also said that he would use cadaver bone

for the

> > revision surgery. Is there any concern about contracting

disease?

> > Does anyone know how this cadaver bone is cleaned/prepared

before it's

> > inserted into our backs?

> >

>

>

>

>

>

>

>

> scoliosis veterans * flatback sufferers * revision candidates

>

>

>

>

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Wow, that's new to me. Is it possible that you're confusing S-I joint

pain with iliac crest pain? Did anyone else who had no iliac crest

donor site pain in the first year or so after surgery develop pain

later on?

--

>

> Hi All,

>

> I have had increasing pain over the years from the bone graft site.

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---ALpine,

I am almost 7 weeks post op from revision surgery. It was and still

is tought, but you can do it!! Each day gets better. If you are in

horrible pain you may find the good relief from revision...not to

say there is no pain but healing takes sometime...I know how scary

it is...I cried up until the point they carted me off to the

OR.....but you can do it!!! We are all here for you...we know what

you are feeling. , PA

In , " thegouldianlady2004 "

<alpine@...> wrote:

>

> Are there any sites that talk about this pain in adults. I'm on

the

> brink of tears today it's hurting so much. I'm also feeling

> emotional as I read everyone's stories, examine the pictures and

> think about my future with surgery scheduled for 6/26. I don't

> think I realized just how big and profound this is. There is real

> truth behind the statement " ingornace is bliss " . Could I ask you

to

> pray for me, I'm a mess today. My kids are in Mississippi on a

> mission trip with church rebuilding homes for Katrina victims and

my

> husband is at work. I'm alone today with my thoughts which I

would

> normally embrace because I don't get much alone time (I homeschool

> my daughter), but today the house is just too quiet. - Your Sister

> in Scoliosis......

> Alpine

>

>

>

>

> > >

> > > I was wondering if any of you have pain from the bone

> harvesting from

> > > your original harrington rod procedures. 21 years out I

still

> have so

> > > much pain from the bone graph site in my lower left hip in

the

> back.

> > > My curve was low enough in my back that Dr. Dawson was able

to

> take

> > > bone out of my backside instead of the front of my hip. Dr.

> LaGrone

> > > said that there is nothing he can do for this pain. Is

anyone

> > > suffering from this? Does anyone have suggestions on how to

> ease this

> > > pain? Dr. LaGrone also said that he would use cadaver bone

> for the

> > > revision surgery. Is there any concern about contracting

> disease?

> > > Does anyone know how this cadaver bone is cleaned/prepared

> before it's

> > > inserted into our backs?

> > >

> >

> >

> >

> >

> >

> >

> >

> > scoliosis veterans * flatback sufferers * revision candidates

> >

> >

> >

> >

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Thank you ladies for your prayers today. I sat down and began to

journal. I'm still feeling blue but I am comforted by your concern

and encouragement. I was hoping that this decision to have surgery

wouldn't define who I am over these next few months. Something I'll

have to work through. Spoke to my mother today, she and I don't see

eye to eye on this decision. She's concerned about so much hardware

in the body and just surgery in general, so there's not much support

there. It is a blessing to come to this board and know that I am

understood. Kathy, please get good rest tonight. Your working too

hard!

, I'm encouraged to hear that someone else cries to the OR.

Thank you for telling me you all understand what I'm feeling. I'm

scared!

Bonnie - this is just SO BIG! How did you deal with it?

I have a couple of questions - What is SI Joint pain?

When I look at the pictures of ya'lls x-rays I need to learn what

everything is and what I'm seeing. I understand the cages, but I

don't know what I'm seeing in the side views (is the side view

called sagittal?) those long spikes that are going into the back.

What are those and what do they do?

Thank you sweet ladies!

Alpine

> > >

> > > I was wondering if any of you have pain from the bone

> harvesting from

> > > your original harrington rod procedures. 21 years out I

still

> have so

> > > much pain from the bone graph site in my lower left hip in

the

> back.

> > > My curve was low enough in my back that Dr. Dawson was

able to

> take

> > > bone out of my backside instead of the front of my hip.

Dr.

> LaGrone

> > > said that there is nothing he can do for this pain. Is

anyone

> > > suffering from this? Does anyone have suggestions on how

to

> ease this

> > > pain? Dr. LaGrone also said that he would use cadaver

bone

> for the

> > > revision surgery. Is there any concern about contracting

> disease?

> > > Does anyone know how this cadaver bone is cleaned/prepared

> before it's

> > > inserted into our backs?

> > >

> >

> >

> >

> >

> >

> >

> >

> > scoliosis veterans * flatback sufferers * revision

candidates

> >

> >

> >

> >

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Dear Alpine,

You are the brave one...facing all that you have and still moving

ahead with surgery. I think it is great that you are journaling to

help get through this experience. I think I have journaled " out loud "

to this group for the most part. It has been a very healing experience

for me to write it all out.

I was curious about your saying that you hope that the decision to

have surgery didn't define who you are over the coming months...what

do you mean? Are you feeling like this scoliosis is taking over your

life and wanting to resist that or do you mean in the more general way

that preparing for this surgery is a full time job?

I saw you had IM's me while I was away about some of the

technicality...sorry I wasn't there...but you can send any questions

to me by email and I will see if I can answer them.

Take Care, Cam

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Bonnie - you sound like me! Busy, busy, busy. It must be the fact

that this is spring break and no one has been around. I've been in

a real funk and thinking what have I gotten myself into. I'm tired

of being alone with my thoughts. Thank you for the encouragement.

I feel everyone's prayers today. I'm calmer and the kids have gotten

home. :o) Hugs, Alpine

> > > >

> > > > I was wondering if any of you have pain from the bone

> > harvesting from

> > > > your original harrington rod procedures. 21 years out

I

> still

> > have so

> > > > much pain from the bone graph site in my lower left

hip in

> the

> > back.

> > > > My curve was low enough in my back that Dr. Dawson was

> able to

> > take

> > > > bone out of my backside instead of the front of my

hip.

> Dr.

> > LaGrone

> > > > said that there is nothing he can do for this pain.

Is

> anyone

> > > > suffering from this? Does anyone have suggestions on

how

> to

> > ease this

> > > > pain? Dr. LaGrone also said that he would use cadaver

> bone

> > for the

> > > > revision surgery. Is there any concern about

contracting

> > disease?

> > > > Does anyone know how this cadaver bone is

cleaned/prepared

> > before it's

> > > > inserted into our backs?

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > scoliosis veterans * flatback sufferers * revision

> candidates

> > >

> > >

> > >

> > >

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