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>Thanks for the warm welcome - I appreciate it! I am glad to know

>that we have a meds specialist in our midst - I could use some advise

>in that area. I am almost 4 weeks post op for L4 S1 fusion w/

>instrumentation. I have been taking Lortab 10/500 since being

>discharged. My doc only writes one scrip at a time - no refills - so

>I have to call his office for a new scrip each time. They make me

>feel like I'm begging for a fix. Should I not be in this much pain

>now? I try not to take anything too often, but if I let it get a

>hold, I'm done for. Anyway, my med question! Should I be moving on

>to a less potent med? is this why it's so hard to get new scrips?>>

Yikes! Wonder if we had the same Dr! LOL Well, I was only given Lortab

7.5's.....and hun, I am 8, almost 9months post op and am still on them 3

times a day, with oxyContin now at night....sigh. How many is he giving

you at a time? My Ortho (the one that screwed me up tp begin with) would

only give me 60 at a time, and taking 3 a day, sometimes 4, sure didn't add

up to a 30 day supply. Didn't matter how much I complained to the Dr that

I just didn't have the money to keep shelling out for the co-pays. He

tried once to give me this sob story that he just didn't understand WHY he

couldn't write them for more....yea...whatever! Anyways, I then went to a

Neuro for help. He was only going to write me 40 at a time! ACK! He

suggested I go to my Primary Care...so that is what I did...and that was

the best advice I had been given thru this whole ordeal! LOL He wrote me a

Rx for 120 Lortabs like it was no big deal....and acted like he sure didn't

understand what the heck was THEIR problem for NOT writing it for me. I

think it has something to do with the fact that they only see patients for

short term care, and PCP's see you for long term.

Now.....we should find out what kind of pain your having, because at 4

weeks out, you should be seeing a little bit of improvement, not a huge

amount, but some. Let us know where the pain is at, and try to describe it

the best you can. can prolly tell you exactly what nerve is involved

etc.

Ask me about my new MSM lotion for aches/pains!

http://www.scentsappeal.net

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Hi Molly:

Welcome. Wow, you just had surgery!!! Docs are difficult when it comes to

meds. If your Lortabs aren't working well for you, tell him/her you need

something stronger. There really aren't any rules, but I know EXACTLY what

you mean about the frustration part---been there done that. It's really

frustrating. In the best case scenario, the surgery will work and soon you

won't need the meds (Ok, sorry sounds a little Pollyanna, I know). I'm

probably having surgery in the next few months (L4/L5), either anterior

spinal fusion with cages or artificial disc. I'm leaning towards artificial

disc. I hope you feel better soon. But really, don't let the doctor screw

around with you, if the Lortabs aren't strong enough, ask for something

strong enough to deal with the pain, although be prepared that now that

you've had surgery, he'll probably be wanting to taper you down. Best wishes

and welcome again.

Robin

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>COMMON BRAND NAME(S):

>Lortab, Percocet, Phenaphen w/Codeine, Tylenol w/Codeine, Tylox, Vicodin >>

OK...now let me get this right....Tylox is the same thing as Lortab....and

Tylenol 3's with Codeine is also the same thing???? I'm sooooooooooo confused!

>DRUG INTERACTIONS:

>s, anti-seizure drugs, >>>

OK....so obviously, my Dr knows that I am on both of these, but I have to

wonder what the prob is with these drugs interacting?

Ask me about my new MSM lotion for aches/pains!

http://www.scentsappeal.net

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In a message dated 1/17/03 5:38:43 PM, Ckelly@... writes:

<< Tylox is the same thing as Lortab....and

Tylenol 3's with Codeine is also the same thing??? >>

Noooooooooooooooooooooooooooooooooooooooooooooo.

Robin

Not that I feel strongly or anything lol

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  • 1 year later...

Hi Kathy

I started Pred July 1 and by September had normal ALT and AST so they

started reducing. I saw Dr Ghent in September and he started imuran

at 100mg and said if the tests stayed normal that we would keep the

pred at the same level of 20mg but take it every other day. In Oct I

saw the Gastro doc and he said all is fine so we (Ghent too )want to

start reducing pred by 5mg every month so Nov 1 went to 15mg, Dec 1

went to 10 and Jan 1 went to 5 - Feb 1 is supposed to be zero. I

called Ghents office to confirm that he wanted that because it

confused me after my visit with him but that's what they want. By

late Nov I had joint pain in my hands, Dec it comes and goes in hands

and knees. Jan my fingers are swollen and I had to take my rings off

and I'm itchy on chest and arms. I mentioned in another post that at

night my hands are burning and was told that cold packs help - which

it does. Other times its just joint pain and wearing gloves seems to

help. I was having vision problems and confusion (could be the age

thing too!!) at higher doses of pred.. maybe thats why they want me

off it. I am mid 40's and premenopausal that could be another factor.

I have read on the boards about the withdrawal symptioms from Pred

and all this seems consistent so I haven't called the doc. I see Dr

Ghent in March and I will go over it with him then. At the minute I

struggle with stress mostly from work which of course drains you and

then its off to bed by 10. I can't say that I have it bad as I know

there are many here who are at stage 4. Oops this kind of turned into

a volume but it may help someone else. A strange thing I notice as I

reduce the drugs is that my hair seems to be falling out. I know pred

is a steroid and can stimulate hair growth so of course it would be

the opposite when you stop... I may end up going bald...what a

conversation piece..LOL One positive for me was that Dr Ghent said I

may never have to have another biopsy they will monitor by monthly

blood for now. I am hoping it stays good and in March they say I can

go to every three months.

Keep happy and healthy

Marie (Ont)

> Hi Marie,

> I asked the hep. doc. the same question yesterday.

> ursodiol is a drug usually used to treat PBC but there

> have been some studies done that suggest it is also

> beneficial to those with AIH. Some docs agree and

> some don't. However the specialist says it protects

> the liver and is otherwise harmless. The only thing

> about it is the prohibitive cost!!!!! It is a good

> thing that we have a good drug plan with work. I am

> interested in knowing why you are being weaned off the

> pred. I was told that I had to remain on it for at

> least another 6 months to a year and I have taken it

> for a year already. My doc. also told me that I would

> be taking some kind of drugs for the rest of my life.

> It is puzzling that all of the docs seem to have a

> different take on the treatment of this disease. i

> guess that there is still not enough known about the

> ins and outs of it. Are you feeling well? I hope

> so!!

> Hugs,

> Kathy

>

>

>

>

______________________________________________________________________

> Post your free ad now! http://personals..ca

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Hey Marie,

I am 51 and started going through the lovely stages of

menopause before I was diagnosed with AIH. I think

that is why it took me so long to go to the doc. to

see why I felt so awful. I also have been confused and

forgetful! I wonder if it is the drugs, stress from

work or the age thing. When I was having the pred.

wean back last winter I had a relapse and had to up

the pred. again. This time round the wean was done

very slowly and things went much better. I, too am

hoping not to have a biopsy- not a fun experience!! I

hope all goes well with your visit to Dr. Ghent in

March. Being told that I only have to have bloodwork

done every three months is a good sign, but it also

scares me to wait that long to be told all is well.

Sigh!

Take care!

Kathy from Ont.

Do you still have the itching or is that clearing up?

______________________________________________________________________

Post your free ad now! http://personals..ca

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  • 2 years later...
Guest guest

Hi everyone! I hope you're all doing well!

Has anyone here taken Mobic? My PCP recently refused to refill my

vicodin (which I was needing to increase the dosage anyways, but I

hadn't even mentioned that to her) and doesn't seem to want to

prescribe me anything stronger, despite the letter in my file from my

flatback doctor describing the condition and possible revision

surgery. Anyways, she prescribed me the NSAID Mobic to try. I've

been on it a week and it hasn't seemed to do anything. Is this a med

that I need to take for a while before it starts working? The product

literature said not to take ibuprofen while on Mobic, so I've been

trying to " supplement " it with tylenol to take care of my backpain,

but that's not really working either. Any thoughts...? I see the

surgeon again next week and I'll ask him as well obviously.

Thanks for any input!

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Guest guest

,

Yes, I've tried Mobic. It might take two weeks to reach its full

potential. I don't think it will help you that much. It gave me

stomach pain. Also do you know if you are on a full or max dose of

Mobic? I'm sorry, but I'm not sure how much that would be. It is

worth a try, especially if they won't let you have anything else.

Kathy

>

> Hi everyone! I hope you're all doing well!

> Has anyone here taken Mobic? My PCP recently refused to refill my

> vicodin (which I was needing to increase the dosage anyways, but I

> hadn't even mentioned that to her) and doesn't seem to want to

> prescribe me anything stronger, despite the letter in my file from

my

> flatback doctor describing the condition and possible revision

> surgery. Anyways, she prescribed me the NSAID Mobic to try. I've

> been on it a week and it hasn't seemed to do anything. Is this a

med

> that I need to take for a while before it starts working? The

product

> literature said not to take ibuprofen while on Mobic, so I've been

> trying to " supplement " it with tylenol to take care of my backpain,

> but that's not really working either. Any thoughts...? I see the

> surgeon again next week and I'll ask him as well obviously.

> Thanks for any input!

>

>

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Guest guest

I was put on the NSAID Celebrex - which worked for me by reducing the

inflamation, but I often had to pair it with coedine or tylenol to be pain free.

The one thing though if you are going to have surgery is to let them know you

are on a NSAID well ahead of time, b/c you'll likely have to stop it a few weeks

in advance (they thin the blood).

As another question - did anyone who's had revision have trouble sleeping

through the night? I wake up several times restless and wake up when I change

positions. I'm better if I take coedine before bed (that's usually the only

time I take it now). Any suggestions?

Cena

________________________________

>

> From: txbluebelle@...

> Date: Tue, 13 Mar 2007 15:22:15 +0000

> Subject: [ ] Re: med question

>

> ,

> Yes, I've tried Mobic. It might take two weeks to reach its full

> potential. I don't think it will help you that much. It gave me

> stomach pain. Also do you know if you are on a full or max dose of

> Mobic? I'm sorry, but I'm not sure how much that would be. It is

> worth a try, especially if they won't let you have anything else.

> Kathy

>

> >

> > Hi everyone! I hope you're all doing well!

> > Has anyone here taken Mobic? My PCP recently refused to refill my

> > vicodin (which I was needing to increase the dosage anyways, but I

> > hadn't even mentioned that to her) and doesn't seem to want to

> > prescribe me anything stronger, despite the letter in my file from

> my

> > flatback doctor describing the condition and possible revision

> > surgery. Anyways, she prescribed me the NSAID Mobic to try. I've

> > been on it a week and it hasn't seemed to do anything. Is this a

> med

> > that I need to take for a while before it starts working? The

> product

> > literature said not to take ibuprofen while on Mobic, so I've been

> > trying to " supplement " it with tylenol to take care of my backpain,

> > but that's not really working either. Any thoughts...? I see the

> > surgeon again next week and I'll ask him as well obviously.

> > Thanks for any input!

> >

> >

>

_________________________________________________________________

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http://search.msn.com/results.aspx?q=7+wonders+world & mkt=en-US & form=QBRE

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Guest guest

Thanks everyone for helping with my question!

I will keep taking the Mobic until next week's appointment. If it

hasn't started working better, then I will ask the surgeon if he can

prescribe something better for me. I am on the high dose (15 mg

instead of 7.5) right now. I'll also start looking into a pain

management clinic around here - I didn't even think of that, duh!!

Here's another question - would it be called a " pain management

clinic " or do they have some special, technical name?

> > >

> > > Hi everyone! I hope you're all doing well!

> > > Has anyone here taken Mobic? My PCP recently refused to refill

my

> > > vicodin (which I was needing to increase the dosage anyways,

but I

> > > hadn't even mentioned that to her) and doesn't seem to want to

> > > prescribe me anything stronger, despite the letter in my file

from

> > my

> > > flatback doctor describing the condition and possible revision

> > > surgery. Anyways, she prescribed me the NSAID Mobic to try.

I've

> > > been on it a week and it hasn't seemed to do anything. Is this

a

> > med

> > > that I need to take for a while before it starts working? The

> > product

> > > literature said not to take ibuprofen while on Mobic, so I've

been

> > > trying to " supplement " it with tylenol to take care of my

backpain,

> > > but that's not really working either. Any thoughts...? I see

the

> > > surgeon again next week and I'll ask him as well obviously.

> > > Thanks for any input!

> > >

> > >

> >

>

> _________________________________________________________________

> Explore the seven wonders of the world

> http://search.msn.com/results.aspx?q=7+wonders+world & mkt=en-

US & form=QBRE

>

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  • 1 year later...
Guest guest

has a hard time with NSAID's too, but he does not take them as

often any more so the occasional one is ok. I am sorry to read of the

ulcers Hannah has developed. I'm not a big fan of Tylenol either, but my

mom has found that Arthritis strength Tylenol helps her with her pain.

Hope Hannah is feeling better soon, Michele ( 21, spondy)

________________________________

From: [mailto: ] On

Behalf Of Beth Yohnk

Sent: Friday, August 08, 2008 9:35 AM

Subject: med question

Hi I have question for all you that been there done that. For those of

you who have kids with NSAID intolerance, like we now know Hannah is,

what do you use for pain or for that matter when they get a fever, if

Tylenol is ineffective?

Just trying to be prepared. We have tried Tylenol for Hannah in the

past and it has not been effective. Thanks in advance.

Beth & Hannah, 11, unspecified arthritis w/hypermobility in every joint;

asthma; gerd; migraines & ulcers

Sending prayers & happy thoughts,

Beth :)

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