DR VISIT

[Guest guest]

Did she think you could have FMS, Terry? Hope you get some relief very soon.

----- Original Message -----

From: <tperrella@...>

< egroups>

Sent: Tuesday, September 12, 2000 6:10 AM

Subject: [ ] DR Visit

> Went to my Rheumy yesterday about these days I am having these flu

> like pains in my muscles, diahrea, waking up 3 - 4 times a night, leg

> jerking and waking me up, and tiredness. She said they were common

> symtoms for someone with RA. She did put me on elavil to sleep at

> night.

>

> Ohio - Terry

[Guest guest]

Tery,

Are you by chance taking Ultram?

Jenna

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[Guest guest]

No I am on Arava, Naproxin and Elavil

--- In egroups, JennaKay Francis <triskelion@j...>

wrote:

> Tery,

>

> Are you by chance taking Ultram?

>

> Jenna

>

>

> FREE SPIRIT - Starlight Writers Publications

> THE GUARDIANS OF GLEDE - SWP Editors Choice Award; SWP Stellar

Award;

> WordWeaving Award of Excellance

> THE GREEN PUMPKIN - CrossroadsPub.com; furt Award Nominee

> Homepage: www.geocities.com/jennakayfrancis

>

> ________________________________________________________________

> YOU'RE PAYING TOO MUCH FOR THE INTERNET!

> Juno now offers FREE Internet Access!

> Try it today - there's no risk! For your FREE software, visit:

> http://dl.www.juno.com/get/tagj.

[Guest guest]

Jenna, I was on Ultram for a while. Why do you ask? Are you on them?

Sylvia

> > Tery,

> >

> > Are you by chance taking Ultram?

> >

> > Jenna

> >

> >

> > FREE SPIRIT - Starlight Writers Publications

> > THE GUARDIANS OF GLEDE - SWP Editors Choice Award; SWP Stellar

> Award;

> > WordWeaving Award of Excellance

> > THE GREEN PUMPKIN - CrossroadsPub.com; furt Award Nominee

> > Homepage: www.geocities.com/jennakayfrancis

> >

> > ________________________________________________________________

> > YOU'RE PAYING TOO MUCH FOR THE INTERNET!

> > Juno now offers FREE Internet Access!

> > Try it today - there's no risk! For your FREE software, visit:

> > http://dl.www.juno.com/get/tagj.

[Guest guest]

Sylvia,

I was on it, but I stopped taking Ultram after hearing lots of horror

stories. One of the effects of stopping it is restless legs syndrome.

That's why I was asking if the person with the restless legs was taking

it.

Jenna

FREE SPIRIT - Starlight Writers Publications

THE GUARDIANS OF GLEDE - SWP Editors Choice Award; SWP Stellar Award;

WordWeaving Award of Excellance

THE GREEN PUMPKIN - CrossroadsPub.com; furt Award Nominee

Homepage: www.geocities.com/jennakayfrancis

________________________________________________________________

YOU'RE PAYING TOO MUCH FOR THE INTERNET!

Juno now offers FREE Internet Access!

Try it today - there's no risk! For your FREE software, visit:

http://dl.www.juno.com/get/tagj.

[Guest guest]

Jenna,

When I first went to my idiot RD after my fall he gave me a 16 day

sample supply of Ultram with a manufacturer's printed schedule. He

never told me that I needed to wean off of them nor did he give me a

prescription to continue them either. On the 17th, 18th & 19th days

I was climbing the walls. I not only had restless leg syndrome, I

had total restless body syndrome. I could not sleep for 3 whole days

and my entire body felt needle & pins. I felt as though I was

jumping out of my skin. The worst!

Sorry I tend to forget, Who is the person that has restless leg

syndrome? And what do they take for it? If I don't get an answer

soon, I may smother my husband because his is getting worse and

worse. It is difficult enough trying to fall asleep when your own

body won't let you and then as soon as you are almost there, the bed

starts shaking, the pounding begins and then your heart hits the

mattress every 20 to 30 seconds. I've timed it, believe me.

Sylvia

PS - I have a massive migraine but...Stay tuned tomorrow. I will

compose an update about my new Dr's visit today.

--- In egroups, JennaKay Francis <triskelion@j...>

wrote:

> Sylvia,

>

> I was on it, but I stopped taking Ultram after hearing lots of

horror

> stories. One of the effects of stopping it is restless legs

syndrome.

> That's why I was asking if the person with the restless legs was

taking

> it.

>

> Jenna

>

> FREE SPIRIT - Starlight Writers Publications

> THE GUARDIANS OF GLEDE - SWP Editors Choice Award; SWP Stellar

Award;

> WordWeaving Award of Excellance

> THE GREEN PUMPKIN - CrossroadsPub.com; furt Award Nominee

> Homepage: www.geocities.com/jennakayfrancis

>

> ________________________________________________________________

> YOU'RE PAYING TOO MUCH FOR THE INTERNET!

> Juno now offers FREE Internet Access!

> Try it today - there's no risk! For your FREE software, visit:

> http://dl.www.juno.com/get/tagj.

[Guest guest]

Have you ever tried feverfew for your migraines, Sylvia? Hope you are OK.

Migraines are horrible. I've had them since I was a child. Feverfew has only

failed me once in about four years now.

Get off the computer and go lie down. Tell the hubby to behave.

I look forward to hearing about your appointment. I really hope it went

well.

----- Original Message -----

From: <booper51@...>

< egroups>

Sent: Wednesday, September 13, 2000 9:20 PM

Subject: [ ] Re: DR Visit

> Jenna,

> When I first went to my idiot RD after my fall he gave me a 16 day

> sample supply of Ultram with a manufacturer's printed schedule. He

> never told me that I needed to wean off of them nor did he give me a

> prescription to continue them either. On the 17th, 18th & 19th days

> I was climbing the walls. I not only had restless leg syndrome, I

> had total restless body syndrome. I could not sleep for 3 whole days

> and my entire body felt needle & pins. I felt as though I was

> jumping out of my skin. The worst!

>

> Sorry I tend to forget, Who is the person that has restless leg

> syndrome? And what do they take for it? If I don't get an answer

> soon, I may smother my husband because his is getting worse and

> worse. It is difficult enough trying to fall asleep when your own

> body won't let you and then as soon as you are almost there, the bed

> starts shaking, the pounding begins and then your heart hits the

> mattress every 20 to 30 seconds. I've timed it, believe me.

>

> Sylvia

>

> PS - I have a massive migraine but...Stay tuned tomorrow. I will

> compose an update about my new Dr's visit today.

[Guest guest]

Sylvia,

I also get migraines and have tried every remedy there is, at least it seems

like it. I do have a med that i take, it comes in nasal spray, pill form and

self injection. i perfer the injection, works faster for me and with all the

kids and stuff i need fast relief. my headaches tend to last for days at a

time. any way its called Imitrex. Not sure if its something you can use with

all your meds though. It may be worth a try if you can. oh yeah when i say it

works fast, i mean it works really fast. headache is gone in about 20 mins

and then i take a nap for about 2 hours and iam go to go until the next one.

I have also tried the feverfew and it seemed to help prevent the migraine for

me but not always. you know those migraines, when they decide to come there

is no stopping them but the feverfew is a good way to go if you can't use

other meds.

also gets mirgraines but we are able to control his with tylenol most

of the time. I worry about him and the rest of you other migraine suffers

that have RA because migraines are known to cause seizures and ya'll don't

need anymore things to deal with.

Hope you feel better soon.

shelly

[Guest guest]

Well I went and saw a PS today about having these things removed. He

said although he respects me wanting them out,if there is no MAJOR

complications, he'd suggest leaving them in. And the nurse was nice

enough to compare implants to getting a tooth filled at the dentist.

My husband says now that he'd just leave them alone if it was him.

However he said it was completely up to me. Why should i wait to see

if something very bad will happen. My husband does love me and i

believe he will stand by me no matter what. I want them out! How

could I have been so stupid getting these dumb things? Maybe these

rashes and the swelling is from something else. But I find it too

much of a coincidence that others have the same and they have just

had more complications with time!I'm so glad I found this group. My

stuff is minor compared to you guys, but you are truely an eye opener

and a wonderful source of info!

[Guest guest]

Hey there friend, hang in there. What a terrible thing for the PS to say. Where do you live? I have been forewarned that my PS may take this approach and if he does the Women's Implant Centre here will provide me with a doctor/s that will not question me on having the implants removed. I hope you have the same situation where you live.

Jackie

----- Original Message -----

From: rowecristy@...

egroups

Sent: Wednesday, January 10, 2001 3:10 PM

Subject: DR VISIT

Well I went and saw a PS today about having these things removed. He said although he respects me wanting them out,if there is no MAJOR complications, he'd suggest leaving them in. And the nurse was nice enough to compare implants to getting a tooth filled at the dentist. My husband says now that he'd just leave them alone if it was him. However he said it was completely up to me. Why should i wait to see if something very bad will happen. My husband does love me and i believe he will stand by me no matter what. I want them out! How could I have been so stupid getting these dumb things? Maybe these rashes and the swelling is from something else. But I find it too much of a coincidence that others have the same and they have just had more complications with time!I'm so glad I found this group. My stuff is minor compared to you guys, but you are truely an eye opener and a wonderful source of info!

[Guest guest]

Hi Cristy,

Your doctor gave the old standby lines about leaving them in if nothing is

wrong. How many women have been led astray with these " comforting " words,

only to suffer long term health consequences down the road?? It is the same

old story with women like us yelling " The bridge is out ahead!!! " , while

those that know it all say " All is well, all is well, nothing to worry

about " , only to find out too late that they should have heeded the words of

warning. You are a smart woman to take care of your health NOW, while you

are beginning to see the early warning signs.

Let your husband see the letters we have posted from other women who have

been ill and see how they are suffering. Let him see a few of the studies.

Ask him if he is willing to pay the costs of letting you go through more

serious medical consequences. I should think his mind would be changed

quickly, rather than listening to the current platitudes spouted by the

doctors.

If you haven't gone through the archives yet, I highly recommend that you

take a look at some of the studies posted, mainly in July. I also recommend

that he read the compilation of letters I did of some of the letters I have

received during one year, which I will post again for you now for his

benefit. These letters are just a representation of what is happening all

over America with the " safe " saline implant. God bless you.

Patty

What I wanted you to read is a compilation of some of the letters I have

received over the past year (and remember I have been involved in this for

almost 3 years now!) from saline implant victims. There are many more than

these. But this will give you some idea of what difficulties women are

facing when they get saline implants. I've left out last names and e-mail

addresses out of respect for the privacy of these women.

***********************

> >Date: Saturday, October 02, 1999 10:34 AM

> >Subject: Please welcome ~ questions on saline implant removal

> Hi,

> >>My name is . I had my saline implants of 7 years removed a

little under 2 weeks ago. The p/s did implant removal and he says intact

removal of the capsule. But my left breast is hard and bigger than the

right.

He said the left was more difficult to get out, to explain the significant

difference is swelling I experienced right to left. What could be happening

here? My follow up with him is Tuesday, but I just don't trust doctors and

am hoping you might have heard or know something about this. Please write

soon. Also can I ask if you know women who have had removal with symptoms,

did they improve right away in some cases, is there an average? I have

arthritic like pain in my joints, stabbing or crushing chest pain from time

to time, hair loss, dizziness, memory fog, sores in my mouth, fuzzy vision,

and sleep problems. My symptoms started with my face blowing up like a

bullfrog, which lasted 3 weeks several years ago, I didn't even think it

could be due to the breast augmentation I had only 5 months before it

happened and neither did my clueless doctor, so I left them in another 6 1/2

years. I really didn't have any more symptoms until after giving birth the

3rd time when I developed the arthritis and chest pain. I went to the

hospital thinking I was having a heart attack. They found nothing. They

checked me for arthritis at my request but said my test came back normal. I

was pregnant within 3 months again and all my symptoms disappeared. After

the birth of my next daughter, I was sicker! Bad arthritis, much hair loss,

more than typical from having a baby. I was pregnant within 3 months of

that and lost all symptoms again. My last daughters birth has brought me to

my knees. I am sick, my arthritis became unbearable, I couldn't even pull

up my sheets at night unless I used my wrists to do so. The hair loss....

Anyway, after explantation I washed my hair and expected the usual brush and

garbage can full of hair and I kid you not, I hardly lost any, I truly

believe this was God encouraging me on my decision to take those things

out of my body. I would also get terrible night sweats with shivers that

would have my teeth rattling and body aching. I'm tired of feeling like I

have

the flu all the time. I am tired of being exhausted and only able to

sleep short periods at a time. What did you do for detox. I already eat as

much organic as I can, drink lots of water, take vitamins, and avoid

chemicals at all costs (I get so sick in places like wal-mart or whole foods

when I am bombarded with too many smells). I have non-toxic cleaning

products, don't use much make up, but I am sure there is more I should be

doing. Please let me know.

> Thanks,

>

> *******************************************

> (posted on alt.support.breast-implant)

>

> I am in need of any advice I can get right now regarding problems with

> saline implants. I have had mine less than 7 months and have been having

> systemic problems which I believe may be related to my implants though I

> am not really sure. All I really know is that I was very healthy and fit

> before I got these things, and have never been the same since...my

> problems started almost imediately, with strange symptoms that have

> gotten pretty much worse, no one of course will admit that is what the

> problem is although many Dr.'s have said I should take them out and see

> if I get better. I love the way I look now, and it is such a hard choice

> to make, because I fear that if it is something else and not the

> implants then I will really be depressed. However I know in my heart it

> is not worth looking good to feel like shit everyday. Can anyone here

> refer me to some good info regarding saline implants and illness. I seem

> to only find stories about women with problems with silicone gel, and

> most of them seemed to have them for so long before getting ill. For me

> my problems basically started so fast I never realy had any good days at

> all since I got my implants. Well I am sorry this was so long but I am

> very desparate right now. I am afraid of getting sicker......help...>

********************************************************

> faussettdp@...

> Date: Sunday, October 17, 1999 11:47 AM

> Subject: Re: Explant

>

> Thanks for the reply. All of my other symptoms are stronger than before

> and

> I've got a few new ones. The one that worries me the most is my joints

are

> hurting so bad and they are getting bigger and bigger. I'm bed ridden

right

> now. Which I was just house bound before surgery. I told my boyfriend

the

> other day I felt like I was dying. It's gotten so much worse. I'm

waiting

> for the good to kick back in. I'm only 29 and I can't wait to feel like

> doing things again. Anything... My ANA and my RH factor came back neg.

I

> don't understand why they are swelling. Sometimes they don't even hurt I

> can

> just see the joint is bigger then before. I'm worried about the fasting

> thing because I've lost so much weight as it is. I weight 100lbs. I was

at

> about 116lbs before this started. And I really don't have an appetite

now.

> But I do force myself to eat. I've been taking all kinds of vitamins,

even

> before the surgery. I have a juicer and I've been drinking carrot juice.

I

> guess I'm not a very patient person cause the waiting is driving me crazy.

> I

> guess thats the key to all this....just to wait.

> I've been so discouraged the last few days. My joints hurt so bad and I

can

> barely use my left arm. My shoulder pops and clicks so much now. All my

> muscles (which I thought had stopped) have tremors. I'm so foggy I can't

> keep my mind on anything today. It's scary.

> The reason I ask about the advil is mainly for inflammation. I'm starting

> to

> worry about RA now cause of my joints and they are bending slightly now

> Thanks for the support

> > ***********************************************

> Date: Monday, October 25, 1999 7:15 PM

> Subject: Candace sosalines

>

> , To Patty, Hi my name is Candace. I read your story

> about the complications you have had with your implants and I am very

sorry

> you have expierienced such an awful thing. I am wondering how your health

> and emotional stability is now.? I am currently going through a similar

> problem myselfand I have several questions and concerns i hope you can

> answer. I have been sick for three years with many different illnesses

from

> digestive problems food & medication allergies, muscle stiffness, fatigue,

> candisiasis,etc... the list goes on. I have finally concluded (after I

have

> spent my whole savings on doctors )it must be my implants. I plan to take

> them out as soon as I can get the money. I just can't handle this chronic

> sickness anymore. It has consumed my whole life! How long did it take you

to

> get yor health back? Did you fully recover? and what did it take? Being so

> run down how did you survive surgery? If you have any suggestions for me

or

> knowledge for me it will be greatly appreciated. I am 24 years old. I have

> had my implants for four years, but have been sick for three. I am

currently

> taking many supplements, eating organic & clean, and taking antifungal ,

> Thyroid & Adrenal medications. Is there anything else I can do until or to

> prepare for explanting surgery & recovery? I hope I haven't overwhelmed

you

> with all my questions & I hope to here from you soon!

>

> *************************************************************

> Date: Tuesday, October 26, 1999 9:58 PM

> Subject: Fwd: IN NEED OF HELP!!!!! ~ Saline Implants 2 Years

>

> > I am 23 years old and got breast implants [ saline under the

muscle]about

> >2 years ago. I have noticed myself feeling very fatigued lately, memory

is

> >weird, I am really not feeling myself [up and energetic] I have had blood

> >work done and my doctor said I am completely healthy. She thought I was

> >depressed so I was put on antidepressants but none worked. I am wondering

> >what the signs are for something toxic to be going on in my body from the

> >implants. I have been suffering now for about 8 months, and I am now

> >thinking it may have to do with my implants. I would greatly appreciate

it

> >if you could email me back about tests I can under go to find out if it

is

> >my implants causing me such distress. Thank You for your time.

> angie

> ******************************

> >Date: Sunday, September 19, 1999 9:37 AM

> >Subject: Saline Implants HELP! Please..........

> >

> >

> >> What are the " signs " that saline implants have a very slow leak? I

> need

> >>to push for rapid removal. My scalp is now tingling and numb and the

same

> >>is happening to skin on my right arm. This all started two days ago.

> Also,

> >>is there a test for silicone toxicity? What tests should I insist my

> >>doctor perform? I've had my saline implants in for 1yr 8mo. I'm ready

to

> >>spend the money to go to the doctor of my choice. I'm on th Ochsner

> Clince

> >>Health Plan and it is too slow. I'm seeing my plastic surgeon on

Tuesday

> >>(also at Ochsner). She put them in.

> >> I'm now having trouble swallowing and there's pressure in my chest.

> >>I'll probably be goingto the emergency room soon. Judy New Orleans

> ************************************

> Date: Thursday, November 11, 1999 10:52 PM

> Subject: Hi, I have become seriously ill from saline implants.

>

>

> >For the last six years I have been ill from my implants. I have gone

from

> >being completely bedridden, to teaching for the Arthritis Foundation.

> >Recently, I have written a book talking about my experiences, about

> silicone

> >implants and the cover up. I desperately need information, stories and or

> >photo's of women that have become ill from implants. The more saline the

> >better. Please write me ASAP as I'm eager to receive any help. Thanks so

> >much.

> **************************************

> I have to ask all of you if you have ever heard of this being done on any

> women....

>

> A friend here in Knoxville went in to have her implants removed (saline)

> they would wad up on her shoulders and were very painful...at the same

time

> she was going to have a tummy tuck....so Dr Leotard (he's also retarded,..

> we think deals in drugs got his foot shot off at a bar in other words a

> real bastard )

> He told her before surgery the implants would be removed from the incision

> under her breast ...so when she awaken...there was not incision under the

> breast...he came into the room and said " I decided to remove them in a

> different way I " wanted " to try...so I went up thu the incision above the

> pubic area and cut the stomach muscles and dissected the diaphragm..(sp)

> ruptured them and brought them out that way.... "

>

> She could not find an attorney to sue him...she is so sick...and she has

an

> identical twin ...who is NOT sick with anything...

>

> Have any of you ever heard of this...

>

> Please visit my web site at::

>

> " http://www.fantasyrealm.net/users/honeyb

> ******************************************

>

> Date: Saturday, November 20, 1999 11:20 PM

> Subject: Saline implants removal question ~ urgent!

>

> >I just read a letter from moonlight gal about having her saline implants

> >removed. I am in desperate need of some info., advice and guidance. I

just had saline implants put in 3 weeks ago because I was a small but pretty

A

> cup and somehow I thought this would be great since it was for so many

other

> >girls I know. I insisted my PS not go big as I didn;t want to change my

> >athletic frame>. I requested 300cc saline implants. He put in 370 cc and

I feel I look ridiculous. But I dont just think its the bib size(Large C

cup now) , I also hate the artifical implant in my body. I cant feel hugs

from my 2 year old against my chest any more. My whole self confidence is

lower and not the same at all. I want my natural breasts and body back now!!

I dont have any complications and since it has only been 3 weeks I

> requested my PS remove these now!! He said I cannot go back to my natural

body now--its too late. He said I will have loss of breast tissue volume ,

dropping, sagging and wrinkling from having the implants in. I didnt have

this

before I was just a nice A cup no sagging. Is it too late? Have I ruined

what I

had and took for granted before the implants ?? Please Please help me! I

want

> >these out so bad but I need to really know if my breast wont look the way

> >they were before the implants. It's only been 3 weeks. Can't I remove

them and go back to what I was before? Please Email me today ASAP.

> >

> >Thank you for your help

> >

> *************************************************

> Date: Saturday, November 27, 1999 6:16 PM

> Subject: Welcome to linda joy and her awakening . . .

>

> >today is my first day to look up silicone disease, i feel like a fool, i

> >don't know where iv'e been, under a rock or what. i had saline implants

in

> >85 and iv'e been ill since 87 cfs, fibromyalgia, depression etc, the

extent

> >of the illness only now makes sence along with the history of its

advance.

> i

> >am now disabled, but on no benefits, i have no docot to support my belief

> of

> >silicone disease, infact up till now i thought i was nuts. i have so many

> >physical complaints that doctors are sick of me and literally through

there

> >arms up in the air in discust. iv'e cried in their offices and still no

> one

> >helps me. i now take a load of mecidation and life simply isn't worth

> living

> >like this. help me if you can, i don't seem to know where to turn now. i

> am

> >registered as a member of the lawsuit, but that is hardly worth

doscussing

> >now, i need help to live, i'm 52 years old, iv'e been seriously ill since

> 40

> >years old but i keep on trying to work and i kept on failing due to

illness

> >after illness and cfs and muscle and joint pain and me ever growing

mental

> >fatige too. god bless anything you can share, you know its funny or sort

> of,

> >everyday i pray to god to use even me, now i see the messages i must

> convey,

> >i just need to get healthier if possible. my life is seriously

compromised

> by

> >pain and extreme fatique and repeated depression. the world likes a

smiley

> >person and i don't feel to smiley when im this ill and getting worse

> >fast.thankyou for any assist or direction.

>

> *************************************************

> Date: Thursday, December 02, 1999 11:23 AM

> Subject: Husband has questions on post explant

>

> >Hi,

> >

> >My wife is in the hospital right now, 12 years dow corning implants and 2

> 1/2

> >salines. Her auto-immune system went BONKERS! Dow Corning is the

BIGGEST

> >mess of F@% & *(%^$ Liars on the face of this earth! I have done EXTENSIVE

> >research on the ill-effects of silicon for a few years now, and I have

> enough

> >legitimate proof that Dow Corning has been lying to the world since

before

> the

> >first implant was sold in 1962. My wife is in the " suit " I just pray

that

> she

> >survives to get some " vengence " on this damn company! Does anyone know

of

> any

> >problems with women after the implants are removed? Do women's health

> improve

> >after the implants are removed?

> >

> >ANY insight will be greatly appreciated!

> >

> >Dale

> >

> ****************************************************

> Date: Tuesday, December 07, 1999 10:43 PM

> Subject: Saline implants 5 years ~ Lupus ~ Help!

>

>

> >Dear Ilena,

> > Please post this to all, I've been keeping in touch with Barbara,

shes

> >been such a big help. I do have alot of questions, and would appreciate

any

> >comments on this subject. I am 36 yr., mother, wife, had saline breast

> >implants put in almost 5 yr. ago (after baby). Have been a very healthy

> woman

> >all my life, since the implants, I've experienced alot of problems.

(aches,

> >pains, joints, jabbing pain in breasts, exhaustion, very hot, etc) My ANA

> >they tested me for did'nt come back to good, I am told I have Lupus, and

am

> >being referred to a specialist for more tests. I saw Dr. Ratatori today,

> very

> >nice. On the other hand it seems like the doctors still dont feel there

is

> >any relation to implants and sickness. One of my questions is do many

woman

> >who have saline implants put in get them out due to problems, etc.? Mine

> have

> >not ruptured and according to the Dr. seemed fine. Of course I know it is

> >from this and am trying to get in as soon as possible!!! We even paid up

> >front today to avoid any delays. Any information at all, on saline

implants

> >getting removed due to problems, common for Lupus? I still have to

research

> >that since I do not know really anything about it. Thank you all so very,

> >very, much, for your time and help!!!!!

> > Sincerely,

>

> ************************************************

> (posted on alt.support.breast-implant)

>

>

> My sister in law suffers from severe joint pain and swelling in pretty

much

> all

> of her major joints. She has saline breast implants. Doctors have not been

> able

> to pinpoint the reason for this pain. She started having this pain about a

> year

> after having her surgery. They keep telling her it is arthritis or lupus,

> but

> cannot be sure. She never had this pain prior to her surgery. She wants to

> see

> if anyone out there has the same kind of symptoms she does. Please respond

if you have any information that could be useful to her.

>

> ******************************************************

> faussettdp@...

> Date: Saturday, February 05, 2000 9:48 AM

> Subject: Saline implant

>

> I can't tell you why I picked you for this question. I have been

> reseaerching this subject for two months now and today, I think I am

finally

> headed in the right direction.

>

> This " story " is about a friend (who does not have internet). She had a

> masectomy a year ago this month. Her saline-filled silicone implant was

> placed in October, 1999. Ten days later, she was in the emergency room

and

> had to have emergency surgery to drain infection from her knee. She went

in

> daily (for a month) for a one-hour IV treatment of antibiotics and the

knee

> swelling never stopped. Prior to New Year's Eve, she had to go back into

> the hospital (this time the stae university's infectious disease center)

to

> have the leg reopened and scraped. They told her that they sent the

tissue

> samples to every patholy lab imaginable and the results were that no

> infection and or disease could be named. She still has an extremely

> swollen, painful, hot knee and leg. She went back to the university

> hospital this past week and they told her they were sorry but it remains a

> mystery. She has been tested for numerous diseases and they all come back

> negative.

>

> She says she will not consider having the implant removed. If I can find

> something for her that connects the two, perhaps she will at least

consider

> that the implant is to blame. Doctors will not consider the connection.

I

> know I am not trained in the medical field, but I strongly believe in my

> intuition.

>

> Can you steer me anywhere that might help her? She has given up all hope

of

> ever feeling well. We could keep her spirits up for a few months but this

> past week has been very bad for her. I have a very strong faith in God, I

> have encouraged her to have the same but she has plunged to the depths of

> despair and I fear for her sanity. She has an extremely supportive

husband

> and we just want our friend to want to live again.

>

> Please help us. Thank you, in advance, for any information,

>

> Helen

> **********************************

> faussettdp@... <faussettdp@...>

> Date: Sunday, February 06, 2000 8:03 PM

> Subject: Saline implants & Lupus

> >Do you have any documentation or articles about any connection between

> having

> >saline implants and getting Lupus. My sister was just diagnosed with

Lupus

> >(she has been sick ever since her breast implants two years ago.) She

has

> >dismissed the connection with the implants because all her doctors told

her

> >there was no connection. I would appreciate any help you could offer.

> Thanks

> >

> >Kim

> ***********************************

> Date: Tuesday, February 15, 2000 10:58 PM

> Subject: Sam on The Loss of

>

> Dear ilena, if you would like to post this message about , it would

> be nice. I have received a message from Dr. Zuckerman and she wants to

> help. I have sent a letter to her, written from 's brother, maybe

> we can't help now, but we can make it known why she died. PLEASE!

> do not use the name and e/m address from the letter. I'm sure Mr.

> doesn't want contact from others at this time. thanks ilena and hurry

> back home,With much

> love. Sam

>

> From: Cuz

> Date: Fri, 21 Jan 2000 18:28:51 -0500 (EST)

> (

>

> Hi Sam; I don't know which company sold the implants. served in

> the U.S.Airforce,and developed breast cancer,due to her duty with Nucks.

> Since she was active duty they operated,removed both breasts,and because

> of her young age,insisted on the implants,at the military hospital.

> was assured that the implants were saline filled. Some time after

> developed problems and sickness. After awhile they tired of her

> complaining and medically discharged her. went from one specialist

> after another,not one would remove the leaking implant,not even V.A.

> finally got desperate and removed them herself.The implants were

> filled with silicon which had traveled through her body. For more than 4

> years suffered repeated outbreaks of sores which would be large

> open holes through which you could see right to the bones and tendons.

> For at least the last 4 years of 's life she was judged terminal,

> and was sent prescriptions of moraphine,for self injections every 4

> hours. Her children could tell you so much more than I. Her suffering

> was great and long, I personally hold the Govt.,Military,Doctor's as well

> as the manufacters.

>

> The thing that I understand the lest,is why are there still women out

there

> still buying these things,and why are Doctors giving into thier

> whims,and still doing the surgery's??? I'm afraid that I might have some

> less compassion for those who had these put in after all the

> publicity,as they were aware of the extreme dangers. But it is

> horrendous that our Govt. continues to let our people be used as guiena

> pigs. Everyone involved with the making

> ,approving,selling,installing,and taking no action at all even the

> President,should in my opinion serve a Natural Life sentence. For

> they surely condemned to death without even a trial.

************************************

HI,

I JUST READ YOUR STORY ON THE INTERNET. I TOO HAVE HEALTH PROBLEMS FROM

SALINE IMPLANTS. I AM GOING NEXT MONTH TO A SURGEON ABOUT EXPLANT. CAN YOU

TELL ME A LITTLE MORE ABOUT YOUR EXPLANT? I AM AFRAID TO EVEN HAVE ANY MORE

SURGERY. HOW DID YOURS GO? HOW WAS YOUR RECOVERY? HOW LONG WAS THE SURGERY?

I HAVE HAD MINE IN FOR 15 MONTHS AND WITHIN A FEW MONTHS STARTED TO HAVE

SOME SYMPTOMS BUT AT THE TIME DID NOT THINK IT WAS FROM THE IMPLANTS. FOR

THE PAST 8 MONTHS I AM HAVING MAJOR HAIR LOSS. I HAVE LOST ABOUT HALF OF MY

HAIR. I CAN JUST TOUCH MY HAIR AND IT WILL JUST FALL OUT. THIS SYMPTOM IS

CONTINUOUS AND NEVER STOPS. I WILL BE BALD WITHIN A FEW MONTHS IF IT DOES

NOT STOP. THE OTHER SYMPTOMS COME AND GO LIKE NUMBESS AND TINGLING IN THE

HANDS AND FEET, STIFF NECK, SORE THROAT, MEMORY LOSS, ECT. DID YOU HAVE HAIR

LOSS?

IF YOU DID, DID IT FINALLY STOP AFTER EXPLANT? I LOSE ABOUT 200 TO 300 HAIRS

A DAY. I HAVE BEEN TO DOCTORS AND HAVE HAD BLOOD WORK WHICH ALL HAVE BEEN

NORMAL. I JUST DIAGNOSED MYSELF THAT IT IS FROM THE IMPLANTS. THIS IS REALLY

STRESSING ME OUT. I HAVE FINE THIN HAIR ANYWAYS AND AM NOT READY TO BE BALD!

HOW LONG HAS IT BEEN SINCE YOUR EXPALNT?

HOW SOON DID YOU START TO FEEL BETTER?

************************

<faussettdp@...>

Sent: Saturday, May 27, 2000 2:21 PM

Subject: Hi Patty, your story really touched me

> Dear Patty,

> I just had to write you and tell you how your story about saline

> implants could very well have saved my life. I have been sick since a

year

> after my implantation. I had dreamed of having breast implants for 10

years

> before I could afford to have the surgery done. I had nursed my 3 children

> and was small busted to begin with, The saline implants were supposed to

be

> safe, what a wrong assumption that turned out to be. There have been

many

> times through my ordeal that I really felt I were dying, that I had cancer

> and the doctors just couldn't find it yet. The varying symptoms made me

feel

> like I was losing my mind. They tried to tell me it was depression and

> anxiety but the only thing that was depressing me was my sickness. My

> husband and I were happy, successful restaurant owners with 3 beautiful

kids,

> I had everything I had ever dreamed of having and yet I've been too sick

to

> even mother my children or work in our restaurants. My husband even bought

me

> my dream car, a Jaguar convertible that just sits in the driveway because

I

> have no energy to go anywhere. I've been to 12 doctors and spent thousands

of

> dollars and not one doctor has said it could be my implants. Your letter

> could have been written by me, your symptoms mimic mine almost exactly

except

> my major complaint has been unbearable pain in the right side of my neck

and

> the constant fevers and lymph node pain. Last night I decided to try to

find

> a site on implants and the health problems of women with them, thats were

I

> found your story, I am convinced now that it is my implants and I will be

> arranging to have then removed as soon as possible. I worry about what my

> chest will look like after, because of the skin having been stretched to

> accomidate the implants, I was an A cup before and now i'm a C, I, like

you,

> hate to lose my implants, they are beautiful and look exactly like I had

> dreamed they would, my husband and I did the same things as you and your

> husband. We went lingerie shopping and it boosted my sexuality in a big

way,

> that is until I became ill, Now they have become my worst nightmare. What

I

> wouldn't give to go back and NOT get them but unfortunatly thats not

> possible. How long did it take after you had them removed, for you to

begin

> to feel better? Can you recommend any particular supplements that helped

> you? I just want my old life back, I want to be the wife and mother I

once

> was, I can't go on feeling like I do now, it's been 2 years of hell for 1

> year of pleasure, not worth it at all. Thank you for sharing your story,

It

> was what you had to say that really touched me, I now feel like there is

> someone out there that understands what I have been going through. Thank

you

> from the bottom of my heart.

*****************************************

Sent: Sunday, July 23, 2000 6:49 PM

Subject: Please welcome Lorri ~ saline breast implants and neurological

deterioration

ilena,

i am a 36 yr. old woman who has had saline breast implants for 7 yrs. i

chose to have the surgery done for esthetic reasons after the birth of my

daughter. about 4 yrs ago i began to have bizzar and terrifying nerological

problems that could not be diagnosed and were eventually labeled " mixed

connective tissue disease " as a catch-all rheumatalogical answer to bizzar

symptoms ranging from sagittal paralysis to very elevated ANA. I have

survived on plaquinel and off-and-on doses of steroids since then until one

week ago when i landed in the hospital with symptoms of a stroke. I could

barely talk, the right side of my body was numb and my leggs felt like i was

walking in cement. for the years in between my original flare up of

symptoms

(starting with paralisys of my right side) and now, i have had constant

recurring attacks of rheumatological looking symptoms and numbness, tingling

and heaviness in my limbs. My Rheumatologists have insisted that this is

not

related to my saline implants and have in fact advised me not to have them

removed because " it won't help and the psychological damage will make things

worse " .

I am despirate!!! i am a single mother with 2 children i am trying to

raise and right now i can hardly take care of myself. The drs. at the

hospital are trying to make me believe that i am mental and all of my

symptoms are being caused by some psychological problem. I know what i am

going through is real and i am not crazy!!! I decided on an intuitive hunch

to check the internet for information on breast implants and medical

problems

and i found the coss site. the information printed by Dr. Ostermeyer proved

invaluable in convincing me that i was not crazy and that there was hope. I

am now looking for a Dr. who will support me in silicon recovery and implant

removal. I am in Ornage county, Ca. . Please, please, if you have any

information that can help me don't hesitate to e-mail it to me.

sincerely,

Lorri

*****************************

Sent: Wednesday, August 09, 2000 12:01 PM

I was 21, self-conscious of my body and extremely flat chested. I

decided to get saline implants with my college summer earnings. I

spoke to 2 plastic surgeons who told me " [i was] an excellent

candidate for breast augmentation. "

After deciding on a surgeon based on his ranking in Washingtonian

Magazine's list of Best Plastic Surgeons, I had the surgery. I was

very happy with the result, until 2 months later. I began noticing

that my right breast had begun to harden. The condition worsened and

became painful. My breast was literally rock hard.

After consulting with my surgeon, I decided to have surgery again to

fix the problem known as capsular contracture. My surgeon waived his

fee, but I was still responsible for the hospital and anesthesia

fees. Again the results were great. This time I had no problen with

hardening of my breast.

10 months later, I woke up to find one of my breasts " missing. " The

same right breast had deflated. It wasn't until later that I

realized my surgeon had removed the original implant, deflated it,

reinserted and filled it after fixing the capsular contracture

problem. It was this same implant that was now deflated.

I once again consulted with my surgeon and planned to have the

implant replaced. Again he would waive his fee, but I would again be

responsible for the hospital and anesthesia fees. He did offer me

some consolation, that Mentor (the implant manufacturer) would cover

the costs this time. Again I had surgery, hoping for the best. I

vowed that if anything went wrong this time, I would have them

removed for good.

After the surgey, I must deal with Mentor for my reimbursement. I

was issued a contract stating that I would be given a check for $1200

to " cover the surgery expenses " as long as I signed a form stating I

would never again have a claim against Mentor Corp. I refused to

sign, based solely on the fact that the hospital and anesthesia fees

were more than $3000.

To this point I have spent more than $13000 for breast implants that

I am still unhappy with. After my final surgery, I had a

large " dent " in my same right breast. It now shows through all of my

clothes except baggy t-shirts. Now I won't wear a bathing suit in

public, and I am an attractive, athletic 5'9 " 130 lb woman. The

worst part is, that I now cannot afford to have them removed. The

thought of now going another $3000+ in debt is painful.

I was warned that there were sometimes complications with saline

breast augmentation (capsular contracture, deflation, and deformity,)

but I was never warned that it was likely I would experience all of

them. And I did all this to improve my self-esteem. What a mistake.

**********************

From: Priscilla

Monday September 18, 2000

Hello,

> I am writing to you because I am on a search to find out all I can about

> the dangers of implants. I just lost my best friend who was only 36

> years old. She had implants about 4 weeks ago. Last weekend she seemed

> fine. On Monday she felt flu like symptoms, On Tuesday she had

> diarrehia and then vomiting and called an ambulence Within hours she

> had the implants removed which were surrounded by pus. Soon after she

> was rushed to a Boston Hospital within hours all her systems were not

> functioning, she was unconscious when I saw her on Wednesday in and

> swollen to an unrecognizable state and completely on life support. She

> died Wednesday . I am desperate to find all I can. I am confused and

> filled with anger and sorrow that she did this to herself, because I

> had always told her it was crazy. I don't know about any risks

> associated with implants. I just thought she was perfect and didn't

> need to change her body. If I had know that it could kill her I would

> have done everything in my power to stop it. I don't know if the doctor

> is at fault here, but there is going to be an investigation. I started

> searching the web and came upon the website www.siliconeholocaust.org .

> If you have any other advice/information please let me know. I don't

> really know how to begin this searching/understanding process.

> Much Appreciated

> Priscilla

*****************************

[Guest guest]

In a message dated 8/19/01 6:13:05 PM, lizdexic@... writes:

<< I asked about a dna test to find out what type I have and she was not

going for it..she said it doesn't matter. What do you all think? >>

I agree that it doesn't matter to the patient. The result will not be changed

and none of the types has a treatment specific to it.

Doctors who are studying it tend to want to know types.

Some people have a different viewpoint on this.

Kat

[Guest guest]

I THINK IT IS IMPORTANT TO HAVE A PRECISE DIAGNOSIS, DESPITE NO GENE THERAPY

IS AVAILABLE YET. IT IS IMPORTANT FOR YOUNG PEOPLE WHO CAN DECIDE BETTER

ABOUT PROCREATION, IT IS IMPORTANT FOR PROGNOSIS AND FOR REHABILITATION

BECAUSE SOME MUTATIONS ARE ASSOCIATED WITH WORSE PROGRESSION.

PAOLO

----- Original Message -----

From: <lizdexic@...>

< >

Sent: Monday, August 20, 2001 3:10 AM

Subject: [] Dr Visit

> Hi All, I went to my Drs. and she prescribed me Neurontin to help me

> sleep better. So far it is working well. My sis says it will only

> last until my body gets used to it. I asked about a dna test to find

> out what type I have and she was not going for it..she said it doesn't

> matter. What do you all think? Liz

>

>

>