Guest guest Posted February 15, 2001 Report Share Posted February 15, 2001 Jerry, Wow, thats encouranging news.Im so amazed at what doctors can do these days. Whatever is going around, I hope its spreading. I go to my doctor on Monday. I probably wont know anything untill I do lab work though. Ive been feeling great, except for my wacked out sleeping hours. Up at night, sleep during the day.. Ummmm... You dont think Im a, a, a ...... ahhhhh nevermind. LOLOL. Can the bilirubin count go down ? Take care Jerry, Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2001 Report Share Posted February 15, 2001 What goes up must come down. It doesn`t matter what you do for a living Kay as long as you enjoy it! LOL Jerry Jerry, Wow, thats encouranging news.Im so amazed at what doctors can do these days. Whatever is going around, I hope its spreading. I go to my doctor on Monday. I probably wont know anything untill I do lab work though. Ive been feeling great, except for my wacked out sleeping hours. Up at night, sleep during the day.. Ummmm... You dont think Im a, a, a ...... ahhhhh nevermind. LOLOL. Can the bilirubin count go down ? Take care Jerry, Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2001 Report Share Posted February 15, 2001 hello everybody !!! hello Jerry !!! Thank you very much for your informative and friendly e-mails you wrote to me. I was looking for a new medicine instead of using prednisone and imuran and now I can offer an alternative medicine. My wife wrote the first e-mails for me, because I was ill at this time. I want to tell you about an other medicament, it´s called Budenofalk 3mg (from Falk in Germany) (active substance: budesonid). It could be an alternative to prednisone and imuran. This medicament is ca. two jears old and basically used for intestinal disease, but it although can be used for autoimmun hepatitis, if you are ill or if you need to use it over years. I use this medicament only for a few days, but I have a good opinion about it. After using it three days the liver values ? fell down ca. 30 per cent from the peak level. Me and the doctors were very surpriesed about that. The secondary effects are very little, even though budenosid is an development from prednisone. I am tired now and need to take a rest and I won´t tell you the medical effects now. I don´t know, if you are interested about it. This is difficult for me to tell it in English.I hope, you´ll have understanding for that. In every case, please ask your doctor for further information, if you are interested. I am not a doctor I am a patient only. I wish you, Jerry, all the best for the future and all the other patients, too. Bye Yang from Germany Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 Hey Jerry.... I am finally getting back into the swing of things here ....catching up is always so difficult.... Tys hosp stay was such a surprise...he had been doing sooo well....for months...so when this happened ....shocked both of us....and happened fast.... we were supposed to be meeting with Joan and her husband for dinner....well with me in another state...that didn't happen....so even though she is home now and it is further away we are going to work something out..... I am sorry that you are having pain with your rib....I had a cracked rib when I was MUCH younger...my other son who was about 2 at the time was rough housing with dad in our bed...along with his older sister...well he was getting tickled and he threw himself backward to get away from the tickler....and threw his big old head right on my rib....ohhhh the pain...had the xrays...yup....its cracked....take it easy ....heres your bill....lol...not to be done...it took a long time to be able to eat with out pain....and breathing....ha.... So I am definatley feeling for you....take care.... Good to hear that your mom is doing sooo well......ahhhh another football fan...you must know that Joan is a big football fan...that is what made is kind of click...we both love the Giants....her husband is a Jet fan....I just love football all together...watch it all...love college ball too.... I can just see her sitting and watching the games and yelling at the TV....You go girl.....lol....God Bless Her.... Thanks for sending that great site for PSC...as you know ..Tyler has both AIH and PSC....so I want to breathe in all the info I can.... again thanks...good to see you back being active with the group... take care and talk soon Luanne Ty's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2002 Report Share Posted October 10, 2002 Joan 2 of my girls have B-days this month and one of my grandchildren.. To this day I can't remember how old my kids are and its worse with the grandkids... I'm lucky to remember everyones name... its a man thing.. I feel better some days than others... love jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2003 Report Share Posted January 30, 2003 Hey Jerry.... I am now just seeing the site you sent me ...thanks soooo much...I will read and reread this a couple of times so I can understand and not feel totally dumb when the doctors do put everything together and call with their findings.... I did this when they first suspected liver problems with Ty...I got on here and learned everything I could in a very short time...so when they came out with the diagnosis of PSC and AIH....I could ask appropriate questions....and not feel soooo out of control... again thanks for doing the finger work here for me...and getting to the site for me....and always thanks for the prayers and good thoughts... Luanne Ty's mom Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.