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Welcome to the group! I really feel for you and the frustration of

not being treated. It seems it is especially difficult for the

athletes to get taken seriously.

I am not familiar with congential hypo, but do know the routine for

adult onset. You definately sound like you are undertreated.

Please think of this as your support to be persistant with your

doctor, and/or find a new one who will treat you. I know this is

easier said than done, but really, you can't get much worse than

where you are. And you are not inventing these symptoms.

It has been my experience that to bring in charts (recreate if need

be, your temps, and all symptoms ranked from 1-5 (best to worst).

Give a sample training schedule with weights and menu.

You probably still won't get any attention regarding the weight so I

would emphasize the other symptoms first. Definately stress your

lung issue, sounds serious.

Lastly, you may want to discuss the possibility of adding some T3.

If you are cold, not sweating hardly with the best of workouts, and

have the dry eyes/mouth etc. it can make a world of difference

immediately.

Good luck and keep us posted.

> Hey this is good to know...not that you too struggle with this

> ridiculous condition but that there are other people who

understand.

> I'm new to this group but I just thought I'd share this.

>

> I am almost 27 years old. I had congenital hypothyroidism and for

> most of my life it has been under control. I am extremely active as

a

> 100 and 200m sprinter. With that comes the required strength

training

> and conditioning. On the inside, I have enviable, healthy numbers--

> cholesterol levels are perfect, I have an athlete's BP and so

forth.

> On the outside, I have strong, defined and even chiseled muscles.

And

> I'm very flexible.

>

> However I have not been able to get medical care for two whole

years

> because of a mistake made by my insurance provider. That has

finally

> been resolved but in that two year period, I've gained fifty pounds

> no matter how much I continue to train, no matter how healthy I

eat,

> no matter what I do. I'm sure you can imagine how incredibly

> depressed that has made me. Fast forward to right this minute, I

> fully believe that the hypothyroidism has become very severe. I've

> already gone to the ER once and was found to have blood pooling in

my

> lungs, which explains why I can't breathe right. My hair is

extremely

> coarse and dry. No matter how much water I drink, my mouth is still

> dry. My skin is dry. I know it's gross but I haven't been able to

go

> to the bathroom since Thanksgiving. I'm used to winter weather

> (being from Minneapolis but currently living in California)...but I

> find myself freezing. I have absolutely no flexibility right now.

My

> entire body is swollen beyond recognition. I can't even feel my

> thyroid gland through my neck, is how bad it's gotten. And through

> it all, I continue to sink into a depression fueled both by what I

> see in the mirror and by what the slowed metabolism has done. I

know

> all the symptoms and I'm suffering every single one of them.

>

> Anyway, now that the whole insurance thing is finally resolved, I'm

> definitely making an appointment with the endocrinologist. How do I

> convince him or her that I need the highest dose possible of Levoxyl

> (what I take) when I know they're gonna want to inch it up very

> reservedly? I need results fast. The Olympics are coming up.

> Believe it or not, I actually stand a chance in the Trials but I

> can't go looking and feeling like a sack o' potatoes.

>

> And my biggest question is, if the doctor does listen to me and put

> me on the dose I should've been on ages ago, how long before I look

> normal again? Trust me, knowing I bike about 30 miles a day in

> addition to sprinting, deep water running, lifting and stretching

and

> coming home to find out I've GAINED more abnormal weight and can't

> fit into my clothes and am getting puffier by the hour, this is

just

> so damn depressing!!

>

> sorry this is so long. i'm just beyond frustrated.