Frustration

[Guest guest]

In a message dated 10/29/03 7:27:49 PM Eastern Standard Time,

jeffb@... writes:

> perhaps this is too be expected but my 4.5 yearol dnids kid has one

> great day where is very alert etc and the next day he is spacy . same

> routine, same meds, same foods, can someone comment? thanks

>

Are the allergens in his environment under control? dog, cat, dust mites,

mold etc., Kathy -NNY

[Guest guest]

I think all parents have had this problem at some point or another.

As I'm often reminded by the behaviour of our typical two-year-old,

sometimes young kids just have bad days for no specific reason.

Trying to evaluate these kids day to day can sometimes drive you

crazy. It's a little easier if you do so over the course of weeks,

although I know none of us want to be that patient.

Hope you're keeping a journal because that allows you to spot trends

or things you may have forgotten. We've had times where we were sure

nothing had changed and then noticed by referring into his journal

that something actually had.

Sleep or the weather are two other variables that sometimes affect

kids beyond food and meds ...

Hope that helps.

Dave

> perhaps this is too be expected but my 4.5 yearol dnids kid has one

> great day where is very alert etc and the next day he is spacy .

same

> routine, same meds, same foods, can someone comment? thanks

[Guest guest]

That happens to my son too. As a longtime sufferer of a chronic immune-mediated

illness, there are always going to be good days and bad days -- and factors that

we as parents cannot control, such as weather conditions, airborne allergens,

etc. Also...sometimes I find out long after the fact that he got a hold of a

forbidden food at school (despite the teacher's best efforts, there have been a

couple of occasions where he traded with another kid). I don't know if this is

the case with all kids, but it just seems to me that it would be pretty

typical.

Donna

frustration

perhaps this is too be expected but my 4.5 yearol dnids kid has one

great day where is very alert etc and the next day he is spacy . same

routine, same meds, same foods, can someone comment? thanks

Responsibility for the content of this message lies strictly with

the original author, and is not necessarily endorsed by or the

opinion of the Research Institute.

[Guest guest]

> In a message dated 10/29/03 7:27:49 PM Eastern Standard Time,

> jeffb@n... writes:

>

>

> > perhaps this is too be expected but my 4.5 yearol dnids kid has

one

> > great day where is very alert etc and the next day he is spacy .

same

> > routine, same meds, same foods, can someone comment? thanks

> >

>

>

> Are the allergens in his environment under control? dog, cat, dust

mites,

> mold etc., Kathy -NNY

we have not taken any special precautions in his room or house. he

does take nasonex and astelyn.

What controls could we take and if it was allergens in the house why

would they bother him more one day than another? thanks for your help.

[Guest guest]

> That happens to my son too. As a longtime sufferer of a chronic

immune-mediated illness, there are always going to be good days and

bad days -- and factors that we as parents cannot control, such as

weather conditions, airborne allergens, etc. Also...sometimes I find

out long after the fact that he got a hold of a forbidden food at

school (despite the teacher's best efforts, there have been a couple

of occasions where he traded with another kid). I don't know if this

is the case with all kids, but it just seems to me that it would

be pretty typical.

>

> Donna

>

> how do weather conditions affect the kids

> frustration

>

>

> perhaps this is too be expected but my 4.5 yearol dnids kid has

one

> great day where is very alert etc and the next day he is spacy .

same

> routine, same meds, same foods, can someone comment? thanks

>

>

>

>

> Responsibility for the content of this message lies strictly with

> the original author, and is not necessarily endorsed by or the

> opinion of the Research Institute.

>

>

>

[Guest guest]

> how do weather conditions affect the kids

For example, I find that my son can get pretty spacey and/or stimmy when it's

very windy. Probably due to the dust and (in the fall, like now) molds that's

being kicked up. The smoke from the fires we're having out here isn't helping

either, wreaking all kinds of havoc with noses, lungs and throats. Not to

mention the oppressive smell! Also, phenomena associated with certain kinds of

weather might stimulate sensory problems for some kids...static electricity

(very dry weather), for example. Just things I've noticed with my own child.

Donna

[Guest guest]

Tallen I was on every Anti-depressant that was on the market and out

of them all Effexor made me feel worse. I think that it is a big

copout to put someone on this shit with out finding out what is

wrong frist. Effexor will lower you T. and make you feel like shit

if you are only suffering from low T. But if you are really

depressed and not suffering for low T. Effexor is still a bad med.

to take for depression. Tell us more how old are you what tests

have you had and so on.

Phil

> Well, I had my Dr.'s appointment yesterday. My test came back at

> 411. The Dr. was suprised I was a bit bummed. I have had three

test

> resuls (311, 340 and 411) " normal is 320 to 1000 " . I think my

> increase is T is because I have been hitting the gym pretty hard

> lately. He is reluctant to put me on test, so he is having one

more

> set of tests and this time (finally) he is testing LH, FSH and

> Prolactin and E2. I ask the nurse last time and she said it

wasn't

> necessary. I am still feeling pretty crappy, but all he would do

is

> increase my Effexor form 75 to 150. I get to see him in a

month....

[Guest guest]

The solution for you might be to stimulate your leydig cells to

produce more testosterone naturally using HCG and/or Clomid and

other. TRT is a lifelong commitment once you are on it for a while

and your body is still capable of producing at least some

testosterone. You might want to consider trying to solve the problem

using stimulating drugs to get your body to do what it is supposed

to be doing instead of going straight to replacing your

testosterone. Just something to consider.

> Well, I had my Dr.'s appointment yesterday. My test came back at

> 411. The Dr. was suprised I was a bit bummed. I have had three

test

> resuls (311, 340 and 411) " normal is 320 to 1000 " . I think my

> increase is T is because I have been hitting the gym pretty hard

> lately. He is reluctant to put me on test, so he is having one

more

> set of tests and this time (finally) he is testing LH, FSH and

> Prolactin and E2. I ask the nurse last time and she said it

wasn't

> necessary. I am still feeling pretty crappy, but all he would do

is

> increase my Effexor form 75 to 150. I get to see him in a

month....

[Guest guest]

He needs to find out if he's primary or secondary hypo first. HCG,

etc. is a waste of time if you're primary...

> > Well, I had my Dr.'s appointment yesterday. My test came back at

> > 411. The Dr. was suprised I was a bit bummed. I have had three

> test

> > resuls (311, 340 and 411) " normal is 320 to 1000 " . I think my

> > increase is T is because I have been hitting the gym pretty hard

> > lately. He is reluctant to put me on test, so he is having one

> more

> > set of tests and this time (finally) he is testing LH, FSH and

> > Prolactin and E2. I ask the nurse last time and she said it

> wasn't

> > necessary. I am still feeling pretty crappy, but all he would do

> is

> > increase my Effexor form 75 to 150. I get to see him in a

> month....

[Guest guest]

Agreed. I am curious what percentage of Hypo men have primary versus

secondary. From what I have seen in these usergroups, the majority

of men do not test off the level LH and FSH unless they are

kleinfelter or have another genetic disorder which causes hypo. So

unless the problem stems from Kleinfelter, I think there is usually

a very good chance HCG can help.

Cheers,

armyguy

> > > Well, I had my Dr.'s appointment yesterday. My test came back

at

> > > 411. The Dr. was suprised I was a bit bummed. I have had

three

> > test

> > > resuls (311, 340 and 411) " normal is 320 to 1000 " . I think my

> > > increase is T is because I have been hitting the gym pretty

hard

> > > lately. He is reluctant to put me on test, so he is having

one

> > more

> > > set of tests and this time (finally) he is testing LH, FSH and

> > > Prolactin and E2. I ask the nurse last time and she said it

> > wasn't

> > > necessary. I am still feeling pretty crappy, but all he would

do

> > is

> > > increase my Effexor form 75 to 150. I get to see him in a

> > month....

[Guest guest]

There are numerous other causes of primary Hypo, including but not

limited to, cancer, injury and surgery (especially vasectomy).

There are more primary's than secondary's at birth, but eventually the

numbers of secondarys take over.

Younger guys are more likely to have a primary.

I too think it wise to find out which Hypo it is before advocating a

treatment.

While we are at it, I think it wise to understand that most men do very

well on dosages of gel's up to 10g a day. Adding an injection to the mix

is unusual and likely to result in overdose conditions.

Nick

> Re: Frustration

>

>

> Agreed. I am curious what percentage of Hypo men have primary versus

> secondary. From what I have seen in these usergroups, the majority

> of men do not test off the level LH and FSH unless they are

> kleinfelter or have another genetic disorder which causes hypo. So

> unless the problem stems from Kleinfelter, I think there is usually

> a very good chance HCG can help.

>

> Cheers,

> armyguy

>

>

>

>

> > > > Well, I had my Dr.'s appointment yesterday. My test came back

> at

> > > > 411. The Dr. was suprised I was a bit bummed. I have had

> three

> > > test

> > > > resuls (311, 340 and 411) " normal is 320 to 1000 " . I think my

> > > > increase is T is because I have been hitting the gym pretty

> hard

> > > > lately. He is reluctant to put me on test, so he is having

> one

> > > more

> > > > set of tests and this time (finally) he is testing LH, FSH and

> > > > Prolactin and E2. I ask the nurse last time and she said it

> > > wasn't

> > > > necessary. I am still feeling pretty crappy, but all he would

> do

> > > is

> > > > increase my Effexor form 75 to 150. I get to see him in a

> > > month....

>

>

>

[Guest guest]

I feel for you sooo much. I feel the same way, I don't go anywhere I don't

have to or have people over unless they just stop by, and I hate every min. of

it, because I feel so bad that it is so uncomfortable to be anywhere or around

others. I use to go to work 5 to 7 days a week and would even stay late if

needed, but it got to the point that it just hurt soo bad that I can't do it

anymore. I just had a baby 6 months ago, it was when I got pregnant with him the

pain stayed with me 24/7, and now it just won't go away. I am going for my

first shot in my back at the end of DEC. I can't wait I only hope it helps me.

I've heard that it helps some and some it didn't or made it worse, but the ones

that it help, still gives me hope in that this will get better. I still have a

lot of pain that I haven't gotten looked at yet, but I sure will call on

Monday to see about that too. Just one step at a time they say, and to take

things

slowly, well hell that is the only way my body will go anymore. I know there

are soo many others out there in soo much more pain then I am in. I can't see

how they can deal with it. They sure all sooo much stronger then I am, because

I too have thought about just ending it, because I don't feel I can go on like

this anymore. I am a signal mother of 4 and I want to, and have to for them.

I am still trying soooo hard to keep the faith in that things will get better.

I'll put you in my prays too that you will find a way to feel normal again. I

know this takes us away from sooo much in life, but just remember one day

they will find away to fix us all. So we can't give up, because it might be with

each one of us that they find the curl. Good luck and may God Bless each one

of you, and Happy Holidays to all of you and your love ones. Vicki

[Guest guest]

Thank you I am looking forward to any relief.

[Guest guest]

I FIND THE SAME FEELING IN THE FORUM. I HAD BACK

SURGERY FOR A HERNIATED DISC AND WAS LEFT WITH LEG

PAIN AND THIGH SKIN SENSITIVITY. I CAN'T GET A CLEAR

ANSWER FROM MY OS AS TO HOW LONG IT WILL TAKE TO FEEL

ANY DEGREE OF RELIEF OR IF THIS IS SOMETHING I'LL HAVE

TO LIVE WITH.

I'VE READ SIMILAR CASES SUCH AS MINE AND HAVE NEVER

READ ONE WHERE THEY CAME AWAY PAIN FREE OR EVEN A 50%

DECREASE IN PAIN. IT JUST SEEMS THAT SPINAL SURGERY

HAS A VERY LOW SUCCESS RATE IN GIVING ANY DEGREE OF

RELIEF. IF THERE IS ANYONE OUT THERE WHO CAN SHOW

OTHERWISE, I'D LOVE TO HEAR FROM THEM, I COULD USE

SOME HOPE TO BUILD ON IN MY SITUATION.

--- audelinom <audelinom@...> wrote:

---------------------------------

Something that I sense in this forum it's a vast

feeling of frustration in many

people who come here and express their opinion.

I am one of them. After five years of crhonic pain in

my neck I haven't found

an answer and what is worse, doctors haven't been able

to give me anything

close to a real help. I am sorry, but I feel that

conventional medicine has

proven to be a big failure about all this. My Dr.

tells me " you thing to much

about your pain " ... and how couldn't I? I am just 33

and sometimes I fell like

87. My firends don't understand how I can feel so

tired and sored everyday.I

feel that the pain is stealing a big part of my life.

Of course I keep going with my life. I won't kill

myself becuase of a neck pain,

but it's bad enpugh to make my life miserable many

times. I have even got the

feeling in some way, I am responsible for the pain,

given the kind I live (

constant stress, anxiety, hard work). there must be an

answer for chronic

pains. I just thing that is gonna take me long time

to find it.

[Guest guest]

HANG IN THERE VICKIE. YOU WILL GET RELIEF FROM THE

SHOTS! NO ONE CAN SAY HOW LONG THE RELIEF WILL LAST,

BUT IT'S WORTH GOING THRU WITH IT. GOOD LUCK TO YOU.

--- victoria0037@... wrote:

---------------------------------

I feel for you sooo much. I feel the same way, I don't

go anywhere I don't

have to or have people over unless they just stop by,

and I hate every min. of

it, because I feel so bad that it is so uncomfortable

to be anywhere or around

others. I use to go to work 5 to 7 days a week and

would even stay late if

needed, but it got to the point that it just hurt soo

bad that I can't do it

anymore. I just had a baby 6 months ago, it was when I

got pregnant with him the

pain stayed with me 24/7, and now it just won't go

away. I am going for my

first shot in my back at the end of DEC. I can't wait

I only hope it helps me.

I've heard that it helps some and some it didn't or

made it worse, but the ones

that it help, still gives me hope in that this will

get better. I still have a

lot of pain that I haven't gotten looked at yet, but I

sure will call on

Monday to see about that too. Just one step at a time

they say, and to take things

slowly, well hell that is the only way my body will go

anymore. I know there

are soo many others out there in soo much more pain

then I am in. I can't see

how they can deal with it. They sure all sooo much

stronger then I am, because

I too have thought about just ending it, because I

don't feel I can go on like

this anymore. I am a signal mother of 4 and I want to,

and have to for them.

I am still trying soooo hard to keep the faith in that

things will get better.

I'll put you in my prays too that you will find a way

to feel normal again. I

know this takes us away from sooo much in life, but

just remember one day

they will find away to fix us all. So we can't give

up, because it might be with

each one of us that they find the curl. Good luck and

may God Bless each one

of you, and Happy Holidays to all of you and your love

ones. Vicki

[Guest guest]

> YOU WILL GET RELIEF FROM THE SHOTS! <

That is not a true statement, as there have been quite a few people that have

received no relief at all. But there has been enough who were helped, that we

keep going back for more.

Thinking that you meant to say that you hoped she got relief from the shots?

I had shots in my lumbar area that didn't help at all. I will be seeing pain

management on Tues for my neck and I know that will be his next move. I just

hope that I have better luck with my neck than with my lower back...these

headaches radiating from my neck are killing me!

> From: " dmwesolowicz@... " <dmwesolowicz@...>

> Date: 2003/12/14 Sun AM 11:41:31 CST

> spinaldisorderssupport

> Subject: Re: frustration

>

> HANG IN THERE VICKIE. YOU WILL GET RELIEF FROM THE

> SHOTS! NO ONE CAN SAY HOW LONG THE RELIEF WILL LAST,

> BUT IT'S WORTH GOING THRU WITH IT. GOOD LUCK TO YOU.

> --- victoria0037@... wrote:

>

> ---------------------------------

> I feel for you sooo much. I feel the same way, I don't

> go anywhere I don't

> have to or have people over unless they just stop by,

> and I hate every min. of

> it, because I feel so bad that it is so uncomfortable

> to be anywhere or around

> others. I use to go to work 5 to 7 days a week and

> would even stay late if

> needed, but it got to the point that it just hurt soo

> bad that I can't do it

> anymore. I just had a baby 6 months ago, it was when I

> got pregnant with him the

> pain stayed with me 24/7, and now it just won't go

> away. I am going for my

> first shot in my back at the end of DEC. I can't wait

> I only hope it helps me.

> I've heard that it helps some and some it didn't or

> made it worse, but the ones

> that it help, still gives me hope in that this will

> get better. I still have a

> lot of pain that I haven't gotten looked at yet, but I

> sure will call on

> Monday to see about that too. Just one step at a time

> they say, and to take things

> slowly, well hell that is the only way my body will go

> anymore. I know there

> are soo many others out there in soo much more pain

> then I am in. I can't see

> how they can deal with it. They sure all sooo much

> stronger then I am, because

> I too have thought about just ending it, because I

> don't feel I can go on like

> this anymore. I am a signal mother of 4 and I want to,

> and have to for them.

> I am still trying soooo hard to keep the faith in that

> things will get better.

> I'll put you in my prays too that you will find a way

> to feel normal again. I

> know this takes us away from sooo much in life, but

> just remember one day

> they will find away to fix us all. So we can't give

> up, because it might be with

> each one of us that they find the curl. Good luck and

> may God Bless each one

> of you, and Happy Holidays to all of you and your love

> ones. Vicki

>

>

>

[Guest guest]

I have to agree that that statement is not accurate. I have had

NUMEROUS injections and not a single one worked for me. I am so glad

that they work for others, but for me, it was a no go

In light and love,

Jewel

> >

> > ---------------------------------

> > I feel for you sooo much. I feel the same way, I don't

> > go anywhere I don't

> > have to or have people over unless they just stop by,

> > and I hate every min. of

> > it, because I feel so bad that it is so uncomfortable

> > to be anywhere or around

> > others. I use to go to work 5 to 7 days a week and

> > would even stay late if

> > needed, but it got to the point that it just hurt soo

> > bad that I can't do it

> > anymore. I just had a baby 6 months ago, it was when I

> > got pregnant with him the

> > pain stayed with me 24/7, and now it just won't go

> > away. I am going for my

> > first shot in my back at the end of DEC. I can't wait

> > I only hope it helps me.

> > I've heard that it helps some and some it didn't or

> > made it worse, but the ones

> > that it help, still gives me hope in that this will

> > get better. I still have a

> > lot of pain that I haven't gotten looked at yet, but I

> > sure will call on

> > Monday to see about that too. Just one step at a time

> > they say, and to take things

> > slowly, well hell that is the only way my body will go

> > anymore. I know there

> > are soo many others out there in soo much more pain

> > then I am in. I can't see

> > how they can deal with it. They sure all sooo much

> > stronger then I am, because

> > I too have thought about just ending it, because I

> > don't feel I can go on like

> > this anymore. I am a signal mother of 4 and I want to,

> > and have to for them.

> > I am still trying soooo hard to keep the faith in that

> > things will get better.

> > I'll put you in my prays too that you will find a way

> > to feel normal again. I

> > know this takes us away from sooo much in life, but

> > just remember one day

> > they will find away to fix us all. So we can't give

> > up, because it might be with

> > each one of us that they find the curl. Good luck and

> > may God Bless each one

> > of you, and Happy Holidays to all of you and your love

> > ones. Vicki

> >

> >

> >

[Guest guest]

In a message dated 12/15/2003 1:58:43 AM Eastern Standard Time,

jewels09192000@... writes:

have to agree that that statement is not accurate. I have had

NUMEROUS injections and not a single one worked for me. I am so glad

that they work for others, but for me, it was a no go

In light and love,

Jewel

Which shots are you talking about? Trigger point or Cervical epidural's?

The reason I ask is I have had trigger point injections many times, I was going

every two weeks for them but they would only last maybe an hour, my drive

home, and then the pain would come back for me. This Doctor is doing the

Cervical

epidermal should I not expect good results? I know for some it works but I

don't want to get my hopes up and be shot down later on that day.

Joy

[Guest guest]

-Annie........that is so appropriate! That is just how I feel sometimes

when people look at you..up and down...and since they can't SEE

anything they think you don't hurt!!! Or insist that you do something

that YOU know either you can't do or if you do do it you will hurt in

every joint in your body!! Kicking......I just may try it!! (in my

thoughts only!) just one good swift mental kick!...maybe it would make

ME feel better! jenna

-- In , " Annie " <ahightower@...> wrote:

>. I just want

> to kick somebody so they hurt as bad as I do. I

>

> I'm glad I have found new friends here!

>

> Annie in Michigan

>

[Guest guest]

Isn't taht a kicker

siofra520 <siofra520@...> wrote:

-Annie........that is so appropriate! That is just how I feel

sometimes

when people look at you..up and down...and since they can't SEE

anything they think you don't hurt!!! Or insist that you do something

that YOU know either you can't do or if you do do it you will hurt in

every joint in your body!! Kicking......I just may try it!! (in my

thoughts only!) just one good swift mental kick!...maybe it would make

ME feel better! jenna

-- In , " Annie " <ahightower@...> wrote:

>. I just want

> to kick somebody so they hurt as bad as I do. I

>

> I'm glad I have found new friends here!

>

> Annie in Michigan

>

[Guest guest]

I

> Seems I've read

> that RA seldom affects the spine so should I continue with the ortho

> for the back pain? I>>>>>

>

I have arthritis of the spine, Ankylosing Spondilitis (sp).

It (RA) DEFINITELY effects the spine .

I would ask your RA about this and am surprised he has not mentioned it....

I cannot stand with out pain (stenosis of the spine from RA) or sit from pain

hip bursitis from RA, probably.

Do a Google on AS (RA of the spine).

Good luck,

Pris

**************************************

See what's free at http://www.aol.com.

[Guest guest]

> My last nerve blocks were radio frequency ones , done on both sides of the

> spine. that was almost two years ago>>>>>

>

What are those?

How are they done, what is the cost, is there at down side?

Is it done in a hospital, is it painful? Who should have it done?

Can you explain it all for us?

THANKS,

Pris

**************************************

See what's free at http://www.aol.com.

[Guest guest]

Oh ! I feel your pain! You put it so well... I feel this exact

frustration when dealing with the whole RA experience.

>

> Evening all. I'm really frustrated and need to vent. I had a

severe

> flare (from RA and OA) 3 weeks ago to the point I could hardly

walk.

> I went to the Ortho and he gave me a cortizone shot in my hip

joint

> saying my back pain was coming from my hips being so bad. Hurt

like

> crap and didn't help. Went to the rheumy that afternoon and he

said

> my whole body was inflamed badly, suspended the MTX injections and

> put me on Medrol. He was very insulted that I had gone to the

Ortho

> without consulting him. I didn't realize until day 3 on the

medrol

> how bad I felt before I started it. It was great....as long as it

> lasted. Over the last 3 weeks my spine has gotten so bad that it

is

> literally crunching when i move, not to mention the pain. I can't

> sit or stand, and the last two nights I've not been able to lay

down

> without pain. So, went back to the rheumy today, again in pain,

> swollen and almost immobile. He resumed the MTX injections at the

> same low dose, refused to give me anything oral for pain (gave me

> lidocain patches and a cream) and seemed indignant when I asked

him

> if I needed to continue to see the Ortho about the spinal pain.

He's

> the only doctor within 100 miles and I just don't know what to

do.

> He didn't seem that my spine crunching when I move warranted an

MRI

> or anything! All he said was " if I'm not making you better someone

> needs to " and changed the subject. I am so tired of pain and

doctors

> and trying to figure out who to see for what pain? Seems I've

read

> that RA seldom affects the spine so should I continue with the

ortho

> for the back pain? I don't know what to do.

> Thanks for giving me a place to " let this all out " .

>

>

[Guest guest]

, I feel for you, I have RA and spondylitis, I take Enbrel, MTX, mobic,

folic acid , prednisone. vicodin. You should see a seperate Doctor for the

spine, my RA doc sent me to a spine center and from there they sent me to a pain

management clinic. When i first went I was at 68 % disability with the back, my

right hip was out of place and so my right leg was longer than the left, which

can cause all kinds of back pain. I did theraphy for a few months and was better

but not pain free, that is when I started nerve blocks, I have RA in my spine,

sacruim joint ( tail bone area ) hips, knees , hands ankles, pretty much all

over. I have also lost 3/4 on an inch in height in the past three years. My last

nerve blocks were radio frequency ones , done on both sides of the spine. that

was almost two years ago, My pain doc said the treatment could last up to two

years or longer, and so far I have been doing good with the back, but I do

exercise, you have to keep the core strength

built up. I just wish they had something for the rest of the body pains that go

with the RA, it never ends. good days and RA fatigue days. Takes for ever to get

anywhere. so plan on taking longer and dropping things, and all that comes with

it. Just stay mobile as much as possible. This is a really good group. We are

all here for support or help even if it is to just vent or find some answers.

Faith <fmt2002@...> wrote:

Oh ! I feel your pain! You put it so well... I feel this exact

frustration when dealing with the whole RA experience.

>

> Evening all. I'm really frustrated and need to vent. I had a

severe

> flare (from RA and OA) 3 weeks ago to the point I could hardly

walk.

> I went to the Ortho and he gave me a cortizone shot in my hip

joint

> saying my back pain was coming from my hips being so bad. Hurt

like

> crap and didn't help. Went to the rheumy that afternoon and he

said

> my whole body was inflamed badly, suspended the MTX injections and

> put me on Medrol. He was very insulted that I had gone to the

Ortho

> without consulting him. I didn't realize until day 3 on the

medrol

> how bad I felt before I started it. It was great....as long as it

> lasted. Over the last 3 weeks my spine has gotten so bad that it

is

> literally crunching when i move, not to mention the pain. I can't

> sit or stand, and the last two nights I've not been able to lay

down

> without pain. So, went back to the rheumy today, again in pain,

> swollen and almost immobile. He resumed the MTX injections at the

> same low dose, refused to give me anything oral for pain (gave me

> lidocain patches and a cream) and seemed indignant when I asked

him

> if I needed to continue to see the Ortho about the spinal pain.

He's

> the only doctor within 100 miles and I just don't know what to

do.

> He didn't seem that my spine crunching when I move warranted an

MRI

> or anything! All he said was " if I'm not making you better someone

> needs to " and changed the subject. I am so tired of pain and

doctors

> and trying to figure out who to see for what pain? Seems I've

read

> that RA seldom affects the spine so should I continue with the

ortho

> for the back pain? I don't know what to do.

> Thanks for giving me a place to " let this all out " .

>

>

[Guest guest]

Hi ,

I just thought I would add my two cents.

I would be wary of any doctor who was insulted that you saw another doctor for

pain. Although I do not have an orthopedist right now. I have seen a

rheumatologist and an orthopedic doctor at the same time. They deal with

different issues.

Just an FYI - My brother has seronegative Ankylosing spondylitis, which is a

form of RA that effects the spine. Last week he had major surgery to try to

repair some of the damage to his spine. He decided to have the surgery because

it was painful to walk, sit, stand, bend over, etc... He was using crutches to

walk.

Jodi

test'; " >

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