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Re: Marlene (teeth)

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Dear Vivian:

Yes, I do have some discoloration where the decalcification is. For me it is

right next to the gums. It's just as you describe, a sort of whitish color

different from the color of my teeth. I'll write back with the name of the

toothpaste the dentist gave me that's supposed to help. It's a prescription,

so you have to get it from the dentist.

Kathy (AIH)

Seattle area

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Dear Vivian:

From what I understand about it, the white (they're weaker) parts at the top

of some of my teeth are caused by decalcification from the prednisone. It's

related to the problems of bone loss mentioned earlier by . The

dentist told me that this toothpaste can help to strengthen the enamel in the

teeth. I questioned that because I thought healing would have to come from

within. I wasn't told the mechanics of why it works, just that they've seen

real progress with patients that have used it. It's called Enamelon.

Kathy (AIH)

Seattle area

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Dear Kathy,

Did you have any tooth discoloration? My front teeth got a white smudge on

them quite suddently, 4 months after transplant. Neither dentist nor

transplant people know what to attribute it too, just shoulder shrugging. I

am trying to figure this one out, to decide whether it might be reversible

or not.

[ ] (teeth)

> From: KATBERCOO@...

>

> Dear :

>

> I've had some problems with decalcification of my teeth since being on

> prednisone. Just recently I badly cracked a tooth. I already had one

that

> was broken that I need to get fixed, but the combination of the two has

made

> it just about impossible to eat anything cold. I'm supposed to get one of

> them repaired on the 16th, so at least I'll have one side I can chew on.

>

> The dentist gave me some special prescription toothpaste that is supposed

to

> help with the decalcification (theoretically, we'll see).

>

> Kathy (AIH)

> Seattle area

>

> ---------------------------

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Dear Kathy,

I am SO glad to hear somebody else with the same issue, now I don't feel so

" dunno... " anymore...Please do give me the name of the toothpaste, as I

happen to have a dental appointment next Weds. After transplant, I was told

to do cleaning every 3 months, to reduce bacteria that has to be processed

by the liver. Would you mind telling me a little bit more about your

understanding of the mechanics of this white appearing? Also, what is the

toothpaste supposed to do that can help? I still would like to have a guess

at whether it might be reversible or not. Tks!!

Re: [ ] (teeth)

> From: KATBERCOO@...

>

> Dear Vivian:

>

> Yes, I do have some discoloration where the decalcification is. For me it

is

> right next to the gums. It's just as you describe, a sort of whitish

color

> different from the color of my teeth. I'll write back with the name of

the

> toothpaste the dentist gave me that's supposed to help. It's a

prescription,

> so you have to get it from the dentist.

>

> Kathy (AIH)

> Seattle area

>

> ---------------------------

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Hey, just want to add to Kathy's post. I use the Enamelon and it doesn't

require a prescription. It does seem to be helping somewhat....however, my

dentist told me that they did a study about the effectiveness of the product.

She said that the Enamalon works best when it is used daily and followed

with an ACT Flouride treatment . She told me that ACT is the only one that

had the better results. So that is what I am doing, every night.

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Dear Kathy,

The part that amazes me is that in addition to the Pred, I also had been

taking 1500 mg calcium daily. My mineral bone density pre-transplant was at

115%, at the time these white stains showed up I was at 99.8%, this loss in

density over a period of 4 months, now at 1 year post transplant I am still

essentially at 100%. The appearance of the stains happened so suddently, as

in a 3 day period! Because of how white the stains are, I actually wondered

if it was BECAUSE of the calcium supplementation. This info was extremely

helpful, Kathy, and tks for the name of toothpaste.

Re: [ ] (teeth)

> From: KATBERCOO@...

>

> Dear Vivian:

>

> From what I understand about it, the white (they're weaker) parts at the

top

> of some of my teeth are caused by decalcification from the prednisone.

It's

> related to the problems of bone loss mentioned earlier by . The

> dentist told me that this toothpaste can help to strengthen the enamel in

the

> teeth. I questioned that because I thought healing would have to come

from

> within. I wasn't told the mechanics of why it works, just that they've

seen

> real progress with patients that have used it. It's called Enamelon.

>

> Kathy (AIH)

> Seattle area

>

> ---------------------------

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Hi :)

What kind of " special " toothpaste did they give you? I was given something

that is basically like having a fluoride treatment that supposedly will help.

Of course with brain fog and burn out from work I can't remember what it's

called. I think it's put out by Oral B. Gotta hate that brain fog. LOL!

Dianne A.

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, thank you! I will most certainly give it an earnest try for a few

months...Vivian

Re: [ ] (teeth)

> From: Ceallachqn@...

>

> Hi Vivian,

> Well, I think it is helping. My teeth are somewhat less sensitive than

they

> were 3 months ago. I would say it is about 30-40% better. I still have

> problems with refrigerated stuff, but I can drink tap water without a

> problem. I use the combination of Enamelon toothpaste and ACT flouride

rinse

> once a day at bedtime. Read the directions on the labels for use.

>

> ---------------------------

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Well I saw my Dr. yesterday Told her about teeth she said she did not

think it was from the meds. I appreciate everones help and will try what

you all said.

Pa.

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