verge of a transplant???

[Guest guest]

Hi Lia,

Sorry to hear that you're not responding to the meds. I'm in a similar

situation to you although I was diagnosed a year earlier, in Aug '99. The

dreaded word " transplant " has been mentioned to me, but no arrangements made

yet for tests, so don't know about withdrawing Imuran before the tests.

What you say about the Imuran is interesting, though .......

I also have a big stomach. I keep asking the doctor why, but he says it all

feels normal. Have you actually asked the doctor about Ascites? Is that

why you're taking diuretics? If you find out how to get rid of the big tum,

please let us know.

Good luck with everything,

Bozena

> Message: 13

> Date: Mon, 1 Oct 2001 19:50:36 -0700 (PDT)

> From: lia <ldm_12@...>

> Subject: verge of a transplant???

>

> Hello,

>

> Well, I had my 2nd liver biopsy a couple of weeks ago,

> and my doctors said there is really no sign of

> improvement in my condition. My prednisone has

> already been increased to a level where the side

> effects are getting bad and so my doctor doesn't want

> to increase them anymore.

>

> So before my doctor seriously considers transplant

> options (i'm seeing a transplant team next week)...he

> told me to stop taking imuran...in case it was

> contributing to liver toxity. Then I'll have blood

> tests to see if it has done any good. (which i'm

> getting this weekend).

>

> Quite frankly I'm scared to death of getting a

> transplant. I've seen a few success stories on here,

> but I would like to hear more...just to ease my mind.

> If you don't want to post to the list, just e-mail me

> privately at ldm_12@....

>

> Also, has anyone else's doctor told them to stop

> taking imuran when you're not responding to the other

> meds. (btw, I'm also currently on 40mg Pred., 40mg

> lasix [diuretic], 100mg aldactone [diuretic] and 900

> mg ursodiol.)

>

> And one more question

> what the heck can i do to get rid of this belly

> (ascites)?!?!?... i look like a freak when i look in

> the mirror sideways...

>

> Sorry for the " novel " ...but I don't post here often,

> so when I do, it tends to be long. Thanks in advance

> for any advice.

>

> Lia

> AIH 10/00

>