rethinking

[Guest guest]

touched a nerve. The one that many of us have based on too many

years being told .... just chew more.... eat slower .... eat more

healthy....when it takes hours for liquid to get from mouth to

stomach, and then only if the stomach is willing. It is not very

useful.

Trying to make it count I think we all do.... but most times just

trying to make it through another day without fainting from low blood

sugar can be a trial. Some meals are a piece of chocolate and some

Altoids so that I can drive home.

Most healthy foods don't go down. If you can eat fish & salad then I

am very jealous.

I don't find we are arguing over everything on this site. I find it

extremely supportive and helpful. The biggest support is finding a

place where people are not judgmental on how we as A's try to make it

through. That was until 's email. I am glad he can preach on the

joys of a healthy diet, some of us just aren't that lucky.

So how about we just accept that we are all at different stages of

this tough disease. your lecture was probably well meant but

obviously not well received.

P.S. If I was diabetic or had high blood pressure nobody would tell

me it was in my head and then try to get me to eat something I can't.

> STOP!!!!!!!!!!!!!!!!!!!!! Listen to what is saying I

repeat If we

> found out we were Diabetic or had High Blood pressure Our diet and

way of

> life would have to change SOOOO Having the big " A' means changing

Our life

> style Which means eating We must eat wisely And make every bite

count

> Does that sound so bad??? As for being obese That isn't good

PERIOD Dear

> God Must we argue over everything If you were my kids I would say

go to

> your room And cool off Yes obese and Achalasia Don't go

together

> Who went for dinner again tonight Had a

cup of creamed soup Broiled flounder Baked potatoes Salad plain

didn't finish all But enough OH had a cup of tea Which is hard to

go down Ate at 5 Now to bed

[Guest guest]

Hello, .

>P.S. If I was diabetic or had high blood pressure nobody would tell

>me it was in my head and then try to get me to eat something I can't.

Good point. It got me thinking.

If you were diabetic your doctor would tell you needed to be on a special

diet. There would be medical web sites that would tell what kind of diet to

be on. And there would also be sites providing links to research articles

about studies on the effects of diet on diabetes. If you had high blood

pressure your doctor would tell you needed to be on a special diet. There

would be medical web sites that would tell what kind of diet to be on. And

there would also be sites providing links to research articles about

studies on the effects of diet on high blood pressure.

I thought I would list all the site I can find that tell what kind of diet

achalasics should be on to reduce their symptoms, and the sites that show

the research for the diet. (I am talking about what and how much to eat,

not when to eat. Also, this is not about what is easy to get down, but what

makes achalasia better.) I will also list all those sites that discuss how

obesity makes achalasia worse and the sites that show the research on it.

So, here they are:

Sites with diet advice for Achalasics:

(Ooops! I couldn't find any)

Sites with research supporting the diet:

(Ooops! I couldn't find any)

Sites that discuss the problem of being obese with achalasia:

(Ooops! I couldn't find any)

Sites with research about being obese with achalasia:

(Ooops! I couldn't find any)

I didn't get to every achalasia site, but I tried a number of search set

ups I thought would bring them up and got tired of looking. Maybe someone

who believes in this stuff can show us where we can get the information. Or

maybe it is just " gossip? " Rats! I was so hoping the one week guaranteed

results diet would work for me, but it is looking like one of those, " if it

sounds to good to be true " things.

notan

[Guest guest]

notan wrote:

I thought I would list all the site I can find that tell what kind of diet achalasics should be on to reduce their symptoms, and the sites that show the research for the diet.

You had me going there for a minute!

I was wondering where you found all these sites! LOL :-)

Sandi

[Guest guest]

At this point WE all should know what is a good diet is AND whats good for each of us Good wholesome food Gotta be some for All of us If it's liquids Use that as a base and put things in that are wholesome Hey Think We are all smart enough to figure that out CArrie

-- Re: Re: rethinking

obesity makes achalasia worse and the sites that show the research on it. So, here they are:Sites with diet advice for Achalasics:(Ooops! I couldn't find any)Sites with research supporting the diet:(Ooops! I couldn't find any)Sites that discuss the problem of being obese with achalasia:(Ooops! I couldn't find any)Sites with research about being obese with achalasia:(Ooops! I couldn't find any)I

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

[Guest guest]

I ask the question ages ago about how many of us were overweight and had

trouble with weight If at all,The majority had replied that they were and

had always had weight problems.I tend to agree with on this one I

think that if you do as he suggests it just may help us..

All the best

Re: Re: rethinking

> Hello, .

>

> >P.S. If I was diabetic or had high blood pressure nobody would tell

> >me it was in my head and then try to get me to eat something I can't.

>

> Good point. It got me thinking.

>

> If you were diabetic your doctor would tell you needed to be on a special

> diet. There would be medical web sites that would tell what kind of diet

to

> be on. And there would also be sites providing links to research articles

> about studies on the effects of diet on diabetes. If you had high blood

> pressure your doctor would tell you needed to be on a special diet. There

> would be medical web sites that would tell what kind of diet to be on. And

> there would also be sites providing links to research articles about

> studies on the effects of diet on high blood pressure.

>

> I thought I would list all the site I can find that tell what kind of diet

> achalasics should be on to reduce their symptoms, and the sites that show

> the research for the diet. (I am talking about what and how much to eat,

> not when to eat. Also, this is not about what is easy to get down, but

what

> makes achalasia better.) I will also list all those sites that discuss how

> obesity makes achalasia worse and the sites that show the research on it.

> So, here they are:

>

> Sites with diet advice for Achalasics:

> (Ooops! I couldn't find any)

>

> Sites with research supporting the diet:

> (Ooops! I couldn't find any)

>

> Sites that discuss the problem of being obese with achalasia:

> (Ooops! I couldn't find any)

>

> Sites with research about being obese with achalasia:

> (Ooops! I couldn't find any)

>

> I didn't get to every achalasia site, but I tried a number of search set

> ups I thought would bring them up and got tired of looking. Maybe someone

> who believes in this stuff can show us where we can get the information.

Or

> maybe it is just " gossip? " Rats! I was so hoping the one week guaranteed

> results diet would work for me, but it is looking like one of those, " if

it

> sounds to good to be true " things.

>

> notan

>

>

>

>

>

>

[Guest guest]

Most healthy foods don't go down. If you can eat fish & salad then I am very jealous.+++++++

One of the reasons I stay on this list is the joy of reading things like the above and knowing I am not alone. Until I got here I knew nobody with A.

People repeatedly over the years have asked me what I can eat. I explain my concept of the disease carefully and they still don't get it. I can pretty much eat whatever goes down, and some things I don't even try.

Those nummy raw vegetables trays I can't do, I have tried and choked on raw broccoli or carrots, can't chew them well enough to get down. I have false teeth, too. Salad is a disaster unless it is chock full of ham and cheese, etc., and drenched with dressing.

Junk food goes down amazingly well. Pizza is a sometimes thing because of reflux, and I still dont understand why I can't do spaghetti. I can eat fish.

I am well into living with maintenance of A, I was diagnosed in 1980 and then had my esophagus ruptured with the balloon treatment and had the corrective surgery in 1985. My espohagus is open all the time.I don't know all the fancy-dancy terms, but i am glad you all have new treatments available.

I was really touchy for years when I had to order a pitcher or many glasses of water to wash my food down with at restaurants. Waitresses are not always nice about things like that. I don't even pay any attention any more, I just dont eat until the water is served.

I still get rather upset with well-meaning people suggesting I take this or that herbal remedy for other things. So far, I have not been able to stomach much in the way of health pills, I get really bad reflux and can't sleep then. If not that, I burp up the taste, yuck.

If I dont take a daily RX antacid such as protonix, all the symptoms come back, the pain, the spasms. I consider myself lucky to be able to eat at all. I am even 20 pounds overweight, which is probably a miracle. Got that way from a spell of being a cappuccino addict, hee hee.

I have just learned to live with my handicap, and I figure I am luckier than a lot of handicapped people because it doesn't show and most people do not know. They do know if they eat with me, cause I eat funny I guess. Gulping enough water to wash somethign down produces a nice loud gulping sound and I sit there and wait patiently for the food to go down. That is when they go "Are you all right?" It has been years since anything got stuck and I had to rush to the john and stick my finger down my throat to try to dislodge whatever it is.

It would be nice if this was a disease that I could control in some manner. It has been interesting to read the dissention. I figure any one of us who can eat at all is darn lucky. I have noticed through other forums that online communication often leads to misunderstandings and hurt feelings. Maybe because we cannot see the facial expressions.

Good luck to you all, I just thought I would write a bit of my experiences.

dawn

[Guest guest]

The majority had replied that they were andhad always had weight problems.

+++

A solved my weight problems permanently, as long as I do not keep ice cream and candy and cookies at home, I do fine.

dawn

[Guest guest]

Joanne wrote:

>I ask the question ages ago about how many of us were overweight and had

>trouble with weight If at all,The majority had replied that they were and

>had always had weight problems....

I am not at all surprised that weight problems would be a symptom of

achalasia. The question is which is effecting the other. My guess is that

achalasia trains the body to store fat.

Lets say some achalasic likes to skip breakfast and eats a small lunch.

Because of achalasia that lunch may sit in the esophagus for hours. That

achalasic may be in the same state as someone that is fasting through the

work portion of the day where most calories would normally be burned, but

the body has been trained to be in fast mode and is trying to conserve

calories and store as much as fat as possible. Guess where supper is going?

Lets consider another achalasic. This one eats until fullness in the

stomach causes it to send the enough signal to the brain. The achalasic

eats but again food piles up in the esophagus. The achalasic continues to

eat which slowly forces some food into the stomach, but at the same time

food that made it into the stomach is slowly passing on through and out the

stomach. By the time the stomach is satisfied, enough for more than one

meal has been eaten, and a lot of it is still in the esophagus.

Another achalasic. This one has good days and bad days. On bad days very

little if any food makes it to the stomach, just as if fasting. From too

many of these days the body is in long term fasting mode, ready to covert

as much food as possible into fat. On good days this achalasic is like our

second achalasic, in trying to feel satisfied too much is eaten and is

readily converted to fat.

What do think? Is being overweight making achalasia worse? I don't see any

evidence for that conclusion, only " gossip " . Is achalasia causing people to

put on weight and making it harder to lose it? I do see evidence for that

conclusion.

I also offer for your consideration that there are probably some achalasics

that do not have enough weight. I see no reason that having achalasia would

rule out having an eating or mental disorder in which the person is already

inclined to eat too little. It may be that the best thing for these

achalasics would be to encourage them to eat the very same foods others are

encouraged not to eat. Of course when it is bad enough achalasia will cause

a loss of weight.

There are a lot of good reasons to not be overweight. I just don't see that

achalasia is one of them, or any way that not being overweight is going to

help with the symptoms of achalasia, unless that person has some other

medical condition. If stressing about being overweight is making symptoms

worse one could learn not to be stressed. (It isn't the weight it is the

stress that is the problem).

notan

[Guest guest]

Am now rethinking my last post about pain management docs. Hoping I

didn't say the wrong thing about him. I did reread last night, but now

am alittle nervous about what I posted. Thinking I may delete that post

too...

[Guest guest]

It seems to me that all you have done is explain the situation, and repeat what your PCP has said. I'm sure there's no problem with that.

titch

On 5/24/06, <mrstrem@...> wrote:

Am now rethinking my last post about pain management docs. Hoping I didn't say the wrong thing about him. I did reread last night, but now am alittle nervous about what I posted. Thinking I may delete that post too...-- " The older I grow the more I distrust the familiar doctrine that age brings wisdom. " - H. L. Mencken

[Guest guest]

,

Nothing wrong with your post abut the pain doc. You are allowed your opinion and your feelings, here and under the law. Never be afraid of stating your opinion or your feelings, or what you believe. I think you are right about the pain doc. Every pain doc should have far more at his disposal than injections. Unfortunately, there are bad docs and good docs. Sounds to be like you found a really bad one. Don't give up. Keep looking. There are good ones out there.

Bonnie

[ ] rethinking

Am now rethinking my last post about pain management docs. Hoping I didn't say the wrong thing about him. I did reread last night, but now am alittle nervous about what I posted. Thinking I may delete that post too...

[Guest guest]

melissa,

This is exactly what I was afraid of. you did nothing wrong,

said nothing wrong. You left nobody liable. You are simply asking

questions and seeking advice. Leave the post and allow others to help

you.

>

> Am now rethinking my last post about pain management docs. Hoping I

> didn't say the wrong thing about him. I did reread last night, but

now

> am alittle nervous about what I posted. Thinking I may delete that

post

> too...

>

[Guest guest]

Thanks ..

called me earlier today to tell me to quit 'running scared' }

I will leave my post be... I did get a few replies already that helped

clear my head alittle on all this.

Again...Thank You

> >

> > Am now rethinking my last post about pain management docs. Hoping I

> > didn't say the wrong thing about him. I did reread last night, but

> now

> > am alittle nervous about what I posted. Thinking I may delete that

> post

> > too...

> >

>

[Guest guest]

And if all is clear with your new grandbaby and with Dr. Hu ,

you WILL be coming here and driving to Vegas with me. You realize

that, don't you? HeHe

~~

> > >

> > > Am now rethinking my last post about pain management docs.

Hoping I

> > > didn't say the wrong thing about him. I did reread last night,

but

> > now

> > > am alittle nervous about what I posted. Thinking I may delete

that

> > post

> > > too...

> > >

> >

>

[Guest guest]

*sigh*...gee if i have to ....j/k...of course!! ROAD TRIP!!

> > > >

> > > > Am now rethinking my last post about pain management docs.

> Hoping I

> > > > didn't say the wrong thing about him. I did reread last

night,

> but

> > > now

> > > > am alittle nervous about what I posted. Thinking I may delete

> that

> > > post

> > > > too...

> > > >

> > >

> >

>

[Guest guest]

-

Just call us THELMA and LOUISE! weeeeeeeeeee!!!!

> > > > >

> > > > > Am now rethinking my last post about pain management docs.

> > Hoping I

> > > > > didn't say the wrong thing about him. I did reread last

> night,

> > but

> > > > now

> > > > > am alittle nervous about what I posted. Thinking I may

delete

> > that

> > > > post

> > > > > too...

> > > > >

> > > >

> > >

> >

>

[Guest guest]

-

Just call us THELMA and LOUISE! weeeeeeeeeee!!!!

> > > > >

> > > > > Am now rethinking my last post about pain management docs.

> > Hoping I

> > > > > didn't say the wrong thing about him. I did reread last

> night,

> > but

> > > > now

> > > > > am alittle nervous about what I posted. Thinking I may

delete

> > that

> > > > post

> > > > > too...

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Alright, Ladies! Sounds like my kinda people! Lets start

chanting " West Coast rocks the most! " to see it we can win some more

east coast people to coming. And cant argue driving is cheaper, with

those California gas prices my Mom has been telling me about. Later,

Marty

*sigh*...gee if i have to ....j/k...of course!! ROAD TRIP!!

[Guest guest]

- considering how close you will be to the Grand Canyon... maybe

bad analogy. giggles, Marty

- Just call us THELMA and LOUISE! weeeeeeeeeee!!!!