Re:Thank you & ?'s from a worried mom

[Guest guest]

Hi! My daughter (3 1/2 yrs.) has AIH. She was diagnosed

in December 2000. Her levels started at 3,800!! As of yesterday,

they are 54/63. She is still on too high of a dose of prednisone

and has been on Imuran since February 2001. We don't know if

the Imuran is working. One doctors says yes the other say no.

When we tried to take her to a really low dose of prednisone

her levels started to climb. The doctor thinks he was taking

her down too fast. Now he is going super slow. I know how you

are feeling. It breaks my heart to see my baby going through

this! There really isn't a lot of research on the effects

of AIH on children. But from what I had heard, it can take

up to 2 years to get AIH under control. I was told it is an

extremely long process. Well, I hope I have helped. If you

need to chat my email is 2886@...