Peggy update

[Guest guest]

Thanks for sharing Sandy. Wow, I can't believe Peggy is already eating mac n cheese, peas, and mashed potatoes. I was just on liquids for a few days, then eventually soft foods. I am glad she is doing well. Except for that spasm. I think we all hate those spasms.

toomuchclutter <sandycarroll@...> wrote:

Peggy is doing well as of tonight. She ate mac n cheese, peas and mashed potatoes. All tubes are out, except for an iv in case they need it tonight. She had a bad spasm this afternoon, but before that was feeling great. She will go home tomorrow. I bet she will be posting herself soon. Just FYI... she could eat if she chugged water out of a large bottle and pushed the food down with the pressure. She didn't need any water to eat today's meal. For new members, one sign of achalasia as opposed to other esophagus problems is the inability to drink water. For many of us water came right back up, but we could eat a hamburger. She is slightly unusual in that water helped her get food down, but we all developed tricks. My personal suspicion is that the inability to get water

down is more severe in earlier stages and when the esophagus isn't starting to stretch much. For me, water caused almost an instant reflex to come back up. About once a day my sphincter would open and I'd guzzle in all the water I could for those few minutes. Sorry got sidetracked about Peggy's huge water bottle. But water stops our spams sometimes, we drink it, stop the spasm, then it comes back up or you hold it in as long as you can before it comes back.Later, rambling too much.Sandy in Long Beach

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[Guest guest]

> Peggy is doing well as of tonight. She ate mac n cheese, peas and

> mashed potatoes. All tubes are out, except for an iv in case they need

> it tonight. She had a bad spasm this afternoon, but before that was

> feeling great. She will go home tomorrow.

>

> I bet she will be posting herself soon. Just FYI... she could eat if

> she chugged water out of a large bottle and pushed the food down with

> the pressure. She didn't need any water to eat today's meal. For new

> members, one sign of achalasia as opposed to other esophagus problems

> is the inability to drink water. For many of us water came right back

> up, but we could eat a hamburger. She is slightly unusual in that

> water helped her get food down, but we all developed tricks. My

> personal suspicion is that the inability to get water down is more

> severe in earlier stages and when the esophagus isn't starting to

> stretch much. For me, water caused almost an instant reflex to come

> back up. About once a day my sphincter would open and I'd guzzle in

> all the water I could for those few minutes. Sorry got sidetracked

> about Peggy's huge water bottle. But water stops our spams sometimes,

> we drink it, stop the spasm, then it comes back up or you hold it in as

> long as you can before it comes back.

>

> Later, rambling too much.

>

> Sandy in Long Beach

Actually, my achalasia was similar - I could only eat with a jug of water.

Only when it

progressed - I would regurge with water.

[Guest guest]

Dr. Graham sent my information to the neurologist today and he refused to take my case! Dr. Graham said this is the first time that Dr. Held has ever shied away from one of his cases. That doesn't make me feel very good! So I will be going to Dr. Reeg at the Center for Scoliosis and Spinal Surgery in Greenville. He was Tori's surgeon and did her scoliosis fusion 2 years ago so I am very comfortable with seeing him. However, I will have to wait until August 15 to see him. Because of things I have seen/overheard, I went to see Dr. Graham today to find out what I should avoid doing until I can see the surgeon. My limitations are: no lifting; standing/walking with a limit of 3-4 hours a day; sitting with a limit of 3-4 hours a day; driving with a limit of 1-2 hours; avoid bending, twisting, carrying, stooping, pulling. So I guess I won't be trying to get a 4th job at Wal-mart unless they have something I can do with those limitations. Since I'm supposed to sit for only 4 hours and stand/walk for only 4 hours then I guess I have to spend the other 16 hours lying down??? Good excuse to read and watch movies for the next 2 months!

Peggy

[Guest guest]

Peggy,

Geezz, they didn't say standing on your head was out..ouch, valerie

>

> Dr. Graham sent my information to the neurologist today and he

refused to take my case! Dr. Graham said this is the first time

that Dr. Held has ever shied away from one of his cases. That

doesn't make me feel very good! So I will be going to Dr. Reeg at

the Center for Scoliosis and Spinal Surgery in Greenville. He was

Tori's surgeon and did her scoliosis fusion 2 years ago so I am very

comfortable with seeing him. However, I will have to wait until

August 15 to see him. Because of things I have seen/overheard, I

went to see Dr. Graham today to find out what I should avoid doing

until I can see the surgeon. My limitations are: no lifting;

standing/walking with a limit of 3-4 hours a day; sitting with a

limit of 3-4 hours a day; driving with a limit of 1-2 hours; avoid

bending, twisting, carrying, stooping, pulling. So I guess I won't

be trying to get a 4th job at Wal-mart unless they have something I

can do with those limitations. Since I'm supposed to sit for only 4

hours and stand/walk for only 4 hours then I guess I have to spend

the other 16 hours lying down??? Good excuse to read and watch

movies for the next 2 months!

>

> Peggy

>