Guest guest Posted December 31, 2006 Report Share Posted December 31, 2006 Hi Diane M and Cam, I've only been a North Carolinian for 4 years. We moved here from Stamford, CT. I was born in the Bronx, spent my teen years in New Rochelle, NY, and my adult years in various Westchester suburbs. We lived in Stamford from '93 to '02. It sure is a small world. The last scoli doc I saw before Dr. Boachie did my revision surgery, was a doc in Stamford, whose name I can't remember. He practiced in Stamford and in Westchester Medical Center in Valhalla. He's the one who "treated" me for a year and failed to tell me that I had Flatback. I found out by reading the form he was sending to my insurance company. Then I found Dr. Boachie who is in NYC. Diane, NYC has several scoli docs who are familiar with those of us who had Harrington Rod surgery with long fusions many years ago. I am partial to Dr. Boachie, who is an excellent surgeon and a wonderful human being. You would be in good hands with him. He will be able to tell you exactly what is going on. Several of us on this list have been his patients. Let us know if you decide to see him. Bonnie [ ] Re: new member-DianeM Hi DianeM,Hey I was born in Norwalk and grew up in Wilton, nice area! Lucky for you there are a number of very good adult scoli/aging spine doctors in NYC, if you are willing to travel that far.I am surprised a chiro would do much in the way of adjustment on you. When things started going "south" I consulted one locally, with my films in hand. They were pretty hesitant to do much. How far down in your fusion, if you know?I think the things that we keep hearing from our doctors as far as keeping a healthy spine tend toward maintaining as low a weight as possible and staying as active as possible...same as for the general population.I know, in retrospect, I wish I had been kinder to the one lumbar vertebra that was working...ol' L5....but I didn't really understand the whole thing until it was too late. I rode horses, lugged grain sacks and hay bales, built a house...all kinds of things that probably insured that I was going to be having surgery on my back again. If only I knew then what I know now....sigh.Anyway, I don't really know if any of that means anything for you. I have come to be of the opinion that unless I had lived my life in a chaise lounge, I was probably going to develop flatback and associated degenerative changes that would make surgery likely. But thats me.Hopefully you will find you are fused higher and that surgery is not inevitable.If you have any questions I am sure someone would be willing to take a stab at them!Take Care, Cam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2007 Report Share Posted January 1, 2007 Hi Cam, And what is even more surprising is that Chiropracter had scoliosis surgery when she was a teen too! I am not sure of the exact names of the vertebrae but it feels like that except for 1 on top and 1 on the bottom I'm all fused. You are right about maintaining a low weight and staying active. Good nutrition and vitamins I think are important too. But life happens, and a few freak accidents can cause some damage, so I am staying off bumpy water slides in the future. Right now any pain or fatigue is managable so I am not considering revision surgery. But this is the first time I have been able to "talk" to people who really understand and that means a lot. Diane M [ ] Re: new member-DianeM Hi DianeM,Hey I was born in Norwalk and grew up in Wilton, nice area! Lucky for you there are a number of very good adult scoli/aging spine doctors in NYC, if you are willing to travel that far.I am surprised a chiro would do much in the way of adjustment on you. When things started going "south" I consulted one locally, with my films in hand. They were pretty hesitant to do much. How far down in your fusion, if you know?I think the things that we keep hearing from our doctors as far as keeping a healthy spine tend toward maintaining as low a weight as possible and staying as active as possible...same as for the general population.I know, in retrospect, I wish I had been kinder to the one lumbar vertebra that was working...ol' L5....but I didn't really understand the whole thing until it was too late. I rode horses, lugged grain sacks and hay bales, built a house...all kinds of things that probably insured that I was going to be having surgery on my back again. If only I knew then what I know now....sigh.Anyway, I don't really know if any of that means anything for you. I have come to be of the opinion that unless I had lived my life in a chaise lounge, I was probably going to develop flatback and associated degenerative changes that would make surgery likely. But thats me.Hopefully you will find you are fused higher and that surgery is not inevitable.If you have any questions I am sure someone would be willing to take a stab at them!Take Care, Cam Quote Link to comment Share on other sites More sharing options...
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