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It's a while since I've posted, although I do read the posts with interest. Please forgive if it seems that I only post when I need some help.

I was diagnosed with AIH in March 2001. I started off on 30mg per day of predisnolone and after a period of time I was slowly weaned down to 10mg per day as my LFTs improved. In July my readings were just about 'normal', with only the gammaGT reading slightly high at 52. My specialist then put me on to 7.5mg per day. Within a few weeks I began to feel really tired again (just like I did when I became ill in the first place), and when I went to see him at the start of this month, my LFTs were elevated (for example gammaGT back up to 220). I was then put back on to 10mg per day of predisnolone and 100mg per day of azathioprine(imuran); this was two weeks ago.

After a few days I felt a lot better. However since Saturday I haven't felt so good and I've noticed that I feel numb. The best way I can describe it is that if I hit a part of my body against something hard I don't feel the pain as much. Even my teeth feel numb. Could this be the azathioprine?

I'm due to talk to my doctor tomorrow and I see the specialist next on September 4th. They seem to be doing the right things, my blood count is checked weekly since I've started the azathioprine and my LFTs every two weeks. They're also going to check T4 (thyroid?) and glucose (diabetes?) at the same time as the LFTs. I assume this is to check as many avenues as possible as far as 'tiredness' is concerned.

Has anyone any ideas?

(Anglesey, North Wales, UK)

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  • 9 years later...

So, I am going to put on my Neuroscience hat to respond, in case that helps

anyone cope with this. I want to say that I do NOT want this to sound like I am

a) all knowledgeable abut this area, it is not actually my field, I just read

broadly and so have picked up on some of this, B) that this is a cop-out excuse,

like we do not have control.

Our brains respond to sugar and salt exactly like drug addict brains respond to

drugs of addiction. Unlike most drugs of addiction this response does NOT

habituate, so the response is just as strong at the same dose the first time as

the 100th (i.e. small amounts do not reduce the likelihood of response). So with

that info, if I can respond to your inquiry:

1) drug addicts seek drugs to FEEL when numb in many cases

2) drug addicts ALSO seek drugs NOT to feel good, but to not feel bad. After

initial use, the withdrawal effect feels so bad that they use to get back to

baseline, not above to " good " . I hope that makes sense---the difference in not

feeling bad, vs felling good

Because I think that is key to what you are saying for many of us as well: we

eat when we feel bad to feel better (i.e. " not as bad " ), but not to feel good,

because when we eat that way we are eating things that do NOT make us feel good

(i.e. sugar salt fat make us fatigued, puffy, achy, etc), and because of the

addictive properties of these foods, we get into that cycle easily of feeling

" not as bad " ...instead of breaking out and feeling GOOD.

When I am being MINDFUL, this is something I am mindful off in making choices of

pleasure and nourishment rather than " not as bad " . Which I have done for 2

whole days again :).

Take care and hope this helps you all.

RJ

>

> Hi all,

>

> I hope everyone is enjoying this journey. I know we have our highs and lows,

but I am so grateful that each new day is a learning experience and a step

toward understanding and awareness.

>

> I just wanted to know if anyone else has wondered if eating late at night (and

often very salty or very sweet, highly palatable foods) is not a solution to

numbing yourself, but rather you already feel numb and the eating is a way to

make yourself feel something? This was an interesting point brought up by a

friend of mine, and it really hit home with me.

>

> Growing up in a conflict-ridden home, I quickly had to learn to " numb out " at

a young age, and thank God I did! I've actually made it pretty far in life and

always attracted wonderful things. Unfortunately, I still carry with me the

attachment to binge eating from time to time, and I wonder if what I really

crave is to feel. I don't want to numb out anymore. I want to enjoy life and all

that it has to offer, which means releasing the weight that has been my security

blanket for so long.

>

> I'd appreciate your thoughts/comments on this idea!

>

> my love and support to you all,

>

> Jenna

>

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Jenna - what a great observation!! I wonder if it could be both things..

Sometimes to numb out and other times to feel something. That would

explain why it isn't easy to get over! Thank you for sharing. :)

Corinna

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I'm behind in my email this week, so I'm sorry if someone else replied and I

didn't see it...

The Appetite Adjuster is one of the three " Transformative Journeys " you can buy

from (reneemethod.com, I believe).

The others are Conflict Resolution/Sabotage Self-Sabotage and the Compulsion

Blowout.

I love them....

________________________________

From: EldredP <epickett@...>

weightloss

Sent: Wed, September 15, 2010 5:05:41 PM

Subject: Re: Feeling Numb

>

> Hi Eldred,

>

> On an earlier leg of this weight-loss journey, I learned how to identify

> " hungry " vs " I want to eat. " (At least, when I take the time to ask myself

>which

>

> one I'm really feeling.)

>

> But I still had a problem with not registering full. The Appetite Adjuster

> journey really helped with that. There are all sorts of situations (eating

out,

>

> social events, etc) that I'm no longer afraid of, because I can trust myself

to

>

> register full on time, instead of when the plate's empty....

>

> It won't solve the " I want to eat " grazing and/or bingeing problem, but it

>might

>

> help if it's just a matter of not registering hunger.

>

>

>

>

What's the Appetite Adjuster? I know I'm not hungry, so that's not the issue.

Eldred

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I'm behind in my email this week, so I'm sorry if someone else replied and I

didn't see it...

The Appetite Adjuster is one of the three " Transformative Journeys " you can buy

from (reneemethod.com, I believe).

The others are Conflict Resolution/Sabotage Self-Sabotage and the Compulsion

Blowout.

I love them....

________________________________

From: EldredP <epickett@...>

weightloss

Sent: Wed, September 15, 2010 5:05:41 PM

Subject: Re: Feeling Numb

>

> Hi Eldred,

>

> On an earlier leg of this weight-loss journey, I learned how to identify

> " hungry " vs " I want to eat. " (At least, when I take the time to ask myself

>which

>

> one I'm really feeling.)

>

> But I still had a problem with not registering full. The Appetite Adjuster

> journey really helped with that. There are all sorts of situations (eating

out,

>

> social events, etc) that I'm no longer afraid of, because I can trust myself

to

>

> register full on time, instead of when the plate's empty....

>

> It won't solve the " I want to eat " grazing and/or bingeing problem, but it

>might

>

> help if it's just a matter of not registering hunger.

>

>

>

>

What's the Appetite Adjuster? I know I'm not hungry, so that's not the issue.

Eldred

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Hi Jenna,

I know with myself i'm suffering from postnatal depression/depression and at

night when everyones asleep I raid the pantry and eat whatever is in sight and I

know I do this to hurt myself because I know I have been trying to lose weight

and it's not working so I think how hopeless I am and start to punish myself by

binging. I think that I too binge so that I can feel something because I just

feel like i'm numb.

Irene x

>

> I eat/overeat/binge because I DESERVE it.

>

> Feeling Numb

>

>

>

> Hi all,

>

> I hope everyone is enjoying this journey. I know we have our highs and lows,

but I am so grateful that each new day is a learning experience and a step

toward understanding and awareness.

>

> I just wanted to know if anyone else has wondered if eating late at night

(and often very salty or very sweet, highly palatable foods) is not a solution

to numbing yourself, but rather you already feel numb and the eating is a way to

make yourself feel something? This was an interesting point brought up by a

friend of mine, and it really hit home with me.

>

> Growing up in a conflict-ridden home, I quickly had to learn to " numb out "

at a young age, and thank God I did! I've actually made it pretty far in life

and always attracted wonderful things. Unfortunately, I still carry with me the

attachment to binge eating from time to time, and I wonder if what I really

crave is to feel. I don't want to numb out anymore. I want to enjoy life and all

that it has to offer, which means releasing the weight that has been my security

blanket for so long.

>

> I'd appreciate your thoughts/comments on this idea!

>

> my love and support to you all,

>

> Jenna

>

>

>

>

>

>

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I'm catching up on my reading... and these messages " hooked " me.

I want to eat popcorn(!) just before I go to bed. Fortunately, I have one of the

" healthy " microwave kind (98% fat free, less salt) but there is still enough

salt that I am a bit swollen in the morning plus my stomach doesn't feel all

that good - more than a bit stuffed, still. Is it the salt I'm after? The

crunch? I think in reverse order, the crunch is more important than the salt.

Going to try an apple instead.

RJ - Thanks so much for putting on your Neuroscience hat - that gave me a new

way of thinking about when/why I eat sweet & salty things. Increased my

mindfulness!

And, Alice: I eat/overeat/binge because I DESERVE it. Oh, how I identify with

this. But " deserving " a salty snack before bed? I think that is my " evil twin "

sitting on my shoulder and whispering in my ear. That part of me that wants to

throw caution to the wind, forget mindfulness, let the taste of the moment rule

my decisions. Gotta remember that kid and not let her rule my life.

Thanks all for posting.

>

> Hi all,

>

> I hope everyone is enjoying this journey. I know we have our highs and lows,

but I am so grateful that each new day is a learning experience and a step

toward understanding and awareness.

>

> I just wanted to know if anyone else has wondered if eating late at night (and

often very salty or very sweet, highly palatable foods) is not a solution to

numbing yourself, but rather you already feel numb and the eating is a way to

make yourself feel something? This was an interesting point brought up by a

friend of mine, and it really hit home with me.

>

> Growing up in a conflict-ridden home, I quickly had to learn to " numb out " at

a young age, and thank God I did! I've actually made it pretty far in life and

always attracted wonderful things. Unfortunately, I still carry with me the

attachment to binge eating from time to time, and I wonder if what I really

crave is to feel. I don't want to numb out anymore. I want to enjoy life and all

that it has to offer, which means releasing the weight that has been my security

blanket for so long.

>

> I'd appreciate your thoughts/comments on this idea!

>

> my love and support to you all,

>

> Jenna

>

Link to comment
Share on other sites

I'm catching up on my reading... and these messages " hooked " me.

I want to eat popcorn(!) just before I go to bed. Fortunately, I have one of the

" healthy " microwave kind (98% fat free, less salt) but there is still enough

salt that I am a bit swollen in the morning plus my stomach doesn't feel all

that good - more than a bit stuffed, still. Is it the salt I'm after? The

crunch? I think in reverse order, the crunch is more important than the salt.

Going to try an apple instead.

RJ - Thanks so much for putting on your Neuroscience hat - that gave me a new

way of thinking about when/why I eat sweet & salty things. Increased my

mindfulness!

And, Alice: I eat/overeat/binge because I DESERVE it. Oh, how I identify with

this. But " deserving " a salty snack before bed? I think that is my " evil twin "

sitting on my shoulder and whispering in my ear. That part of me that wants to

throw caution to the wind, forget mindfulness, let the taste of the moment rule

my decisions. Gotta remember that kid and not let her rule my life.

Thanks all for posting.

>

> Hi all,

>

> I hope everyone is enjoying this journey. I know we have our highs and lows,

but I am so grateful that each new day is a learning experience and a step

toward understanding and awareness.

>

> I just wanted to know if anyone else has wondered if eating late at night (and

often very salty or very sweet, highly palatable foods) is not a solution to

numbing yourself, but rather you already feel numb and the eating is a way to

make yourself feel something? This was an interesting point brought up by a

friend of mine, and it really hit home with me.

>

> Growing up in a conflict-ridden home, I quickly had to learn to " numb out " at

a young age, and thank God I did! I've actually made it pretty far in life and

always attracted wonderful things. Unfortunately, I still carry with me the

attachment to binge eating from time to time, and I wonder if what I really

crave is to feel. I don't want to numb out anymore. I want to enjoy life and all

that it has to offer, which means releasing the weight that has been my security

blanket for so long.

>

> I'd appreciate your thoughts/comments on this idea!

>

> my love and support to you all,

>

> Jenna

>

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