RE: Jan a question

[Guest guest]

Tina, my DDIL has been sick all of her life. As a child, she says she was

too weak to get off the coach. Her mother would take her to the doctor who

would test her for mono and proclaim her lazy. During college, she'd go out

and sleep in her car between classes. She went on crying jags and didn't

know why. She was put on every antidepressant, without benefit. She lived

with us for a month before she and my DS got married. She wore many layers

of clothes to bed and used tons of quilts and blankets. I diagnosed her

with hypothyroidism. That was later confirmed. Her TSH was 2.57 but her

FT3 was waaay below the bottom of the range. Her FT4 was right at the

bottom of the range.

She started on 1/2 gr Armour which, at the age of 24, gave her the first

life she'd ever had. She went on to become a triathlete, but stopped having

periods. I took her to my EX endo. He went on an abusive rant about her

Armour and didn't even mention her periods. Told her to get off Armour and

then come back in a month. Two months later, during a race, her femur

broke. She's been down now, for going on two years. Her estradiol was very

low and she used some of that for a while and her periods returned. The

bone took about a year to heal. Recently, Mayo Clinic diagnosed her with

Celiac Sprue. Apparently, that disease limited the nutrients getting into

her body. That explains the low estradiol and possibly, her low thyroid.

She's on a gluten-free diet now, but is still on about 6 meds because the

pain in her leg just won't leave.

Val in Boulder, CO

-----Original Message-----

From: tina83862 [mailto:tina8386@...]

Has anyone been though something similar?? Using progest to get a

period?? thanks tina

[Guest guest]

No, I never skipped periods, but they did become very irregular. I'd

go 40 days without a period, then have a 3-day long one. Then 20 days

later I'd have a 17-day long period, and so on. Completely crazy.

I do have the similarity of having a " normal " TSH, although everytime

my FT3 and FT4 have been really low, my TSH has been around 4.0. That

seems to be the magical number for me, it is like after that my

pituitary just gets too lazy and doesn't raise it anymore. Highest

I've ever been is 5.2. My prolactin is on the lower side too, which

made my doctor shocked since at the time I was tested I had quite a

bit of breast milk going on. She would just stare at the test and

go... " This can't be right, I saw the milk, the levels have to be

high... "

Your post made me convinced that when the doc tests my adrenals I

gotta have her check the pituitary again. It's been years since I had

the TRH, time to get another one.

Jan

> Have you ever gone for months without your period, you are very

> similar to my daughter, you both have a t3 conversion problems. So

> far though we have not found any antibodies for thyroid, but that

> does not mean she does not have any for adrenal. So she is not

> diagnoised Hashi's.

> But her t3 is 70 and 79 last two tests and her tsh is .45 and .73

> from her last two tests. The weird thing here is her t3 went up to

79

> but her tsh dropped down to .45 (the last test), this is why we are

> getting a MRI done. Have to check for tumor. But her prolactin

level

> is a bit lower than normal, again worry about the pituitary.

>

> I keep on reading up on low tsh and hypothyroid but I can't get too

> much info on this other than pituitary problems. Which would

explain

> why she has adrenal problems on top of thyroid.

>

> And the reason why all the posts on progesterone is that we are now

> trying it for 3 weeks to see if we can get a period, it's been 18

> months now that she has not had one on her own. I'll let you guys

> know the results.

>

> Has anyone been though something similar?? Using progest to get a

> period?? thanks tina

[Guest guest]

Val, I am sorry she had to go through so much. The description of

what she had, minus the lack of periods, sounds like me - the crying

jags. I guess in a sense my mom knew my problem was hormonal,

although she used to take me to shrink after shrink, cause she used

to say " having periods made me nuts " , and she was right. I got much

worse after puberty. I wonder if I have late-onset congenital adrenal

hyperplasia... But like your DDIL, I always get very symptomatic with

no T3 and my TSH is not so high.

I've been tested for celiac sprue several times. Since I was born

with malabsorption and sprue and diabetes can be consequences, at my

yearly checkup they always test me for celiac and do a glycemic

tolerance curve. I am gonna get my estradiol and female hormones

checked anyway.

Jan

> Tina, my DDIL has been sick all of her life. As a child, she says

she was

> too weak to get off the coach. Her mother would take her to the

doctor who

> would test her for mono and proclaim her lazy. During college,

she'd go out

> and sleep in her car between classes. She went on crying jags and

didn't

> know why. She was put on every antidepressant, without benefit.

She lived

> with us for a month before she and my DS got married. She wore

many layers

> of clothes to bed and used tons of quilts and blankets. I

diagnosed her

> with hypothyroidism. That was later confirmed. Her TSH was 2.57

but her

> FT3 was waaay below the bottom of the range. Her FT4 was right at

the

> bottom of the range.

>

> She started on 1/2 gr Armour which, at the age of 24, gave her the

first

> life she'd ever had. She went on to become a triathlete, but

stopped having

> periods. I took her to my EX endo. He went on an abusive rant

about her

> Armour and didn't even mention her periods. Told her to get off

Armour and

> then come back in a month. Two months later, during a race, her

femur

> broke. She's been down now, for going on two years. Her estradiol

was very

> low and she used some of that for a while and her periods

returned. The

> bone took about a year to heal. Recently, Mayo Clinic diagnosed

her with

> Celiac Sprue. Apparently, that disease limited the nutrients

getting into

> her body. That explains the low estradiol and possibly, her low

thyroid.

> She's on a gluten-free diet now, but is still on about 6 meds

because the

> pain in her leg just won't leave.

>

> Val in Boulder, CO