ALL-children scoliosis surgeon-Boston area?

[Guest guest]

A friend of mine was asking me if any of you folks could give

her a recommendation for her 10 year old. She needs a childrens

scoliosis surgeon in the Boston area. I thought I would see

if any of you knew of someone. She is in a brace now, fears it

is getting worse and has little confidence in the doctor she has.

She did not give me his name.

Thanks,

[Guest guest]

My daughter was refered to Boston Children's but they were only

booking 8 months out just for a visit. I looked into the Shriner's

hospital in Springfield MA. They have some great DR's there. The

Dr's are some of the top in their field. We have been there for 3

years and I am very pleased. I also like not having all the

congestion in Boston to deal with on a regular basis. Plus they do

not charge the patient anything not even co-pays. She had surgery

last month there on her chest but still gets watched for her

scoliosis.

Jolynn

, " redmarmie " <vclark@...> wrote:

>

> A friend of mine was asking me if any of you folks could give

> her a recommendation for her 10 year old. She needs a childrens

> scoliosis surgeon in the Boston area. I thought I would see

> if any of you knew of someone. She is in a brace now, fears it

> is getting worse and has little confidence in the doctor she has.

> She did not give me his name.

>

> Thanks,

>

>

[Guest guest]

Do you have a doctors name Jolynn?

> >

> > A friend of mine was asking me if any of you folks could give

> > her a recommendation for her 10 year old. She needs a childrens

> > scoliosis surgeon in the Boston area. I thought I would see

> > if any of you knew of someone. She is in a brace now, fears it

> > is getting worse and has little confidence in the doctor she has.

> > She did not give me his name.

> >

> > Thanks,

> >

> >

>

[Guest guest]

, I would have her look into Shriners' Hospital in Springfield.

That's where I had my surgery in 1971, and they still offer all treatment

without cost to the parents. I don't know if they do non-surgical cases,

but if she needs surgery it might be a good option.

Sharon

PS: OH, MY GOSH, I DON'T BELIEVE THIS!

http://www.shrinershq.org/shc/springfield/team.html

Dr. DeWeese was one of the residents who did my Harrington rod surgery

in 1971. He's now a staff surgeon at Shriners! His bio says he did a

residency at BU from 1970 to 1973, without mentioning it was at Shriners'.

He was my favorite doctor there, and really seemed to like the kids. I've

tried in the past to Google his name and never came up with anything. He

looks a little different nearly 35 years later, but that's him!

[ ] ALL-children scoliosis surgeon-Boston area?

>A friend of mine was asking me if any of you folks could give

> her a recommendation for her 10 year old. She needs a childrens

> scoliosis surgeon in the Boston area. I thought I would see

> if any of you knew of someone. She is in a brace now, fears it

> is getting worse and has little confidence in the doctor she has.

> She did not give me his name.

>

> Thanks,

>

>

>

>

>

>

>

>

> scoliosis veterans * flatback sufferers * revision candidates

>

[Guest guest]

Wow, Jolynn, I just sent a post to about Shriners', and here you had

already recommended them. Have you met Dr. DeWeese? I could have fainted

when I saw his picture in the staff directory. Such a nice man. Even when

I was going through the Risser/Harrington misery I couldn't help liking him.

Sharon

[ ] Re: ALL-children scoliosis surgeon-Boston area?

> My daughter was refered to Boston Children's but they were only

> booking 8 months out just for a visit. I looked into the Shriner's

> hospital in Springfield MA. They have some great DR's there. The

> Dr's are some of the top in their field. We have been there for 3

> years and I am very pleased. I also like not having all the

> congestion in Boston to deal with on a regular basis. Plus they do

> not charge the patient anything not even co-pays. She had surgery

> last month there on her chest but still gets watched for her

> scoliosis.

>

> Jolynn

>

> , " redmarmie " <vclark@...> wrote:

>>

>> A friend of mine was asking me if any of you folks could give

>> her a recommendation for her 10 year old. She needs a childrens

>> scoliosis surgeon in the Boston area. I thought I would see

>> if any of you knew of someone. She is in a brace now, fears it

>> is getting worse and has little confidence in the doctor she has.

>> She did not give me his name.

>>

>> Thanks,

>>

>>

>

>

>

>

>

>

>

> scoliosis veterans * flatback sufferers * revision candidates

>

[Guest guest]

, you could give her Dr. DeWeese's name. I don't know if any one of

the principle surgeons there specializes in scoliosis, but he definitely did

scoli surgery at one time. Things work a little differently at Shriners.

They do a lot of educating of residents, and as I recall, at least in 1971,

they had lots of surgeons discussing how best to proceed. I wasn't " Dr.

So-and-So's patient " . I had a trio of residents assigned to my surgery

(including DeWeese), who were under the supervision of the chief and staff

surgeons. To be seen at Shriners you need to find a Shriner to sponsor the

child. My dad found my shriner by word of mouth, but your friend could

probably call a local Shrine temple to inquire, or maybe Jolynn knows a

Shriner who can help.

Sharon

[ ] Re: ALL-children scoliosis surgeon-Boston area?

> Do you have a doctors name Jolynn?

>

>

>

>

>> >

>> > A friend of mine was asking me if any of you folks could give

>> > her a recommendation for her 10 year old. She needs a childrens

>> > scoliosis surgeon in the Boston area. I thought I would see

>> > if any of you knew of someone. She is in a brace now, fears it

>> > is getting worse and has little confidence in the doctor she has.

>> > She did not give me his name.

>> >

>> > Thanks,

>> >

>> >

>>

>

>

>

>

>

>

>

> scoliosis veterans * flatback sufferers * revision candidates

>

[Guest guest]

Dr. Masso

> > >

> > > A friend of mine was asking me if any of you folks could give

> > > her a recommendation for her 10 year old. She needs a childrens

> > > scoliosis surgeon in the Boston area. I thought I would see

> > > if any of you knew of someone. She is in a brace now, fears it

> > > is getting worse and has little confidence in the doctor she

has.

> > > She did not give me his name.

> > >

> > > Thanks,

> > >

> > >

> >

>

[Guest guest]

Probably I have met them all I think. 3 DRs Came in on our first

visit for like an hour. They examined/talked about me more than my

daughter. My daughter said " I thought we were here for me " . She is

fairing far better than I did at that age as her curves go. No Brace

yet and hopefully may not need surgery but who knows for sure.

Jolynn

> >>

> >> A friend of mine was asking me if any of you folks could give

> >> her a recommendation for her 10 year old. She needs a childrens

> >> scoliosis surgeon in the Boston area. I thought I would see

> >> if any of you knew of someone. She is in a brace now, fears it

> >> is getting worse and has little confidence in the doctor she

has.

> >> She did not give me his name.

> >>

> >> Thanks,

> >>

> >>

> >

> >

> >

> >

> >

> >

> >

> > scoliosis veterans * flatback sufferers * revision candidates

> >

[Guest guest]

You do not need to be sponsored by a Shriner anymore to be a

patient. They used to do that but they stopped. I am not sure why.

" Shriners Hospitals are open to all children regardless of race,

religious or cultural background. It is not necessary to know a

Shriner to obtain care. Although we are proud that the care we

provide to our patients is the very best, it is our policy never to

charge a patient or parent for our services. Any child up to the age

of 18 may be eligible for care if there is a good chance we can help

to improve the child's condition. "

http://www.shrinershq.org/shc/springfield/about.html

They will take any patient under 18. If any child goes there prior

to the age of 18 they are eligable for free care until the age of 21

at any Shriners Hospital that treats their issue regardless of

whether they recieve all their care there or not. Meaning if we

never go back there and then 10 years later our daughter can go to

any Shriners Orthopedic hospital at the age of 19 and be cared for

in the same manor at no charge because she was a patient. At least

that is what was explained to us. This is nice because at some point

kids don't have great coverage but they are too old to get dependant

insurance coverage.

You don't even have to participate in the research if you don't want

to. I do because research is what helps future patients.

Jolynn

> >> >

> >> > A friend of mine was asking me if any of you folks could give

> >> > her a recommendation for her 10 year old. She needs a

childrens

> >> > scoliosis surgeon in the Boston area. I thought I would see

> >> > if any of you knew of someone. She is in a brace now, fears it

> >> > is getting worse and has little confidence in the doctor she

has.

> >> > She did not give me his name.

> >> >

> >> > Thanks,

> >> >

> >> >

> >>

> >

> >

> >

> >

> >

> >

> >

> > scoliosis veterans * flatback sufferers * revision candidates

> >

[Guest guest]

Oh, Ok. I might have read that before. I checked the new patient

application, and it asks for the name of a sponsoring Shriner, but I guess

that's optional now.

[ ] Re: ALL-children scoliosis surgeon-Boston area?

> You do not need to be sponsored by a Shriner anymore to be a

> patient. They used to do that but they stopped. I am not sure why.

>

> " Shriners Hospitals are open to all children regardless of race,

> religious or cultural background. It is not necessary to know a

> Shriner to obtain care. Although we are proud that the care we

> provide to our patients is the very best, it is our policy never to

> charge a patient or parent for our services. Any child up to the age

> of 18 may be eligible for care if there is a good chance we can help

> to improve the child's condition. "

>

> http://www.shrinershq.org/shc/springfield/about.html

>

> They will take any patient under 18. If any child goes there prior

> to the age of 18 they are eligable for free care until the age of 21

> at any Shriners Hospital that treats their issue regardless of

> whether they recieve all their care there or not. Meaning if we

> never go back there and then 10 years later our daughter can go to

> any Shriners Orthopedic hospital at the age of 19 and be cared for

> in the same manor at no charge because she was a patient. At least

> that is what was explained to us. This is nice because at some point

> kids don't have great coverage but they are too old to get dependant

> insurance coverage.

>

> You don't even have to participate in the research if you don't want

> to. I do because research is what helps future patients.

>

> Jolynn

>

>

>

>> >> >

>> >> > A friend of mine was asking me if any of you folks could give

>> >> > her a recommendation for her 10 year old. She needs a

> childrens

>> >> > scoliosis surgeon in the Boston area. I thought I would see

>> >> > if any of you knew of someone. She is in a brace now, fears it

>> >> > is getting worse and has little confidence in the doctor she

> has.

>> >> > She did not give me his name.

>> >> >

>> >> > Thanks,

>> >> >

>> >> >

>> >>

>> >

>> >

>> >

>> >

>> >

>> >

>> >

>> > scoliosis veterans * flatback sufferers * revision candidates

>> >

[Guest guest]

Thanks for the input Sharon, Jolynn, you have been very helpful since

I was hitting a blank wall.

[Guest guest]

Hi Jolynn,

Hopefully, watching and monitoring will do it for your daughter. I

have a large family 4 neices and 1 nephew have the disease but all

have minor angles at this point. We just keep, watching, monitoring

and praying and wishing for the best.

> > >>

> > >> A friend of mine was asking me if any of you folks could give

> > >> her a recommendation for her 10 year old. She needs a

childrens

> > >> scoliosis surgeon in the Boston area. I thought I would see

> > >> if any of you knew of someone. She is in a brace now, fears it

> > >> is getting worse and has little confidence in the doctor she

> has.

> > >> She did not give me his name.

> > >>

> > >> Thanks,

> > >>

> > >>

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > scoliosis veterans * flatback sufferers * revision candidates

> > >

[Guest guest]

thanks jolynn

>

> Dr. Masso

>

>

>