Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 , I think NH said her first stage was to be a week from tuesday, 30May....but I don't recall her telling us when #2 was up...., what say you?!!! I need to get it on the calender! Cam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 Thanks Cam > > , > > I think NH said her first stage was to be a week from tuesday, > 30May....but I don't recall her telling us when #2 was up...., > what say you?!!! I need to get it on the calender! > > Cam > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 Hi /Cam, You guys won't believe the day I have had!!! You are correct Cam.... my rescheduled surgery is scheduled for 5/30. I spoke with Hillary late Friday afternoon as she was going to see if she could get me in sometime this week... but she couldn't finagle the schedule...so when we ended the call I was still set for 5/30. Well at 11:30 this morning Priscilla calls me at work to say they could do my surgery TOMORROW!! I was totally taken back and told her I needed to get in touch with my husband as he has work commitments. She said either her or Hillary would call me back. So my husband said he was available for whatever I needed. But I was thinking no I can't do this tomorrow. By 3:00 I hadn't received a call back and I got in touch with Hillary. I basically told her no and asked if she had a date for my second surgery yet. We ended the call with her working on 6/19 with the OR. I looked at the calendar after I hung up with Hillary and saw that it was 3 WEEKS in between surgeries!!! My original schedule was 2 weeks in between and Dr. Rand wanted me to stay in Jordan Rehab during that time. So I called Hillary back and asked her if I came in on Tuesday would it make a difference in my second stage date. She said there was someone in house that had their 1st stage and she would ask Rand if they could have their 2nd stage on 5/30 then I could have their 2nd stage date for my 2nd stage. I was leaving work around 4:15 and called Hillary back to give her my cell phone number and she said she needed to line up a vascular surgeon. So it was a go as long as everything could be arranged. I cleaned my desk at work...said some goodbyes with a P.S. that I may be in in the morning..... and on my way home Hillary called to say everything was arranged and when she called the OR...they couldn't do it!!! So here I am... choosing not to stress over things I cannot control...but what an emotional roller coaster!!! So please send your positive thoughts to me on 5/30....as on occassion in the back of my mind I can't help but wonder if this is meant to be or not. But when I get my head together I know it is and I am grateful to have this opportunity no matter what it takes. NH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 -Oh ..what a roller coaster!!! I would be nuts!! But you seem to handle it really well.....I did not get a private email from you, I went and checked my old emails....did you use Benhea@... ?? Val, belated happy birthday....I am happy you got to enjoy your day.that is important, even if it was just some little things you like to do.. Vonnie Girl!! How are you??? I was wondering about you...sounds like things are moving along in the way they are suppose too...it is a ride and a half, ain't it????!!!! I am 4 months post op tomorrow..I think I am where I should be, moving nicely with some stiffness....I always want to feel better than I do but that is just me wanting to do more and more faster and faster..I do appreciate others posts that remind me that WE did just have this major surgery and it is normal to take it slow......I am thankful to be back to fulltime work since April 3rd....., PA -- In , " marturtlesong " <marturtlesong@...> wrote: > > Hi /Cam, > > You guys won't believe the day I have had!!! > You are correct Cam.... my rescheduled surgery is scheduled for 5/30. > I spoke with Hillary late Friday afternoon as she was going to see if > she could get me in sometime this week... but she couldn't finagle > the schedule...so when we ended the call I was still set for 5/30. > > Well at 11:30 this morning Priscilla calls me at work to say they > could do my surgery TOMORROW!! I was totally taken back and told her > I needed to get in touch with my husband as he has work commitments. > She said either her or Hillary would call me back. > > So my husband said he was available for whatever I needed. But I was > thinking no I can't do this tomorrow. By 3:00 I hadn't received a > call back and I got in touch with Hillary. I basically told her no > and asked if she had a date for my second surgery yet. We ended the > call with her working on 6/19 with the OR. > > I looked at the calendar after I hung up with Hillary and saw that it > was 3 WEEKS in between surgeries!!! My original schedule was 2 weeks > in between and Dr. Rand wanted me to stay in Jordan Rehab during that > time. > > So I called Hillary back and asked her if I came in on Tuesday would > it make a difference in my second stage date. She said there was > someone in house that had their 1st stage and she would ask Rand if > they could have their 2nd stage on 5/30 then I could have their 2nd > stage date for my 2nd stage. > > I was leaving work around 4:15 and called Hillary back to give her my > cell phone number and she said she needed to line up a vascular > surgeon. So it was a go as long as everything could be arranged. > > I cleaned my desk at work...said some goodbyes with a P.S. that I may > be in in the morning..... and on my way home Hillary called to say > everything was arranged and when she called the OR...they couldn't do > it!!! > > So here I am... choosing not to stress over things I cannot > control...but what an emotional roller coaster!!! > > So please send your positive thoughts to me on 5/30....as on > occassion in the back of my mind I can't help but wonder if this is > meant to be or not. But when I get my head together I know it is and > I am grateful to have this opportunity no matter what it takes. > > NH > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 NH, That was one heck of a rollercoaster ride there. Must have been your karma to take the flatback " hits " so could have a great birthday.....kidding! I am sure it is hard to stay calm, but really, what can you do? It just shows how many " moving parts " there are to getting these surgeries lined up. And since NEBH is small I think the OR time is a highly prized commodity. I can only say that DrRand considered my one week " between " minimum timing, 2 weeks a goal, and Vonnie got to go home with 3 weeks between...so maybe you will too...any maybe that will be a good thing as well. I am sure you come back from round two in much stronger condition, you just have to overcome the mental part. So I will put you donw for 6/19 and hope they work a closer date. No matter what you will be home for 4th of July! Do you want a designated contact to keep us up to date on your surgery? It may not be necessary if you get ahold of a laptop at NEBH! Take care and of course I will be thinking of you all day Tuesday, Cam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 Geeezz , It is ok to feel a little frustrated, can I have that baby? yes, when tomorrow, oh, never mind wait two weeks, yikes. sorry, your emotions are being thrown around. I am standing with you and as a postoper, you know, I say, it is worth it. Keep your chin up. Hopefully, I can be a driving fool by then and can come into town. > > Hi /Cam, > > You guys won't believe the day I have had!!! > You are correct Cam.... my rescheduled surgery is scheduled for 5/30. > I spoke with Hillary late Friday afternoon as she was going to see if > she could get me in sometime this week... but she couldn't finagle > the schedule...so when we ended the call I was still set for 5/30. > > Well at 11:30 this morning Priscilla calls me at work to say they > could do my surgery TOMORROW!! I was totally taken back and told her > I needed to get in touch with my husband as he has work commitments. > She said either her or Hillary would call me back. > > So my husband said he was available for whatever I needed. But I was > thinking no I can't do this tomorrow. By 3:00 I hadn't received a > call back and I got in touch with Hillary. I basically told her no > and asked if she had a date for my second surgery yet. We ended the > call with her working on 6/19 with the OR. > > I looked at the calendar after I hung up with Hillary and saw that it > was 3 WEEKS in between surgeries!!! My original schedule was 2 weeks > in between and Dr. Rand wanted me to stay in Jordan Rehab during that > time. > > So I called Hillary back and asked her if I came in on Tuesday would > it make a difference in my second stage date. She said there was > someone in house that had their 1st stage and she would ask Rand if > they could have their 2nd stage on 5/30 then I could have their 2nd > stage date for my 2nd stage. > > I was leaving work around 4:15 and called Hillary back to give her my > cell phone number and she said she needed to line up a vascular > surgeon. So it was a go as long as everything could be arranged. > > I cleaned my desk at work...said some goodbyes with a P.S. that I may > be in in the morning..... and on my way home Hillary called to say > everything was arranged and when she called the OR...they couldn't do > it!!! > > So here I am... choosing not to stress over things I cannot > control...but what an emotional roller coaster!!! > > So please send your positive thoughts to me on 5/30....as on > occassion in the back of my mind I can't help but wonder if this is > meant to be or not. But when I get my head together I know it is and > I am grateful to have this opportunity no matter what it takes. > > NH > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 , you certainly have been on a wild ride! I just heard from Hillary yesterday regarding a couple of tests Dr. Rand wants me to have. I'll be at NEBH on June 14, so maybe I'll be able to come visit you. No promises, though, because she said after the EMG all I will want to do is go home. I think that's the one where they stick needles in your muscles (!), so I may not be up to it, but I'll try! Sharon [ ] Re: NH Hi /Cam, You guys won't believe the day I have had!!! You are correct Cam.... my rescheduled surgery is scheduled for 5/30. I spoke with Hillary late Friday afternoon as she was going to see if she could get me in sometime this week... but she couldn't finagle the schedule...so when we ended the call I was still set for 5/30. Well at 11:30 this morning Priscilla calls me at work to say they could do my surgery TOMORROW!! I was totally taken back and told her I needed to get in touch with my husband as he has work commitments. She said either her or Hillary would call me back. So my husband said he was available for whatever I needed. But I was thinking no I can't do this tomorrow. By 3:00 I hadn't received a call back and I got in touch with Hillary. I basically told her no and asked if she had a date for my second surgery yet. We ended the call with her working on 6/19 with the OR. I looked at the calendar after I hung up with Hillary and saw that it was 3 WEEKS in between surgeries!!! My original schedule was 2 weeks in between and Dr. Rand wanted me to stay in Jordan Rehab during that time. So I called Hillary back and asked her if I came in on Tuesday would it make a difference in my second stage date. She said there was someone in house that had their 1st stage and she would ask Rand if they could have their 2nd stage on 5/30 then I could have their 2nd stage date for my 2nd stage. I was leaving work around 4:15 and called Hillary back to give her my cell phone number and she said she needed to line up a vascular surgeon. So it was a go as long as everything could be arranged. I cleaned my desk at work...said some goodbyes with a P.S. that I may be in in the morning..... and on my way home Hillary called to say everything was arranged and when she called the OR...they couldn't do it!!! So here I am... choosing not to stress over things I cannot control...but what an emotional roller coaster!!! So please send your positive thoughts to me on 5/30....as on occassion in the back of my mind I can't help but wonder if this is meant to be or not. But when I get my head together I know it is and I am grateful to have this opportunity no matter what it takes. NH scoliosis veterans * flatback sufferers * revision candidates Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 I just had a few minutes and saw your post about the EMG. I had it done about 4 months ago. The electric shocks are the worst part but the needles in the muscles was no piece of cake either. BUT after the pain of my two part fusion and the pain I suffered for 5 years this stuff is really mild. Margaret.Sharon Green <sharon.green18@...> wrote: , you certainly have been on a wild ride!I just heard from Hillary yesterday regarding a couple of tests Dr. Rand wants me to have. I'll be at NEBH on June 14, so maybe I'll be able to come visit you. No promises, though, because she said after the EMG all I will want to do is go home. I think that's the one where they stick needles in your muscles (!), so I may not be up to it, but I'll try!Sharon [ ] Re: NHHi /Cam,You guys won't believe the day I have had!!!You are correct Cam.... my rescheduled surgery is scheduled for 5/30.I spoke with Hillary late Friday afternoon as she was going to see ifshe could get me in sometime this week... but she couldn't finaglethe schedule...so when we ended the call I was still set for 5/30.Well at 11:30 this morning Priscilla calls me at work to say theycould do my surgery TOMORROW!! I was totally taken back and told herI needed to get in touch with my husband as he has work commitments.She said either her or Hillary would call me back.So my husband said he was available for whatever I needed. But I wasthinking no I can't do this tomorrow. By 3:00 I hadn't received acall back and I got in touch with Hillary. I basically told her noand asked if she had a date for my second surgery yet. We ended thecall with her working on 6/19 with the OR.I looked at the calendar after I hung up with Hillary and saw that itwas 3 WEEKS in between surgeries!!! My original schedule was 2 weeksin between and Dr. Rand wanted me to stay in Jordan Rehab during thattime.So I called Hillary back and asked her if I came in on Tuesday wouldit make a difference in my second stage date. She said there wassomeone in house that had their 1st stage and she would ask Rand ifthey could have their 2nd stage on 5/30 then I could have their 2ndstage date for my 2nd stage.I was leaving work around 4:15 and called Hillary back to give her mycell phone number and she said she needed to line up a vascularsurgeon. So it was a go as long as everything could be arranged.I cleaned my desk at work...said some goodbyes with a P.S. that I maybe in in the morning..... and on my way home Hillary called to sayeverything was arranged and when she called the OR...they couldn't doit!!!So here I am... choosing not to stress over things I cannotcontrol...but what an emotional roller coaster!!!So please send your positive thoughts to me on 5/30....as onoccassion in the back of my mind I can't help but wonder if this ismeant to be or not. But when I get my head together I know it is andI am grateful to have this opportunity no matter what it takes. NHscoliosis veterans * flatback sufferers * revision candidates Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 Margaret, thanks for sharing your experience. That is you, from the forum dinners, no? I'd love to see you posting more often. BTW, have you looked into finding out what, if anything, can be done about that residual pain? I know you're much better than pre-revision, but it would be great if you could have the rest of it relieved. Sharon [ ] Re: NHHi /Cam,You guys won't believe the day I have had!!!You are correct Cam.... my rescheduled surgery is scheduled for 5/30.I spoke with Hillary late Friday afternoon as she was going to see ifshe could get me in sometime this week... but she couldn't finaglethe schedule...so when we ended the call I was still set for 5/30.Well at 11:30 this morning Priscilla calls me at work to say theycould do my surgery TOMORROW!! I was totally taken back and told herI needed to get in touch with my husband as he has work commitments.She said either her or Hillary would call me back.So my husband said he was available for whatever I needed. But I wasthinking no I can't do this tomorrow. By 3:00 I hadn't received acall back and I got in touch with Hillary. I basically told her noand asked if she had a date for my second surgery yet. We ended thecall with her working on 6/19 with the OR.I looked at the calendar after I hung up with Hillary and saw that itwas 3 WEEKS in between surgeries!!! My original schedule was 2 weeksin between and Dr. Rand wanted me to stay in Jordan Rehab during thattime.So I called Hillary back and asked her if I came in on Tuesday wouldit make a difference in my second stage date. She said there wassomeone in house that had their 1st stage and she would ask Rand ifthey could have their 2nd stage on 5/30 then I could have their 2ndstage date for my 2nd stage.I was leaving work around 4:15 and called Hillary back to give her mycell phone number and she said she needed to line up a vascularsurgeon. So it was a go as long as everything could be arranged.I cleaned my desk at work...said some goodbyes with a P.S. that I maybe in in the morning..... and on my way home Hillary called to sayeverything was arranged and when she called the OR...they couldn't doit!!!So here I am... choosing not to stress over things I cannotcontrol...but what an emotional roller coaster!!!So please send your positive thoughts to me on 5/30....as onoccassion in the back of my mind I can't help but wonder if this ismeant to be or not. But when I get my head together I know it is andI am grateful to have this opportunity no matter what it takes. NHscoliosis veterans * flatback sufferers * revision candidates Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2006 Report Share Posted May 24, 2006 Hey Margaret! I remember you from the dinner. Good to hear from you! I am sorry that you still have a number of issues nearly two years after your surgery. I am glad that you are working closely on them with Dr. Rand. Kim In a message dated 5/24/06 6:23:39 PM, librariantrinidad@... writes: It is I Margaret from the dinner at NEBH. My memory being what it is quickly failing I can't put any faces to names. I am still struggling with my pain, and I am still on the meds. I had the piriformus injection at the Baptist's pain clinic and it did help, but the pain is creeping back up. Dr. Rand and I decided to wait on any more possible surgery, until I feel I am fully recovered from the surgery. July 2006 will be two years since my 2 part front and back operation. I laugh at some people who post and are just out of the hospital and are doing exceptionally well - but they are still concerned if they are going to do well. They still sound to be doing better than I did. I still feel I made the best decision about choosing Dr.Rand and having the surgery. I look so good and my pain is much less. I have also been reading about the woman who left and said some nasty things about Priscilla and Dr. Rand. Personalities sometimes clash and being stressed and perceiving that the staff is blowing you off can throw you over the edge. Emotions are running high when you are facing a huge surgery and worry about others who depend on you. Pricilla is not perfect with following up with appointments and referrals with me, but I just call her when I need to get an update. She can be snippy but I love her for it - once you get to know her. I too am very devoted to Dr.Rand and I think he did a fabulous job with me. He has been super with trying to figure out my issues post surgery. I thought he wouldn't pay much attention to my grumps and pain after he did his thing with slicing and diceing, but I was wrong. He is trying very had to help me still although I have to take the initiative and call the office. ENOUGH OF THAT.  I am still struggling to work fulltime, be a mother of a 15 year old boy-man, and a 12 year old boy and a husband. I still find that my stamina is low but I am still hopeful or trying to be that I will improve.  I have to close as I am still at work at 6:20pm. Regarads, Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2006 Report Share Posted May 24, 2006 It is I Margaret from the dinner at NEBH. My memory being what it is quickly failing I can't put any faces to names. I am still struggling with my pain, and I am still on the meds. I had the piriformus injection at the Baptist's pain clinic and it did help, but the pain is creeping back up. Dr. Rand and I decided to wait on any more possible surgery, until I feel I am fully recovered from the surgery. July 2006 will be two years since my 2 part front and back operation. I laugh at some people who post and are just out of the hospital and are doing exceptionally well - but they are still concerned if they are going to do well. They still sound to be doing better than I did. I still feel I made the best decision about choosing Dr.Rand and having the surgery. I look so good and my pain is much less. I have also been reading about the woman who left and said some nasty things about Priscilla and Dr. Rand. Personalities sometimes clash and being stressed and perceiving that the staff is blowing you off can throw you over the edge. Emotions are running high when you are facing a huge surgery and worry about others who depend on you. Pricilla is not perfect with following up with appointments and referrals with me, but I just call her when I need to get an update. She can be snippy but I love her for it - once you get to know her. I too am very devoted to Dr.Rand and I think he did a fabulous job with me. He has been super with trying to figure out my issues post surgery. I thought he wouldn't pay much attention to my grumps and pain after he did his thing with slicing and diceing, but I was wrong. He is trying very had to help me still although I have to take the initiative and call the office. ENOUGH OF THAT. I am still struggling to work fulltime, be a mother of a 15 year old boy-man, and a 12 year old boy and a husband. I still find that my stamina is low but I am still hopeful or trying to be that I will improve. I have to close as I am still at work at 6:20pm. Regarads, Margaret Sharon Green <sharon.green18@...> wrote: Margaret, thanks for sharing your experience. That is you, from the forum dinners, no? I'd love to see you posting more often. BTW, have you looked into finding out what, if anything, can be done about that residual pain? I know you're much better than pre-revision, but it would be great if you could have the rest of it relieved. Sharon [ ] Re: NHHi /Cam,You guys won't believe the day I have had!!!You are correct Cam.... my rescheduled surgery is scheduled for 5/30.I spoke with Hillary late Friday afternoon as she was going to see ifshe could get me in sometime this week... but she couldn't finaglethe schedule...so when we ended the call I was still set for 5/30.Well at 11:30 this morning Priscilla calls me at work to say theycould do my surgery TOMORROW!! I was totally taken back and told herI needed to get in touch with my husband as he has work commitments.She said either her or Hillary would call me back.So my husband said he was available for whatever I needed. But I wasthinking no I can't do this tomorrow. By 3:00 I hadn't received acall back and I got in touch with Hillary. I basically told her noand asked if she had a date for my second surgery yet. We ended thecall with her working on 6/19 with the OR.I looked at the calendar after I hung up with Hillary and saw that itwas 3 WEEKS in between surgeries!!! My original schedule was 2 weeksin between and Dr. Rand wanted me to stay in Jordan Rehab during thattime.So I called Hillary back and asked her if I came in on Tuesday wouldit make a difference in my second stage date. She said there wassomeone in house that had their 1st stage and she would ask Rand ifthey could have their 2nd stage on 5/30 then I could have their 2ndstage date for my 2nd stage.I was leaving work around 4:15 and called Hillary back to give her mycell phone number and she said she needed to line up a vascularsurgeon. So it was a go as long as everything could be arranged.I cleaned my desk at work...said some goodbyes with a P.S. that I maybe in in the morning..... and on my way home Hillary called to sayeverything was arranged and when she called the OR...they couldn't doit!!!So here I am... choosing not to stress over things I cannotcontrol...but what an emotional roller coaster!!!So please send your positive thoughts to me on 5/30....as onoccassion in the back of my mind I can't help but wonder if this ismeant to be or not. But when I get my head together I know it is andI am grateful to have this opportunity no matter what it takes. NHscoliosis veterans * flatback sufferers * revision candidates Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 Pa, I have s contact info, but it seems way too early to call her husband...she probably is barely up in ICU...I figured I would call tomorrow mid-day....wait until after she wakes up and realizes she has been run over!! Cam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 --Oh shit Cam...run over ,..yeah, I guess that is what is feels like..run over....god I am glad I am not her right now...been there, done that....,PA - In , " cammaltby " <cammaltby@...> wrote: > > Pa, > > I have s contact info, but it seems way too early to call her > husband...she probably is barely up in ICU...I figured I would call > tomorrow mid-day....wait until after she wakes up and realizes she has > been run over!! Cam > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.