Re: But You Don't Look Sick!

[Guest guest]

Deb,

Great story...one I know we can all relate too. Sigh.

When I look at where I am in my life right now it's kind of a " spoon "

thing...but in a more " long perspective " kind of way. I am greatfully

not dealing with the day to day chronic pain that just easts away at

you. I do feel like I am dealing with a chronic condition...and I

have to ration " my spoons " or I feel like I run the risk of having

new problems develop related to this very fused spine.

I do look at the world and see that most people as they age at some

point must do this too...after all, no one gets out of this alive. I

wonder if I am being overly cautious now, having probably been under

cautious before. I just know that I do not want to go back to where I

was the year before surgery...and if that means playing it safe and

rationing my spoons....so be it!

Looking forward to hearing how your vist in Chicago went.

Take Care,

Cam

[Guest guest]

they other one i have heard combared to is diabetes... also that if either conditions are ignored and not properly managed they can be devasting... so a bit about myself... i'm 27 and live in indianapolis.. i work as a consultant for as a chemist for lilly actually (so i've been hearing quite a bit about cymbalta lately).. i was diagnosed with fibro and CFS when i was 23... last year i also was diagnosed with pernacius anemia (a rare disease causing maladpostion of b12) which untreated was causing the fibro to be worse.. unfortunately the anemia wasn't caught before i had some nerve damage done.. *sigh* over the years i've been a sponge in learning all i can about medication/coping methods/latest research/causes/etc on fibro...i finally found a combination of things that have given back my life and i can't be happier... i guess i'll mention as well that i'm also a

animal lover with 3 dogs of my one.. 2 cocker spaniels (jake and pandora) and a bensji (maggie) that have been the only constant love and support during my struggles learning to cope with fibro on doctors... i have gotten extremely lucky to have a doctor that understood and was compasionate with all that i had gone through.. diagonsed fibro quickly compared to the norm and has been great finding a treatment method that worked... i also have had others that suck like we all now they can.. but there are good ones and i believe FM Aware has listing of fibro friendly doctors... to all, a wish to be pain free, full energy, and full of happiness and joy.. blessed be lizjeanniemalkiewicz <jmm127@...> wrote: >> Had anyone found a way to handle comments like this?There was a great article in the last issue of FM Aware that listed this as one of the top 10 worst things people say - and I think the author's comeback was "neither do people with heart disease, epilepsy, etc.">

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