Guest guest Posted March 8, 2007 Report Share Posted March 8, 2007 The recent discussions about how long this surgery should take has turned interesting. I must say I am more than a little worried about this topic and what it means to those trying to make a decision about surgery. So, at the risk of going way out on limb, I am going to say what is on my mind (and I think is on a lot of peoples minds who have undergone long drawn out staged surgeries). I don't mean this to scare anyone, and I certainly don't want to undermine anyones confidence in their doctor..but here it is. The dabate rages on about whether you can have a fantastic revision surgery for flatback with a " local " doctor and I think we may be comparing apples and oranges, here is why. Those of us that have gone to the surgeons on the forefront of this surgery, SRS members with scads of published, peer reviewed research into this condition have all undergone operative time well in excess of 5 hours. Most of us had staged a/p surgery and no less than 2 discs replaced and fusion to the sacrum, instrumentation into the pelvis with at least one osteotomy. Many of us underwent staged surgeries of at least 2 days. I have heard of a few total times around 8 hours...but I think 10 hours total would be closer to the norm for this A/P surgery and less time if posterior only...if my memory serves me (?). Recently, folks are relating proposed surgical times by " unknown " docs for A/P surgery and 4-5 levels replaced with a total operative time of 5 hours. Hmmmm. Should you believe that the doctors that are literally writing " the book " for surgery of flatback are the slowest, pokiest, least dexterous surgeons out there, or alternatively, should you wonder if the procedures they are doing are really the same? I would propose that the difference lies in the latter, the procedures done. That is why I think it is imperative to understand completely what your proposed surgery is so you can understand the difference in surgical times and what will be done to you, and more importantly, what it means to you over the long term. Otherwise you will simply not know how to evaluate a doctors proposal. Would that we all could clap our hands and find ourselves in the promised land of pain-free, upright, well working bodies. Can you get a 10 hour procedure done in 5 hours? I would want a full understanding and explanation of how that is to be accomplished before I ever agreed to surgery. I think the time to ask that question is before you have surgery. The information is here and elsewhere on the web. We will be glad to help anyone learn how to research the literature. It is heavy " lifting " ....the reading is tedious and dull in many cases. The fact is you can not put too much stock in any one patients outcome. Look at the longevity of the doctors experience in your particular procedure, talk to him/her frankly about their " outcomes to date " with your exact procedure...and talk to their patients. If you can satisfy yourself on all these accounts you will have done yourself a favor. I was somewhat surprised to read that Ken, at this late date, has just started a " list " and realized it is possible to track down patients on his own. When I was in the reseach phase I not only researched the procedure...but I went to every " flatback " scoli site out there on the internet and re-read years of posts. I noted the doctors and information about them and followed them forward in time. When I had narrowed my list of doctors I contacted patients on my own who had posted years back to see how they were doing. As says, how someone is doing a few weeks or months after surgery is not the same as how someone is doing 3-5 years down the road. (Incidently Ken...I too have never have read of a patient of DrA.'s having flatback revison surgery either. I am sure he has the technical skills for the job and must have done it...but I just don't know how you gain confidence in his abilites if you can't independantly verify how his patients are doing). If you are seeing a noted surgeon, yes, I think it is possible to rely on their sole opinion and procede with surgery and have a great outcome. But even within the ranks of the " top guns " I surely have read about pretty poor " bedside manners " . Until you see more than one doctor I don't know if it is possible to feel that you have found a doctor who will likely be someone you are willing to have close contact with for a number of years, if not the remainder of your life. This is elective surgery folks. Pick the time, pick the hospital, pick the surgeon. Pick well. Thats my $.02, Cam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2007 Report Share Posted March 8, 2007 Hi Cam... I agree that most revision surgeries take 10+ hours. I think there are a lot of variables that determine how long it might take, but an estimate of 5 hours would worry me. (Hopefully, as Peggy mentioned, that’s just the scheduler’s guess.) Having a surgeon suggest that he could do a long (as in area, not time) scoliosis revision in 5 hours would definitely give me pause. However, Dr. Harry Shufflebarger from Florida, who has a fairly good reputation from what I can tell, is really known for his speed surgery. I once heard him talk about a back/front/back surgery, done in one day, in less than 8 hours. With that said, I think there are more doctors qualified to do revision surgery than those we’ve identified here. A PubMed search on FLATBACK or SAGITTAL IMBALANCE results in a lot of citations from doctors never mentioned here. While in a perfect world it would be beneficial to select a surgeon who has a great patient reputation for such, it’s not always practical to do so. Using the strict criteria we talk of so often here, I doubt that would ever have chosen Dr. Kumar. Thankfully, I’ll probably never have to face this issue for myself, but I think I’d personally exhaust all local options before considering going out of town for surgery. (Easy to say when you’re in the backyard of the guy who is widely considered to be the original maven of scoliosis revision surgery, huh?) I think there are dozens (maybe even hundreds) of scoliosis surgeons who do a lot of scoliosis revision surgery. Like Ken, I would definitely want to verify that my chosen surgeon has done a lot of similar surgeries (by talking to previous patients), as well as verify that the surgeon has had appropriate training. (By the way, Dr. Akbarnia did an informal fellowship with Bradford about 10 years ago, which is why I recommended that Ken consider him in the first place.) I sometimes worry that the elitist approach to selecting the best surgeon might keep some people from getting help. However, I would encourage people to be really diligent about their research. Some of the biggest disasters I’ve heard about were almost certainly avoidable by choosing the right surgeon. That’s my $.02. Do I owe you any change? ;-) Regards, On 3/8/07 7:45 AM, " cammaltby " <cammaltby@...> wrote: The recent discussions about how long this surgery should take has turned interesting. I must say I am more than a little worried about this topic and what it means to those trying to make a decision about surgery. So, at the risk of going way out on limb, I am going to say what is on my mind (and I think is on a lot of peoples minds who have undergone long drawn out staged surgeries). I don't mean this to scare anyone, and I certainly don't want to undermine anyones confidence in their doctor..but here it is. The dabate rages on about whether you can have a fantastic revision surgery for flatback with a " local " doctor and I think we may be comparing apples and oranges, here is why. Those of us that have gone to the surgeons on the forefront of this surgery, SRS members with scads of published, peer reviewed research into this condition have all undergone operative time well in excess of 5 hours. Most of us had staged a/p surgery and no less than 2 discs replaced and fusion to the sacrum, instrumentation into the pelvis with at least one osteotomy. Many of us underwent staged surgeries of at least 2 days. I have heard of a few total times around 8 hours...but I think 10 hours total would be closer to the norm for this A/P surgery and less time if posterior only...if my memory serves me (?). Recently, folks are relating proposed surgical times by " unknown " docs for A/P surgery and 4-5 levels replaced with a total operative time of 5 hours. Hmmmm. Should you believe that the doctors that are literally writing " the book " for surgery of flatback are the slowest, pokiest, least dexterous surgeons out there, or alternatively, should you wonder if the procedures they are doing are really the same? I would propose that the difference lies in the latter, the procedures done. That is why I think it is imperative to understand completely what your proposed surgery is so you can understand the difference in surgical times and what will be done to you, and more importantly, what it means to you over the long term. Otherwise you will simply not know how to evaluate a doctors proposal. Would that we all could clap our hands and find ourselves in the promised land of pain-free, upright, well working bodies. Can you get a 10 hour procedure done in 5 hours? I would want a full understanding and explanation of how that is to be accomplished before I ever agreed to surgery. I think the time to ask that question is before you have surgery. The information is here and elsewhere on the web. We will be glad to help anyone learn how to research the literature. It is heavy " lifting " ....the reading is tedious and dull in many cases. The fact is you can not put too much stock in any one patients outcome. Look at the longevity of the doctors experience in your particular procedure, talk to him/her frankly about their " outcomes to date " with your exact procedure...and talk to their patients. If you can satisfy yourself on all these accounts you will have done yourself a favor. I was somewhat surprised to read that Ken, at this late date, has just started a " list " and realized it is possible to track down patients on his own. When I was in the reseach phase I not only researched the procedure...but I went to every " flatback " scoli site out there on the internet and re-read years of posts. I noted the doctors and information about them and followed them forward in time. When I had narrowed my list of doctors I contacted patients on my own who had posted years back to see how they were doing. As says, how someone is doing a few weeks or months after surgery is not the same as how someone is doing 3-5 years down the road. (Incidently Ken...I too have never have read of a patient of DrA.'s having flatback revison surgery either. I am sure he has the technical skills for the job and must have done it...but I just don't know how you gain confidence in his abilites if you can't independantly verify how his patients are doing). If you are seeing a noted surgeon, yes, I think it is possible to rely on their sole opinion and procede with surgery and have a great outcome. But even within the ranks of the " top guns " I surely have read about pretty poor " bedside manners " . Until you see more than one doctor I don't know if it is possible to feel that you have found a doctor who will likely be someone you are willing to have close contact with for a number of years, if not the remainder of your life. This is elective surgery folks. Pick the time, pick the hospital, pick the surgeon. Pick well. Thats my $.02, Cam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2007 Report Share Posted March 8, 2007 Hi , You don't owe me any change girlfriend...I know we all love examining every side of a discussion! I would quibble with the idea that getting at least one excellent opinion from a top doc is an " elitist " approach to securing good care. I happen to think it's the best way to create a well balanced picture the patient can depend on. It may slow someone down, but the alternative is to what, not get a second opinion? I think most patients are encouraged (no matter what surgery) to get another opinion when they are having big procedures. If a patient has a lesser or unknown doctor that they really like and want to go ahead with but are unsure...then seeing a noted surgeon will probably set their mind at ease. If they hear something completely different than their first opinion....then they will have to resolve the differences somehow. In either case, having read the horror stories...I think I would prefer to not have surgery, ever, than go through flatback revision surgery and get screwed up. I figure it makes more sense to err on the side of caution. I guess that means I am always going to recommend members get in to known docs for good opinions...but I really don't see any alternative. I know I would never want to be feeling responsible for encouraging anyone to have surgery that ended badly if I had not at least recommend members consider getting themselves to another doctor. I am sure we are each looking from our own geographical " point of view " . There was no way I wasn't going to travel, I live in a " backwater " . You live in an area with 3 great revision docs...why would you travel? I know that you might also wonder if this converstaion was in some way a referendum on Dr. Akbarnia. Nothing is further from that. I can see on paper that there is every reason for him to be on anyone's short list. I would be happy to believe that he can do a bang-up job on Ken. Unfortunatly, the fact is there seems to be a discrepancy between two doctors assessments and Ken may need to resolve that in his own mind. I know I would want to. And there is the matter of the missing patient referrals....I guess hopefully they come through very soon. Take Care, Cam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2007 Report Share Posted March 8, 2007 Hi... I want to get one thing straight. I absolutely believe everyone should get at least two opinions. It’s incredibly dangerous to just go with the local orthopaedist because your second cousin’s girlfriend’s ex-mother-in-law loved how he did her knee surgery. ;-) I just don’t think that opinions always have to be from one of the 8-10 doctors who are most often mentioned. While I agree that it’s better in many cases for a person to have no treatment than to choose an inexperienced surgeon, I think there’s a lot of space between that and choosing one of the “top 10.” Most of us are fairly lucky, in that we have insurance plans that cover our choice of surgeons. And, we have a support system that allows us to choose the best surgeons. There are, however, many people who don’t have the same options. Ken needs to have with wife on board for this surgery. If choosing an out-of-town surgeon is going to cause a huge issue in their marriage, that should be taken into consideration. I didn’t think anyone was trying to insinuate that Dr. Akbarnia wasn’t qualified. I truly was just trying to show that there are potential options for those who don’t have the ability to choose one of the better known options. While Ken seems to have come around to getting that second opinion, he was taking an awful lot of heat for his decision to schedule surgery with Akbarnia. At least a small part of that heat was focused on the fact that Akbarnia isn’t one of the well known specialists. That’s what prompted my response. By the way, I think it’s great that we can “examine” every side of discussions without the personal attacks that I’ve seen in other forums. Regards, On 3/8/07 7:59 PM, " cammaltby " <cammaltby@...> wrote: Hi , You don't owe me any change girlfriend...I know we all love examining every side of a discussion! I would quibble with the idea that getting at least one excellent opinion from a top doc is an " elitist " approach to securing good care. I happen to think it's the best way to create a well balanced picture the patient can depend on. It may slow someone down, but the alternative is to what, not get a second opinion? I think most patients are encouraged (no matter what surgery) to get another opinion when they are having big procedures. If a patient has a lesser or unknown doctor that they really like and want to go ahead with but are unsure...then seeing a noted surgeon will probably set their mind at ease. If they hear something completely different than their first opinion....then they will have to resolve the differences somehow. In either case, having read the horror stories...I think I would prefer to not have surgery, ever, than go through flatback revision surgery and get screwed up. I figure it makes more sense to err on the side of caution. I guess that means I am always going to recommend members get in to known docs for good opinions...but I really don't see any alternative. I know I would never want to be feeling responsible for encouraging anyone to have surgery that ended badly if I had not at least recommend members consider getting themselves to another doctor. I am sure we are each looking from our own geographical " point of view " . There was no way I wasn't going to travel, I live in a " backwater " . You live in an area with 3 great revision docs...why would you travel? I know that you might also wonder if this converstaion was in some way a referendum on Dr. Akbarnia. Nothing is further from that. I can see on paper that there is every reason for him to be on anyone's short list. I would be happy to believe that he can do a bang-up job on Ken. Unfortunatly, the fact is there seems to be a discrepancy between two doctors assessments and Ken may need to resolve that in his own mind. I know I would want to. And there is the matter of the missing patient referrals....I guess hopefully they come through very soon. Take Care, Cam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2007 Report Share Posted March 9, 2007 A random note on the subject of speed of surgery - it's definitely true that some surgeons are just fast. Not a revision, but one of the most astonishingly fast surgeries I know of is a girl who had a 5 level anterior fusion done by Mr Stuart Tucker, a surgeon at the Royal National Orthopaedic Hospital at Stanmore in London (one of our handful of major spinal centres), in just 2.5 hours!! He is known for being extremely fast in a lot of cases, just the way he works and certainly he gets good outcomes. For a/p surgeries, he generally books for being able to stage it with a week between, and then if he can get it all done in one go does so. Even so, unless I trusted the surgeon (as I trusted mine despite thinking the time estimate optimistic) I would worry about any time that sounded too short. I need to get a copy of my notes at some point - I do know that my Hartshill rectangle came out an awful lot faster than they'd expected, so the fact they then over-ran by about 50% is quite interesting. That said, they'd expected to need to go to L5 and possibly sacrum to get the necessary correction of my left lean as much as of the forward lean, but were able to get away with only L4, so my guess is that there was a lot more time spent cracking open and re-modelling my old fusion than originally intended. titch On 3/8/07, Racine <lindaracine@... > wrote: However, Dr. Harry Shufflebarger from Florida, who has a fairly good reputation from what I can tell, is really known for his speed surgery. I once heard him talk about a back/front/back surgery, done in one day, in less than 8 hours. .. -- The wages of sin are death, but by the time taxes are taken out, it's just sort of a tired feeling - a Poundstone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2007 Report Share Posted March 9, 2007 Hi Titch... In general, short anterior procedures are must faster than posterior procedures, because once the incision has been made, and organs have been moved out of the way, there is no soft tissue to dissect. Sorry if that’s too graphic. Regards, On 3/9/07 2:19 AM, " oojackapivvy " <oojackapivvy@...> wrote: A random note on the subject of speed of surgery - it's definitely true that some surgeons are just fast. Not a revision, but one of the most astonishingly fast surgeries I know of is a girl who had a 5 level anterior fusion done by Mr Stuart Tucker, a surgeon at the Royal National Orthopaedic Hospital at Stanmore in London (one of our handful of major spinal centres), in just 2.5 hours!! He is known for being extremely fast in a lot of cases, just the way he works and certainly he gets good outcomes. For a/p surgeries, he generally books for being able to stage it with a week between, and then if he can get it all done in one go does so. Even so, unless I trusted the surgeon (as I trusted mine despite thinking the time estimate optimistic) I would worry about any time that sounded too short. I need to get a copy of my notes at some point - I do know that my Hartshill rectangle came out an awful lot faster than they'd expected, so the fact they then over-ran by about 50% is quite interesting. That said, they'd expected to need to go to L5 and possibly sacrum to get the necessary correction of my left lean as much as of the forward lean, but were able to get away with only L4, so my guess is that there was a lot more time spent cracking open and re-modelling my old fusion than originally intended. titch Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2007 Report Share Posted March 9, 2007 Heheheh - have to be more graphic than that to freak me out ) Still, 2.5 hours is pretty amazing even for only 5 levels - anecdotally I'd say that most people I've known on the forums with similar surgery have had it take upwards of 3.5 hours - still pretty darn fast compared to a lot of posteriors mind you. titch On 3/9/07, Racine <lindaracine@...> wrote: Hi Titch...In general, short anterior procedures are must faster than posterior procedures, because once the incision has been made, and organs have been moved out of the way, there is no soft tissue to dissect. Sorry if that's too graphic. :)Regards, .. -- The wages of sin are death, but by the time taxes are taken out, it's just sort of a tired feeling - a Poundstone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2007 Report Share Posted March 9, 2007 I’ve been reading the posts on length of surgery time and found them to be interesting and informative. For myself, Dr. F originally thought my surgery would be 6-7 hours long. He works with a team (sometimes there are two or three doctors in the OR in addition to the rest of the surgical team), so each has his/her own portion of surgical responsibility. I think the finding that I didn’t need an additional osteotomy (the PEEK cages—anterior approach, seemed to accomplish the lean correction), helped shorten my length of time in surgery. While he’s a fast worker (although not quilte as fast as Titch’s example of the London doc), he is also thorough and a bit of a perfectionist. I know he’s not one to “settle” for a “this is good enough” result. Also, everyone is different. While we all suffer from the same malady, it manifests itself differently in each of us. I would much rather be assured of a positive, successful outcome by a surgeon I trust than worry too much about the time he/she takes to accomplish that outcome. Of course, that said, many of you have had surgeries that took a good long while and there was good reason for that. I think those of us facing surgery need to give that credence when selecting our own doctors and questioning them about their surgical plan, timing, etc. I have learned that Dr. F specializes in spinal deformity—especially those related to previous surgeries (ex. Harrington rod). Most of the many surgeries he performs are related to such spinal deformities. It could be that he’s somewhat unknown to the forum because there just haven’t been that many NW posters until me. When I mentioned several of the doctor’s names (from the forum postings) he was familiar with some, not with others. He’s done extensive training in other parts of the country with other spinal (flatback) experts. Guess what I’m trying to say is that if you’re facing surgery, and all your research on a doc (medical board, other patients, PTs, brace folks, other doctors, etc.) indicates he/she is worth his/her salt, then maybe it wouldn’t be a good idea to focus on only the length of the surgery and make that a show-stopper. Still, I’m relatively new to this and prefer to yield to other, more experience forum members’ experiences and advice. In my case, 5 ½ hours seemed to do the trick…at least so far as we can tell. It’s early days. Hopefully, my recovery and the success of my surgery—like the remainder of his patients—will be proved and borne out in the end. From: [mailto: ] On Behalf Of oojackapivvy Sent: Friday, March 09, 2007 2:19 AM Subject: Re: [ ] Surgical time...I have to say it..... A random note on the subject of speed of surgery - it's definitely true that some surgeons are just fast. Not a revision, but one of the most astonishingly fast surgeries I know of is a girl who had a 5 level anterior fusion done by Mr Stuart Tucker, a surgeon at the Royal National Orthopaedic Hospital at Stanmore in London (one of our handful of major spinal centres), in just 2.5 hours!! He is known for being extremely fast in a lot of cases, just the way he works and certainly he gets good outcomes. For a/p surgeries, he generally books for being able to stage it with a week between, and then if he can get it all done in one go does so. Even so, unless I trusted the surgeon (as I trusted mine despite thinking the time estimate optimistic) I would worry about any time that sounded too short. I need to get a copy of my notes at some point - I do know that my Hartshill rectangle came out an awful lot faster than they'd expected, so the fact they then over-ran by about 50% is quite interesting. That said, they'd expected to need to go to L5 and possibly sacrum to get the necessary correction of my left lean as much as of the forward lean, but were able to get away with only L4, so my guess is that there was a lot more time spent cracking open and re-modelling my old fusion than originally intended. titch On 3/8/07, Racine <lindaracineearthlink (DOT) net > wrote: However, Dr. Harry Shufflebarger from Florida, who has a fairly good reputation from what I can tell, is really known for his speed surgery. I once heard him talk about a back/front/back surgery, done in one day, in less than 8 hours. .. -- The wages of sin are death, but by the time taxes are taken out, it's just sort of a tired feeling - a Poundstone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2007 Report Share Posted March 10, 2007 soft tissue to dissect?? I was thinking there wasn't much back there except muscle. > > > A random note on the subject of speed of surgery - it's definitely true that > > some surgeons are just fast. Not a revision, but one of the most > > astonishingly fast surgeries I know of is a girl who had a 5 level anterior > > fusion done by Mr Stuart Tucker, a surgeon at the Royal National Orthopaedic > > Hospital at Stanmore in London (one of our handful of major spinal centres), > > in just 2.5 hours!! He is known for being extremely fast in a lot of cases, > > just the way he works and certainly he gets good outcomes. For a/p surgeries, > > he generally books for being able to stage it with a week between, and then if > > he can get it all done in one go does so. > > > > Even so, unless I trusted the surgeon (as I trusted mine despite thinking the > > time estimate optimistic) I would worry about any time that sounded too short. > > I need to get a copy of my notes at some point - I do know that my Hartshill > > rectangle came out an awful lot faster than they'd expected, so the fact they > > then over-ran by about 50% is quite interesting. That said, they'd expected > > to need to go to L5 and possibly sacrum to get the necessary correction of my > > left lean as much as of the forward lean, but were able to get away with only > > L4, so my guess is that there was a lot more time spent cracking open and > > re-modelling my old fusion than originally intended. > > > > titch > > > > > >> > >> > >> > > > > > Quote Link to comment Share on other sites More sharing options...
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