Guest guest Posted July 14, 1999 Report Share Posted July 14, 1999 Hi Sue. I hope you're having a better day today--as I am quickly learning, there's very little more demoralizing than hurting all the time. My pain in dissimilar from yours in that, so far, I don't have any in my shoulder and it doesn't seem to have anything to do with my liver or medication levels. I started taking Vicoden (sp?)/hydrocodone, which is helping somewhat, but I can still feel my knees and sides throbbing through it. I'll let you know if the rheumatologist says anything that might be helpful for you when I see him in a couple of weeks. Janelle AIH Seattle ____________________ _________ Forward Header __________________________________ Subject: Re: [ ] SueB. Author: milko@... at Internet-USA Date: 7/11/99 8:28 PM From: " milko " <milko@...> Janelle, Anytime you want to visit there is a bed here for you. The pain I suffer from is around the liver area front and back and radiates to the shoulder. These are the original symptoms that sent me to my doctor in the first place, this was diagnosed as gallbladder. I had it out, yet the pain is still there. The drugs have made my life bearable at this stage. I really don't want to be on them forever though. That is to be sorted out after I go through this withdrawal thing. I haven't seen a rheumatologist though! Yes, the pain increases when the levels do. I can usually tell my doc that the levels are up before she gets the results of the blood tests. Had a really rough day yesterday! Much better today though. SueB. ---------- > From: Janelle Asplund <jasplund@...> > onelist > Subject: Re: [ ] SueB. > Date: Saturday, 10 July 1999 20:12 > > > Hi Sue. Thanks for the welcome. It makes me feel A TON better to get things off > my chest with this group! I love having a place to go where I can fret over > whatever I need to fret about--everything except whether I'm driving anyone > berserk by constantly obsessing over my health. If anything, this list proves > how few of us are hypochondriacs, how, if anything, sometimes we wait too long > to say anything! If my sister hadn't harassed me into going, I'm not sure how > long I would've waited to see the dr., waiting for the stomach flu that later > turned out to be AIH to resolve on its own. > > Maybe not for the convention--though that suggestion sent me into a pleasant > fantasy for a minute--but someday I know I intend to get to Australia. > > Also, you mentioned in another post that you experience constant pain, too. > Where is it for you? Have you seen a rheumatologist? Do you notice a correlation > between the pain and your levels? > > Janelle AIH > Seattle > > > ______________________________ Forward Header __________________________________ > Subject: Re: [ ] a new member > Author: milko@... at Internet-USA > Date: 7/9/99 9:37 PM > > > From: " milko " <milko@...> > > Janelle, > Welcome. > Doesn't it make you feel a little better just to get things off your chest > to this group. No one thinks you are a hypochondriac, they all know almost > exactly how you are feeling. > > SueB. > > ---------- > > From: jasplund@... > > onelist > > Subject: [ ] a new member > > Date: Tuesday, 6 July 1999 6:49 > > > > From: jasplund@... > > > > Hello all. Although this is my first posting, I've been reading the > archives for a few weeks now, and have not only learned a great deal > (certainly more than my doctor has told me!) but taken an enormous amount > of comfort from your collective wisdom. More than anything this list is > helping me come to terms with my recent (May) diagnosis of AIH. Here's a > little background: I'm 26, live in Seattle, and in March, began to > experience persistent stomach upset and nausea, along with joint pain and > fatigue. My doctor initially chalked up the stomach problems to an ulcer, > but decided to run some blood tests anyway; I helped him dismiss the joint > pain and fatigue by speculating that they were to due to an especially > heavy workload and a new kickboxing class (how's that for bitter irony?! > Just as soon as I decide to start taking my health seriously, I get > diagnosed with this stinkin' disease!). Blood tests came back, showing > elevated LFT's but nothing more definitive, so my doctor concluded I > probably have hep A and te > > > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
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