Guest guest Posted March 13, 2008 Report Share Posted March 13, 2008 Dear , I'm doing a happy dance for you, awesome news! [ ] Good news today!! I reapplied for home services some time ago, and the social services office has been very backlogged. I finally had my evaluation today, and assuming my neuro fills out the required form that they need in some timely manner (ha-ha, I will have to call to make sure they actually fill it out), I have been approved for services again! Yay!!!! It's a state-paid program (we could never afford this on our own), and I received these benefits 2 years ago when my MS started aggressively going downhill. I had some wonderful personal assistants, then a series of duds. I also mistakenly thought that we were near the asset limit to qualify for these services, so I discontinued them. At that time, I received 4 hours of help 5 days a week, so 20 hours a week. This time I have been approved for 6 hours of help 5 days a week, so 30 hours a week! So I will once again be able to hire a personal assistant to help me with transferring to my wheelchair, transferring in & out of the shower, with laundry, cleaning, cooking, and driving me to shopping & dr appts. I am soooo happy to have these services again, and it will be a HUGE stress off of both my husband and I. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2008 Report Share Posted March 13, 2008 That's great !! I had that kind of help for 6 months after my surgery. They cleaned my house and helped me go to dr. appt. etc. My work comp paid for it. You already know this because you have had this before - but don't leave your meds out or anything valuable. Be careful that you don't get taken advantage of. I was too trusting and too friendly. I mean you have to trust some because I was with these people 20 hours a week. But, then I had my oxycontin stolen and all that mess. Just be on your guard. I am so happy for you - this really will help you a lot and you will be able to spend more time with your kids. Debbie (Tampa) > > I reapplied for home services some time ago, and the social services > office has been very backlogged. I finally had my evaluation today, > and assuming my neuro fills out the required form that they need in > some timely manner (ha-ha, I will have to call to make sure they > actually fill it out), I have been approved for services again! > Yay!!!! > It's a state-paid program (we could never afford this on our own), and > I received these benefits 2 years ago when my MS started aggressively > going downhill. I had some wonderful personal assistants, then a > series of duds. I also mistakenly thought that we were near the asset > limit to qualify for these services, so I discontinued them. At that > time, I received 4 hours of help 5 days a week, so 20 hours a week. > This time I have been approved for 6 hours of help 5 days a week, so 30 > hours a week! > So I will once again be able to hire a personal assistant to help me > with transferring to my wheelchair, transferring in & out of the > shower, with laundry, cleaning, cooking, and driving me to shopping & > dr appts. I am soooo happy to have these services again, and it will > be a HUGE stress off of both my husband and I. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2008 Report Share Posted March 13, 2008 That sounds terrific , I am going to print out your message and give it to Jeri tomorrow. She has filled me in on your situation and I'm sure it's been a rough ride. Glad to hear you're in for som relief. She keeps you, and everyone in this group in her thoughts. Big Hooray for you... and Thanks for all the support. Jeff > > I reapplied for home services some time ago, and the social services > office has been very backlogged. I finally had my evaluation today, > and assuming my neuro fills out the required form that they need in > some timely manner (ha-ha, I will have to call to make sure they > actually fill it out), I have been approved for services again! > Yay!!!! > It's a state-paid program (we could never afford this on our own), and > I received these benefits 2 years ago when my MS started aggressively > going downhill. I had some wonderful personal assistants, then a > series of duds. I also mistakenly thought that we were near the asset > limit to qualify for these services, so I discontinued them. At that > time, I received 4 hours of help 5 days a week, so 20 hours a week. > This time I have been approved for 6 hours of help 5 days a week, so 30 > hours a week! > So I will once again be able to hire a personal assistant to help me > with transferring to my wheelchair, transferring in & out of the > shower, with laundry, cleaning, cooking, and driving me to shopping & > dr appts. I am soooo happy to have these services again, and it will > be a HUGE stress off of both my husband and I. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2008 Report Share Posted March 14, 2008 Thats great news . I am sure you guys will all benefit from the relief of an extra set of hands. I hope that means that you can get out and about a little more too...maybe even the pool?!! Take Care, Cam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2008 Report Share Posted March 14, 2008 That's wonderful news, ! I admire that you have worked your way through the what I find to be almost completely un-understandable " system " of social services, to get what you need. I hope you will find some great personal assistants this time. I know very well how much easier it is to get through the day with them helping. Best wishes, loriann > > I reapplied for home services some time ago, and the social services > office has been very backlogged. I finally had my evaluation today, > and assuming my neuro fills out the required form that they need in > some timely manner (ha-ha, I will have to call to make sure they > actually fill it out), I have been approved for services again! > Yay!!!! > It's a state-paid program (we could never afford this on our own), and > I received these benefits 2 years ago when my MS started aggressively > going downhill. I had some wonderful personal assistants, then a > series of duds. I also mistakenly thought that we were near the asset > limit to qualify for these services, so I discontinued them. At that > time, I received 4 hours of help 5 days a week, so 20 hours a week. > This time I have been approved for 6 hours of help 5 days a week, so 30 > hours a week! > So I will once again be able to hire a personal assistant to help me > with transferring to my wheelchair, transferring in & out of the > shower, with laundry, cleaning, cooking, and driving me to shopping & > dr appts. I am soooo happy to have these services again, and it will > be a HUGE stress off of both my husband and I. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2008 Report Share Posted March 14, 2008 , Isn't it great when every once in a while something works as it should. I am very happy for you. > > I reapplied for home services some time ago, and the social services > office has been very backlogged. I finally had my evaluation today, > and assuming my neuro fills out the required form that they need in > some timely manner (ha-ha, I will have to call to make sure they > actually fill it out), I have been approved for services again! > Yay!!!! > It's a state-paid program (we could never afford this on our own), and > I received these benefits 2 years ago when my MS started aggressively > going downhill. I had some wonderful personal assistants, then a > series of duds. I also mistakenly thought that we were near the asset > limit to qualify for these services, so I discontinued them. At that > time, I received 4 hours of help 5 days a week, so 20 hours a week. > This time I have been approved for 6 hours of help 5 days a week, so 30 > hours a week! > So I will once again be able to hire a personal assistant to help me > with transferring to my wheelchair, transferring in & out of the > shower, with laundry, cleaning, cooking, and driving me to shopping & > dr appts. I am soooo happy to have these services again, and it will > be a HUGE stress off of both my husband and I. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2008 Report Share Posted March 15, 2008 Thanks Lori! It will be a GREAT help. My best friend has been coming over out of the goodness of her heart and helping me catch up on laundry & cleaning, and she drives me to go shopping and stuff every so often. So I offered her part of the hours so that she gets paid for doing what she's been doing for free already. I think we'd probably get sick of each other if we spent 30hrs/wk together, so I will likely split the time and give the remaining hours to someone else. I'm so sorry that your CIL is so unhelpful to you, because out here they are just a wonderful resource. Is there perhaps another CIL in your area that you might be able to have better luck with? There is a list of them that can be found here: http://www.ilru.org/html/publications/directory/index.html I really wish that you could find some help too! How is the house hunting going? > > > > I reapplied for home services some time ago, and the social services > > office has been very backlogged. I finally had my evaluation today, > > and assuming my neuro fills out the required form that they need in > > some timely manner (ha-ha, I will have to call to make sure they > > actually fill it out), I have been approved for services again! > > Yay!!!! > > It's a state-paid program (we could never afford this on our own), and > > I received these benefits 2 years ago when my MS started aggressively > > going downhill. I had some wonderful personal assistants, then a > > series of duds. I also mistakenly thought that we were near the asset > > limit to qualify for these services, so I discontinued them. At that > > time, I received 4 hours of help 5 days a week, so 20 hours a week. > > This time I have been approved for 6 hours of help 5 days a week, so 30 > > hours a week! > > So I will once again be able to hire a personal assistant to help me > > with transferring to my wheelchair, transferring in & out of the > > shower, with laundry, cleaning, cooking, and driving me to shopping & > > dr appts. I am soooo happy to have these services again, and it will > > be a HUGE stress off of both my husband and I. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 Thanks, , Once I get the energy, I will re-start looking at resources to help me. We haven't found a house yet, but fortunately, spring is coming, so hopefully there will be more to look at then. The good thing (although I find it quite ironic) is that once we buy a house, we will have less money, and therefore will probably qualify for more in the way of social services. That's really nice that your best friend is helping you. I'm trying to get up the nerve to ask my next door neighbor if she would be willing to help me a bit. I think she recently retired, so maybe she has more time and energy on her hands than when she was working. I really wish it would stop snowing so I could get out more. I wonder if anyone makes wheelchair ramps that are heated?? loriann > > Thanks Lori! > It will be a GREAT help. My best friend has been coming over out of > the goodness of her heart and helping me catch up on laundry & > cleaning, and she drives me to go shopping and stuff every so often. > So I offered her part of the hours so that she gets paid for doing > what she's been doing for free already. I think we'd probably get > sick of each other if we spent 30hrs/wk together, so I will likely > split the time and give the remaining hours to someone else. > I'm so sorry that your CIL is so unhelpful to you, because out here > they are just a wonderful resource. Is there perhaps another CIL in > your area that you might be able to have better luck with? There is > a list of them that can be found here: > http://www.ilru.org/html/publications/directory/index.html > I really wish that you could find some help too! How is the house > hunting going? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2008 Report Share Posted April 26, 2008 Hi, Lori -- This might be out of the question, but any chance you and could buy some land and build to your specs economically? There is so much exciting and cost-effective experimentation going on these days. While still living in a rental apartment in a 1927 building, I try to browse Dwell magazine at the bookstore each month. I intend to build my modest adobe dream houe eventually, ideally in the mountains of northern New Mexico, off the grid with solar panels. It will have every adaptation I can come up with that will make it easy for me and friends of my age or condition to navigate. Of course my not-driving is a bit of an impediment when it comes to location, but my brother has seriously suggested that I get some kind of motorized two-wheeler -- something more than a moped, less than a Harley, as I (dimly) understand it. I know beans about motorcyles/motorbikes, so I hope to get a better understanding of what he has in mind and whether it could get me to, say, Target and back with my Diet Mountain Dew and multi-pack paper towels. As you probably know, you can see a bunch of ideas in newer architechtural books. One that looks promising is http://www.amazon.com/Accessible-Housing-Design-Universal-Principles/dp/00707117\ 47/ref=sr_1_1?ie=UTF8 & s=books & qid=1209236296 & sr=1-1 It looks as if it includes at least one case-study house designed for a person with similar limitations to yours, i.e., partial paralysis. There's also a book called The Transformable House which looked kind of provocative. Best, > > > > Thanks Lori! > > It will be a GREAT help. My best friend has been coming over out of > > the goodness of her heart and helping me catch up on laundry & > > cleaning, and she drives me to go shopping and stuff every so often. > > So I offered her part of the hours so that she gets paid for doing > > what she's been doing for free already. I think we'd probably get > > sick of each other if we spent 30hrs/wk together, so I will likely > > split the time and give the remaining hours to someone else. > > I'm so sorry that your CIL is so unhelpful to you, because out here > > they are just a wonderful resource. Is there perhaps another CIL in > > your area that you might be able to have better luck with? There is > > a list of them that can be found here: > > http://www.ilru.org/html/publications/directory/index.html > > I really wish that you could find some help too! How is the house > > hunting going? > > > > > Quote Link to comment Share on other sites More sharing options...
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