(No subject)

[Guest guest]

HI EVERYBODY,

THANK SO MUCH FOR THE WARM WELCOME. I HAVE BEEN READING AS MUCH AS MY ENERGY

ALLOWS AND HAVE FOUND THIS GROUPO AMAZING IN THE KNOWLEDGE (THAT I DON'T HAVE),

THE ENCOURAGEMENT, SUPPORT, SENSE OF HUMOR IS WONDERFULLY INSPIRING. I LIVE IN

NEW JERSEY, BUT RAISED IN THE BRONX, NY AND AS IS MY WAY, APPRECIATE THE SARCASM

AND ANGER TOWARD THE MEDICAL SYSTEM. I'VE COME TO THE CONCLUSION THAT MANY OF MY

DOCTORS ARE IN A BRAIN FOG FAR MORE OFTEN THAN I AM.

I AM A 53 YR OLD WOMAN WHO MENTALLY FEELS LIKE AN ADOLESCENT AND IS OFTEN

ACCUSED OF THAT BY MY ADULT SONS (21 & 23)BUT PHYSICALLY (LATELY ESPECIALLY)

FEELS ABOUT 90 YRS.

I WAS DIAGNOSED AND HOSPITALIZED IN 1978 2 MONTHS AFTER CHILDBIRTH WITH ACUTE

HEPATITIS (NO VIRUS COULD BE FOUND. OVER THE YEARS I WAS TOLD I HAD FATTY LIVER

DISEASE - " LOSE WEIGHT AND IT WILL GO AWAY. " I WAS DIAGNOSED WITH EARLY

CHIRROSIS (CAN NEVER SPELL IT RIGHT) IN 7/94 AFTER BIOPSY WHILE REMOVAL OF

GALLBLADDER. AT THAT TIME GIVE 5-7 YEARS BEFORE TRANSPLANT WOULD BE NEEDED.

PRESENTLY TOLD I AM IN PORTAL HYPERTENSION AND BEING SENT TO A SURGEON FOR

ANOTHER BIOPSY. GETTING ALL THE USUAL AGGRAVATION AND STALLS FROM MY HMO. I HATE

HMO'S, PRETTY MUCH NO TREATMENT WAS GIVEN ME TILL NOW.

I GET THE SEVERE FATIGUE AND BRAIN FOG. SINCE IT'S NOT SUDDEN BUT CAME ON OVER A

LONG TIME EVERYONE THINKS I'M JUST LAZY AND SOMEWHAT DEMENTED, ESPECIALLY SINCE

I'M ALSO DYSLEXIC AND OFTEN DO AND SAY THINGS EITHER BACKWARD OR MIXED UP. THEY

JUST HAVE A GOOD LAUGH AT ME. THAT OK BECAUSE I THINK OVER THE YEARS IT'S BECOME

CONTAGIOUS. WHEN I CATCH MY FAMILY SCREWING UP IN THEIR BRAIN FOGS THEY BLAME

THE GENES I GAVE THEM OR LIVING WITH A DYLEXIC AND I LAUGH SO HARD THEY HAVE TO

CLEAR A QUICK PATH TO THE BATHROOM.

DIANE:

FOR YEARS I HAD " GALLBLADDER ATTACKS " BEFORE REMOVAL. WHEN THE TESTS IN THE E.R.

OR HOSPITAL REVEALED NO STONES THEY SAID NO GALL BLADDER PROBLEM TILL MY GI DID

THE ERCP AND SAID THE GALLBLADDER ITSELT WAS DISEASED. AFTER REMOVAL BIOPSY

SHOWED MANY, MANY POLYS WITHIN WHICH THEY SAY WOULD HAVE LEAD TO CANCER

EVENTUALLY.

JODY:

I HAD ALL " 5 F'S " PRIOR TO MY GALLBLADDER REMOVAL. I STILL HAVE THE " 5 F'S "

EXCET NOW ITS THE 50'S. HA!

A FEW QUESTIONS PLEASE. IF ANYONE HAS ANY INPUT I WOULD GREATLY APPRECIATE IT. I

HAVE WARTS I AM TOLD COME FROM THE LIVER DIEASE, DOES ANYONE ELSE HAVE THIS

PROBLEM? THEY SEEM TO BE UNPESPONSIVE TO ALL TREATMENT. I THINK THEY ARE

ACTUALLY A NEW FORM OF BREEDING CEMEMT.

CAN ANYONE TELL MEWHAT TO EXPECT FROM PORTAL HYPERTENTSON OR THE CHIRRROSIS?

AND FINALLY, DOES ANYONE KNOW OF A HEPATOLOGIST IN THE NEWYORK OR NEW JERSEY

AREA? I'VE NEVER BEEN TO ONE. DIDN'T KNOW ABOUT THEM AT ALL TILL YOUR GROUP.

HAVE BEEN TREATED TILL NOW BY MY GP & GI. THE KNOWLEDGE I AM GETTING FROM THIS

GROUP IS INCREDIBLE.

LASTLY: FOR LINDA,

MY HEART AND MY PRAYERS GO OUT TO YOU. I'M SURE YOU WILL GET YOUR LIVER AND THE

TRANSPLANT WILL BE SUCCESSFUL.

I'M SORRY I WENT ON SO LONG, BUT I TOOK ADVANTAGE OF A SHORT SPURT OF ENERGY TO

TELL YOU ALL HOW MUCH I APPRECIATE THIS GROUP. AND WISH ONY THE BEST TO

EVERYONE.

BY THE WAY, I WRITE IN CAPS BECAUSE I HAVE LOW VISION RETINAPATHY.

SINCERELY,

IRIS