Re: Re: Joyce's yearly evaluation/Joyce

[Guest guest]

Joyce,

Since your one arm is weak, from the stroke, then you might be able to get a letter from your doctor, for the motor vehicle/driver institution, stating that you don't have full use of both arms and that you need this ball attachment for your steering wheel. In other words, a disability sticker/placard like they would have for those that have only one arm. You might even want to check with the Veteran/Amputee organization, the Heart & Stroke organization or other disability organization, for more information about the various services and regulations in your state. I know you may not want to think of yourself as disabled, but if some of the things available for the disabled make your life easier then take advantage of it and save your energy for the more important things in life.

Llweyn

-----Original Message-----From: [mailto: ]On Behalf Of joyce edmondsSent: January 27, 2006 8:12 PM Subject: Re: [ ] Re: Joyce's yearly evaluation/Kam

Hi Martha,

Thank you for asking about my appt with Yamaguchi. I didn't bring it up because there was nothing to tell. There is nothing that can be done for the shoulder with Charcot's joint. That's what I expected to hear. I only went to him because Dr Lenke thought he might could help. The other arm is weak because of a stroke in 1988 and nothing can be done for that either. So, I learn to live with it.

You all know that Kam tries to fix everything. She had a present for me when I saw her. It is a ball that fits on your steering wheel that you grab to turn the wheel. It's a great idea but I haven't tried it yet. I have tried to find one in our state and was told it had been outlawed because you are supposed to drive with both hands on the wheel. I don't know how true that is but we couldn't find one here.

Joyce E

[Guest guest]

Llweyn,

Thanks. This is such good advice: <<<<<< I know you may not want to think of yourself as disabled, but if some of the things available for the disabled make your life easier then take advantage of it and save your energy for the more important things in life>>>>>>

Bonnie

RE: [ ] Re: Joyce's yearly evaluation/Joyce

Joyce,

Since your one arm is weak, from the stroke, then you might be able to get a letter from your doctor, for the motor vehicle/driver institution, stating that you don't have full use of both arms and that you need this ball attachment for your steering wheel. In other words, a disability sticker/placard like they would have for those that have only one arm. You might even want to check with the Veteran/Amputee organization, the Heart & Stroke organization or other disability organization, for more information about the various services and regulations in your state. I know you may not want to think of yourself as disabled, but if some of the things available for the disabled make your life easier then take advantage of it and save your energy for the more important things in life.

Llweyn

-----Original Message-----From: [mailto: ]On Behalf Of joyce edmondsSent: January 27, 2006 8:12 PM Subject: Re: [ ] Re: Joyce's yearly evaluation/Kam

Hi Martha,

Thank you for asking about my appt with Yamaguchi. I didn't bring it up because there was nothing to tell. There is nothing that can be done for the shoulder with Charcot's joint. That's what I expected to hear. I only went to him because Dr Lenke thought he might could help. The other arm is weak because of a stroke in 1988 and nothing can be done for that either. So, I learn to live with it.

You all know that Kam tries to fix everything. She had a present for me when I saw her. It is a ball that fits on your steering wheel that you grab to turn the wheel. It's a great idea but I haven't tried it yet. I have tried to find one in our state and was told it had been outlawed because you are supposed to drive with both hands on the wheel. I don't know how true that is but we couldn't find one here.

Joyce E

[Guest guest]

Llweyn,

I know I'm disabled and proud of it. I have come a long way ba-bee! I think I mentioned to this group that an auto mechanic was going to put something called effortless steering on my car. Now he tells me, after 4 months, that they have to take the rack and pinion (?) off my car and sent it out of state to have it done. After him stringing me along for 4 months I just don't trust him with my car anymore. I am telling you this because I am now looking for someone else that might can do the same thing that I can trust. I have not tried Kam's ball yet. I have not fully recuperated from our trip to St Louis yet. Maybe tomorrow ny can put it on my steering wheel and I will give it a try. It would be nice if that solved my problem. Then I will get the necessary paperwork to make it legal.

Thanks for your suggestions.

Joyce E

RE: [ ] Re: Joyce's yearly evaluation/Joyce

Joyce,

Since your one arm is weak, from the stroke, then you might be able to get a letter from your doctor, for the motor vehicle/driver institution, stating that you don't have full use of both arms and that you need this ball attachment for your steering wheel. In other words, a disability sticker/placard like they would have for those that have only one arm. You might even want to check with the Veteran/Amputee organization, the Heart & Stroke organization or other disability organization, for more information about the various services and regulations in your state. I know you may not want to think of yourself as disabled, but if some of the things available for the disabled make your life easier then take advantage of it and save your energy for the more important things in life.

Llweyn

-----Original Message-----From: [mailto: ]On Behalf Of joyce edmondsSent: January 27, 2006 8:12 PM Subject: Re: [ ] Re: Joyce's yearly evaluation/Kam

Hi Martha,

Thank you for asking about my appt with Yamaguchi. I didn't bring it up because there was nothing to tell. There is nothing that can be done for the shoulder with Charcot's joint. That's what I expected to hear. I only went to him because Dr Lenke thought he might could help. The other arm is weak because of a stroke in 1988 and nothing can be done for that either. So, I learn to live with it.

You all know that Kam tries to fix everything. She had a present for me when I saw her. It is a ball that fits on your steering wheel that you grab to turn the wheel. It's a great idea but I haven't tried it yet. I have tried to find one in our state and was told it had been outlawed because you are supposed to drive with both hands on the wheel. I don't know how true that is but we couldn't find one here.

Joyce E

[Guest guest]

Bonnie, I'm glad you like my bit of advice. I was a classic case of Scoliosis Overcompensation Syndrome, that Mina wrote about, and have come to realize that life is too short. I'm still saying Yes more often than I really should, but I'm becoming more choosey about what I say Yes to. It was hard for me to accept Disability, but it has opened other doors and allow me to enjoy life more. With the sudden caregiving responsibilities that I acquired shortly after I quit working full-time, I don't think I could have managed handling my present deteriorating condition quite so well and still work. I believe the deterioration may have escalated. Also, working with the Disabled community, disability does not have the same stigma that it did, even 5 years ago, and a lot has to do with one's own attitude, too. So don't waste your energy when you don't have to. Enjoy life, as best you can.

Llweyn

-----Original Message-----From: [mailto: ]On Behalf Of BonnieSent: January 28, 2006 8:15 AM Subject: Re: [ ] Re: Joyce's yearly evaluation/Joyce

Llweyn,

Thanks. This is such good advice: <<<<<< I know you may not want to think of yourself as disabled, but if some of the things available for the disabled make your life easier then take advantage of it and save your energy for the more important things in life>>>>>>

Bonnie

RE: [ ] Re: Joyce's yearly evaluation/Joyce

Joyce,

Since your one arm is weak, from the stroke, then you might be able to get a letter from your doctor, for the motor vehicle/driver institution, stating that you don't have full use of both arms and that you need this ball attachment for your steering wheel. In other words, a disability sticker/placard like they would have for those that have only one arm. You might even want to check with the Veteran/Amputee organization, the Heart & Stroke organization or other disability organization, for more information about the various services and regulations in your state. I know you may not want to think of yourself as disabled, but if some of the things available for the disabled make your life easier then take advantage of it and save your energy for the more important things in life.

Llweyn

-----Original Message-----From: [mailto: ]On Behalf Of joyce edmondsSent: January 27, 2006 8:12 PM Subject: Re: [ ] Re: Joyce's yearly evaluation/Kam

Hi Martha,

Thank you for asking about my appt with Yamaguchi. I didn't bring it up because there was nothing to tell. There is nothing that can be done for the shoulder with Charcot's joint. That's what I expected to hear. I only went to him because Dr Lenke thought he might could help. The other arm is weak because of a stroke in 1988 and nothing can be done for that either. So, I learn to live with it.

You all know that Kam tries to fix everything. She had a present for me when I saw her. It is a ball that fits on your steering wheel that you grab to turn the wheel. It's a great idea but I haven't tried it yet. I have tried to find one in our state and was told it had been outlawed because you are supposed to drive with both hands on the wheel. I don't know how true that is but we couldn't find one here.

Joyce E

[Guest guest]

Joyce,

I'm glad to hear that you're proud about being disabled. It is hard for most people to accept that about themselves for a long time, unless they were born with it and that is all they know.

A good mechanic is hard to find, especially one that is familiar with a disability-equipped vehicle. You might check with the maintenance man for the public vehicles for the disabled. The one in my area was able to recommend a few that he knew were familiar with the legal and mechanical part of the equipment. Another one, like I said before, is the organizations that deal with the disabled. But take care of yourself first so that you will be able to think clearer and handle things better. Good luck.

Llweyn

-----Original Message-----From: [mailto: ]On Behalf Of joyce edmondsSent: January 28, 2006 8:29 PM Subject: Re: [ ] Re: Joyce's yearly evaluation/Joyce

Llweyn,

I know I'm disabled and proud of it. I have come a long way ba-bee! I think I mentioned to this group that an auto mechanic was going to put something called effortless steering on my car. Now he tells me, after 4 months, that they have to take the rack and pinion (?) off my car and sent it out of state to have it done. After him stringing me along for 4 months I just don't trust him with my car anymore. I am telling you this because I am now looking for someone else that might can do the same thing that I can trust. I have not tried Kam's ball yet. I have not fully recuperated from our trip to St Louis yet. Maybe tomorrow ny can put it on my steering wheel and I will give it a try. It would be nice if that solved my problem. Then I will get the necessary paperwork to make it legal.

Thanks for your suggestions.

Joyce E

[Guest guest]

Llweyn,

You didn't mention to Bonnie that although you are disabled yourself, you are the caregiver for your disabled mother and brother. It's hard to say No to family. You don't get the time needed to take care of yourself and my hat goes off to you.

Joyce E

RE: [ ] Re: Joyce's yearly evaluation/Joyce

Joyce,

Since your one arm is weak, from the stroke, then you might be able to get a letter from your doctor, for the motor vehicle/driver institution, stating that you don't have full use of both arms and that you need this ball attachment for your steering wheel. In other words, a disability sticker/placard like they would have for those that have only one arm. You might even want to check with the Veteran/Amputee organization, the Heart & Stroke organization or other disability organization, for more information about the various services and regulations in your state. I know you may not want to think of yourself as disabled, but if some of the things available for the disabled make your life easier then take advantage of it and save your energy for the more important things in life.

Llweyn

-----Original Message-----From: [mailto: ]On Behalf Of joyce edmondsSent: January 27, 2006 8:12 PM Subject: Re: [ ] Re: Joyce's yearly evaluation/Kam

Hi Martha,

Thank you for asking about my appt with Yamaguchi. I didn't bring it up because there was nothing to tell. There is nothing that can be done for the shoulder with Charcot's joint. That's what I expected to hear. I only went to him because Dr Lenke thought he might could help. The other arm is weak because of a stroke in 1988 and nothing can be done for that either. So, I learn to live with it.

You all know that Kam tries to fix everything. She had a present for me when I saw her. It is a ball that fits on your steering wheel that you grab to turn the wheel. It's a great idea but I haven't tried it yet. I have tried to find one in our state and was told it had been outlawed because you are supposed to drive with both hands on the wheel. I don't know how true that is but we couldn't find one here.

Joyce E

[Guest guest]

Joyce,

Maybe there is a misunderstanding about what I had said. There are complete companies that alter autos to make them the way we want them. The rental talk was a different subject all together. I'll bet there is a place you can go to have what you want done.

Carole -- That's why I suggested googling a word.

[Guest guest]

Kam, you are without a doubt, one of the nicest people I have ever met. I felt like we knew each other for ages after just meeting. The same goes for your family. Super people. And since you have given me permission, I will take my time on the ball. I think you have recovered from surgery faster than I have recovered from my trip to St Louis. I am glad you are doing so well. Take care my friend.

Joyce E

Re: [ ] Re: Joyce's yearly evaluation/Joyce> > > Gee, Joyce,> I just had a lift put in our new Honda Odyssey van! While there, the man who took care of me (who is a paraplegic) showed me the hand controls. So, you see, there are whole businesses doing van conversions, vans the "kneel", wheelchair lifts, etc. I would not go to just anyone (I know you thought you knew that guy.)> > There is also a way to rent all the stuff you need, like to go away on a vacation. There are places that are national franchises.> > Why not google whatever word describes what you need, and see what comes up? I'd offer my company, but you'd have an awfully long ride! :>)> Carole> > > scoliosis veterans * flatback sufferers * revision candidates > > > >

[Guest guest]

Carole,

So you just threw in the rental talk to confuse me! You don't have to go to any extra effort to achieve that. And that's how I found the mechanic that has strung me along. I googled a word. But I will try again. Seriously, thanks for the suggestions and I will do another search, when I feel better.

Joyce E

Re: [ ] Re: Joyce's yearly evaluation/Joyce

Joyce,

Maybe there is a misunderstanding about what I had said. There are complete companies that alter autos to make them the way we want them. The rental talk was a different subject all together. I'll bet there is a place you can go to have what you want done.

Carole -- That's why I suggested googling a word.

[Guest guest]

Oh, Joyce, I got the impression that the other guy was a personal friend. Would you like me to ask "my guys" how to find someone in your area? Do you live in St. Louis? My daughter used to live there and was a neonatal nurse practitioner at a childrens' hospital there. Her husband was a cardiologist at the hospital where Bridwell is -- I cannot think of the name of it. Now they are in MN.

Carole