Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 Saturday, July 13 Hello everybody.... I have been reading messages, but to be honest, I have been so depressed I haven't had the heart to write, until now. It is so good to read everybody's comments and I am so lucky to have found you all...you are an incredible group of people. We had 's 3rd appointment with the rheumatologist on Tuesday, and it did nothing but convince me that this guy (a ped rheumatologist at a Children's hospital, no less) is completely uncaring. To make a long story short, it was a terrible appointment. Complete with him having his cell phone lying on the desk, it ringing and him ANSWERING it during our'consult'. I won't go into all the nitty gritty details, but I did have a prayer answered. He ordered a new MRI of Rob's hips, to be done on this coming Monday. (I had been begging him since MAY to order a repeat MRI to see if the joint effusions had improved any). I had called Shriner's in Lexington (about 1-1/2 hours away) a few weeks ago, and they were to mail me a packet of info and an appointment, and I can't believe it, but they are getting Rob in this coming TUESDAY! I had also called Riley Hospital in Indianapolis (2 hours away) and they can't see him until August 26. At any rate, I am getting copies of the MRI he has done on Monday and taking them with me on Tuesday. I faxed Shriner's a release so they could get the lab results jerk-head ordered this past Tuesday, and they left me a message on Friday that they had already obtained them. Of course, Dr. Jerk hasn't had the decency to call me with the results, nor will he. I obtained 's records and found out that the jerk had the results of the HLAB27 a FULL MONTH before our next appointment had been due, and of course didn't even bother to call us with any results. I am just so glad that we are getting in to Shriner's. After we scheduled the MRI, his office informed me that they couldn't see Rob until 3 more weeks...so the Shriner's appointment will allow us to get the results much much sooner. I also obtained the original MRI films to take with us so that they can see how the hips look from March until now. Rob has gotten even worse. He has been falling, as his left hip is already bad, and his right is getting worse. He is barely able to use his crutches today. He has fallen 3 times in the last few days. We obviously are so grateful to have this appointment on Tuesday, to hopefully get some answers. I have worked the last 8 days straight (due to others' vacation times), not full 8 hour days, but working about 6 and on call for 8, and I am thankfully off Tuesday, Wednesday and Thursday. Amazing that the day that Shriner's picked for our appointment is the first day I am off. Prayers answered! Anyway, I know there are some on the list who go to SHriner's in Lexington, and any advice or comments you can send our way would be appreciated. Thanks for being here... and Rob 13 jas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 Oh , how frustrating!! What a nightmare that Dr. sounds like. I'm so sorry you have been having such a difficult time. That's great that Rob will be seen on Tuesday. I hope that you get the answers that you need and deserve. I will keep you and Rob as always in my thoughts and prayers. Big hugs to you both. Ellie and Riley 4 poly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 ! that to me is totally unconcinable! He shouldn't be in the field of patient care! especially a pediactric rheumatologist! To have his cell phone on while in with a patient. Well I don't think he would want to meet this Old SOB because he sure as H3ll would get an ear full! many hug for my buddy! dolphin boy! Uncle Rusty Limbs On Sat, 13 Jul 2002 19:50:27 EDT snooksmama@... writes: Saturday, July 13 Hello everybody.... I have been reading messages, but to be honest, I have been so depressed I haven't had the heart to write, until now. It is so good to read everybody's comments and I am so lucky to have found you all...you are an incredible group of people. We had 's 3rd appointment with the rheumatologist on Tuesday, and it did nothing but convince me that this guy (a ped rheumatologist at a Children's hospital, no less) is completely uncaring. To make a long story short, it was a terrible appointment. Complete with him having his cell phone lying on the desk, it ringing and him ANSWERING it during our'consult'. I won't go into all the nitty gritty details, but I did have a prayer answered. He ordered a new MRI of Rob's hips, to be done on this coming Monday. (I had been begging him since MAY to order a repeat MRI to see if the joint effusions had improved any). I had called Shriner's in Lexington (about 1-1/2 hours away) a few weeks ago, and they were to mail me a packet of info and an appointment, and I can't believe it, but they are getting Rob in this coming TUESDAY! I had also called Riley Hospital in Indianapolis (2 hours away) and they can't see him until August 26. At any rate, I am getting copies of the MRI he has done on Monday and taking them with me on Tuesday. I faxed Shriner's a release so they could get the lab results jerk-head ordered this past Tuesday, and they left me a message on Friday that they had already obtained them. Of course, Dr. Jerk hasn't had the decency to call me with the results, nor will he. I obtained 's records and found out that the jerk had the results of the HLAB27 a FULL MONTH before our next appointment had been due, and of course didn't even bother to call us with any results. I am just so glad that we are getting in to Shriner's. After we scheduled the MRI, his office informed me that they couldn't see Rob until 3 more weeks...so the Shriner's appointment will allow us to get the results much much sooner. I also obtained the original MRI films to take with us so that they can see how the hips look from March until now. Rob has gotten even worse. He has been falling, as his left hip is already bad, and his right is getting worse. He is barely able to use his crutches today. He has fallen 3 times in the last few days. We obviously are so grateful to have this appointment on Tuesday, to hopefully get some answers. I have worked the last 8 days straight (due to others' vacation times), not full 8 hour days, but working about 6 and on call for 8, and I am thankfully off Tuesday, Wednesday and Thursday. Amazing that the day that Shriner's picked for our appointment is the first day I am off. Prayers answered! Anyway, I know there are some on the list who go to SHriner's in Lexington, and any advice or comments you can send our way would be appreciated. Thanks for being here... and Rob 13 jas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2002 Report Share Posted July 14, 2002 , Your e-mail sounds like Tas' story. I wish you all the luck in the world with shriners. I know they have done wonders for Tas and we finally got her hip problem diagnosed. Well I don't have a name, but her femurs are twisted and she has no inside range of motion, so her knees and her feet follow, and that is why her feet are turned in and she steps on herself and falls down all the time. Much luck, my thoughts are with you. Teddy bear hugs and love, Casaria and Tas --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2002 Report Share Posted July 15, 2002 , Glad to hear that you are being seen at Shriners, & that the jerk head is hopefully history! It makes my blood boil to hear of doctors behaving this way. I hope that the appt goes well and that you find the right treatment for Rob soon. Val Rob's Mom (4,systemic) In a message dated Sat, 13 Jul 2002 6:50:27 PM Eastern Standard Time, snooksmama writes: > > > Saturday, July 13 > Hello everybody.... > I have been reading messages, but to be honest, I have been so depressed I > haven't had the heart to write, until now. It is so good to read everybody's > comments and I am so lucky to have found you all...you are an incredible > group of people. > We had 's 3rd appointment with the rheumatologist on Tuesday, and it > did nothing but convince me that this guy (a ped rheumatologist at a > Children's hospital, no less) is completely uncaring. To make a long story > short, it was a terrible appointment. Complete with him having his cell phone > lying on the desk, it ringing and him ANSWERING it during our'consult'. > I won't go into all the nitty gritty details, but I did have a prayer > answered. He ordered a new MRI of Rob's hips, to be done on this coming > Monday. (I had been begging him since MAY to order a repeat MRI to see if the > joint effusions had improved any). I had called Shriner's in Lexington (about > 1-1/2 hours away) a few weeks ago, and they were to mail me a packet of info > and an appointment, and I can't believe it, but they are getting Rob in this > coming TUESDAY! I had also called Riley Hospital in Indianapolis (2 hours > away) and they can't see him until August 26. > At any rate, I am getting copies of the MRI he has done on Monday and taking > them with me on Tuesday. I faxed Shriner's a release so they could get the > lab results jerk-head ordered this past Tuesday, and they left me a message > on Friday that they had already obtained them. Of course, Dr. Jerk hasn't had > the decency to call me with the results, nor will he. I obtained 's > records and found out that the jerk had the results of the HLAB27 a FULL > MONTH before our next appointment had been due, and of course didn't even > bother to call us with any results. I am just so glad that we are getting in > to Shriner's. After we scheduled the MRI, his office informed me that they > couldn't see Rob until 3 more weeks...so the Shriner's appointment will allow > us to get the results much much sooner. I also obtained the original MRI > films to take with us so that they can see how the hips look from March until > now. > Rob has gotten even worse. He has been falling, as his left hip is already > bad, and his right is getting worse. He is barely able to use his crutches > today. He has fallen 3 times in the last few days. We obviously are so > grateful to have this appointment on Tuesday, to hopefully get some answers. > I have worked the last 8 days straight (due to others' vacation times), not > full 8 hour days, but working about 6 and on call for 8, and I am thankfully > off Tuesday, Wednesday and Thursday. Amazing that the day that Shriner's > picked for our appointment is the first day I am off. Prayers answered! > Anyway, I know there are some on the list who go to SHriner's in Lexington, > and any advice or comments you can send our way would be appreciated. > Thanks for being here... > and Rob 13 jas > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2002 Report Share Posted July 15, 2002 Hi , glad you are getting into Shriners tommorrow.I cant believe your rheumy had a cell phone and answered it.Ive been in the peds office and our ped have to excuse himself to take a important call,which is understandable,but that was unexcusable.Sorry to hear that Robs hips have gotten worse.I know you would like to have them injected which could bring much relief untill the other meds kick in.I just hate how long it can take,at least had the pred to get him up and about for a few hours a day.As much as I hate it I love it at the same time,mayby Rob would benefit from a short course of it,doesnt sound like an unreasonable request at all,or mayby the IV type.I know you have lots of questions,and Im sure they will be answered.Good luck tommorrow I hope they can do something to make him feal better quick. Becki and 3systemic Re: Update on Rob >, > >Glad to hear that you are being seen at Shriners, & that the jerk head is hopefully history! It makes my blood boil to hear of doctors behaving this way. I hope that the appt goes well and that you find the right treatment for Rob soon. >Val >Rob's Mom (4,systemic) > >In a message dated Sat, 13 Jul 2002 6:50:27 PM Eastern Standard Time, snooksmama writes: > >> >> >> Saturday, July 13 >> Hello everybody.... >> I have been reading messages, but to be honest, I have been so depressed I >> haven't had the heart to write, until now. It is so good to read everybody's >> comments and I am so lucky to have found you all...you are an incredible >> group of people. >> We had 's 3rd appointment with the rheumatologist on Tuesday, and it >> did nothing but convince me that this guy (a ped rheumatologist at a >> Children's hospital, no less) is completely uncaring. To make a long story >> short, it was a terrible appointment. Complete with him having his cell phone >> lying on the desk, it ringing and him ANSWERING it during our'consult'. >> I won't go into all the nitty gritty details, but I did have a prayer >> answered. He ordered a new MRI of Rob's hips, to be done on this coming >> Monday. (I had been begging him since MAY to order a repeat MRI to see if the >> joint effusions had improved any). I had called Shriner's in Lexington (about >> 1-1/2 hours away) a few weeks ago, and they were to mail me a packet of info >> and an appointment, and I can't believe it, but they are getting Rob in this >> coming TUESDAY! I had also called Riley Hospital in Indianapolis (2 hours >> away) and they can't see him until August 26. >> At any rate, I am getting copies of the MRI he has done on Monday and taking >> them with me on Tuesday. I faxed Shriner's a release so they could get the >> lab results jerk-head ordered this past Tuesday, and they left me a message >> on Friday that they had already obtained them. Of course, Dr. Jerk hasn't had >> the decency to call me with the results, nor will he. I obtained 's >> records and found out that the jerk had the results of the HLAB27 a FULL >> MONTH before our next appointment had been due, and of course didn't even >> bother to call us with any results. I am just so glad that we are getting in >> to Shriner's. After we scheduled the MRI, his office informed me that they >> couldn't see Rob until 3 more weeks...so the Shriner's appointment will allow >> us to get the results much much sooner. I also obtained the original MRI >> films to take with us so that they can see how the hips look from March until >> now. >> Rob has gotten even worse. He has been falling, as his left hip is already >> bad, and his right is getting worse. He is barely able to use his crutches >> today. He has fallen 3 times in the last few days. We obviously are so >> grateful to have this appointment on Tuesday, to hopefully get some answers. >> I have worked the last 8 days straight (due to others' vacation times), not >> full 8 hour days, but working about 6 and on call for 8, and I am thankfully >> off Tuesday, Wednesday and Thursday. Amazing that the day that Shriner's >> picked for our appointment is the first day I am off. Prayers answered! >> Anyway, I know there are some on the list who go to SHriner's in Lexington, >> and any advice or comments you can send our way would be appreciated. >> Thanks for being here... >> and Rob 13 jas >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2002 Report Share Posted July 15, 2002 Hi , After hearing more about the rheumatologist that Rob has seen, I must say that I too was very happy to learn that you will soon be going to see the doctors at Shriners. In our experience, the doctors and therapists there have been excellent. I hope your experience with them will be better than with the current doctor. It made me sad to hear that not only has Rob not been improving ... but that he has actually been getting somewhat worse. I hope that your experience with Shriners will be the start of lots of positive things to come. I will be very interested in hearing from you about the results of the MRI. I know it takes some time to get read and to have a report written up but please know that we're concerned and interested ... and we'll be thinking of you guys during this stressful period. Hang in there, okay? Aloha, Georgina ----- Original Message ----- From: snooksmama@... Saturday, July 13 Hello everybody.... I have been reading messages, but to be honest, I have been so depressed I haven't had the heart to write, until now. It is so good to read everybody's comments and I am so lucky to have found you all...you are an incredible group of people. We had 's 3rd appointment with the rheumatologist on Tuesday, and it did nothing but convince me that this guy (a ped rheumatologist at a Children's hospital, no less) is completely uncaring. To make a long story short, it was a terrible appointment. Complete with him having his cell phone lying on the desk, it ringing and him ANSWERING it during our'consult'. I won't go into all the nitty gritty details, but I did have a prayer answered. He ordered a new MRI of Rob's hips, to be done on this coming Monday. (I had been begging him since MAY to order a repeat MRI to see if the joint effusions had improved any). I had called Shriner's in Lexington (about 1-1/2 hours away) a few weeks ago, and they were to mail me a packet of info and an appointment, and I can't believe it, but they are getting Rob in this coming TUESDAY! I had also called Riley Hospital in Indianapolis (2 hours away) and they can't see him until August 26. At any rate, I am getting copies of the MRI he has done on Monday and taking them with me on Tuesday. I faxed Shriner's a release so they could get the lab results jerk-head ordered this past Tuesday, and they left me a message on Friday that they had already obtained them. Of course, Dr. Jerk hasn't had the decency to call me with the results, nor will he. I obtained 's records and found out that the jerk had the results of the HLAB27 a FULL MONTH before our next appointment had been due, and of course didn't even bother to call us with any results. I am just so glad that we are getting in to Shriner's. After we scheduled the MRI, his office informed me that they couldn't see Rob until 3 more weeks...so the Shriner's appointment will allow us to get the results much much sooner. I also obtained the original MRI films to take with us so that they can see how the hips look from March until now. Rob has gotten even worse. He has been falling, as his left hip is already bad, and his right is getting worse. He is barely able to use his crutches today. He has fallen 3 times in the last few days. We obviously are so grateful to have this appointment on Tuesday, to hopefully get some answers. I have worked the last 8 days straight (due to others' vacation times), not full 8 hour days, but working about 6 and on call for 8, and I am thankfully off Tuesday, Wednesday and Thursday. Amazing that the day that Shriner's picked for our appointment is the first day I am off. Prayers answered! Anyway, I know there are some on the list who go to SHriner's in Lexington, and any advice or comments you can send our way would be appreciated. Thanks for being here... and Rob 13 jas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2005 Report Share Posted June 17, 2005 Hi , I am overjoyed to hear the good news about both of Rob's check-ups. Terrific! Very pleased, too, that he's enjoying his work. Sounds like a good plan, to work just on weekends once the school year begins again. I hope the orthotics help and I hope the hip xrays turn out okay, too. Take Care, Georgina Update on Rob We went to see both nephrology and rheumatology on Tuesday. Nephrology: Rob's Alport syndrome seems to be well controlled on his medication, Cozaar. His 'borderline' blood pressure is now excellent, there is no blood or protein in his urine, and the doc said he doesn't have to return for a year! We are to continue keeping a watch on his blood pressure, and we are to use test strips to check his urine about once a month. Of course, if he has a flareup, we are to come in sooner. We were thrilled with this visit! On to rheumatology. Rob has been on Enbrel since last August. He has seen significant improvement, but still has hip, knee and back pain. His range of motion has improved everywhere! The hips are still irritable as Dr. Passo says. He decided to get some xrays of the hips to check on things. He also had Rob fitted with orthotics in his shoes. Rob externally rotates his feet when his hips hurt, and he felt also that good orthotics with arch support would help with Rob's knee pain, especially when he works. Sometimes after work Rob really hurts. Standing and walking on a concrete floor is hard on someone with AS or any arthritis. But Rob loves to work. He loves his job! The side effect...when he pushes carts he gets really good ankle flexion. He has regained significant ROM in his ankles!! He alternates between retrieving carts and being a cashier. He says that even though its hard work, he prefers doing the carts! We'll see if the orthotics make a difference. Rob can't take any NSAIDS ever again because of the kidney issues, so I think if he had that on board, it would make a difference in his pain. Still, he can take tylenol, which he says does take the edge off. And the Enbrel is doing a pretty good job. I'm really proud of him getting his job, and his license last week. During the school year he will only work some on the weekends, we decided that he can't work during the week. He is enjoying his new found freedom and has grown up so much in the past few months! and Rob 16 Spondy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2005 Report Share Posted June 17, 2005 Congratulations to Rob. Whoa the big license awesome! I'm so proud of him! He is such a good example of what a kid growing up with Juvenile Arthritis can accomplish. He should be very proud of himself. And you should be proud of yourself for raising such a great son! Lots of Love (poly Jra and Spondy, 20) PS. Did you lose weight on the Arava because recently my weight has gone down quite a bit. I was like 127 when I started this med two months ago and I am 116 now, which seems like a pretty big drop considering a few weeks ago my weight was at least 122. Is that totally an Arava thing? Big plus I finally have that flat stomach I always wanted and just in time for bathing suit season.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2005 Report Share Posted June 17, 2005 Hi, . What a great update! Amazing how they mature seemingly so quickly isn't it? Glad the job is going well. I hope the orthotics help with the pain and Rob continues to do so well. Michele Update on Rob We went to see both nephrology and rheumatology on Tuesday. Nephrology: Rob's Alport syndrome seems to be well controlled on his medication, Cozaar. His 'borderline' blood pressure is now excellent, there is no blood or protein in his urine, and the doc said he doesn't have to return for a year! We are to continue keeping a watch on his blood pressure, and we are to use test strips to check his urine about once a month. Of course, if he has a flareup, we are to come in sooner. We were thrilled with this visit! On to rheumatology. Rob has been on Enbrel since last August. He has seen significant improvement, but still has hip, knee and back pain. His range of motion has improved everywhere! The hips are still irritable as Dr. Passo says. He decided to get some xrays of the hips to check on things. He also had Rob fitted with orthotics in his shoes. Rob externally rotates his feet when his hips hurt, and he felt also that good orthotics with arch support would help with Rob's knee pain, especially when he works. Sometimes after work Rob really hurts. Standing and walking on a concrete floor is hard on someone with AS or any arthritis. But Rob loves to work. He loves his job! The side effect...when he pushes carts he gets really good ankle flexion. He has regained significant ROM in his ankles!! He alternates between retrieving carts and being a cashier. He says that even though its hard work, he prefers doing the carts! We'll see if the orthotics make a difference. Rob can't take any NSAIDS ever again because of the kidney issues, so I think if he had that on board, it would make a difference in his pain. Still, he can take tylenol, which he says does take the edge off. And the Enbrel is doing a pretty good job. I'm really proud of him getting his job, and his license last week. During the school year he will only work some on the weekends, we decided that he can't work during the week. He is enjoying his new found freedom and has grown up so much in the past few months! and Rob 16 Spondy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2005 Report Share Posted June 17, 2005 Thanks Georgina! I haven't heard anything about the xrays yet. No news is good news! and Rob 16 Spondy On Fri, 17 Jun 2005 01:33:04 -1000 " Georgina " <gmckin11@...> writes: Hi , I am overjoyed to hear the good news about both of Rob's check-ups. Terrific! Very pleased, too, that he's enjoying his work. Sounds like a good plan, to work just on weekends once the school year begins again. I hope the orthotics help and I hope the hip xrays turn out okay, too. Take Care, Georgina Update on Rob We went to see both nephrology and rheumatology on Tuesday. Nephrology: Rob's Alport syndrome seems to be well controlled on his medication, Cozaar. His 'borderline' blood pressure is now excellent, there is no blood or protein in his urine, and the doc said he doesn't have to return for a year! We are to continue keeping a watch on his blood pressure, and we are to use test strips to check his urine about once a month. Of course, if he has a flareup, we are to come in sooner. We were thrilled with this visit! On to rheumatology. Rob has been on Enbrel since last August. He has seen significant improvement, but still has hip, knee and back pain. His range of motion has improved everywhere! The hips are still irritable as Dr. Passo says. He decided to get some xrays of the hips to check on things. He also had Rob fitted with orthotics in his shoes. Rob externally rotates his feet when his hips hurt, and he felt also that good orthotics with arch support would help with Rob's knee pain, especially when he works. Sometimes after work Rob really hurts. Standing and walking on a concrete floor is hard on someone with AS or any arthritis. But Rob loves to work. He loves his job! The side effect...when he pushes carts he gets really good ankle flexion. He has regained significant ROM in his ankles!! He alternates between retrieving carts and being a cashier. He says that even though its hard work, he prefers doing the carts! We'll see if the orthotics make a difference. Rob can't take any NSAIDS ever again because of the kidney issues, so I think if he had that on board, it would make a difference in his pain. Still, he can take tylenol, which he says does take the edge off. And the Enbrel is doing a pretty good job. I'm really proud of him getting his job, and his license last week. During the school year he will only work some on the weekends, we decided that he can't work during the week. He is enjoying his new found freedom and has grown up so much in the past few months! and Rob 16 Spondy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2005 Report Share Posted June 17, 2005 Hi - Thank you so much for sharing the great news! The stories you tell about Rob's adventures with job, driving, school in addition to all of the health issues give me such hope... and though it seems like such a long way off, I know Caitlin will be a teenager before I know it. I learn so much from all you have done and shared... I hope I will be able to share the same successes! Congratulations to you and to Rob and my best hopes for a healthy, pain-free summer! Colleen H Schulz <snooksmama@...> wrote: We went to see both nephrology and rheumatology on Tuesday. Nephrology: Rob's Alport syndrome seems to be well controlled on his medication, Cozaar. His 'borderline' blood pressure is now excellent, there is no blood or protein in his urine, and the doc said he doesn't have to return for a year! We are to continue keeping a watch on his blood pressure, and we are to use test strips to check his urine about once a month. Of course, if he has a flareup, we are to come in sooner. We were thrilled with this visit! On to rheumatology. Rob has been on Enbrel since last August. He has seen significant improvement, but still has hip, knee and back pain. His range of motion has improved everywhere! The hips are still irritable as Dr. Passo says. He decided to get some xrays of the hips to check on things. He also had Rob fitted with orthotics in his shoes. Rob externally rotates his feet when his hips hurt, and he felt also that good orthotics with arch support would help with Rob's knee pain, especially when he works. Sometimes after work Rob really hurts. Standing and walking on a concrete floor is hard on someone with AS or any arthritis. But Rob loves to work. He loves his job! The side effect...when he pushes carts he gets really good ankle flexion. He has regained significant ROM in his ankles!! He alternates between retrieving carts and being a cashier. He says that even though its hard work, he prefers doing the carts! We'll see if the orthotics make a difference. Rob can't take any NSAIDS ever again because of the kidney issues, so I think if he had that on board, it would make a difference in his pain. Still, he can take tylenol, which he says does take the edge off. And the Enbrel is doing a pretty good job. I'm really proud of him getting his job, and his license last week. During the school year he will only work some on the weekends, we decided that he can't work during the week. He is enjoying his new found freedom and has grown up so much in the past few months! and Rob 16 Spondy --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2005 Report Share Posted June 22, 2005 -... So sorry this is soo darn late, life is busy busy busy with the kids out of school/ in summer school etc. I thought summer would be eaiser... i had no idea!!! Im so excited about the wonderful news on the alports. Phew, one less thing to worry about. IM glad the enbrel seems to be helping Rob, I didnt realise he had only been on it a short time. I thought he had been on it for a year or soo... See how hard it is to keep up with it all ))) Yikes, a driver, im about to live with that too, and im not so sure im ready, Matt turns 16 in Sept and im sure will want his permit. How can my baby drive?? i only just gave birth to him!!!!!! Im so happy that Rob enjoys his job, you go guy!!! i bet hes a great employee too!!! hugs Helen and (7,systemic) -- In , H Schulz <snooksmama@j...> wrote: > We went to see both nephrology and rheumatology on Tuesday. > Nephrology: Rob's Alport syndrome seems to be well controlled on his > medication, Cozaar. His 'borderline' blood pressure is now excellent, > there is no blood or protein in his urine, and the doc said he doesn't > have to return for a year! We are to continue keeping a watch on his > blood pressure, and we are to use test strips to check his urine about > once a month. Of course, if he has a flareup, we are to come in sooner. > We were thrilled with this visit! > On to rheumatology. > Rob has been on Enbrel since last August. He has seen significant > improvement, but still has hip, knee and back pain. > His range of motion has improved everywhere! The hips are still irritable > as Dr. Passo says. He decided to get some xrays of the hips to check on > things. He also had Rob fitted with orthotics in his shoes. Rob > externally rotates his feet when his hips hurt, and he felt also that > good orthotics with arch support would help with Rob's knee pain, > especially when he works. Sometimes after work Rob really hurts. Standing > and walking on a concrete floor is hard on someone with AS or any > arthritis. But Rob loves to work. He loves his job! The side > effect...when he pushes carts he gets really good ankle flexion. He has > regained significant ROM in his ankles!! He alternates between retrieving > carts and being a cashier. He says that even though its hard work, he > prefers doing the carts! > We'll see if the orthotics make a difference. > Rob can't take any NSAIDS ever again because of the kidney issues, so I > think if he had that on board, it would make a difference in his pain. > Still, he can take tylenol, which he says does take the edge off. And the > Enbrel is doing a pretty good job. > I'm really proud of him getting his job, and his license last week. > During the school year he will only work some on the weekends, we decided > that he can't work during the week. He is enjoying his new found freedom > and has grown up so much in the past few months! > and Rob 16 Spondy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2005 Report Share Posted June 27, 2005 , wow, it's so nice to get mostly positive news all around for Rob. What a long way he's come. I'm sorry he's not 100%, but he seems to be doing great coping with it all. It's funny how even he notices the ROM in the ankles from the shopping carts. Who'd have thunk??? Keep up the good news. Stacia and Hunter 9 systemic, iritis > We went to see both nephrology and rheumatology on Tuesday. > Nephrology: Rob's Alport syndrome seems to be well controlled on his > medication, Cozaar. His 'borderline' blood pressure is now excellent, > there is no blood or protein in his urine, and the doc said he doesn't > have to return for a year! We are to continue keeping a watch on his > blood pressure, and we are to use test strips to check his urine about > once a month. Of course, if he has a flareup, we are to come in sooner. > We were thrilled with this visit! > On to rheumatology. > Rob has been on Enbrel since last August. He has seen significant > improvement, but still has hip, knee and back pain. > His range of motion has improved everywhere! The hips are still irritable > as Dr. Passo says. He decided to get some xrays of the hips to check on > things. He also had Rob fitted with orthotics in his shoes. Rob > externally rotates his feet when his hips hurt, and he felt also that > good orthotics with arch support would help with Rob's knee pain, > especially when he works. Sometimes after work Rob really hurts. Standing > and walking on a concrete floor is hard on someone with AS or any > arthritis. But Rob loves to work. He loves his job! The side > effect...when he pushes carts he gets really good ankle flexion. He has > regained significant ROM in his ankles!! He alternates between retrieving > carts and being a cashier. He says that even though its hard work, he > prefers doing the carts! > We'll see if the orthotics make a difference. > Rob can't take any NSAIDS ever again because of the kidney issues, so I > think if he had that on board, it would make a difference in his pain. > Still, he can take tylenol, which he says does take the edge off. And the > Enbrel is doing a pretty good job. > I'm really proud of him getting his job, and his license last week. > During the school year he will only work some on the weekends, we decided > that he can't work during the week. He is enjoying his new found freedom > and has grown up so much in the past few months! > and Rob 16 Spondy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2005 Report Share Posted August 5, 2005 -, poor Rob, that sounds very painful. Not being able to take anything for it too, how frustating. I hope the PT helps quickly and hes feeling better soon. Tell him not to overdo it at work on sunday. hugs Helen and (7,systemic) -- In , H Schulz <snooksmama@j...> wrote: > Rob saw the ped today for his back injury and ended up at physical > therapy. He hadn't played golf in awhile, and then went to play on > Sunday. He swung on the 9th hole and pulled the latissmus dorsi muscle. > He wasn't getting much better, despite ice, heat, massage, hot tub, and I > even gave him one dose of Flexeril he'd had prescribed for a previous > injury. That was a big mistake. Not only was he totally grogged out, but > today broke out in a rash all over his back, shoulders, chest and upper > arms. Guess he's now allergic to Flexeril! > The ped agreed that it was a severe strain. It is actually pretty > swollen. She is also worried that his hips and knees are going to flare > since he is so off kilter with his back. Since Rob can't take any > ibuprofen or NSAIDS because of the kidney disease, we didn't have a lot > of choice. So off to PT. I'm lucky I work there and they had a > cancellation today. She says its going to take 2-3 weeks of therapy to > get him doing better. We of course are worried about the fact he's > starting school next Wednesday and has the ever-dreaded backpack. > Luckily, he has an elevator key for arthritis flares so he promises to > utilize that. And not to carry more than one book around (yeah, right). > We tried to insist on getting him a rolling backpack but he'll have none > of that, absolutely refused. Teenagers!! > Anyway, he's icing on and off tonight to get the swelling down, and is to > go back tomorrow for some heat and ultrasound, and gentle stretching. > He's bummed because he and were going to try to finish putting the > transmission in his car by the time school started, so he could cruise to > school in style. He won't be able to lift for awhile. He does have to > work at Target on Sunday, but I'm trying to talk him into doing cashier > by trading with someone that day, and not doing carts. We'll see! > and Rob 16 Spondy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2005 Report Share Posted August 5, 2005 Sorry Rob is having a tough time with that back injury. I hope the PT helps. I chuckled when I read about the backpack and switching at work. " Teenagers " is right! I could just imagine a teenage boy okaying a rolling backpack. Hopefully he will at least use that elevator, as in some cases that is kind of a cool thing to be able to use. Michele update on Rob Rob saw the ped today for his back injury and ended up at physical therapy. He hadn't played golf in awhile, and then went to play on Sunday. He swung on the 9th hole and pulled the latissmus dorsi muscle. He wasn't getting much better, despite ice, heat, massage, hot tub, and I even gave him one dose of Flexeril he'd had prescribed for a previous injury. That was a big mistake. Not only was he totally grogged out, but today broke out in a rash all over his back, shoulders, chest and upper arms. Guess he's now allergic to Flexeril! The ped agreed that it was a severe strain. It is actually pretty swollen. She is also worried that his hips and knees are going to flare since he is so off kilter with his back. Since Rob can't take any ibuprofen or NSAIDS because of the kidney disease, we didn't have a lot of choice. So off to PT. I'm lucky I work there and they had a cancellation today. She says its going to take 2-3 weeks of therapy to get him doing better. We of course are worried about the fact he's starting school next Wednesday and has the ever-dreaded backpack. Luckily, he has an elevator key for arthritis flares so he promises to utilize that. And not to carry more than one book around (yeah, right). We tried to insist on getting him a rolling backpack but he'll have none of that, absolutely refused. Teenagers!! Anyway, he's icing on and off tonight to get the swelling down, and is to go back tomorrow for some heat and ultrasound, and gentle stretching. He's bummed because he and were going to try to finish putting the transmission in his car by the time school started, so he could cruise to school in style. He won't be able to lift for awhile. He does have to work at Target on Sunday, but I'm trying to talk him into doing cashier by trading with someone that day, and not doing carts. We'll see! and Rob 16 Spondy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2006 Report Share Posted April 20, 2006 Hi : Sorry to hear about Rob's knee........3 months goodness. He does have a high tolerance for pain, doesn't he! I bet you were up that night checking him for any head trauma. Not even a headache with that bash? I bet Rob will get to the part of taking appropriate measures to take care of himself, but right now he probably just wants to be a typical' kid who doesn't have to deal with doctors, etc. He's bright...........he'll realize what he needs to do and hopefully soon for his and mom's sake. How is he liking Target? Is he saving up for something big...........I seem to recall a car or something? Take care. Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2006 Report Share Posted April 20, 2006 In a message dated 4/19/2006 8:23:43 P.M. Eastern Standard Time, snooksmama@... writes: I just got frustrated that Rob doesn't yet take measures to take care of himself! Hopefully this is something that will come in time! , I will be 41 and my mom, bless her heart, says the same thing to this day. I think the ability to push ones self comes with this disease. Some days I listen to my body but most days I just keep on keepin on. I hope some other adults who have lived most of their life with JA can help me here. If you push yourself and don't always stop or slow down when you should please say " I " so I can show my folks and my husband. They all get mad at me. Hang tight, Hang tough ~ Donna~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2006 Report Share Posted April 20, 2006 - I am right there with you. I know and understand totally your frustration. I wish I knew the answer to the " I'm fine " syndrome we have so often talked about. Amazing that Rob could go that long and not say anything about the pain. Perhaps he doesn't want you to worry or maybe he thinks you would make him quit his job? When I have my moments like this about I try to hold on to what told me a few months back when I was venting about Chris. Basically, she told me that it would come in time, as they mature and realize that they must take care of themselves, that parents can't do it forever. We can worry, but at some point they must learn to deal with this on their own. For me, I try to make sure I provide a positive role model with getting regular check ups and taking care of my health. I wish I could get my husband to do the same, as I think that would have more of an impact on but for now it is me. I hope that Rob's knee improves. Hugs to you, vent whenever you need to, I sure do! Michele ( 18, spondy) Update on Rob Again, thank you all for the prayers for Rob's cousin, . We were pretty scared yesterday when he was actively bleeding, but thank God that has apparently ceased with treatment and now he can be managed with GERD medications. I think that there is a lesson to be learned: NSAIDS and pain meds can really do a number on your stomach, and if you are on them long-term or have a history of GERD, you really need to be on something to protect your stomach. Rob has been complaining of his knees a lot lately. He is vague with his complaints, but one thing with Rob: if he is complaining, you'd better sit up and take notice because SOMETHING IS WRONG. Monday, we went to a mall, and while we were walking in he complained about his right knee. He had a followup due with the orthopedist today, to monitor his spondylolysis and spondylolisthesis (back issues), and I made him promise me that we'd have his knee looked at. He readily agreed. Last night, I was at our church working for our ministry, and got a call from Rob. His knee had given out, and he fell into the closet door between his bedroom and ours. He hit the door with such force, that he caused a hole in it! Of course, the door is hollow, but ... Anyway, he hit the front part of his head and he doesn't even have a bruise today. We've been calling him Hard Head all day! This really scared me. So, we go to the orthopedist today and had great news about his spine. His scoliosis is still at 15%, and his spondylolysis and listhesis appear to be status quo as well. Then we moved on to his knee. Rob then finally admits that his knee has been giving out on him, and he's having trouble when he's working at Target. He says its been pretty painful for about 3 MONTHS! They did plain xrays and they looked ok, so he's being scheduled for an MRI. I don't know whether to think its his arthritis, tendonitis, or he's torn something. But I think that the most shocking part was that he hadn't really complained until about a week ago! We had a talk about how the doctor had to pull all that out of him, but yet, he told the doctor more than he'd been telling me. I told Rob that the doctor has to be given information so he can figure out what's wrong. You can't expect them to just know! Anyway, the doctor said for him to take NSAIDS, but Rob can't even take them because of his kidney disease. So, we wait for the MRI. If it's normal I guess its back to the physical therapist. Sorry for the long-winded post! I just got frustrated that Rob doesn't yet take measures to take care of himself! Hopefully this is something that will come in time! and Rob 16 Spondy " Have no fear for what tomorrow may bring. The same loving God who cares for you today will take care of you tomorrow and every day. God will either shield you from suffering or give you unfailing strength to bear it. Be at peace, then, and put aside all anxious thoughts and imaginations. " -St Francis DeSales Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2006 Report Share Posted April 20, 2006 Hi , Wow, 3 months and his knee giving out and still not saying anything...Some of us have stubborn kids don't we...Look at Aundrea hiding the prednisone when she was just 8 years old. They want control over their health and their life. Aundrea even now at age 10 will mention when she has joint pain but will always blame it on something else...For example " my feet hurt but thats just because I haven't walked on them for awhile " " My knee hurts but I bumped it on the wall or something " . on and on. My sister, that has chrones disease was very much like Rob. High tolerance for pain and by the time she mentioned anything she was in serious shape. For goodness sakes she was bleeding rectally for months before she brought it up to my mom (who happens to be a nurse). They went thru many struggles with putting her health on the backburner and then it would all blow up and she would end up in the hospital. Now that is 26 and adopted a baby boy this past year she realizes how important it is for her to take care of her health so that she can take care of her son. Still, even at 26..my mom will call and check up on her, attend dr. appointments with her and of course goes running to her side for any surgery or procedures that have to be done. I guess as moms we will never let go completely will we? Thats why are called moms! :-) Let us know what the tests show and I will be praying for both Rob and your nephew....Are you feeling better these days? (Aundrea 10 systemic jra)- -- In , snooksmama@... wrote: > > Again, thank you all for the prayers for Rob's cousin, . We were > pretty scared yesterday when he was actively bleeding, but thank God that > has apparently ceased with treatment and now he can be managed with GERD > medications. I think that there is a lesson to be learned: NSAIDS and > pain meds can really do a number on your stomach, and if you are on them > long-term or have a history of GERD, you really need to be on something > to protect your stomach. > Rob has been complaining of his knees a lot lately. He is vague with his > complaints, but one thing with Rob: if he is complaining, you'd better > sit up and take notice because SOMETHING IS WRONG. Monday, we went to a > mall, and while we were walking in he complained about his right knee. He > had a followup due with the orthopedist today, to monitor his > spondylolysis and spondylolisthesis (back issues), and I made him promise > me that we'd have his knee looked at. He readily agreed. > Last night, I was at our church working for our ministry, and got a call > from Rob. His knee had given out, and he fell into the closet door > between his bedroom and ours. He hit the door with such force, that he > caused a hole in it! Of course, the door is hollow, but ... > Anyway, he hit the front part of his head and he doesn't even have a > bruise today. We've been calling him Hard Head all day! > This really scared me. So, we go to the orthopedist today and had great > news about his spine. His scoliosis is still at 15%, and his > spondylolysis and listhesis appear to be status quo as well. Then we > moved on to his knee. Rob then finally admits that his knee has been > giving out on him, and he's having trouble when he's working at Target. > He says its been pretty painful for about 3 MONTHS! > They did plain xrays and they looked ok, so he's being scheduled for an > MRI. I don't know whether to think its his arthritis, tendonitis, or he's > torn something. > But I think that the most shocking part was that he hadn't really > complained until about a week ago! We had a talk about how the doctor had > to pull all that out of him, but yet, he told the doctor more than he'd > been telling me. I told Rob that the doctor has to be given information > so he can figure out what's wrong. You can't expect them to just know! > Anyway, the doctor said for him to take NSAIDS, but Rob can't even take > them because of his kidney disease. So, we wait for the MRI. If it's > normal I guess its back to the physical therapist. > Sorry for the long-winded post! I just got frustrated that Rob doesn't > yet take measures to take care of himself! Hopefully this is something > that will come in time! > and Rob 16 Spondy > > > " Have no fear for what tomorrow may bring. The same loving God who cares > for you today will take care of you tomorrow and every day. God will > either shield you from suffering or give you unfailing strength to bear > it. Be at peace, then, and put aside all anxious thoughts and > imaginations. " > -St Francis DeSales > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2006 Report Share Posted August 22, 2006 -Hi . it was good to hear from you and get an update on Rob. Im sorry to hear of the leaky valve. Might it need surgery if it gets worse. Good for you educating the doctor. Kinda sad though that we have to do that. My 14 year old gets pain around his ribs with his pectus too. Thank you for posting what they call it, I could never remember. Thankfully it doesnt bother him much, but he did have one time where it was so painful he was actually crying. It hurt no matter if he sat, laid down or stood up. I hope you get some answers on his knees, let us know that the ortho says. hugs Helen and (9,systemic) In , snooksmama@... wrote: > > I'm sorry I seem to be AWOL most of the time here lately. Life has gotten > busier than I thought it could! I am woefully behind on posts, and I need > to make it a priority in the next few days to call Uncle Rusty and check > on Tree as well. > Rob had his cardiology appointment this past week. The cardiologist feels > that he has costochondritis (inflammation around the ribs) from his > pectus deformity. He did not feel that Rob's pectus was bad enough to > have surgical correction. YAY!! > However, on the echo, it was found that Rob now has a leaky mitral valve. > This was not there on his echo done 10 years ago. So now he is to have > yearly echos and has to take antibiotics before dental appointments and > any surgeries. > The interesting thing is that the cardiologist was unaware that > ankylosing spondylitis could affect the heart. This is a pediatric > cardiologist! He took us into his office, since he said we had piqued his > interest, and lo and behold found the information. So, we had to educate > yet another doctor. This is getting old. > Anyway, since early this year Rob's right knee has been giving him fits. > He had an MRI, which showed scarring and a cyst. He was told to exercise. > Well, pushing carts at Target hasn't been kind to it, and he has been > getting in progressively more pain. Saturday night, he went bowling with > his buddies and couldn't sleep all night due to the pain. He called in to > work today, because pushing carts was out of the question. He so wants to > do what everybody else does and I don't blame him in the least! Anyway, > I'll be calling the orthopedist tomorrow to get an appointment and see if > there is anything they can do for Rob. He already wears neoprene sleeves > on both knees when he works. He can't take any nsaids at all because of > the kidney condition. I'll keep you posted on what we find out. > I hope that all of your kids have better months in the coming months...it > seems like so many are re-flaring right now. We pray for you guys every > night! > and Rob 17 Spondy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2006 Report Share Posted August 23, 2006 Hi, . Sorry to hear about Rob's knee. Could Target transfer him to run a register or maybe into one of the departments like Electronics, something like that? It may cause less knee problems. Just a thought. I know what you mean about having to teach things to drs. That is one reason why I am so glad for the list. I have learned so much that when the situation occurs (we have had it with ER drs, orthopedics, pediatricians other than our own) I am able to explain things and get them researching on their own. The orthopedic guy is really great, but when I had to explain to him what the rheumy's theory was for Chris' JRA starting, he was very surprised. Hope school is going great for Rob, Michele ( 19, spondy) ________________________________ From: [mailto: ] On Behalf Of snooksmama@... Sent: Sunday, August 20, 2006 8:57 PM ; rustyroom Subject: Update on Rob I'm sorry I seem to be AWOL most of the time here lately. Life has gotten busier than I thought it could! I am woefully behind on posts, and I need to make it a priority in the next few days to call Uncle Rusty and check on Tree as well. Rob had his cardiology appointment this past week. The cardiologist feels that he has costochondritis (inflammation around the ribs) from his pectus deformity. He did not feel that Rob's pectus was bad enough to have surgical correction. YAY!! However, on the echo, it was found that Rob now has a leaky mitral valve. This was not there on his echo done 10 years ago. So now he is to have yearly echos and has to take antibiotics before dental appointments and any surgeries. The interesting thing is that the cardiologist was unaware that ankylosing spondylitis could affect the heart. This is a pediatric cardiologist! He took us into his office, since he said we had piqued his interest, and lo and behold found the information. So, we had to educate yet another doctor. This is getting old. Anyway, since early this year Rob's right knee has been giving him fits. He had an MRI, which showed scarring and a cyst. He was told to exercise. Well, pushing carts at Target hasn't been kind to it, and he has been getting in progressively more pain. Saturday night, he went bowling with his buddies and couldn't sleep all night due to the pain. He called in to work today, because pushing carts was out of the question. He so wants to do what everybody else does and I don't blame him in the least! Anyway, I'll be calling the orthopedist tomorrow to get an appointment and see if there is anything they can do for Rob. He already wears neoprene sleeves on both knees when he works. He can't take any nsaids at all because of the kidney condition. I'll keep you posted on what we find out. I hope that all of your kids have better months in the coming months...it seems like so many are re-flaring right now. We pray for you guys every night! and Rob 17 Spondy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2006 Report Share Posted August 24, 2006 Helen: No, he is nowhere near needing surgery ,as long as it doesn't worsen. He'll have it checked yearly. He can't get into the ortho until 9/7. So, we wait on the knee issue. How's Nicky Noodle doing?? and Rob 17 Spondy On Tue, 22 Aug 2006 22:49:01 -0000 " hburger64 " <hburger64@...> writes: -Hi . it was good to hear from you and get an update on Rob. Im sorry to hear of the leaky valve. Might it need surgery if it gets worse. Good for you educating the doctor. Kinda sad though that we have to do that. My 14 year old gets pain around his ribs with his pectus too. Thank you for posting what they call it, I could never remember. Thankfully it doesnt bother him much, but he did have one time where it was so painful he was actually crying. It hurt no matter if he sat, laid down or stood up. I hope you get some answers on his knees, let us know that the ortho says. hugs Helen and (9,systemic) In , snooksmama@... wrote: > > I'm sorry I seem to be AWOL most of the time here lately. Life has gotten > busier than I thought it could! I am woefully behind on posts, and I need > to make it a priority in the next few days to call Uncle Rusty and check > on Tree as well. > Rob had his cardiology appointment this past week. The cardiologist feels > that he has costochondritis (inflammation around the ribs) from his > pectus deformity. He did not feel that Rob's pectus was bad enough to > have surgical correction. YAY!! > However, on the echo, it was found that Rob now has a leaky mitral valve. > This was not there on his echo done 10 years ago. So now he is to have > yearly echos and has to take antibiotics before dental appointments and > any surgeries. > The interesting thing is that the cardiologist was unaware that > ankylosing spondylitis could affect the heart. This is a pediatric > cardiologist! He took us into his office, since he said we had piqued his > interest, and lo and behold found the information. So, we had to educate > yet another doctor. This is getting old. > Anyway, since early this year Rob's right knee has been giving him fits. > He had an MRI, which showed scarring and a cyst. He was told to exercise. > Well, pushing carts at Target hasn't been kind to it, and he has been > getting in progressively more pain. Saturday night, he went bowling with > his buddies and couldn't sleep all night due to the pain. He called in to > work today, because pushing carts was out of the question. He so wants to > do what everybody else does and I don't blame him in the least! Anyway, > I'll be calling the orthopedist tomorrow to get an appointment and see if > there is anything they can do for Rob. He already wears neoprene sleeves > on both knees when he works. He can't take any nsaids at all because of > the kidney condition. I'll keep you posted on what we find out. > I hope that all of your kids have better months in the coming months...it > seems like so many are re-flaring right now. We pray for you guys every > night! > and Rob 17 Spondy > Herth Schulz Precious Helpers Horse Farm www.precioushelpers.org A Cost-Free Christian Riding Therapy Program Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 Which ortho will Rob see, ? I also have a valve issue (MVP) and was told as well that it is a watch and see thing. I know anytime I go to the doc or ER and have a headache or chest pain, I get an ekg that reveals a problem and I usually get admitted to go through the heart tests all over with the same results-all more the reason I dislike the ER, lol. But I always feel better when they say it the same thing. I recently had a tooth to break and will be going to the dentist soon and will have to do the antibiotic thing, which I need to do anyway due to the prosthesis I have....always something, huh???? Hang tight , Hang tough Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 : That is great news. Hope recovery goes well!!!! Sending prayers & happy thoughts, Beth :-) Update on Rob Hello all, and thanks to all who were praying for Rob today! I tell you, he is one amazing kid. He had the knee arthroscopy today, and did well. They found a lot of scar tissue in an area called Hoffa's fat pad. It looked like shreds on the pictures the doc showed us after the surgery. He cut the scar tissue out. He said there might be alot of bleeding, and his knee is very swollen tonight, I think it must have filled up with blood. He said it might have to be drained if it swells too much. Anyway, he thinks that was the main problem, and hopefully in about 6 weeks healing time, Rob will be a new man! Well, at least a man with a new knee...lol He's doing well tonight, back to eating us out of house and home, and hobbling along with crutches. He is amazing!! I'll be talking to the doc tomorrow about the swelling. Thanks again for your prayers. and Rob 17 Spondy Quote Link to comment Share on other sites More sharing options...
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