Re: There is hope at least for today

[Guest guest]

Thanks for sharing that, Val. The explanation could be of help to some of us, perhaps myself.

I was disappointed to get up after both sugeries 2 and 3 and find that my right shoulder was significantly higher than my left, much more noticeably than before surgery, and it seemed to affect my gait. SInce I had told Dr. Rand about it before op. 3, I was especially disappointed about it. But yesterday I happened to look for that shoulder height discrepancy in the mirror and I couldn't see it! So I guess the stuff people had said about my body settling and re-adjusting to the new me were true.

Much healing awaits both of us, my dear. Keep your chin up, and I'll do the same!

Sharon

[ ] There is hope at least for today

Hi all,After a session with a therapist who specializes in posture today, she told me that two times in her career she had seen the neuropathy issue be resolved. Both were people that were crippled and surgery brought them out of that particular state. Both had peripheral neuropathy very badly and both healed as the nerves found balance with the soft tissue and new positioning of the body. This was a tremendous relief to me because even the surgeon did not say that but kept reiterating it was a healing issue and that nerves heal at 1mm per day. This was not enough for me. It was the explanation that some of the nerves had been kinked or shortened and some stretched in other areas after being crippled over to the left for 20 some odd years and finding a balance would take time that finally made sense. Two weeks ago the neuropathy crept into the right side of my body so you can imagine what an emotional mess I was not believing it was a healing issue. So, today, ladies, at least, I have hope. Thanks for listening ..

[Guest guest]

I think much of the healing after this surgery in our minds as our

bodies....so I am glad Val and Sharon that you are feeling hopeful! By

the way, I don't mean " head " as in you are nuts for feeling pain, I

mean that by maintaining a good outlook I believe you can use the mind

body connection to help in the mending process. The reason placebo's

work much of the time is because patients believe they work. There is

a lot of reading to be done on how this is possible....there are many

ideas about how it works...but even if it just helps you " relax into

it a bit " perhaps some of the tension that can translate as pain will

at least subside a little.

I do hope the tingling goes away ...time is your friend.

I am very exccited to see you with my own eyes Sharon....are you doing

a little walking now?

Take Care, Cam

[Guest guest]

one thing that kind of freaked me out in St Louis -- I had

nightmares about the surgery. My husband has been having them ever

since finding out about the tumor on the ovary, but this was my

first one. I don't remember what it was about, but I woke up and

read for a little bit before I could go back to sleep.

maybe it was the strange bed, or thinking that I would be getting

surgery dates the next day.

Is it too early for the surgery CD??

>

> I think much of the healing after this surgery in our minds as our

> bodies....so I am glad Val and Sharon that you are feeling

hopeful! By

> the way, I don't mean " head " as in you are nuts for feeling pain,

I

> mean that by maintaining a good outlook I believe you can use the

mind

> body connection to help in the mending process. The reason

placebo's

> work much of the time is because patients believe they work. There

is

> a lot of reading to be done on how this is possible....there are

many

> ideas about how it works...but even if it just helps you " relax

into

> it a bit " perhaps some of the tension that can translate as pain

will

> at least subside a little.

>

> I do hope the tingling goes away ...time is your friend.

>

> I am very exccited to see you with my own eyes Sharon....are you

doing

> a little walking now?

>

> Take Care, Cam

>

[Guest guest]

A LITTLE walking, Cam? I suppose that is what I should be doing. Good heavens, I've been feeling much too able, and it's hard to stop me from walking, and doing stuff, long enough to lie down and elevate these poor feet. Nice problem, I suppose. Gotta watch that I don't do too much, I know.

Sharon

[ ] Re: There is hope at least for today

I think much of the healing after this surgery in our minds as our bodies....so I am glad Val and Sharon that you are feeling hopeful! By the way, I don't mean "head" as in you are nuts for feeling pain, I mean that by maintaining a good outlook I believe you can use the mind body connection to help in the mending process. The reason placebo's work much of the time is because patients believe they work. There is a lot of reading to be done on how this is possible....there are many ideas about how it works...but even if it just helps you "relax into it a bit" perhaps some of the tension that can translate as pain will at least subside a little.I do hope the tingling goes away ...time is your friend.I am very exccited to see you with my own eyes Sharon....are you doing a little walking now?Take Care, Cam

[Guest guest]

I don't think it's too early, Suzanne. At first I didn't like the speaker's vocal manner, but the words did seem to do the trick inside me.

Sharon

[ ] Re: There is hope at least for today

one thing that kind of freaked me out in St Louis -- I had nightmares about the surgery. My husband has been having them ever since finding out about the tumor on the ovary, but this was my first one. I don't remember what it was about, but I woke up and read for a little bit before I could go back to sleep.maybe it was the strange bed, or thinking that I would be getting surgery dates the next day.Is it too early for the surgery CD??>> I think much of the healing after this surgery in our minds as our > bodies....so I am glad Val and Sharon that you are feeling hopeful! By > the way, I don't mean "head" as in you are nuts for feeling pain, I > mean that by maintaining a good outlook I believe you can use the mind > body connection to help in the mending process. The reason placebo's > work much of the time is because patients believe they work. There is > a lot of reading to be done on how this is possible....there are many > ideas about how it works...but even if it just helps you "relax into > it a bit" perhaps some of the tension that can translate as pain will > at least subside a little.> > I do hope the tingling goes away ...time is your friend.> > I am very exccited to see you with my own eyes Sharon....are you doing > a little walking now?> > Take Care, Cam>

[Guest guest]

Hi all,

Thanks for the notes of support. I'll try to keep my chin up.

[Guest guest]

Hi Sharon, How are you doing? Glad to hear your home and doing

well.Are you alot straighter and is all your pain gone? How did you

like NEBH? Have to go I'm in work right now..Hope to hear from

you.Take Care,Vonnie

>

> Thanks for sharing that, Val. The explanation could be of help to

some of us, perhaps myself.

>

> I was disappointed to get up after both sugeries 2 and 3 and find

that my right shoulder was significantly higher than my left, much

more noticeably than before surgery, and it seemed to affect my

gait. SInce I had told Dr. Rand about it before op. 3, I was

especially disappointed about it. But yesterday I happened to look

for that shoulder height discrepancy in the mirror and I couldn't see

it! So I guess the stuff people had said about my body settling and

re-adjusting to the new me were true.

>

> Much healing awaits both of us, my dear. Keep your chin up, and

I'll do the same!

>

> Sharon

>

> [ ] There is hope at least for today

>

>

> Hi all,

> After a session with a therapist who specializes in posture

today, she

> told me that two times in her career she had seen the neuropathy

issue

> be resolved. Both were people that were crippled and surgery

brought

> them out of that particular state. Both had peripheral neuropathy

very

> badly and both healed as the nerves found balance with the soft

tissue

> and new positioning of the body. This was a tremendous relief to

me

> because even the surgeon did not say that but kept reiterating it

was a

> healing issue and that nerves heal at 1mm per day. This was not

enough

> for me. It was the explanation that some of the nerves had been

kinked

> or shortened and some stretched in other areas after being

crippled

> over to the left for 20 some odd years and finding a balance

would take

> time that finally made sense. Two weeks ago the neuropathy crept

into

> the right side of my body so you can imagine what an emotional

mess I

> was not believing it was a healing issue. So, today, ladies, at

least,

> I have hope. Thanks for listening ..

>

[Guest guest]

Hi, Vonnie.

Yes, I arrived home Oct. 9, and I am walking around quite well. I've been able to do quite a lot around the house, but am starting to worry that what I'm ABLE to do is more than what I SHOULD do, and that I may do something to hinder my healing.

I hope you and everyone else will hope/pray that I do heal well. My main concerns right now are the swelling in my feet, and pain/numbness in my hands. I had hand trouble before surgery, and I think they are getting over-used, now that I'm doing all my reaching/grabbing with my nifty grabber tools. Also, it's hard on my hands putting on my elastic stockings. The sock aid tool works awesomely, but I'm still seeking a way to use it that doesn't strain my hands at all.

Vonnie, I do have great sagittal correction, and can't get over how it feels to have a butt, LOL. As far as pain goes, I can't really say, as I have so many postoperative issues of pain and medication to deal with. We shall see.

Thanks so much for asking.

Hugs,

Sharon

[ ] There is hope at least for today> > > Hi all,> After a session with a therapist who specializes in posture today, she > told me that two times in her career she had seen the neuropathy issue > be resolved. Both were people that were crippled and surgery brought > them out of that particular state. Both had peripheral neuropathy very > badly and both healed as the nerves found balance with the soft tissue > and new positioning of the body. This was a tremendous relief to me > because even the surgeon did not say that but kept reiterating it was a > healing issue and that nerves heal at 1mm per day. This was not enough > for me. It was the explanation that some of the nerves had been kinked > or shortened and some stretched in other areas after being crippled > over to the left for 20 some odd years and finding a balance would take > time that finally made sense. Two weeks ago the neuropathy crept into > the right side of my body so you can imagine what an emotional mess I > was not believing it was a healing issue. So, today, ladies, at least, > I have hope. Thanks for listening .. >

[Guest guest]

It's really fantastic to hear that it's all gone so well ) Just remember no BLT - bending, lifting & twisting - if you're just doing lots of being up and about, walking and so on it's probably ok. Convincing other people of that can be a different matter ;o) - my poor hubby worried himself half to death I think once I had the energy to actually be wandering around lots and up lots even though I was diligent about never over extending myself in any way other than simply tiring myself out.

In any case, great to have you back with us )

titch-- The wages of sin are death, but by the time taxes are taken out, it's just sort of a tired feeling - a Poundstone

[Guest guest]

Sharon, ....and another thing, I don't know if this will make

sense....but I will try. and many others have related how,

after a time, family and friends grow a little tierd of helping and

filling in where needed in the long haul that this surgery really

is. Now lets look at how it will look if, at after only a few weeks

out, you are running around taking care of the house, and then 4

months later you insist that you are still in need of assistance,

care and support. I am 99% sure you will...but they are NOT going

to " get it " . I don't mean you need to " game " the system, so to

speak, but at least acknowledge that if you want the support and

forebearance of your support network for 9-12 months....you can NOT

run around like superwoman the first weeks you are home. They will

think you are full of baloney when the more in depth support is

called for. You are setting yourself up for depression and

dissapointment by doing too much too soon. Let them be happily

surprised when you clear just a few dishes at Thanksgiving.

I do know how great it feels to be able to walk out to the kitchen

without feeling agony....so indulge a tiny bit when no one is

around. But do not start doing anything that will be inferred as you

being capable, or even likely, to take on any household " chore " for

the foreseeable future. That includes all housekeeping chores, bird

cage cleaning, grocery shopping....whatever. It is for someone else

to take care of for awhile!! At your 8 week check you will find you

get some restrictions eased...so wait until then to do any chores.

It's a game of expectations I guess...could I have done more

earlier?....maybe....but I did not. I know there are a few single

parents here...and I realize they may have a disadvantge of not

having much family around....but most of us have able bodied spouses

and children that will benefit from learning how much work it is to

run a household. These are " life skills " folks. This is an

opportunity for others to learn how to clean a toilet bowl. DO NOT

DEPRIVE THEM OF THIS EXPERIENCE!!!

That's what I'm thinkin....

Cam