Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 Tami, Gracious me you gave me a laugh when you wrote " ...and I confirmed that he will not be touching my back. " I don't know for sure that he couldn't do a successful surgery on you...but aren't you glad you asked a few " qualifying questions " ? Getting the saggital balance right is absolutly essential, there really can not be a " do over " ...so having someone practice on you really whouldn't be a good option. If I understand you correctly, you are only unfused at L3/L4...which is similar to how Ann's fusion evolved. I think it really made for an easier recovery since it was really only a one level fusion with an osteotomy, if I remember correctly. Funny that no one told you. I don't know anything about making arrangements with UCSF or DrLaGrone...but hopefully someone will chime in. I hope the epidurals work for you...they bought me a slight rollback in pain which allowed me to accomplish the travel that was necessary to get opinions and through the holidays....but if the first one was marginally helpful, the second one was barely noticable and hastened my own understanding that trying for surgery was the only real option for me. Take Care, Cam > > He told me I am not fused from L-4 to L-3! It appears that Dr. > Waldram (who took out my Harrington Rod and fused me and put in > pedicle screws in 1988) skipped this and fused only where the pain > was coming from (L-3 to Sacrum). I was fused from T-7 to L-4 in 1977 > when I had my first surgery and Harrington rod put in. He said this > is where my sciatic pain was coming from since it has been taking all > the strain all these years. I wonder why Dr. Adler, the neurosurgeon > I saw, did not mention this. > > I do not know how bad my flatback is because I have not had a full, > standing scoliosis x-ray done yet (and I don't know why). He > brought up the option of surgery and when I asked him how many > revisions he has done he kind of hesitated and said not a lot because > it is not a common problem but that he is a spine surgeon and that is > what he does. He said that it was just a different kind of surgery > where they cut a section of spine and then use instrumentation, blah > blah blah. He actually said the following to me; " Liken it to a > truck driver who has driven to Los Angeles for the last 20 years and > then he has to drive to Chicago. You just use a different map. " I > could not believe my ears. > > I told him I was not ready for surgery, would be seeking other > opinions and asked about different options. He said physical therapy > would probably not be of any help because of how active I have been > up until this pain started in July. He then suggested steroid > injections which I have decided to do to see if it will help and > delay the need for surgery. He wants me to come back in three months > and have the full body scoliosis x-rays and discuss my options then. > > In the meantime I will be continuing my research and contacting some > of the surgeons I've read about on this site. If anybody can lead me > in the right direction of how to go about this I really would > appreciate it. > > Sorry this is so long. Thanks to anybody who reads it. > > Tami > > Tami > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 > You're in Oregon, right? Go see Dr. Hu or Dr. Berven at UCSF in San Francisco. Probably the only ones on the west coast closest to you. Carol V. > Hi all. I went to see Dr. Keenan today (finally) and he confirmed > that I do indeed have flatback and I confirmed that he will not be > touching my back. > > He told me I am not fused from L-4 to L-3! It appears that Dr. > Waldram (who took out my Harrington Rod and fused me and put in > pedicle screws in 1988) skipped this and fused only where the pain > was coming from (L-3 to Sacrum). I was fused from T-7 to L-4 in 1977 > when I had my first surgery and Harrington rod put in. He said this > is where my sciatic pain was coming from since it has been taking all > the strain all these years. I wonder why Dr. Adler, the neurosurgeon > I saw, did not mention this. > > I do not know how bad my flatback is because I have not had a full, > standing scoliosis x-ray done yet (and I don't know why). He > brought up the option of surgery and when I asked him how many > revisions he has done he kind of hesitated and said not a lot because > it is not a common problem but that he is a spine surgeon and that is > what he does. He said that it was just a different kind of surgery > where they cut a section of spine and then use instrumentation, blah > blah blah. He actually said the following to me; " Liken it to a > truck driver who has driven to Los Angeles for the last 20 years and > then he has to drive to Chicago. You just use a different map. " I > could not believe my ears. > > I told him I was not ready for surgery, would be seeking other > opinions and asked about different options. He said physical therapy > would probably not be of any help because of how active I have been > up until this pain started in July. He then suggested steroid > injections which I have decided to do to see if it will help and > delay the need for surgery. He wants me to come back in three months > and have the full body scoliosis x-rays and discuss my options then. > > In the meantime I will be continuing my research and contacting some > of the surgeons I've read about on this site. If anybody can lead me > in the right direction of how to go about this I really would > appreciate it. > > Sorry this is so long. Thanks to anybody who reads it. > > Tami > > Tami > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 Hi Cam, When I left his office I did not know whether to laugh or cry so I chose to laugh. They do say " laughter is the best medicine " . Dr. Keenen was a nice guy and probably a wonderful surgeon but how do I know if he could do a successful surgery unless he's done a lot of them already? When he said he would just have to use a different map I felt he did not take it seriously enough. You are correct, my only non fusion is from L3 to L4 and my HR is already out so I'm sure that simplify's things quite a bit. I'm a little nervous about the epidurals after my experience with the myelogram. It took them 4 tries to get into my spine and then they hit a nerve going down my left leg. Not a pleasant experience but if it gives me some relief I'm more than willing to try. Thanks for the reply Cam. It's so nice to have somewhere to go where people understand. My friends and family try but I can't expect them to fully understand. God Bless, Tami > > Tami, > > Gracious me you gave me a laugh when you wrote " ...and I confirmed > that he will not be touching my back. " > > I don't know for sure that he couldn't do a successful surgery on > you...but aren't you glad you asked a few " qualifying questions " ? > Getting the saggital balance right is absolutly essential, there > really can not be a " do over " ...so having someone practice on you > really whouldn't be a good option. > > If I understand you correctly, you are only unfused at L3/L4...which > is similar to how Ann's fusion evolved. I think it really made for > an easier recovery since it was really only a one level fusion with > an osteotomy, if I remember correctly. Funny that no one told you. > > I don't know anything about making arrangements with UCSF or > DrLaGrone...but hopefully someone will chime in. I hope the > epidurals work for you...they bought me a slight rollback in pain > which allowed me to accomplish the travel that was necessary to get > opinions and through the holidays....but if the first one was > marginally helpful, the second one was barely noticable and hastened > my own understanding that trying for surgery was the only real > option for me. > > Take Care, Cam > > > > > > He told me I am not fused from L-4 to L-3! It appears that Dr. > > Waldram (who took out my Harrington Rod and fused me and put in > > pedicle screws in 1988) skipped this and fused only where the pain > > was coming from (L-3 to Sacrum). I was fused from T-7 to L-4 in > 1977 > > when I had my first surgery and Harrington rod put in. He said > this > > is where my sciatic pain was coming from since it has been taking > all > > the strain all these years. I wonder why Dr. Adler, the > neurosurgeon > > I saw, did not mention this. > > > > I do not know how bad my flatback is because I have not had a > full, > > standing scoliosis x-ray done yet (and I don't know why). He > > brought up the option of surgery and when I asked him how many > > revisions he has done he kind of hesitated and said not a lot > because > > it is not a common problem but that he is a spine surgeon and that > is > > what he does. He said that it was just a different kind of > surgery > > where they cut a section of spine and then use instrumentation, > blah > > blah blah. He actually said the following to me; " Liken it to a > > truck driver who has driven to Los Angeles for the last 20 years > and > > then he has to drive to Chicago. You just use a different map. " > I > > could not believe my ears. > > > > I told him I was not ready for surgery, would be seeking other > > opinions and asked about different options. He said physical > therapy > > would probably not be of any help because of how active I have > been > > up until this pain started in July. He then suggested steroid > > injections which I have decided to do to see if it will help and > > delay the need for surgery. He wants me to come back in three > months > > and have the full body scoliosis x-rays and discuss my options > then. > > > > In the meantime I will be continuing my research and contacting > some > > of the surgeons I've read about on this site. If anybody can lead > me > > in the right direction of how to go about this I really would > > appreciate it. > > > > Sorry this is so long. Thanks to anybody who reads it. > > > > Tami > > > > Tami > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 Thanks Carol, I'm already considering UCSF and also Dr. Lagrone in Amarillo. I will go as far as I need to to make sure I get it right the first time. Tami > > > You're in Oregon, right? Go see Dr. Hu or Dr. Berven at UCSF in San > Francisco. Probably the only ones on the west coast closest to you. > > Carol V. > > > Hi all. I went to see Dr. Keenan today (finally) and he confirmed > > that I do indeed have flatback and I confirmed that he will not be > > touching my back. > > > > He told me I am not fused from L-4 to L-3! It appears that Dr. > > Waldram (who took out my Harrington Rod and fused me and put in > > pedicle screws in 1988) skipped this and fused only where the pain > > was coming from (L-3 to Sacrum). I was fused from T-7 to L-4 in > 1977 > > when I had my first surgery and Harrington rod put in. He said > this > > is where my sciatic pain was coming from since it has been taking > all > > the strain all these years. I wonder why Dr. Adler, the > neurosurgeon > > I saw, did not mention this. > > > > I do not know how bad my flatback is because I have not had a full, > > standing scoliosis x-ray done yet (and I don't know why). He > > brought up the option of surgery and when I asked him how many > > revisions he has done he kind of hesitated and said not a lot > because > > it is not a common problem but that he is a spine surgeon and that > is > > what he does. He said that it was just a different kind of surgery > > where they cut a section of spine and then use instrumentation, > blah > > blah blah. He actually said the following to me; " Liken it to a > > truck driver who has driven to Los Angeles for the last 20 years > and > > then he has to drive to Chicago. You just use a different map. " I > > could not believe my ears. > > > > I told him I was not ready for surgery, would be seeking other > > opinions and asked about different options. He said physical > therapy > > would probably not be of any help because of how active I have been > > up until this pain started in July. He then suggested steroid > > injections which I have decided to do to see if it will help and > > delay the need for surgery. He wants me to come back in three > months > > and have the full body scoliosis x-rays and discuss my options then. > > > > In the meantime I will be continuing my research and contacting > some > > of the surgeons I've read about on this site. If anybody can lead > me > > in the right direction of how to go about this I really would > > appreciate it. > > > > Sorry this is so long. Thanks to anybody who reads it. > > > > Tami > > > > Tami > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 I’m totally confused. On 10/25/06 3:02 PM, " tlsun2462 " <tamisun@...> wrote: He told me I am not fused from L-4 to L-3! It appears that Dr. Waldram (who took out my Harrington Rod and fused me and put in pedicle screws in 1988) skipped this and fused only where the pain was coming from (L-3 to Sacrum). I was fused from T-7 to L-4 in 1977 when I had my first surgery and Harrington rod put in. He said this is where my sciatic pain was coming from since it has been taking all the strain all these years. I wonder why Dr. Adler, the neurosurgeon I saw, did not mention this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 I went to my pain management doctor (who is a radiologist) for my myelogram because I thought that he would do the best job with the puncture since he gives me the pain management injections with no problem. Even though he routinely injects my back with the flexible things he can thread around my hardware to get to the appropriate spot, he was unable to get the dye in my lumbar spine for the myelogram. So, my experience is that one does not have anything to do with the other. I really thought that perhaps I had been getting nerve root injections instead of epidural injections, but the report he sent my PCP clearly said that he has been doing epidural injections. Whatever it is that he does, it used to provide wonderful relief for a couple of months. The relief is still pretty good, but not as good as it was. > > > I'm a little nervous about the epidurals after my experience with > the myelogram. It took them 4 tries to get into my spine and then > they hit a nerve going down my left leg. Not a pleasant experience > but if it gives me some relief I'm more than willing to try. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 I was only fused T10-L2 in my original surgery, but my L2-3 disc completely collapsed within just a few years and the pain was excruciating. I went in a matter of months from being in the gym 5-6 days a week, for 1.5-2 hours at a time, to scarcely able to walk - it was really scary. That pain has been entirely sorted out by the revision surgery I had 4 years ago. Although I recovered slowly compared to some people, I think a lot of that was that most have no thoracic work done whereas I had new fusion from T3-T10, which certainly was a lot more painful than the lumbar work they did to stabilise my spine and to fix the flatback. If you ever look back over my past posts, you'll see that I have gone on to develop other problems, but they are below the fusion - I didn't need to be fused to the sacrum to get my balance back, and it's just unfortunate that I have those problems. Of course we are all different, but I can say that 10 months out from the revision, when I turned 30, I was doing extremely well - I spent the day in London with my husband, spending rather more money than was sensible, and we just walked and walked. I took a couple of mild painkillers along the way, had to go and find a cafe to sit down a couple of times, but basically spent 12 hours out and about, most of it on my feet and walking. The worst casualty was sore feet, and at the end of it I was in better shape than he was and he's a fairly fit guy. The point is, I really wasn't entirely sure I believed my surgeon that just fixing it so it no longer moves would get rid of the disc pain as well as it did, but it worked truly fantastically for me. Had I not developed the stenosis, I don't suppose I'd be here now. Speaking of which, the stenosis is at L4-5, and I had what's called a caudal epidural steroid injection for it, to see if it helped the pain and other neurological symptoms. A caudal epidural goes in between the coccyx and the sacrum, and doesn't generally require xray guidance, because they are able to line up very well just by getting your hips in line (and less xrays is always a good thing in my book). I'm *pretty* sure from what I read up that when they go caudally for it, it will only track up as high as L3, but as that is where your problems are, it could perhaps be an option for you to have a caudal epidural instead of a higher one - it might be worth asking about, they can only say no after all ;o) In my case it didn't do a heck of a lot for the pain as most of my current pain is in my back, but it made me able to walk longer and further, able to bend and just generally get around better, and got rid of the " heavy legs " and foot drop that I was suffering due to the nerve compression. That was done at the end of April and I'm just now starting to occasionally find my legs don't lift so well again, so to me it was well worth it and I'd be very happy to have another. Hope that helps a little ) titch-- The wages of sin are death, but by the time taxes are taken out, it's just sort of a tired feeling - a Poundstone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 I'm sorry , I just re-read that and even I'm confused!! In 1977 I had my scoliosis surgery and was fused from T7 to L4. In 1988 I had to have another surgery due to more disk/vert damage below the fusion and he fused from L3 to sacrum (I thought he fused from L4 to sacrum). He also removed my HR and put in pedicle screws. Now the L3/L4 is damaged and causing me pain. I saw a neurosurgeon (Dr. Adler) who ordered all the tests (MRI, Myelogram etc.) and he never mentioned this to me. I think that makes more sense but let me know if I'm just loony from the oxycodone I'm taking right now. Tami > > He told me I am not fused from L-4 to L-3! It appears that Dr. > > Waldram (who took out my Harrington Rod and fused me and put in > > pedicle screws in 1988) skipped this and fused only where the pain > > was coming from (L-3 to Sacrum). I was fused from T-7 to L-4 in 1977 > > when I had my first surgery and Harrington rod put in. He said this > > is where my sciatic pain was coming from since it has been taking all > > the strain all these years. I wonder why Dr. Adler, the neurosurgeon > > I saw, did not mention this. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 That's good to know. Thanks Tami > > > > > > > I'm a little nervous about the epidurals after my experience with > > the myelogram. It took them 4 tries to get into my spine and then > > they hit a nerve going down my left leg. Not a pleasant experience > > but if it gives me some relief I'm more than willing to try. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 Thanks Titch, I am very thankful that I do not seem to be having any more problems in the " T's " although I am having pain/aching in my upper back across my shoulders and into my neck. I'm sorry to hear about your lumbar problems now. I have not had a chance to read through all the posts but I'm working on it. I hope you can get those problems resolved. I too was at the gym alot. I love to take classes like cardio kickboxing, weight lifting, etc... That all ended in July when the pain got bad and was worsened by the activity. I will definitely be asking about the caudal epidural. Thanks for the information on that. Tami > > I was only fused T10-L2 in my original surgery, but my L2-3 disc completely > collapsed within just a few years and the pain was excruciating. I went in > a matter of months from being in the gym 5-6 days a week, for 1.5-2 hours at > a time, to scarcely able to walk - it was really scary. That pain has been > entirely sorted out by the revision surgery I had 4 years ago. Although I > recovered slowly compared to some people, I think a lot of that was that > most have no thoracic work done whereas I had new fusion from T3- T10, which > certainly was a lot more painful than the lumbar work they did to stabilise > my spine and to fix the flatback. > > If you ever look back over my past posts, you'll see that I have gone on to > develop other problems, but they are below the fusion - I didn't need to be > fused to the sacrum to get my balance back, and it's just unfortunate that I > have those problems. Of course we are all different, but I can say that 10 > months out from the revision, when I turned 30, I was doing extremely well - > I spent the day in London with my husband, spending rather more money than > was sensible, and we just walked and walked. I took a couple of mild > painkillers along the way, had to go and find a cafe to sit down a couple of > times, but basically spent 12 hours out and about, most of it on my feet and > walking. The worst casualty was sore feet, and at the end of it I was in > better shape than he was and he's a fairly fit guy. The point is, I really > wasn't entirely sure I believed my surgeon that just fixing it so it no > longer moves would get rid of the disc pain as well as it did, but it worked > truly fantastically for me. Had I not developed the stenosis, I don't > suppose I'd be here now. > > Speaking of which, the stenosis is at L4-5, and I had what's called a caudal > epidural steroid injection for it, to see if it helped the pain and other > neurological symptoms. A caudal epidural goes in between the coccyx and the > sacrum, and doesn't generally require xray guidance, because they are able > to line up very well just by getting your hips in line (and less xrays is > always a good thing in my book). I'm *pretty* sure from what I read up that > when they go caudally for it, it will only track up as high as L3, but as > that is where your problems are, it could perhaps be an option for you to > have a caudal epidural instead of a higher one - it might be worth asking > about, they can only say no after all ;o) In my case it didn't do a heck of > a lot for the pain as most of my current pain is in my back, but it made me > able to walk longer and further, able to bend and just generally get around > better, and got rid of the " heavy legs " and foot drop that I was suffering > due to the nerve compression. That was done at the end of April and I'm > just now starting to occasionally find my legs don't lift so well again, so > to me it was well worth it and I'd be very happy to have another. > > Hope that helps a little ) > > titch > > > > -- > The wages of sin are death, but by the time taxes are taken out, it's just > sort of a tired feeling - a Poundstone > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2006 Report Share Posted October 27, 2006 Hi , L3/L4 is the only place I'm not fused in my lumbar spine. For some reason Dr. Waldram skipped over that one and fused L3 to sacrum. Let me know if you have any more questions. Tami > >>> > > He told me I am not fused from L-4 to L-3! It appears that Dr. > >>> > > Waldram (who took out my Harrington Rod and fused me and put in > >>> > > pedicle screws in 1988) skipped this and fused only where the pain > >>> > > was coming from (L-3 to Sacrum). I was fused from T-7 to L- 4 in > > 1977 > >>> > > when I had my first surgery and Harrington rod put in. He said > > this > >>> > > is where my sciatic pain was coming from since it has been taking > > all > >>> > > the strain all these years. I wonder why Dr. Adler, the > > neurosurgeon > >>> > > I saw, did not mention this. > >>> > > > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2006 Report Share Posted October 27, 2006 This is correct Tami - if you had your original surgery in 1977 and you were fused from T7 to L4, then again in 1988 you were fused from L3 to the sacrum.....then you are totally fused from T-7 all the way to the sacrum hun. There is no way you could even HAVE any unfused vertebra to cause you problems! It may be that you are having some other sort of problem though? ~~ > >>>>>>> > >>> > > He told me I am not fused from L-4 to L-3! It appears that > > Dr. > >>>>>>> > >>> > > Waldram (who took out my Harrington Rod and fused me and > > put in > >>>>>>> > >>> > > pedicle screws in 1988) skipped this and fused only where > > the pain > >>>>>>> > >>> > > was coming from (L-3 to Sacrum). I was fused from T-7 to L- > > 4 in > >>> > > 1977 > >>>>>>> > >>> > > when I had my first surgery and Harrington rod put in. He > > said > >>> > > this > >>>>>>> > >>> > > is where my sciatic pain was coming from since it has been > > taking > >>> > > all > >>>>>>> > >>> > > the strain all these years. I wonder why Dr. Adler, the > >>> > > neurosurgeon > >>>>>>> > >>> > > I saw, did not mention this. > >>>>>>> > >>> > > > >>>>> > >> > > >> > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2006 Report Share Posted October 27, 2006 I'm so sorry, I am backwards in my numbering obviously. For some reason I was placing L5 at the top of the lumbar spine and L1 at the bottom! I do not know why and now I feel like a complete idiot. Shriners fused T6 to L4 and Dr. Waldram must have fused L5 to S1. This obviously means that my only non-fusion is L4/L5. I can see where you were confused and I thank you for questioning this and not letting me continue in my ignorance. Up until recently I have not paid much attention to my spinal anatomy but now I need to know all I can learn. Again thank you for pointing this out. After this embarrassment, I'm not likely to forget again. Tami > >>>>>>> > >>> > > He told me I am not fused from L-4 to L-3! It appears that > > Dr. > >>>>>>> > >>> > > Waldram (who took out my Harrington Rod and fused me and > > put in > >>>>>>> > >>> > > pedicle screws in 1988) skipped this and fused only where > > the pain > >>>>>>> > >>> > > was coming from (L-3 to Sacrum). I was fused from T-7 to L- > > 4 in > >>> > > 1977 > >>>>>>> > >>> > > when I had my first surgery and Harrington rod put in. He > > said > >>> > > this > >>>>>>> > >>> > > is where my sciatic pain was coming from since it has been > > taking > >>> > > all > >>>>>>> > >>> > > the strain all these years. I wonder why Dr. Adler, the > >>> > > neurosurgeon > >>>>>>> > >>> > > I saw, did not mention this. > >>>>>>> > >>> > > > >>>>> > >> > > >> > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 Hi all. I went to see Dr. Keenan today (finally) and he confirmed > that I do indeed have flatback and I confirmed that he will not be > touching my back. > Hi! I'm a lurker and thank you for sharing your doc visit experience! I chuckled cuz you reminded me of what my doc said when he confirmed flatback..."just a few screws and rods will get you upright for sure!!!" and for sure he wasn't going to be the surgeon! You will get tons of help from this list! and also reassurances...the best thing for me was to find out that I wasn't alone......I was on the Fiesty flatbackers list for a few years and they along with this current group gave me more info and kindness than I could ever repay! My first revision was done in NY by Dr. Errico and then when the rods broke a year later he did the re-revision. I would never have found him if it weren't for the "flatbackers"! Thank you for sharing and I wish you luck!!! June-NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 > > Hi all. I went to see Dr. Keenan today (finally) and he confirmed > > that I do indeed have flatback and I confirmed that he will not be > > touching my back. > > > > Hi! > I'm a lurker and thank you for sharing your doc visit experience! I > chuckled cuz you reminded me of what my doc said when he confirmed flatback... " just > a few screws and rods will get you upright for sure!!! " and for sure he > wasn't going to be the surgeon! > You will get tons of help from this list! and also reassurances...the best > thing for me was to find out that I wasn't alone......I was on the Fiesty > flatbackers list for a few years and they along with this current group gave me > more info and kindness than I could ever repay! > My first revision was done in NY by Dr. Errico and then when the rods broke > a year later he did the re-revision. I would never have found him if it > weren't for the " flatbackers " ! > Thank you for sharing and I wish you luck!!! > June-NJ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 Thanks June, when was your revision? How are you doing? Did you have an osteotomy (sp?). I lived in New Jersey between the ages of 9 and 11 (a very long time ago) but I remember I really liked it there. Any information you could share with me would be greatly appreciated. I am trying to learn as much as I can because it seems I will probably be getting a revision as soon as possible (at least that's what my pain is telling me today) . Tami > > Hi all. I went to see Dr. Keenan today (finally) and he confirmed > > that I do indeed have flatback and I confirmed that he will not be > > touching my back. > > > > Hi! > I'm a lurker and thank you for sharing your doc visit experience! I > chuckled cuz you reminded me of what my doc said when he confirmed flatback... " just > a few screws and rods will get you upright for sure!!! " and for sure he > wasn't going to be the surgeon! > You will get tons of help from this list! and also reassurances...the best > thing for me was to find out that I wasn't alone......I was on the Fiesty > flatbackers list for a few years and they along with this current group gave me > more info and kindness than I could ever repay! > My first revision was done in NY by Dr. Errico and then when the rods broke > a year later he did the re-revision. I would never have found him if it > weren't for the " flatbackers " ! > Thank you for sharing and I wish you luck!!! > June-NJ > Quote Link to comment Share on other sites More sharing options...
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