Re: Time and Diagnosis

[Guest guest]

,

Amen! I listened to a nurse on Friday who had the guts to tell me on

the phone that SHE did not think that I was sick enough to be on the

transplant list and that it would probably be 3-5 years...I commented

to her that she was not the one dealing with the fatigue! I have

pushed it too far in trying to get earlier treatment and actually had

a doctor's office fire me! There is a definite shortage of hep and

gastro docs...

Betsy

> Just a post here to vent a lil, in hopes I am not too repetitive,

but

> after reading Anne's post thought I would.

> I agree totally with the time thing. I must admit this time problem

> which many of these doctors seem to have *specialists* and coming

to a

> conclusion with tests etc...seem long and drawn out to say the

least.

> I am having the hardest time with this. It does not take 16 weeks

to

> do one cat scan, one endoscopy, one ultra sound...... and then

still

> wait another 8 weeks for another repeat test of a endoscopy to come

up

> with a steady conclusion as in my case, to start interferon therapy

or

> to even do a biopsy which seems like I will wait forever...to find

out

> how much liver I have left.It is now 16 weeks since I found out,

and

> still counting for a solid answer. This is total TORTURE the

waiting.

> Then they ask...are you depressed??? Well um I was not but think I

am

> now dangit, I cant stand the waiting and not knowing If I can

possibly

> kill this HepC. I dont mean major waits like liver list..Gosh I

have

> not gone thru that yet, but still...I need answers so I can live my

> life accordingly.

> Last week I came home from liver doc and had a temper tantrum. I

threw

> stuff, screamed cried and god knows what I went kinda blank but

felt

> terrible mentally for days...almost wanting to wash my hands of

> doctors altogether.

> I know I am not the only one going thru this.

> I got mad at the nurse coordinater too for the schedualing of

> appointment of a endoscopy for 8 weeks from now and said to her " Oh

I

> am sorry I forgot it is my liver not yours "

> I don't want to be this way. I am a positive person and love to

stay

> that way no matter how bad I get, I am known to be a survivor, ben

> thru a hell of alot in my life, but gosh I just dont know, at this

> point its not the disease itself that has me so down or

angry....its

> the hell the doctors offices and the *system* puts you thru.

> Thankyou for listening

> S, PA