Guest guest Posted July 5, 2001 Report Share Posted July 5, 2001 Is this Vitiligo the thing that makes the skin look like sausage links out of the package? I know thats an odd way to put it but my brother has this pigmentation on his fingers, arms and I think face. Were 25 years apart in age, i never see him and I never asked him about it, we all just knew his skin looked funny. As a child I used to ask my mom, why do 's fingers look like sausage? My brother is a HEAVY drinker. Would be interesting to know if this is what he has as it effects the liver. Thanks, Jen On Thu, 05 Jul 2001 15:00:41 -0000, wrote: > I have Vitilego, as well as Myasthenia Gravis. As you know, skin > pigmentation is controlled by only 6 genes in our body. If one is > altered, then you could get Vitilego. > > There hasn't been many studies done in the United States on the > corallation between Vitilego and liver disease, but there has been > some writing on the subject in Italian Medical Journals. It's > probably pretty hard to find a non-drinker in Italy, but in the study > group, they did examine individuals with Vitilego to see if they had > a diseased liver. The answer was that there was a high corollation > between Vitilego and liver disease. > > Again, vitilego runs in the family so, one should check with > relatives to see who in the family has had vitilego. Once you have > it, you have to protect your skin from the sun. I use a 45 shade > before I go out in the sun. > ==================================================================== > > > I think I mentioned an article in the New York Times a couple of > weeks ago > > that suggests that autoimmune diseases may be related to the random > cells > > that cross the placenta -- in both directions -- during pregnancy. > The body > > (mother's or child's) may not " notice " the foreign cells until > years or > > decades later, when something spurs it to launch an attack against > the > > " invader " cells. This hypothesis would account for the much higher > frequency > > of autoimmune diseases in women than men. (Some autoimmune > diseases are nine > > times more frequent in women.) The more genetically similar the > mother and > > child, the more likely the possibility of an autoimmune disease, > according to > > this article. Also, a great genetical similarity between the > grandmother and > > grandchild may be an indicator of more autoimmune difficulty for > the mother. > > This article assumes, incidentally, that there is > basically " autoimmune > > disease " , which expresses itself differently in different people -- > AIH, > > Sjogren's Syndrome, lupus, etc. > > > > Yesterday I saw another article in the New York Times which speaks > of > > vitiligo as an autoimmune disease. I'd read this before but hadn't > paid much > > attention. Vitiligo is considered of only cosmetic importance; the > skin > > loses pigmentation in irregular patches. However, people with > vitiligo are > > far more likely than others to have other, more serious autoimmune > diseases. > > Vitiligo is worsened, and possibly triggered, by exposure to the > sun. > _______________________________________________________ Send a cool gift with your E-Card http://www.bluemountain.com/giftcenter/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2001 Report Share Posted July 5, 2001 On another note, my son has Ichthyosis (rare skin disease). Its genetic, x-linked. Women carriers to the male. My Sisters son has it, and when my son has a daughter and she has a son he will have it to. Its scratchy and itchy, worst in winter, makes his skin look snake like at times. Nothing really works to treat it. We keeps things moist in the home to help, use lotions but its more cosmetic. I wonder if this is autoimmune related. Jen _______________________________________________________ Send a cool gift with your E-Card http://www.bluemountain.com/giftcenter/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2001 Report Share Posted July 5, 2001 Is this absence of pigmentation or can it appear as dark pigmentation. Tommy has about 3 inch dark patches on his legs. > [Original Message] > From: Ed Nakamura <EdNak@...> > < > > Date: 7/5/01 11:11:39 AM > Subject: [ ] Re: Vitiligo, etc. > > I have Vitilego, as well as Myasthenia Gravis. As you know, skin > pigmentation is controlled by only 6 genes in our body. If one is > altered, then you could get Vitilego. > > There hasn't been many studies done in the United States on the > corallation between Vitilego and liver disease, but there has been > some writing on the subject in Italian Medical Journals. It's > probably pretty hard to find a non-drinker in Italy, but in the > study > group, they did examine individuals with Vitilego to see if they had > > a diseased liver. The answer was that there was a high corollation > between Vitilego and liver disease. > > Again, vitilego runs in the family so, one should check with > relatives to see who in the family has had vitilego. Once you have > it, you have to protect your skin from the sun. I use a 45 shade > before I go out in the sun. > ==================================================================== > > > I think I mentioned an article in the New York Times a couple of > weeks ago > > that suggests that autoimmune diseases may be related to the > random > cells > > that cross the placenta -- in both directions -- during pregnancy. > > The body > > (mother's or child's) may not " notice " the foreign cells until > years or > > decades later, when something spurs it to launch an attack against > > the > > " invader " cells. This hypothesis would account for the much > higher > frequency > > of autoimmune diseases in women than men. (Some autoimmune > diseases are nine > > times more frequent in women.) The more genetically similar the > mother and > > child, the more likely the possibility of an autoimmune disease, > according to > > this article. Also, a great genetical similarity between the > grandmother and > > grandchild may be an indicator of more autoimmune difficulty for > the mother. > > This article assumes, incidentally, that there is > basically " autoimmune > > disease " , which expresses itself differently in different people > -- > AIH, > > Sjogren's Syndrome, lupus, etc. > > > > Yesterday I saw another article in the New York Times which speaks > > of > > vitiligo as an autoimmune disease. I'd read this before but > hadn't > paid much > > attention. Vitiligo is considered of only cosmetic importance; > the > skin > > loses pigmentation in irregular patches. However, people with > vitiligo are > > far more likely than others to have other, more serious autoimmune > > diseases. > > Vitiligo is worsened, and possibly triggered, by exposure to the > sun. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2001 Report Share Posted July 6, 2001 He has splotches on his inner thigh. They are odd shaped and are about 2 shades darker than the rest of his skin. It doesn't seem to bother him. It is not raised or have any jagged edges or other markings. He's had them for about 2 years. I pointed it out to the liver doc, but she didn't seem concerned. Of course she didn't tell me what they were either. Any ideas anyone? More curious than worried. Debbie (Tommy's Mom) > [Original Message] > From: Ed Nakamura <EdNak@...> > < > > Date: 7/5/01 3:40:16 PM > Subject: [ ] Re: Vitiligo, etc. > > Debbie, it's the absence of pigmentation. When you say on his leg > I'm not sure where on the leg he has it. For instance, there was a > time when I had purple on my ankles, but according to the doctor, it > > was blood vessels bursting, and the purple was blood accumulating in > > my ankles. > > Rather than guessing, you should have the doctor look at it the next > > time you have an appointment. > ================================================================ > > > > Is this absence of pigmentation or can it appear as dark > pigmentation. > > Tommy has about 3 inch dark patches on his legs. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2001 Report Share Posted July 7, 2001 Hi, my name is Lori and I have had a transplant due to AIH. Both my brother and my sister have the lamellar icthyosis, but I do not have it. I was wondering and trying to find information on how this skin disease was passed. My sister has 2 kids and neither one of them have it and my brother just had a daughter in May and she does not have it. I had wondered since I do not have it and none of my kids have it, could my kids, kids have it, because my 16 yo daughter is pregnant and due on Aug 17th and her doctor has found no info on this for us. Did you get this info on the internet or from a doctor you know. Any help you can give would be appreciated!! Thank you ! Lori C. Re: [ ] Re: Vitiligo, etc. > On another note, my son has Ichthyosis (rare skin disease). Its genetic, > x-linked. Women carriers to the male. My Sisters son has it, and when my son > has a daughter and she has a son he will have it to. > > Its scratchy and itchy, worst in winter, makes his skin look snake like at > times. Nothing really works to treat it. We keeps things moist in the home > to help, use lotions but its more cosmetic. > > I wonder if this is autoimmune related. > > Jen > > > > > > _______________________________________________________ > Send a cool gift with your E-Card > http://www.bluemountain.com/giftcenter/ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2001 Report Share Posted July 7, 2001 My sons skin disease I believe is called Ichthyosis Vulgaris. My son's was determined to have it x-linked due to a simple eye exam. Its apparently identified in their retina. Also, since my sisters son had it and my sister and I are the only two girls as a product of our mother and these are our only sons so it fit the profile puzzle. My info was obtained from his dermatologist. The eye exam wasn't really necessary but it just confirmed it all. It will be interesting to see when my son has a daughter and she has a son, because he is certain to have it. I hope I live that long! Jen On Sat, 7 Jul 2001 09:48:21 -0500, wrote: > Hi, my name is Lori and I have had a transplant due to AIH. Both my brother > and my sister have the lamellar icthyosis, but I do not have it. I was > wondering and trying to find information on how this skin disease was > passed. My sister has 2 kids and neither one of them have it and my brother > just had a daughter in May and she does not have it. I had wondered since I > do not have it and none of my kids have it, could my kids, kids have it, > because my 16 yo daughter is pregnant and due on Aug 17th and her doctor has > found no info on this for us. Did you get this info on the internet or from > a doctor you know. > Any help you can give would be appreciated!! > > Thank you ! > Lori C. > > > > Re: [ ] Re: Vitiligo, etc. > > > > On another note, my son has Ichthyosis (rare skin disease). Its genetic, > > x-linked. Women carriers to the male. My Sisters son has it, and when my > son > > has a daughter and she has a son he will have it to. > > > > Its scratchy and itchy, worst in winter, makes his skin look snake like at > > times. Nothing really works to treat it. We keeps things moist in the home > > to help, use lotions but its more cosmetic. > > > > I wonder if this is autoimmune related. > > > > Jen > > > > > > > > > > > > _______________________________________________________ > > Send a cool gift with your E-Card > > http://www.bluemountain.com/giftcenter/ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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