Guest guest Posted May 30, 1999 Report Share Posted May 30, 1999 HI Barbara Ann - Oh boy can I relate to the swolen feet and ankles LOL .. the cure?? Try support hose (grandma knew best LOL). I have a problem with the hot weather (although they swell at times for no apparent reason even in cool weather). I've been using the support hose since last December on and off. I bought them at a medical supply store and was fitted by a specialist there. And the veins .. got those too .. unsightly as they may be .. they're just another added pleasure of AIH : ) Debbie AIH Michigan [ ] reply - Pulse Rate >From: " barbara ann " <barbara-ann@...> > >Hi Geri, >The pedal edema is the greatest mystery to me. It began when I got sick and I think there is some relation to liver dysfunction. It became worse after I started on prednisone, which does cause sodium retention - even at low doses. I've been off prednisone for 3 years and I still have this ankle business on and off. >Pedal edema can be a sign of some very serious problems, but we don't have to worry about that. >Our docs are regularly checking for signs of heart and blood clot problems, although they may not discuss it. >My ankles and feet can swell for no apparent reason and de-swell (new word) just as quickly. I used to ask various doctors about it and I've never really gotten a definitive answer. My docs know that I'm obsessive about my appearance (especially after the physical changes, which occurred when I was on high doses of meds). I think that they either don't know or they're not telling me because it's now a permanent condition. I would probably go ballistic if a doc told me that I would always have this condition, so I'm in a don't ask, don't tell mode for self-preservation. >I don't wear dresses or fashionable shoes any more because I never know when I'll look down and see balloons instead of feet. I can't wear knee high stockings under slacks because the elastic is too constricting and makes it worse. My shoe wardrobe consists of soft comfortable ankle boot type attire (I try to cover up what I don't want to see). I've also noticed veins that show beneath my skin - but they don't pop out. If you ever visit TX, I'll be the one wearing jeans and boots (not the cowboy type) in 100 degree weather, while others are walking around half naked. >I think I have permanent damage to the walls of my veins due to the pooling of fluid, which was so prevalent when I got sick. I have noticed that humid hot weather will bring on swelling almost instantaneously. Whenever we go to FL I can count on huge ankles for the duration of our visit. >At home, here in TX, the swelling occurs when the weather changes from cool to hot, and may last about 2 weeks. Sometimes during the winter my ankles may poof up for a day for no apparent reason. It's very discouraging because I can't seem to find a common denominator. >I can't help remembering my grandmother who lived to age of 88, wearing those black oxford type shoes and stockings rolled down around her swollen ankles. Do you think it could be premature aging? On second thought don't answer that.haha >Maybe someone else out there has information for us. >--- >Barbara Ann >AIH transplant recipient > > > > >On Sat, 29 May 1999 04:28:55 Geri Spang wrote: >>From: Geri Spang <spangs@...> >> >>Barbara Ann, >>For some reason my feet and ankles have started swelling again. Not much, >>but it just began today and they're worse tonight. Considering the amount >>of diuretics I'm taking, I can't figure out why. What is the connection >>between pedal edema and liver disease, do you know? It isn't caused by >>Prednisone, I don't think, since I'm decreasing, not increasing. >>Take care, >>Geri >> >>------------------------------------------------------------------------ >>Having difficulty getting " in synch " with list members? >> >>Try ONElist's Shared Calendar to organize events, meetings and more! >>------------------------------------------------------------------------ >>Please support the American Liver Foundation! >> >>1.) To subscribe send e-mail to -subscribeonelist >>2.) To UNsubscribe send to -unsubscribeonelist >>3.) Digest e-mail format send to -digestonelist >>4.) Normal e-mail format send to -normalonelist >> > > >Get your FREE Email at http://mailcity.lycos.com >Get your PERSONALIZED START PAGE at http://my.lycos.com > >------------------------------------------------------------------------ >ONElist: where the world talks! > >Join a new list today. >------------------------------------------------------------------------ >Please support the American Liver Foundation! > >1.) To subscribe send e-mail to -subscribeonelist >2.) To UNsubscribe send to -unsubscribeonelist >3.) Digest e-mail format send to -digestonelist >4.) Normal e-mail format send to -normalonelist > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 1999 Report Share Posted May 31, 1999 Debbie, The support hose sound like a good idea. I've worn them and have a couple of pair of Hanes Alive, which aren't obviously support hose but do the job. However, I can't bend over to get them on because the pressure on my stomach from bending is too painful. It's frustrating. Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 1999 Report Share Posted May 31, 1999 Hi Geri - The support hose that I wear only come up just above the knees. I have really bad circulatory problems in my legs, but the hose make my legs feel soooooooo much better. When I need to wear them, I put them on for about 12 hours a day. After about 2 or 3 days the swelling usually subsides, but it's actually noticeable after the first day. Debbie Re: [ ] reply - Pulse Rate >From: Geri Spang <spangs@...> > >Debbie, >The support hose sound like a good idea. I've worn them and have a couple >of pair of Hanes Alive, which aren't obviously support hose but do the job. > However, I can't bend over to get them on because the pressure on my >stomach from bending is too painful. It's frustrating. >Take care, >Geri > >------------------------------------------------------------------------ >Give back to your community through " Grow to Give. " >http://www.ONElist.com >See homepage for details. >------------------------------------------------------------------------ >Please support the American Liver Foundation! > >1.) To subscribe send e-mail to -subscribeonelist >2.) To UNsubscribe send to -unsubscribeonelist >3.) Digest e-mail format send to -digestonelist >4.) Normal e-mail format send to -normalonelist Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 1999 Report Share Posted May 31, 1999 Debbie, Sorry to ask you to repeat yourself, but where do you buy that kind of support hose? They sound worth a try. Thanks, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 1999 Report Share Posted May 31, 1999 Hi Geri : ) You can purchase the support hose at any medical supply store. They range in price from $30 to $200 per pair. Debbie AIH Michigan Re: [ ] reply - Pulse Rate >From: Geri Spang <spangs@...> > >Debbie, >Sorry to ask you to repeat yourself, but where do you buy that kind of >support hose? They sound worth a try. >Thanks, >Geri > >------------------------------------------------------------------------ >With more than 17 million e-mails exchanged daily... > >...ONElist is THE place where the world talks! >------------------------------------------------------------------------ >Please support the American Liver Foundation! > >1.) To subscribe send e-mail to -subscribeonelist >2.) To UNsubscribe send to -unsubscribeonelist >3.) Digest e-mail format send to -digestonelist >4.) Normal e-mail format send to -normalonelist Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 1999 Report Share Posted May 31, 1999 Please Please Please remoove my address from your list. My system is unable to handle all your mail. Please please remove my name >From: Geri Spang <spangs@...> >Reply- onelist > onelist >Subject: Re: [ ] reply - Pulse Rate >Date: Sun, 30 May 1999 17:44:32 -0700 > >From: Geri Spang <spangs@...> > >Debbie, >The support hose sound like a good idea. I've worn them and have a couple >of pair of Hanes Alive, which aren't obviously support hose but do the job. > However, I can't bend over to get them on because the pressure on my >stomach from bending is too painful. It's frustrating. >Take care, >Geri > >------------------------------------------------------------------------ >Give back to your community through " Grow to Give. " >http://www.ONElist.com >See homepage for details. >------------------------------------------------------------------------ >Please support the American Liver Foundation! > >1.) To subscribe send e-mail to -subscribeonelist >2.) To UNsubscribe send to -unsubscribeonelist >3.) Digest e-mail format send to -digestonelist >4.) Normal e-mail format send to -normalonelist _______________________________________________________________ Get Free Email and Do More On The Web. Visit http://www.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 1999 Report Share Posted June 4, 1999 Debbie, I'll try to locate support hose. I imagine they relieve leg fatigue and aching too? I wonder if circulatory problems also go with AIH (everything else does). I notice that even when I'm very warm my feet are like ice unless I'm up and around. Take care, Geri Quote Link to comment Share on other sites More sharing options...
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