Re: Re: PSC/Ann

[Guest guest]

Hello..Could you please tell me what PSC is?

Thanks,

Deb

[Guest guest]

Ann, there is a PSC support group with . It is not rare for

women to have it, as you will find that f you visit the site. However, it

is supposedly more common in men. I have had PSC for almost 10 years now,

together with Crohn's Disease. Most people with PSC have some sort of

ulcerative colitis. People of all ages are not immune to getting it.

Sorry, I have not been following this group for awhile and missed out on the

original post. Feel free to ask me anything and I'll try to answer,

privately if you wish at jcw78@..., or through this site. I've

learned more with the PSC support group than I have with my own doctor, and

feel much for prepared for the worst, but with much more hope armed with

information. I don't feel so alone anymore, and it's nice to relate with

others who share the same disease and compare notes.

PSC stands for primary schlerosing cholangitis. There is currently no cure

except for liver transplant. It is usually slowly progressive and symptoms

are mostly treated with urso or actigal. It is a scarring a ulceration of

the bile ducts, which eventually back the bile up into the liver, ultimately

causing cirrhosis. It is thought to be autoimmune in nature. That's the

gist of the disease, and that's why I check in here periodically...because

we share many of the same symptoms.

Cheryl

[ ] Re: PSC/Ann

> Ann,

>

> I dont really know much about PSC. I have heard that when they cant

> find anything concrete they usually end up doing the ERCP to look for

> PSC. Pretty rare for woman to have PSC, at least that is what I have

> heard. I do hope you are feeling well. Thanks for replying to my

> post. I will let you know what they find after I get a hold of my

> reports.

>

> Andi

>

>

>

>

> > Hi, Andi

> >

> > I was diagnosed with PSC about 9 years ago. Let me know if you

> have any

> > specific

> > questions.

> >

> > Ann

>

>

>

>