RE: ( from )

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I'm on my 2nd liver doc, neither of them have told me the Pred is forever.

Both their goals have been to have me completely off. The first doc had me

on around 9 mo.both times (I didn't have to take anything once my labs were

" normal " for 6 months). This new doc said that isn't working because of the

relapses, so he is planning to keep me on low dose of Pred for 1 year of

normal labs, then just the Imuran at 50 to see how that works. Personally, I

think I relapsed this last time due to extreme stress (someone very close to

me was murdered), but they won't give you an answer when you attribute this

illness to stress.

Both docs agree there is no alternative to the Pred (believe me, I've

tried). What condition is your liver in right now? I'm at 3rd level

fibrosis. I read another post where someone said their purple marks went

away about 6 mo.after being off Preds, too.

Hope I answered some of your questions,

>From: " Wilcher " <stephwilcher@...>

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>Hi .......I guess that I was just hoping that my doctor was just being

>stubborn when saying he didn't want to put me on anything else. How were

>you able to be completely off prednisone? Did you have to remain on

>Imuran?

> You were completely off prednisone before the purple in the stretch

>marks

>went away? My doctor thinks that it's a possibility that I'll never be

>able

>to come off the nasty drug. That really upsets me? Have you asked your

>doctor about other possibilities for drugs that you could take? Thanks for

>telling me your story. It really helps hearing that someone else is having

>the same problems that I am. Hope to hear from you soon!

>

>

> >From: " Karimian " <juliek79@...>

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> >Subject: Re: [ ]

> >Date: Fri, 12 Jan 2001 01:32:54

> >

> >Hi .....I've had AIH for about 4 years. I don't believe there is

> >anything other than the Pred we can take (my doctor would have given it

>to

> >me just to stop the tantrum I was throwing over the prospective weight

> >gain). I gained 40 lbs the first round, 20 the second, but this time have

> >only gained 5 along with that nasty Moon-Face :-{ I started on 40 in

>Sept,

> >am down to 30 now along with 100 mg Imuran. The purple stretch marks left

> >about 6 mo after I was completely off Pred the first time, & the purple

>has

> >not come back (hope thats some consolation). The weight starts coming off

> >(slowly) after about 6 months each time.

> >Good Luck, AIH-Ca

>

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[Guest guest]

Hi ,

Most researchers agree that stress can aggravate autoimmune processes. They don't believe that it causes the illness but rather triggers it and makes the symptoms worse once you have developed it. I suffered many severe consequences of being on long term, high doses of prednisone, so I certainly agree that everyone's goal should be to get to the lowest dose possible that still controls the disease.

Don

Terradon Unlimited

www.TerradonUnlimited.com

"People who ask me how we can still have such a positive attitude after all we’ve been through, have it all wrong…We’ve been able to get through all that we have BECAUSE we have a positive attitude". Don Hanson 8/2000

Re: [ ] > >Date: Fri, 12 Jan 2001 01:32:54> >> >Hi .....I've had AIH for about 4 years. I don't believe there is> >anything other than the Pred we can take (my doctor would have given it >to> >me just to stop the tantrum I was throwing over the prospective weight> >gain). I gained 40 lbs the first round, 20 the second, but this time have> >only gained 5 along with that nasty Moon-Face :-{ I started on 40 in >Sept,> >am down to 30 now along with 100 mg Imuran. The purple stretch marks left> >about 6 mo after I was completely off Pred the first time, & the purple >has> >not come back (hope thats some consolation). The weight starts coming off> >(slowly) after about 6 months each time.> >Good Luck, AIH-Ca>>_________________________________________________________________>Get your FREE download of MSN Explorer at http://explorer.msn.com>_________________________________________________________________Get your FREE download of MSN Explorer at http://explorer.msn.com