Guest guest Posted June 16, 1999 Report Share Posted June 16, 1999 Hi Dixie, This research sounds very interesting! I've e-mailed someone in the research department at the university regarding this matter. If I hear anything back, I'll let you know! Thanks for the info! >From: meles@... >Reply- onelist >aih < onelist> >Subject: [ ] I went to washington >Date: Wed, 16 Jun 1999 07:53:49 -0500 > >From: meles@... > >I went with the Hepatitis C people to the Walk on Washington 2 months >ago and came back with a lot of good information. A lot of research is >being done on Hep c and Liver disease in general... AIH is not really >mentioned.... >One thing I learned that is very important is that, In Gainesville >Florida at the University research is being done on the stages of >Fibrosis. 1 thru 4 They have a drug that reverses stage 1,2,3 to >0 which is normal.. Stage 4 is irreversable, that is called Cirrohsis. >They stress the importance of Antioxidants and plenty of clean filtered >water. This drug is still being studied and not ready for prescription >use yet... Most doctors are not even aware of this study. But so far >it has been proven to work... Liver transplant for AIH people is not >proven to be sucessful. The Immune System begins to attack the new >transplanted liver rather soon... >There is also the possibility of a relative or spouse donating part of >thier liver to a person in need of a liver... I think that is the >route that my family has agreement on concerning me. >A call to the University in Gainesville won't hurt... >Just remember we have an Autoimmune disease.... >Hope this helps >Love and Light >Dixie > > >------------------------------------------------------------------------ >Looking to expand your world? > >ONElist has 170,000 e-mail communities from which to choose! >------------------------------------------------------------------------ >Please support the American Liver Foundation! > >1.) To subscribe send e-mail to -subscribeonelist >2.) To UNsubscribe send to -unsubscribeonelist >3.) Digest e-mail format send to -digestonelist >4.) Normal e-mail format send to -normalonelist > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 1999 Report Share Posted June 16, 1999 --- meles@... wrote: > From: meles@... > Liver transplant for AIH people is not > proven to be sucessful. The Immune System begins to > attack the new > transplanted liver rather soon... Dixie, I'm afraid I have to disagree, I don't think that is a fair statement. I had a transplant 4 1/2 years ago. Without it I would be dead, so in my opinion the transplant has been very successful. When cirrhosis or any other condition reaches a point that liver function ceases, the only 'cure' is a liver transplant. Furthermore, there is always a possibility that any of the viral Hep's can return. I've seen it happen, but in most cases the drugs are able to prevent any initial scarring and inflamation to the new liver, and people are able to continue their lives with a healthy fully functioning liver. === Barbara Ann Transplant Recipient _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 1999 Report Share Posted June 16, 1999 Barbara Ann, I totally agree with your reply to Dixie regarding the recurrence of AIH post transplant. I have discussed this possibility with 2 or 3 doctors. They have informed me that there is a slight possibility that it COULD return, but that it usually doesn't and, even it if did, it would take years to happen. Four years ago I, too, had no alternative but to have a liver transplant to continue surviving. I am so grateful that I have had this extra time in my life...time I did not expect to have. I pray that my AIH will never return, but if it does, I will face the situation as I did in the past. I think we have to be grateful for the present and not worry about the recurrence of liver disease. Life is too short to be spent wasting time worrying about things that may never happen. Bonnie P. AIH and post transplant Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 1999 Report Share Posted June 17, 1999 Thank You Barbara Ann. I most humbly apologize. I was basing my information on a man in our hep group whos liver transplant is now infected again and in the same shape he was before. I am no thinking good cause everyone knows that no two people are alike... Love and Light Dixie barbara ann wrote: > From: barbara ann <barbara99ann@...> > > --- meles@... wrote: > > From: meles@... > > > > Liver transplant for AIH people is not > > proven to be sucessful. The Immune System begins to > > attack the new > > transplanted liver rather soon... > > Dixie, > I'm afraid I have to disagree, I don't think that is a fair statement. > I had a transplant 4 1/2 years ago. Without it I would be dead, so in > my opinion the transplant has been very successful. When cirrhosis or > any other condition reaches a point that liver function ceases, the > only 'cure' is a liver transplant. Furthermore, there is always a > possibility that any of the viral Hep's can return. I've seen it > happen, but in most cases the drugs are able to prevent any initial > scarring and inflamation to the new liver, and people are able to > continue their lives with a healthy fully functioning liver. > > === > Barbara Ann > Transplant Recipient > _________________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 1999 Report Share Posted June 17, 1999 Thank You I would love to know the latest developments.. emily simpson wrote: > From: emily simpson <esimpson7@...> > > Hi Dixie, > > This research sounds very interesting! I've e-mailed someone in the > research department at the university regarding this matter. If I hear > anything back, I'll let you know! Thanks for the info! > > > > >From: meles@... > >Reply- onelist > >aih < onelist> > >Subject: [ ] I went to washington > >Date: Wed, 16 Jun 1999 07:53:49 -0500 > > > >From: meles@... > > > >I went with the Hepatitis C people to the Walk on Washington 2 months > >ago and came back with a lot of good information. A lot of research is > >being done on Hep c and Liver disease in general... AIH is not really > >mentioned.... > >One thing I learned that is very important is that, In Gainesville > >Florida at the University research is being done on the stages of > >Fibrosis. 1 thru 4 They have a drug that reverses stage 1,2,3 to > >0 which is normal.. Stage 4 is irreversable, that is called Cirrohsis. > >They stress the importance of Antioxidants and plenty of clean filtered > >water. This drug is still being studied and not ready for prescription > >use yet... Most doctors are not even aware of this study. But so far > >it has been proven to work... Liver transplant for AIH people is not > >proven to be sucessful. The Immune System begins to attack the new > >transplanted liver rather soon... > >There is also the possibility of a relative or spouse donating part of > >thier liver to a person in need of a liver... I think that is the > >route that my family has agreement on concerning me. > >A call to the University in Gainesville won't hurt... > >Just remember we have an Autoimmune disease.... > >Hope this helps > >Love and Light > >Dixie > > > > > >------------------------------------------------------------------------ > >Looking to expand your world? > > > >ONElist has 170,000 e-mail communities from which to choose! > >------------------------------------------------------------------------ > >Please support the American Liver Foundation! > > > >1.) To subscribe send e-mail to -subscribeonelist > >2.) To UNsubscribe send to -unsubscribeonelist > >3.) Digest e-mail format send to -digestonelist > >4.) Normal e-mail format send to -normalonelist > > > > ------------------------------------------------------------------------ > ONElist: where real people with real interests get connected. > > Join a new list today! > ------------------------------------------------------------------------ > Please support the American Liver Foundation! > > 1.) To subscribe send e-mail to -subscribeonelist > 2.) To UNsubscribe send to -unsubscribeonelist > 3.) Digest e-mail format send to -digestonelist > 4.) Normal e-mail format send to -normalonelist Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 1999 Report Share Posted June 17, 1999 Hi Dixie, You're very kind, apology not necessary. What are they doing for your friend? Will he need another transplant? I would be interested in getting information about the new drug being developed by the Univ. of FL. Please let us know if you hear any more about it. Back to the teeth clenching for a moment. I feel as though it's frustration and stress that causes us to do it. Rather than take it out on others around us, it seems we internalize it. I do it only under extreme stress and I wish I could stop. Take care, Barbara Ann Transplant Recipient _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 1999 Report Share Posted June 17, 1999 My memory is so bad sometimes... I think you are right.... about the teeth thingy When I am tense I clench my teeth.... But I do not feel like there is stemulis for this clenching. I just find myself doing it.... Dixie barbara ann wrote: > From: barbara ann <barbara99ann@...> > > Hi Dixie, > You're very kind, apology not necessary. What are they doing for your > friend? Will he need another transplant? > I would be interested in getting information about the new drug being > developed by the Univ. of FL. Please let us know if you hear any more > about it. > Back to the teeth clenching for a moment. I feel as though it's > frustration and stress that causes us to do it. Rather than take it > out on others around us, it seems we internalize it. I do it only > under extreme stress and I wish I could stop. > Take care, > Barbara Ann > Transplant Recipient > > _________________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 1999 Report Share Posted June 17, 1999 Oh yeah my friend that I can't remember thier name .... I will see tonight at the Hep group meeting tonight. I will ask.... Dixie barbara ann wrote: > From: barbara ann <barbara99ann@...> > > Hi Dixie, > You're very kind, apology not necessary. What are they doing for your > friend? Will he need another transplant? > I would be interested in getting information about the new drug being > developed by the Univ. of FL. Please let us know if you hear any more > about it. > Back to the teeth clenching for a moment. I feel as though it's > frustration and stress that causes us to do it. Rather than take it > out on others around us, it seems we internalize it. I do it only > under extreme stress and I wish I could stop. > Take care, > Barbara Ann > Transplant Recipient > > _________________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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