Guest guest Posted December 31, 2000 Report Share Posted December 31, 2000 Please wish her a happy New Year also!! I wish her a speedy recovery! AIH in land Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2001 Report Share Posted January 1, 2001 Hi Jen So sorry to hear of another bleed, I really feel for you. Hope the shunt sorts it out for you and that things will improve because of it. Looking forward to hearing from you again when you are home and feeling stronger. Regards, and a happy new year to you and your family. Janet UK [ ] In the hospital > > This is Jen's Husband. I am writing this on her behalf. She is in the > hospital. > > She was hospitalized on Thursday. She ended up having a TIPS shunt put into > her liver. As a result of yet another esophogeal bleed. > She should be discharged within the next couple of days. All went well. She > will get back in e mail mode next week. If her mail gets backed up, or you > get an error message that her mail box is full, you will now know why. > > She wishes you all a very happy new year. > > > Sincerly Jen's Husband on behalf of Jen. > > > > > > _______________________________________________________ > Send a cool gift with your E-Card > http://www.bluemountain.com/giftcenter/ > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 I am so sorry to hear about your son. I have just finished prayers for him, you and the family. I will keep you in my prayers all day. It has to seem unreal to you right now. Be strong. Please keep up updated as you can. We are here for you! & Amber (15) psoriatic In a message dated 3/11/2010 1:14:47 P.M. Eastern Standard Time, susannefountain@... writes: So sorry to hear of this. Prayers are being sent your way. ne & na (5 Poly- Uveitis) > > I'm emailing from the hospital, where my son has been admitted because his latest bloodwork was so alarming. His SED rate is through the roof, his blood sugar is rising, and his iron is so low they're considering a transfusion. His rheumy (whom we love) is bringing in a whole team of specialists because the methotrexate either isn't working or we don't have enough time to wait for it to kick in. Time for new meds and stronger treatments. We're hoping this might convince the insurance company to allow whatever meds the rheum recommends and not to dink around with the less expensive stuff because we can't wait. We're getting great treatment, and I do feel like this may a shocking yet useful episode so we can get on with treatments. it's just so hard to see him getting stuck with needles dozens of times a day knowing there's only more to come.... > > > Allie P > Mom to CJ, 13, systemic JIA > > > > > [Non-text portions of this message have been removed] > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 Prayers with you and hugs. Just a side note about insurance. On the day of my son's remicade infusion our lovely insurance decided he no longer needed. The next day we did an emergency appeal. It was 5 hours of intense back and forth phone calls and nothing changed until I said those magic words, I do not care any more what you have to say, I am calling the media right now and you will hear from my attorney. 15 minutes later his infusion was approved. > I'm emailing from the hospital, where my son has been admitted > because his latest bloodwork was so alarming. His SED rate is > through the roof, his blood sugar is rising, and his iron is so low > they're considering a transfusion. His rheumy (whom we love) is > bringing in a whole team of specialists because the methotrexate > either isn't working or we don't have enough time to wait for it to > kick in. Time for new meds and stronger treatments. We're hoping > this might convince the insurance company to allow whatever meds > the rheum recommends and not to dink around with the less expensive > stuff because we can't wait. We're getting great treatment, and I > do feel like this may a shocking yet useful episode so we can get > on with treatments. it's just so hard to see him getting stuck with > needles dozens of times a day knowing there's only more to come.... > > Allie P > Mom to CJ, 13, systemic JIA > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 So sorry to hear of this. Prayers are being sent your way. ne & na (5 Poly- Uveitis) > > I'm emailing from the hospital, where my son has been admitted because his latest bloodwork was so alarming. His SED rate is through the roof, his blood sugar is rising, and his iron is so low they're considering a transfusion. His rheumy (whom we love) is bringing in a whole team of specialists because the methotrexate either isn't working or we don't have enough time to wait for it to kick in. Time for new meds and stronger treatments. We're hoping this might convince the insurance company to allow whatever meds the rheum recommends and not to dink around with the less expensive stuff because we can't wait. We're getting great treatment, and I do feel like this may a shocking yet useful episode so we can get on with treatments. it's just so hard to see him getting stuck with needles dozens of times a day knowing there's only more to come.... > > > Allie P > Mom to CJ, 13, systemic JIA > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 Allie, So many here know exactly what you are going through. Our thoughts and prayers are with you. Val Rob's Mom (12, systemic) In the hospital I'm emailing from the hospital, where my son has been admitted because his latest bloodwork was so alarming. His SED rate is through the roof, his blood sugar is rising, and his iron is so low they're considering a transfusion. His rheumy (whom we love) is bringing in a whole team of specialists because the methotrexate either isn't working or we don't have enough time to wait for it to kick in. Time for new meds and stronger treatments. We're hoping this might convince the insurance company to allow whatever meds the rheum recommends and not to dink around with the less expensive stuff because we can't wait. We're getting great treatment, and I do feel like this may a shocking yet useful episode so we can get on with treatments. it's just so hard to see him getting stuck with needles dozens of times a day knowing there's only more to come.... Allie P Mom to CJ, 13, systemic JIA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 HI Allie-  Sending prayers your way. I know what a struggle it can be to get these drugs approved by insurance.... Not sure which one your doc is shooting for first. But I wanted to mention that I was recently at a meeting with a rep from Genentech / Roche - the company that just got Tocilizumab approved. He mentioned that they are helping patients with up to six months of drug supply....If your doctor is at all interested in that drug for your son, please let me know and I'll send you his contact info offline.  Best hopes to you for some quick turn around.... Colleen From: Allie Pleiter <alliepleiter@...> Subject: In the hospital Date: Thursday, March 11, 2010, 7:05 AM  I'm emailing from the hospital, where my son has been admitted because his latest bloodwork was so alarming. His SED rate is through the roof, his blood sugar is rising, and his iron is so low they're considering a transfusion. His rheumy (whom we love) is bringing in a whole team of specialists because the methotrexate either isn't working or we don't have enough time to wait for it to kick in. Time for new meds and stronger treatments. We're hoping this might convince the insurance company to allow whatever meds the rheum recommends and not to dink around with the less expensive stuff because we can't wait. We're getting great treatment, and I do feel like this may a shocking yet useful episode so we can get on with treatments. it's just so hard to see him getting stuck with needles dozens of times a day knowing there's only more to come.... Allie P Mom to CJ, 13, systemic JIA Quote Link to comment Share on other sites More sharing options...
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