Guest guest Posted July 11, 1999 Report Share Posted July 11, 1999 Milko, Did you have untrasound of abdomen? Did it show anything wrong with the gallbladder? Hope your doc did not do unnecessary surgery! NJ >From: " milko " <milko@...> >Reply- onelist >< onelist> >Subject: Re: [ ] SueB. >Date: Mon, 12 Jul 1999 09:21:25 +1000 >MIME-Version: 1.0 >From errors-165537-3059-shireen42 Sun Jul 11 18:30:37 1999 >Received: from [209.207.164.233] by hotmail.com (1.5) with SMTP id >MHotMailB952903C00E3D82197DDD1CFA4E9085D0; Sun Jul 11 18:30:37 1999 >Received: (qmail 20675 invoked by alias); 12 Jul 1999 01:30:35 -0000 >Received: (qmail 20644 invoked from network); 12 Jul 1999 01:30:30 -0000 >Received: from unknown (HELO server.norex.com.au) (203.34.220.1) by >pop.onelist.com with SMTP; 12 Jul 1999 01:30:30 -0000 >Received: from milko (ts-2-p1.norex.com.au [203.34.220.49]) by >server.norex.com.au (8.9.1/8.9.1) with ESMTP id LAA15158 for >< onelist>; Mon, 12 Jul 1999 11:30:27 +1000 (EST) >Message-Id: <199907120130.LAA15158@...> >X-MSMail-Priority: Normal >X-Priority: 3 >X-Mailer: Microsoft Internet Mail 4.70.1155 >Mailing-List: list onelist; contact > -owneronelist >Delivered-mailing list onelist >Precedence: bulk >List-Unsubscribe: <mailto: -unsubscribeONElist> > >From: " milko " <milko@...> > >Janelle, >Anytime you want to visit there is a bed here for you. >The pain I suffer from is around the liver area front and back and radiates >to the shoulder. These are the original symptoms that sent me to my doctor >in the first place, this was diagnosed as gallbladder. I had it out, yet >the pain is still there. The drugs have made my life bearable at this >stage. I really don't want to be on them forever though. That is to be >sorted out after I go through this withdrawal thing. I haven't seen a >rheumatologist though! >Yes, the pain increases when the levels do. I can usually tell my doc that >the levels are up before she gets the results of the blood tests. >Had a really rough day yesterday! Much better today though. >SueB. > >---------- > > From: Janelle Asplund <jasplund@...> > > onelist > > Subject: Re: [ ] SueB. > > Date: Saturday, 10 July 1999 20:12 > > > > > > Hi Sue. Thanks for the welcome. It makes me feel A TON better to get >things off > > my chest with this group! I love having a place to go where I can fret >over > > whatever I need to fret about--everything except whether I'm driving >anyone > > berserk by constantly obsessing over my health. If anything, this list >proves > > how few of us are hypochondriacs, how, if anything, sometimes we wait >too >long > > to say anything! If my sister hadn't harassed me into going, I'm not >sure >how > > long I would've waited to see the dr., waiting for the stomach flu that >later > > turned out to be AIH to resolve on its own. > > > > Maybe not for the convention--though that suggestion sent me into a >pleasant > > fantasy for a minute--but someday I know I intend to get to Australia. > > > > Also, you mentioned in another post that you experience constant pain, >too. > > Where is it for you? Have you seen a rheumatologist? Do you notice a >correlation > > between the pain and your levels? > > > > Janelle AIH > > Seattle > > > > > > ______________________________ Forward Header >__________________________________ > > Subject: Re: [ ] a new member > > Author: milko@... at Internet-USA > > Date: 7/9/99 9:37 PM > > > > > > From: " milko " <milko@...> > > > > Janelle, > > Welcome. > > Doesn't it make you feel a little better just to get things off your >chest > > to this group. No one thinks you are a hypochondriac, they all know >almost > > exactly how you are feeling. > > > > SueB. > > > > ---------- > > > From: jasplund@... > > > onelist > > > Subject: [ ] a new member > > > Date: Tuesday, 6 July 1999 6:49 > > > > > > From: jasplund@... > > > > > > Hello all. Although this is my first posting, I've been reading the > > archives for a few weeks now, and have not only learned a great deal > > (certainly more than my doctor has told me!) but taken an enormous >amount > > > of comfort from your collective wisdom. More than anything this list is > > helping me come to terms with my recent (May) diagnosis of AIH. Here's a > > little background: I'm 26, live in Seattle, and in March, began to > > experience persistent stomach upset and nausea, along with joint pain >and > > > fatigue. My doctor initially chalked up the stomach problems to an >ulcer, > > > but decided to run some blood tests anyway; I helped him dismiss the >joint > > pain and fatigue by speculating that they were to due to an especially > > heavy workload and a new kickboxing class (how's that for bitter irony?! > > Just as soon as I decide to start taking my health seriously, I get > > diagnosed with this stinkin' disease!). Blood tests came back, showing > > elevated LFT's but nothing more definitive, so my doctor concluded I > > probably have hep A and te > > > > > > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 1999 Report Share Posted July 13, 1999 , No, I didn't have ultrasound of the abdo, just an x-ray. The surgeon(so called) said he could see stones and that my gallbladder needed to come out. After surgery I asked to see the stones. There were none. I believe he did the surgery needlessly. I think it was something else entirely, unfortunately. SueB. ---------- > From: susan johnson <shireen42@...> > onelist > Subject: Re: [ ] SueB.gallbladder > Date: Monday, 12 July 1999 13:23 > > From: " susan johnson " <shireen42@...> > > Milko, > > Did you have untrasound of abdomen? Did it show anything wrong with the > gallbladder? Hope your doc did not do unnecessary surgery! > > > NJ > > > >From: " milko " <milko@...> > >Reply- onelist > >< onelist> > >Subject: Re: [ ] SueB. > >Date: Mon, 12 Jul 1999 09:21:25 +1000 > >MIME-Version: 1.0 > >From errors-165537-3059-shireen42 Sun Jul 11 18:30:37 1999 > >Received: from [209.207.164.233] by hotmail.com (1.5) with SMTP id > >MHotMailB952903C00E3D82197DDD1CFA4E9085D0; Sun Jul 11 18:30:37 1999 > >Received: (qmail 20675 invoked by alias); 12 Jul 1999 01:30:35 -0000 > >Received: (qmail 20644 invoked from network); 12 Jul 1999 01:30:30 -0000 > >Received: from unknown (HELO server.norex.com.au) (203.34.220.1) by > >pop.onelist.com with SMTP; 12 Jul 1999 01:30:30 -0000 > >Received: from milko (ts-2-p1.norex.com.au [203.34.220.49]) by > >server.norex.com.au (8.9.1/8.9.1) with ESMTP id LAA15158 for > >< onelist>; Mon, 12 Jul 1999 11:30:27 +1000 (EST) > >Message-Id: <199907120130.LAA15158@...> > >X-MSMail-Priority: Normal > >X-Priority: 3 > >X-Mailer: Microsoft Internet Mail 4.70.1155 > >Mailing-List: list onelist; contact > > -owneronelist > >Delivered-mailing list onelist > >Precedence: bulk > >List-Unsubscribe: <mailto: -unsubscribeONElist> > > > >From: " milko " <milko@...> > > > >Janelle, > >Anytime you want to visit there is a bed here for you. > >The pain I suffer from is around the liver area front and back and radiates > >to the shoulder. These are the original symptoms that sent me to my doctor > >in the first place, this was diagnosed as gallbladder. I had it out, yet > >the pain is still there. The drugs have made my life bearable at this > >stage. I really don't want to be on them forever though. That is to be > >sorted out after I go through this withdrawal thing. I haven't seen a > >rheumatologist though! > >Yes, the pain increases when the levels do. I can usually tell my doc that > >the levels are up before she gets the results of the blood tests. > >Had a really rough day yesterday! Much better today though. > >SueB. > > > >---------- > > > From: Janelle Asplund <jasplund@...> > > > onelist > > > Subject: Re: [ ] SueB. > > > Date: Saturday, 10 July 1999 20:12 > > > > > > > > > Hi Sue. Thanks for the welcome. It makes me feel A TON better to get > >things off > > > my chest with this group! I love having a place to go where I can fret > >over > > > whatever I need to fret about--everything except whether I'm driving > >anyone > > > berserk by constantly obsessing over my health. If anything, this list > >proves > > > how few of us are hypochondriacs, how, if anything, sometimes we wait > >too > >long > > > to say anything! If my sister hadn't harassed me into going, I'm not > >sure > >how > > > long I would've waited to see the dr., waiting for the stomach flu that > >later > > > turned out to be AIH to resolve on its own. > > > > > > Maybe not for the convention--though that suggestion sent me into a > >pleasant > > > fantasy for a minute--but someday I know I intend to get to Australia. > > > > > > Also, you mentioned in another post that you experience constant pain, > >too. > > > Where is it for you? Have you seen a rheumatologist? Do you notice a > >correlation > > > between the pain and your levels? > > > > > > Janelle AIH > > > Seattle > > > > > > > > > ______________________________ Forward Header > >__________________________________ > > > Subject: Re: [ ] a new member > > > Author: milko@... at Internet-USA > > > Date: 7/9/99 9:37 PM > > > > > > > > > From: " milko " <milko@...> > > > > > > Janelle, > > > Welcome. > > > Doesn't it make you feel a little better just to get things off your > >chest > > > to this group. No one thinks you are a hypochondriac, they all know > >almost > > > exactly how you are feeling. > > > > > > SueB. > > > > > > ---------- > > > > From: jasplund@... > > > > onelist > > > > Subject: [ ] a new member > > > > Date: Tuesday, 6 July 1999 6:49 > > > > > > > > From: jasplund@... > > > > > > > > Hello all. Although this is my first posting, I've been reading the > > > archives for a few weeks now, and have not only learned a great deal > > > (certainly more than my doctor has told me!) but taken an enormous > >amount > > > > > of comfort from your collective wisdom. More than anything this list is > > > helping me come to terms with my recent (May) diagnosis of AIH. Here's a > > > little background: I'm 26, live in Seattle, and in March, began to > > > experience persistent stomach upset and nausea, along with joint pain > >and > > > > > fatigue. My doctor initially chalked up the stomach problems to an > >ulcer, > > > > > but decided to run some blood tests anyway; I helped him dismiss the > >joint > > > pain and fatigue by speculating that they were to due to an especially > > > heavy workload and a new kickboxing class (how's that for bitter irony?! > > > Just as soon as I decide to start taking my health seriously, I get > > > diagnosed with this stinkin' disease!). Blood tests came back, showing > > > elevated LFT's but nothing more definitive, so my doctor concluded I > > > probably have hep A and te > > > > > > > > > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 1999 Report Share Posted July 13, 1999 Hi again SueB. I too had gallbladder surgery years ago, and the symptom you talked about was one of them, along with others. My Dr. recognized what it was right off after asking me some questions and then sent me for tests, and I had a whole bottle of stones. But also isn't it true that not always are there large stones or many and you can have the same pain and agony? I went for three years without going to the Dr. because I thought maybe I had " bad gas " pain! So I was young and didn't know anything about Drs. or pain, we didn't go to the Dr. for anything growing up as a kid. So it really wasn't the first thing I thought of to do, by then the gb was in terrible shape! Lynn in Wa AIH milko wrote: > From: " milko " <milko@...> > > , > No, I didn't have ultrasound of the abdo, just an x-ray. The surgeon(so > called) said he could see stones and that my gallbladder needed to come > out. After surgery I asked to see the stones. There were none. I believe he > did the surgery needlessly. I think it was something else entirely, > unfortunately. > SueB. > > ---------- > > From: susan johnson <shireen42@...> > > onelist > > Subject: Re: [ ] SueB.gallbladder > > Date: Monday, 12 July 1999 13:23 > > > > From: " susan johnson " <shireen42@...> > > > > Milko, > > > > Did you have untrasound of abdomen? Did it show anything wrong with the > > gallbladder? Hope your doc did not do unnecessary surgery! > > > > > > NJ > > > > > > >From: " milko " <milko@...> > > >Reply- onelist > > >< onelist> > > >Subject: Re: [ ] SueB. > > >Date: Mon, 12 Jul 1999 09:21:25 +1000 > > >MIME-Version: 1.0 > > >From errors-165537-3059-shireen42 Sun Jul 11 18:30:37 1999 > > >Received: from [209.207.164.233] by hotmail.com (1.5) with SMTP id > > >MHotMailB952903C00E3D82197DDD1CFA4E9085D0; Sun Jul 11 18:30:37 1999 > > >Received: (qmail 20675 invoked by alias); 12 Jul 1999 01:30:35 -0000 > > >Received: (qmail 20644 invoked from network); 12 Jul 1999 01:30:30 -0000 > > >Received: from unknown (HELO server.norex.com.au) (203.34.220.1) by > > >pop.onelist.com with SMTP; 12 Jul 1999 01:30:30 -0000 > > >Received: from milko (ts-2-p1.norex.com.au [203.34.220.49]) by > > >server.norex.com.au (8.9.1/8.9.1) with ESMTP id LAA15158 for > > >< onelist>; Mon, 12 Jul 1999 11:30:27 +1000 (EST) > > >Message-Id: <199907120130.LAA15158@...> > > >X-MSMail-Priority: Normal > > >X-Priority: 3 > > >X-Mailer: Microsoft Internet Mail 4.70.1155 > > >Mailing-List: list onelist; contact > > > -owneronelist > > >Delivered-mailing list onelist > > >Precedence: bulk > > >List-Unsubscribe: <mailto: -unsubscribeONElist> > > > > > >From: " milko " <milko@...> > > > > > >Janelle, > > >Anytime you want to visit there is a bed here for you. > > >The pain I suffer from is around the liver area front and back and > radiates > > >to the shoulder. These are the original symptoms that sent me to my > doctor > > >in the first place, this was diagnosed as gallbladder. I had it out, yet > > >the pain is still there. The drugs have made my life bearable at this > > >stage. I really don't want to be on them forever though. That is to be > > >sorted out after I go through this withdrawal thing. I haven't seen a > > >rheumatologist though! > > >Yes, the pain increases when the levels do. I can usually tell my doc > that > > >the levels are up before she gets the results of the blood tests. > > >Had a really rough day yesterday! Much better today though. > > >SueB. > > > > > >---------- > > > > From: Janelle Asplund <jasplund@...> > > > > onelist > > > > Subject: Re: [ ] SueB. > > > > Date: Saturday, 10 July 1999 20:12 > > > > > > > > > > > > Hi Sue. Thanks for the welcome. It makes me feel A TON better to get > > >things off > > > > my chest with this group! I love having a place to go where I can > fret > > >over > > > > whatever I need to fret about--everything except whether I'm driving > > >anyone > > > > berserk by constantly obsessing over my health. If anything, this > list > > >proves > > > > how few of us are hypochondriacs, how, if anything, sometimes we wait > > > >too > > >long > > > > to say anything! If my sister hadn't harassed me into going, I'm not > > >sure > > >how > > > > long I would've waited to see the dr., waiting for the stomach flu > that > > >later > > > > turned out to be AIH to resolve on its own. > > > > > > > > Maybe not for the convention--though that suggestion sent me into a > > >pleasant > > > > fantasy for a minute--but someday I know I intend to get to > Australia. > > > > > > > > Also, you mentioned in another post that you experience constant > pain, > > >too. > > > > Where is it for you? Have you seen a rheumatologist? Do you notice a > > >correlation > > > > between the pain and your levels? > > > > > > > > Janelle AIH > > > > Seattle > > > > > > > > > > > > ______________________________ Forward Header > > >__________________________________ > > > > Subject: Re: [ ] a new member > > > > Author: milko@... at Internet-USA > > > > Date: 7/9/99 9:37 PM > > > > > > > > > > > > From: " milko " <milko@...> > > > > > > > > Janelle, > > > > Welcome. > > > > Doesn't it make you feel a little better just to get things off your > > >chest > > > > to this group. No one thinks you are a hypochondriac, they all know > > >almost > > > > exactly how you are feeling. > > > > > > > > SueB. > > > > > > > > ---------- > > > > > From: jasplund@... > > > > > onelist > > > > > Subject: [ ] a new member > > > > > Date: Tuesday, 6 July 1999 6:49 > > > > > > > > > > From: jasplund@... > > > > > > > > > > Hello all. Although this is my first posting, I've been reading the > > > > archives for a few weeks now, and have not only learned a great deal > > > > (certainly more than my doctor has told me!) but taken an enormous > > >amount > > > > > > > of comfort from your collective wisdom. More than anything this list > is > > > > helping me come to terms with my recent (May) diagnosis of AIH. > Here's a > > > > little background: I'm 26, live in Seattle, and in March, began to > > > > experience persistent stomach upset and nausea, along with joint pain > > > >and > > > > > > > fatigue. My doctor initially chalked up the stomach problems to an > > >ulcer, > > > > > > > but decided to run some blood tests anyway; I helped him dismiss the > > >joint > > > > pain and fatigue by speculating that they were to due to an > especially > > > > heavy workload and a new kickboxing class (how's that for bitter > irony?! > > > > Just as soon as I decide to start taking my health seriously, I get > > > > diagnosed with this stinkin' disease!). Blood tests came back, > showing > > > > elevated LFT's but nothing more definitive, so my doctor concluded I > > > > probably have hep A and te > > > > > > > > > > > > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 1999 Report Share Posted July 14, 1999 My doctor told me that it would not be in my best interest to have any gall blader surgery. He said that I have stones and I would have to live with them. Dixie AIH milko wrote: > From: " milko " <milko@...> > > , > No, I didn't have ultrasound of the abdo, just an x-ray. The surgeon(so > called) said he could see stones and that my gallbladder needed to come > out. After surgery I asked to see the stones. There were none. I believe he > did the surgery needlessly. I think it was something else entirely, > unfortunately. > SueB. > > ---------- > > From: susan johnson <shireen42@...> > > onelist > > Subject: Re: [ ] SueB.gallbladder > > Date: Monday, 12 July 1999 13:23 > > > > From: " susan johnson " <shireen42@...> > > > > Milko, > > > > Did you have untrasound of abdomen? Did it show anything wrong with the > > gallbladder? Hope your doc did not do unnecessary surgery! > > > > > > NJ > > > > > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 1999 Report Share Posted July 14, 1999 Sue, Before I was diagnosed with AIH, they found out through both ultrasound and CT scan that my gall bladder was extremely swollen and my bile ducts appeared not to be functioning. The obvious conclusion might have been that I had a gall bladder problem but I was lucky enough to have a " team " of doctors - five, total, since I was in very serious condition by the time I was hospitalized. They managed to rule out pancreas problems, gall bladder problems and a series of other problems all in one session in the OR. Funny thing is, my stomach was ENORMOUS, hard as a rock and really hurting when I went into the OR and by the time I left the hospital 5 days later I was down to less than I'd weighed in years. My hip bones actually protruded! It was wonderful while it lasted. I'm not sure what they did to get rid of all that abdominal fluid, but they did tell me that I absolutely did not have a gall bladder or bile duct obstruction. The problem was apparently that my liver was so weak my gallbladder and bile ducts weren't functioning. If I'd had a different set of doctors (who perhaps were keeping each other honest) they might have reached a different conclusion and I might not still have my gall bladder! Aren't gallstones relatively common and do they necessarily even have to be removed if they're there? The reason I ask (and someone can enlighten me) is that I wonder how many others with liver disease are mistakenly assumed to have gall bladder conditions they don't actually have, when the problem is basically poor function due to a failing liver? Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 1999 Report Share Posted July 14, 1999 Geri, Believe me, if I knew then what I know now I would have seen other doctors before going ahead with the operation. But at that time I was of the impression that this doctor was God. All doctors to me at that time were. I just thought he knew all. It took almost loosing my life to start to take control of myself and my future, I am sorry to say. It will never happen again to me or mine I can assure you of that. Looking back, I would say that I had no problem with my gallbladder and that my liver was the cause of all the things that were going wrong. Hard way to learn a lesson, but believe me my family have become stronger because of it. Maybe that is the good to come of all this. SueB. ---------- > From: Geri Spang <spangs@...> > onelist > Subject: Re: [ ] SueB.gallbladder > Date: Wednesday, 14 July 1999 20:15 > > From: Geri Spang <spangs@...> > > Sue, > Before I was diagnosed with AIH, they found out through both ultrasound and > CT scan that my gall bladder was extremely swollen and my bile ducts > appeared not to be functioning. The obvious conclusion might have been > that I had a gall bladder problem but I was lucky enough to have a " team " > of doctors - five, total, since I was in very serious condition by the time > I was hospitalized. They managed to rule out pancreas problems, gall > bladder problems and a series of other problems all in one session in the > OR. Funny thing is, my stomach was ENORMOUS, hard as a rock and really > hurting when I went into the OR and by the time I left the hospital 5 days > later I was down to less than I'd weighed in years. My hip bones actually > protruded! It was wonderful while it lasted. > > I'm not sure what they did to get rid of all that abdominal fluid, but they > did tell me that I absolutely did not have a gall bladder or bile duct > obstruction. The problem was apparently that my liver was so weak my > gallbladder and bile ducts weren't functioning. If I'd had a different set > of doctors (who perhaps were keeping each other honest) they might have > reached a different conclusion and I might not still have my gall bladder! > > Aren't gallstones relatively common and do they necessarily even have to be > removed if they're there? The reason I ask (and someone can enlighten me) > is that I wonder how many others with liver disease are mistakenly assumed > to have gall bladder conditions they don't actually have, when the problem > is basically poor function due to a failing liver? > > Take care, > Geri > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 1999 Report Share Posted July 14, 1999 Lynn, I had the pain for years also before it got to the stage that I consulted my GP. I also thought it may have been gas. Wishful thinking I think. SueB. ---------- > From: Lynn <CEN32195@...> > onelist > Subject: Re: [ ] SueB.gallbladder > Date: Wednesday, 14 July 1999 0:16 > > From: Lynn <CEN32195@...> > > Hi again SueB. I too had gallbladder surgery years ago, and the symptom you > talked about was one of them, along with others. My Dr. recognized what it was > right off after asking me some questions and then sent me for tests, and I had > a whole bottle of stones. > But also isn't it true that not always are there large stones or many and you > can have the same pain and agony? I went for three years without going to the > Dr. because I thought maybe I had " bad gas " pain! So I was young and didn't > know anything about Drs. or pain, we didn't go to the Dr. for anything growing > up as a kid. So it really wasn't the first thing I thought of to do, by then > the gb was in terrible shape! Lynn in Wa AIH > > milko wrote: > > > From: " milko " <milko@...> > > > > , > > No, I didn't have ultrasound of the abdo, just an x-ray. The surgeon(so > > called) said he could see stones and that my gallbladder needed to come > > out. After surgery I asked to see the stones. There were none. I believe he > > did the surgery needlessly. I think it was something else entirely, > > unfortunately. > > SueB. > > > > ---------- > > > From: susan johnson <shireen42@...> > > > onelist > > > Subject: Re: [ ] SueB.gallbladder > > > Date: Monday, 12 July 1999 13:23 > > > > > > From: " susan johnson " <shireen42@...> > > > > > > Milko, > > > > > > Did you have untrasound of abdomen? Did it show anything wrong with the > > > gallbladder? Hope your doc did not do unnecessary surgery! > > > > > > > > > NJ > > > > > > > > > >From: " milko " <milko@...> > > > >Reply- onelist > > > >< onelist> > > > >Subject: Re: [ ] SueB. > > > >Date: Mon, 12 Jul 1999 09:21:25 +1000 > > > >MIME-Version: 1.0 > > > >From errors-165537-3059-shireen42 Sun Jul 11 18:30:37 1999 > > > >Received: from [209.207.164.233] by hotmail.com (1.5) with SMTP id > > > >MHotMailB952903C00E3D82197DDD1CFA4E9085D0; Sun Jul 11 18:30:37 1999 > > > >Received: (qmail 20675 invoked by alias); 12 Jul 1999 01:30:35 -0000 > > > >Received: (qmail 20644 invoked from network); 12 Jul 1999 01:30:30 -0000 > > > >Received: from unknown (HELO server.norex.com.au) (203.34.220.1) by > > > >pop.onelist.com with SMTP; 12 Jul 1999 01:30:30 -0000 > > > >Received: from milko (ts-2-p1.norex.com.au [203.34.220.49]) by > > > >server.norex.com.au (8.9.1/8.9.1) with ESMTP id LAA15158 for > > > >< onelist>; Mon, 12 Jul 1999 11:30:27 +1000 (EST) > > > >Message-Id: <199907120130.LAA15158@...> > > > >X-MSMail-Priority: Normal > > > >X-Priority: 3 > > > >X-Mailer: Microsoft Internet Mail 4.70.1155 > > > >Mailing-List: list onelist; contact > > > > -owneronelist > > > >Delivered-mailing list onelist > > > >Precedence: bulk > > > >List-Unsubscribe: <mailto: -unsubscribeONElist> > > > > > > > >From: " milko " <milko@...> > > > > > > > >Janelle, > > > >Anytime you want to visit there is a bed here for you. > > > >The pain I suffer from is around the liver area front and back and > > radiates > > > >to the shoulder. These are the original symptoms that sent me to my > > doctor > > > >in the first place, this was diagnosed as gallbladder. I had it out, yet > > > >the pain is still there. The drugs have made my life bearable at this > > > >stage. I really don't want to be on them forever though. That is to be > > > >sorted out after I go through this withdrawal thing. I haven't seen a > > > >rheumatologist though! > > > >Yes, the pain increases when the levels do. I can usually tell my doc > > that > > > >the levels are up before she gets the results of the blood tests. > > > >Had a really rough day yesterday! Much better today though. > > > >SueB. > > > > > > > >---------- > > > > > From: Janelle Asplund <jasplund@...> > > > > > onelist > > > > > Subject: Re: [ ] SueB. > > > > > Date: Saturday, 10 July 1999 20:12 > > > > > > > > > > > > > > > Hi Sue. Thanks for the welcome. It makes me feel A TON better to get > > > >things off > > > > > my chest with this group! I love having a place to go where I can > > fret > > > >over > > > > > whatever I need to fret about--everything except whether I'm driving > > > >anyone > > > > > berserk by constantly obsessing over my health. If anything, this > > list > > > >proves > > > > > how few of us are hypochondriacs, how, if anything, sometimes we wait > > > > > >too > > > >long > > > > > to say anything! If my sister hadn't harassed me into going, I'm not > > > >sure > > > >how > > > > > long I would've waited to see the dr., waiting for the stomach flu > > that > > > >later > > > > > turned out to be AIH to resolve on its own. > > > > > > > > > > Maybe not for the convention--though that suggestion sent me into a > > > >pleasant > > > > > fantasy for a minute--but someday I know I intend to get to > > Australia. > > > > > > > > > > Also, you mentioned in another post that you experience constant > > pain, > > > >too. > > > > > Where is it for you? Have you seen a rheumatologist? Do you notice a > > > >correlation > > > > > between the pain and your levels? > > > > > > > > > > Janelle AIH > > > > > Seattle > > > > > > > > > > > > > > > ______________________________ Forward Header > > > >__________________________________ > > > > > Subject: Re: [ ] a new member > > > > > Author: milko@... at Internet-USA > > > > > Date: 7/9/99 9:37 PM > > > > > > > > > > > > > > > From: " milko " <milko@...> > > > > > > > > > > Janelle, > > > > > Welcome. > > > > > Doesn't it make you feel a little better just to get things off your > > > >chest > > > > > to this group. No one thinks you are a hypochondriac, they all know > > > >almost > > > > > exactly how you are feeling. > > > > > > > > > > SueB. > > > > > > > > > > ---------- > > > > > > From: jasplund@... > > > > > > onelist > > > > > > Subject: [ ] a new member > > > > > > Date: Tuesday, 6 July 1999 6:49 > > > > > > > > > > > > From: jasplund@... > > > > > > > > > > > > Hello all. Although this is my first posting, I've been reading the > > > > > archives for a few weeks now, and have not only learned a great deal > > > > > (certainly more than my doctor has told me!) but taken an enormous > > > >amount > > > > > > > > > of comfort from your collective wisdom. More than anything this list > > is > > > > > helping me come to terms with my recent (May) diagnosis of AIH. > > Here's a > > > > > little background: I'm 26, live in Seattle, and in March, began to > > > > > experience persistent stomach upset and nausea, along with joint pain > > > > > >and > > > > > > > > > fatigue. My doctor initially chalked up the stomach problems to an > > > >ulcer, > > > > > > > > > but decided to run some blood tests anyway; I helped him dismiss the > > > >joint > > > > > pain and fatigue by speculating that they were to due to an > > especially > > > > > heavy workload and a new kickboxing class (how's that for bitter > > irony?! > > > > > Just as soon as I decide to start taking my health seriously, I get > > > > > diagnosed with this stinkin' disease!). Blood tests came back, > > showing > > > > > elevated LFT's but nothing more definitive, so my doctor concluded I > > > > > probably have hep A and te > > > > > > > > > > > > > > > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 1999 Report Share Posted July 14, 1999 Dixie, Did you ask your doctor why he said you should not have gallbladder surgery. Do you have gallbladder attacks.? SueB. ---------- > From: meles@... > onelist > Subject: Re: [ ] SueB.gallbladder > Date: Wednesday, 14 July 1999 13:03 > > From: meles@... > > My doctor told me that it would not be in my best interest to have any gall > blader surgery. > He said that I have stones and I would have to live with them. > Dixie AIH > > milko wrote: > > > From: " milko " <milko@...> > > > > , > > No, I didn't have ultrasound of the abdo, just an x-ray. The surgeon(so > > called) said he could see stones and that my gallbladder needed to come > > out. After surgery I asked to see the stones. There were none. I believe he > > did the surgery needlessly. I think it was something else entirely, > > unfortunately. > > SueB. > > > > ---------- > > > From: susan johnson <shireen42@...> > > > onelist > > > Subject: Re: [ ] SueB.gallbladder > > > Date: Monday, 12 July 1999 13:23 > > > > > > From: " susan johnson " <shireen42@...> > > > > > > Milko, > > > > > > Did you have untrasound of abdomen? Did it show anything wrong with the > > > gallbladder? Hope your doc did not do unnecessary surgery! > > > > > > > > > NJ > > > > > > > > > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 1999 Report Share Posted July 14, 1999 I did not ask him why they would not bother my gallbladder. One was because I was relieved to not to have to go throught surgery. I do not know if I have gall bladder attacks or not. I know that I have unbearable pain some times in and around my Liver. ??? Love and Light Dixie milko wrote: > From: " milko " <milko@...> > > Dixie, > Did you ask your doctor why he said you should not have gallbladder > surgery. Do you have gallbladder attacks.? > SueB. > > ---------- > > From: meles@... > > onelist > > Subject: Re: [ ] SueB.gallbladder > > Date: Wednesday, 14 July 1999 13:03 > > > > From: meles@... > > > > My doctor told me that it would not be in my best interest to have any > gall > > blader surgery. > > He said that I have stones and I would have to live with them. > > Dixie AIH > > > > milko wrote: > > > > > From: " milko " <milko@...> > > > > > > , > > > No, I didn't have ultrasound of the abdo, just an x-ray. The surgeon(so > > > called) said he could see stones and that my gallbladder needed to come > > > out. After surgery I asked to see the stones. There were none. I > believe he > > > did the surgery needlessly. I think it was something else entirely, > > > unfortunately. > > > SueB. > > > > > > ---------- > > > > From: susan johnson <shireen42@...> > > > > onelist > > > > Subject: Re: [ ] SueB.gallbladder > > > > Date: Monday, 12 July 1999 13:23 > > > > > > > > From: " susan johnson " <shireen42@...> > > > > > > > > Milko, > > > > > > > > Did you have untrasound of abdomen? Did it show anything wrong with > the > > > > gallbladder? Hope your doc did not do unnecessary surgery! > > > > > > > > > > > > NJ > > > > > > > > > > > > > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 1999 Report Share Posted July 14, 1999 Thats an interesting quesiton and one Ive been asking myself as I sit and read all the gallbladder surgeries, including my own, that were frought with complications and didn't really reveal any problems with the GB. I wonder if surgeons do liver bx when they go in for the GB..Seems logical to me especially since they must see right away that the GB is fine.. Mine didnt produce stones but did show cholecystitis..besides stones there's other problems that can cause GB pain..Inflammation and sludge..But again they can tell this pretty instantaneously..Im pretty disillutioned with doctors at this point too. Jody === ISO B-family DOB 5-23-61 b-name: Compton *VOTE TO RE-ESTABLISH ADOPTEES RIGHTS TO KNOW THEIR FAMILIES** ---Geri Spang <spangs@...> wrote: > > From: Geri Spang <spangs@...> > > Sue, > Before I was diagnosed with AIH, they found out through both ultrasound and > CT scan that my gall bladder was extremely swollen and my bile ducts > appeared not to be functioning. The obvious conclusion might have been > that I had a gall bladder problem but I was lucky enough to have a " team " > of doctors - five, total, since I was in very serious condition by the time > I was hospitalized. They managed to rule out pancreas problems, gall > bladder problems and a series of other problems all in one session in the > OR. Funny thing is, my stomach was ENORMOUS, hard as a rock and really > hurting when I went into the OR and by the time I left the hospital 5 days > later I was down to less than I'd weighed in years. My hip bones actually > protruded! It was wonderful while it lasted. > > I'm not sure what they did to get rid of all that abdominal fluid, but they > did tell me that I absolutely did not have a gall bladder or bile duct > obstruction. The problem was apparently that my liver was so weak my > gallbladder and bile ducts weren't functioning. If I'd had a different set > of doctors (who perhaps were keeping each other honest) they might have > reached a different conclusion and I might not still have my gall bladder! > > Aren't gallstones relatively common and do they necessarily even have to be > removed if they're there? The reason I ask (and someone can enlighten me) > is that I wonder how many others with liver disease are mistakenly assumed > to have gall bladder conditions they don't actually have, when the problem > is basically poor function due to a failing liver? > > Take care, > Geri > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 1999 Report Share Posted July 14, 1999 Thats an interesting quesiton and one Ive been asking myself as I sit and read all the gallbladder surgeries, including my own, that were frought with complications and didn't really reveal any problems with the GB. I wonder if surgeons do liver bx when they go in for the GB..Seems logical to me especially since they must see right away that the GB is fine.. Mine didnt produce stones but did show cholecystitis..besides stones there's other problems that can cause GB pain..Inflammation and sludge..But again they can tell this pretty instantaneously..Im pretty disillutioned with doctors at this point too. Jody === ISO B-family DOB 5-23-61 b-name: Compton *VOTE TO RE-ESTABLISH ADOPTEES RIGHTS TO KNOW THEIR FAMILIES** ---Geri Spang <spangs@...> wrote: > > From: Geri Spang <spangs@...> > > Sue, > Before I was diagnosed with AIH, they found out through both ultrasound and > CT scan that my gall bladder was extremely swollen and my bile ducts > appeared not to be functioning. The obvious conclusion might have been > that I had a gall bladder problem but I was lucky enough to have a " team " > of doctors - five, total, since I was in very serious condition by the time > I was hospitalized. They managed to rule out pancreas problems, gall > bladder problems and a series of other problems all in one session in the > OR. Funny thing is, my stomach was ENORMOUS, hard as a rock and really > hurting when I went into the OR and by the time I left the hospital 5 days > later I was down to less than I'd weighed in years. My hip bones actually > protruded! It was wonderful while it lasted. > > I'm not sure what they did to get rid of all that abdominal fluid, but they > did tell me that I absolutely did not have a gall bladder or bile duct > obstruction. The problem was apparently that my liver was so weak my > gallbladder and bile ducts weren't functioning. If I'd had a different set > of doctors (who perhaps were keeping each other honest) they might have > reached a different conclusion and I might not still have my gall bladder! > > Aren't gallstones relatively common and do they necessarily even have to be > removed if they're there? The reason I ask (and someone can enlighten me) > is that I wonder how many others with liver disease are mistakenly assumed > to have gall bladder conditions they don't actually have, when the problem > is basically poor function due to a failing liver? > > Take care, > Geri > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 1999 Report Share Posted July 14, 1999 Jody, I didnt know that. Having sludge in your gallblader can cause you pain. I too have sludge and pain over the liver area. So I guess thats the sludge? Elena --- Jody Compton <intrigued1@...> wrote: > From: Jody Compton <intrigued1@...> > > Thats an interesting quesiton and one Ive been > asking > myself as I sit and read all the gallbladder > surgeries, including my own, that were frought with > complications and didn't really reveal any problems > with the GB. > I wonder if surgeons do liver bx when they go in for > the GB..Seems logical to me especially since they > must see right away that the GB is fine.. Mine didnt > produce stones but did show cholecystitis..besides > stones there's other problems that can cause GB > pain..Inflammation and sludge..But again they can > tell this pretty instantaneously..Im pretty > disillutioned with doctors at this point too. > Jody > > > === > ISO B-family > DOB 5-23-61 > b-name: Compton > *VOTE TO RE-ESTABLISH ADOPTEES RIGHTS TO KNOW THEIR > FAMILIES** > > > > > > > ---Geri Spang <spangs@...> wrote: > > > > From: Geri Spang <spangs@...> > > > > Sue, > > Before I was diagnosed with AIH, they found out > through both ultrasound and > > CT scan that my gall bladder was extremely swollen > and my bile ducts > > appeared not to be functioning. The obvious > conclusion might have been > > that I had a gall bladder problem but I was lucky > enough to have a " team " > > of doctors - five, total, since I was in very > serious condition by the time > > I was hospitalized. They managed to rule out > pancreas problems, gall > > bladder problems and a series of other problems > all > in one session in the > > OR. Funny thing is, my stomach was ENORMOUS, hard > as a rock and really > > hurting when I went into the OR and by the time I > left the hospital 5 days > > later I was down to less than I'd weighed in > years. > My hip bones actually > > protruded! It was wonderful while it lasted. > > > > I'm not sure what they did to get rid of all that > abdominal fluid, but they > > did tell me that I absolutely did not have a gall > bladder or bile duct > > obstruction. The problem was apparently that my > liver was so weak my > > gallbladder and bile ducts weren't functioning. > If > I'd had a different set > > of doctors (who perhaps were keeping each other > honest) they might have > > reached a different conclusion and I might not > still have my gall bladder! > > > > Aren't gallstones relatively common and do they > necessarily even have to be > > removed if they're there? The reason I ask (and > someone can enlighten me) > > is that I wonder how many others with liver > disease > are mistakenly assumed > > to have gall bladder conditions they don't > actually > have, when the problem > > is basically poor function due to a failing liver? > > > > Take care, > > Geri > > > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 1999 Report Share Posted July 15, 1999 Jody, I was put through all kinds of gallbladder diagnostic tests before I had the liver biopsy that identified cirrhosis and ultimately AIH. During the 18 days before the final diagnosis, I had a gallbladder and liver sonography (ultrasound), a CT scan of the abdomen, an " Axial Tomography " and finally an " Endoscopic Cholangiopancreatography with biopsy " . They didn't have any preconceptions about what was wrong so they were checking for multiple possibilities. Maybe that was a good thing for my sake. They also withdrew some fluid from my abdomen for analysis. It probably sounds terrible but I was well medicated and only felt minimal pain. All of the test results mention the gall bladder and gallstone possibilities, which were ruled out. Which makes me wonder why a doctor would do gallbladder surgery if gallstones aren't confirmed? Or, do they sometimes have to do exploratory surgery to identify them? Makes me suspect that some doctors are quick to cut, but I hope that's not really true. I had been scheduled for a liver biopsy before I was hospitalized and it was done on an " emergency " basis a few weeks ahead of schedule. As I recall, that was the last procedure they did and they were very nervous about it because of my elevated prothrombin time. It might be too risky to do a liver biopsy at the same time they're doing gallbladder surgery? Incidentally, my Mom had something wrong with her gallbladder that made her deathly ill and it wasn't stones or sludge. They isolated the problem through exploratory surgery and afterwards they told me that it had somehow become badly infected. Wonder how that can happen? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 1999 Report Share Posted July 15, 1999 Dear Jody: I had problems with my gallbladder for a few years before I developed AIH. I would go into the doctor complaining of the classic gallbladder attack symptoms (intense urq pain that would make it difficult to breath that would last about 15 minutes). They would do ultrasounds and find nothing, so declare that it was irritable colon and send me home. One time the ultrasound showed inflamed walls of the gallbladder, but they still ruled it out as the cause of my 'attacks'. After the onset of the AIH, it really started to bother me again, so I was given another ultrasound and this time they found 'sludge.' They decided to take my gallbladder out and to do a 2nd liver biopsy while they were in there. After the surgery, I learned that my gallbladder had been diseased for years (they could tell by the deterioration of it). The point of my story is that there are other things that can affect the gallbladder than stones. The thing to do is to get the report from the lab after a surgery so that you can see exactly what was wrong with the gallbladder. Hope this was helpful. Kathy (AIH) Seattle area Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 1999 Report Share Posted July 15, 1999 Geri, They Xray'd me til I was glowing in the dark. I was bent in half with pain and on a constant flow of morphine without much help. So, they felt the only way to find out was to cut me open. The surgeon originally said the GB looked fine but the pathology on it said chronic inflammation..I wonder now why the liver bx wasnt done when he thought the GB didnt " look bad " ..who knows..The first ERCP after the surgery saw a stone. they couldnt get it so they reopened me..the surgeon didnt see it. again no liver bx was done.. extremely frustrating!! I have since changed doctors..I fired one GI guy who told me it was irritable bowel and that I should just learn to live with the pain.. I feel Im in better hands now... but we all really have to ask questions and make them work for the diagnosis they want to give us..If they dont like it..then they dont get paid by us. They work for us!! their arrogance allows them to forget that..Wow..Im bitter huh? Im scared too so bear with me everyone.. Jody === ISO B-family DOB 5-23-61 b-name: Compton *VOTE TO RE-ESTABLISH ADOPTEES RIGHTS TO KNOW THEIR FAMILIES** ---Geri Spang <spangs@...> wrote: > > From: Geri Spang <spangs@...> > > Jody, > I was put through all kinds of gallbladder diagnostic tests before I had > the liver biopsy that identified cirrhosis and ultimately AIH. > > During the 18 days before the final diagnosis, I had a gallbladder and > liver sonography (ultrasound), a CT scan of the abdomen, an " Axial > Tomography " and finally an " Endoscopic Cholangiopancreatography with > biopsy " . They didn't have any preconceptions about what was wrong so they > were checking for multiple possibilities. Maybe that was a good thing for > my sake. They also withdrew some fluid from my abdomen for analysis. It > probably sounds terrible but I was well medicated and only felt minimal > pain. All of the test results mention the gall bladder and gallstone > possibilities, which were ruled out. > > Which makes me wonder why a doctor would do gallbladder surgery if > gallstones aren't confirmed? Or, do they sometimes have to do exploratory > surgery to identify them? Makes me suspect that some doctors are quick to > cut, but I hope that's not really true. > > I had been scheduled for a liver biopsy before I was hospitalized and it > was done on an " emergency " basis a few weeks ahead of schedule. As I > recall, that was the last procedure they did and they were very nervous > about it because of my elevated prothrombin time. It might be too risky to > do a liver biopsy at the same time they're doing gallbladder surgery? > > Incidentally, my Mom had something wrong with her gallbladder that made her > deathly ill and it wasn't stones or sludge. They isolated the problem > through exploratory surgery and afterwards they told me that it had somehow > become badly infected. Wonder how that can happen? > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 1999 Report Share Posted July 15, 1999 Geri, They Xray'd me til I was glowing in the dark. I was bent in half with pain and on a constant flow of morphine without much help. So, they felt the only way to find out was to cut me open. The surgeon originally said the GB looked fine but the pathology on it said chronic inflammation..I wonder now why the liver bx wasnt done when he thought the GB didnt " look bad " ..who knows..The first ERCP after the surgery saw a stone. they couldnt get it so they reopened me..the surgeon didnt see it. again no liver bx was done.. extremely frustrating!! I have since changed doctors..I fired one GI guy who told me it was irritable bowel and that I should just learn to live with the pain.. I feel Im in better hands now... but we all really have to ask questions and make them work for the diagnosis they want to give us..If they dont like it..then they dont get paid by us. They work for us!! their arrogance allows them to forget that..Wow..Im bitter huh? Im scared too so bear with me everyone.. Jody === ISO B-family DOB 5-23-61 b-name: Compton *VOTE TO RE-ESTABLISH ADOPTEES RIGHTS TO KNOW THEIR FAMILIES** ---Geri Spang <spangs@...> wrote: > > From: Geri Spang <spangs@...> > > Jody, > I was put through all kinds of gallbladder diagnostic tests before I had > the liver biopsy that identified cirrhosis and ultimately AIH. > > During the 18 days before the final diagnosis, I had a gallbladder and > liver sonography (ultrasound), a CT scan of the abdomen, an " Axial > Tomography " and finally an " Endoscopic Cholangiopancreatography with > biopsy " . They didn't have any preconceptions about what was wrong so they > were checking for multiple possibilities. Maybe that was a good thing for > my sake. They also withdrew some fluid from my abdomen for analysis. It > probably sounds terrible but I was well medicated and only felt minimal > pain. All of the test results mention the gall bladder and gallstone > possibilities, which were ruled out. > > Which makes me wonder why a doctor would do gallbladder surgery if > gallstones aren't confirmed? Or, do they sometimes have to do exploratory > surgery to identify them? Makes me suspect that some doctors are quick to > cut, but I hope that's not really true. > > I had been scheduled for a liver biopsy before I was hospitalized and it > was done on an " emergency " basis a few weeks ahead of schedule. As I > recall, that was the last procedure they did and they were very nervous > about it because of my elevated prothrombin time. It might be too risky to > do a liver biopsy at the same time they're doing gallbladder surgery? > > Incidentally, my Mom had something wrong with her gallbladder that made her > deathly ill and it wasn't stones or sludge. They isolated the problem > through exploratory surgery and afterwards they told me that it had somehow > become badly infected. Wonder how that can happen? > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 1999 Report Share Posted July 15, 1999 It could be..but it could be your liver dealing with the autoimmune disease too..Not everyone has to have surgery for sludge, stones or inflammation, it depends on how you tolerate this. Jody === ISO B-family DOB 5-23-61 b-name: Compton *VOTE TO RE-ESTABLISH ADOPTEES RIGHTS TO KNOW THEIR FAMILIES** ---Elena P <brit71@...> wrote: > > From: Elena P <brit71@...> > > > Jody, > I didnt know that. Having sludge in your gallblader > can cause you pain. I too have sludge and pain over > the liver area. So I guess thats the sludge? > Elena > --- Jody Compton <intrigued1@...> wrote: > > From: Jody Compton <intrigued1@...> > > > > Thats an interesting quesiton and one Ive been > > asking > > myself as I sit and read all the gallbladder > > surgeries, including my own, that were frought with > > complications and didn't really reveal any problems > > with the GB. > > I wonder if surgeons do liver bx when they go in for > > the GB..Seems logical to me especially since they > > must see right away that the GB is fine.. Mine didnt > > produce stones but did show cholecystitis..besides > > stones there's other problems that can cause GB > > pain..Inflammation and sludge..But again they can > > tell this pretty instantaneously..Im pretty > > disillutioned with doctors at this point too. > > Jody > > > > > > === > > ISO B-family > > DOB 5-23-61 > > b-name: Compton > > *VOTE TO RE-ESTABLISH ADOPTEES RIGHTS TO KNOW THEIR > > FAMILIES** > > > > > > > > > > > > > > ---Geri Spang <spangs@...> wrote: > > > > > > From: Geri Spang <spangs@...> > > > > > > Sue, > > > Before I was diagnosed with AIH, they found out > > through both ultrasound and > > > CT scan that my gall bladder was extremely swollen > > and my bile ducts > > > appeared not to be functioning. The obvious > > conclusion might have been > > > that I had a gall bladder problem but I was lucky > > enough to have a " team " > > > of doctors - five, total, since I was in very > > serious condition by the time > > > I was hospitalized. They managed to rule out > > pancreas problems, gall > > > bladder problems and a series of other problems > > all > > in one session in the > > > OR. Funny thing is, my stomach was ENORMOUS, hard > > as a rock and really > > > hurting when I went into the OR and by the time I > > left the hospital 5 days > > > later I was down to less than I'd weighed in > > years. > > My hip bones actually > > > protruded! It was wonderful while it lasted. > > > > > > I'm not sure what they did to get rid of all that > > abdominal fluid, but they > > > did tell me that I absolutely did not have a gall > > bladder or bile duct > > > obstruction. The problem was apparently that my > > liver was so weak my > > > gallbladder and bile ducts weren't functioning. > > If > > I'd had a different set > > > of doctors (who perhaps were keeping each other > > honest) they might have > > > reached a different conclusion and I might not > > still have my gall bladder! > > > > > > Aren't gallstones relatively common and do they > > necessarily even have to be > > > removed if they're there? The reason I ask (and > > someone can enlighten me) > > > is that I wonder how many others with liver > > disease > > are mistakenly assumed > > > to have gall bladder conditions they don't > > actually > > have, when the problem > > > is basically poor function due to a failing liver? > > > > > > Take care, > > > Geri > > > > > > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 1999 Report Share Posted July 15, 1999 It could be..but it could be your liver dealing with the autoimmune disease too..Not everyone has to have surgery for sludge, stones or inflammation, it depends on how you tolerate this. Jody === ISO B-family DOB 5-23-61 b-name: Compton *VOTE TO RE-ESTABLISH ADOPTEES RIGHTS TO KNOW THEIR FAMILIES** ---Elena P <brit71@...> wrote: > > From: Elena P <brit71@...> > > > Jody, > I didnt know that. Having sludge in your gallblader > can cause you pain. I too have sludge and pain over > the liver area. So I guess thats the sludge? > Elena > --- Jody Compton <intrigued1@...> wrote: > > From: Jody Compton <intrigued1@...> > > > > Thats an interesting quesiton and one Ive been > > asking > > myself as I sit and read all the gallbladder > > surgeries, including my own, that were frought with > > complications and didn't really reveal any problems > > with the GB. > > I wonder if surgeons do liver bx when they go in for > > the GB..Seems logical to me especially since they > > must see right away that the GB is fine.. Mine didnt > > produce stones but did show cholecystitis..besides > > stones there's other problems that can cause GB > > pain..Inflammation and sludge..But again they can > > tell this pretty instantaneously..Im pretty > > disillutioned with doctors at this point too. > > Jody > > > > > > === > > ISO B-family > > DOB 5-23-61 > > b-name: Compton > > *VOTE TO RE-ESTABLISH ADOPTEES RIGHTS TO KNOW THEIR > > FAMILIES** > > > > > > > > > > > > > > ---Geri Spang <spangs@...> wrote: > > > > > > From: Geri Spang <spangs@...> > > > > > > Sue, > > > Before I was diagnosed with AIH, they found out > > through both ultrasound and > > > CT scan that my gall bladder was extremely swollen > > and my bile ducts > > > appeared not to be functioning. The obvious > > conclusion might have been > > > that I had a gall bladder problem but I was lucky > > enough to have a " team " > > > of doctors - five, total, since I was in very > > serious condition by the time > > > I was hospitalized. They managed to rule out > > pancreas problems, gall > > > bladder problems and a series of other problems > > all > > in one session in the > > > OR. Funny thing is, my stomach was ENORMOUS, hard > > as a rock and really > > > hurting when I went into the OR and by the time I > > left the hospital 5 days > > > later I was down to less than I'd weighed in > > years. > > My hip bones actually > > > protruded! It was wonderful while it lasted. > > > > > > I'm not sure what they did to get rid of all that > > abdominal fluid, but they > > > did tell me that I absolutely did not have a gall > > bladder or bile duct > > > obstruction. The problem was apparently that my > > liver was so weak my > > > gallbladder and bile ducts weren't functioning. > > If > > I'd had a different set > > > of doctors (who perhaps were keeping each other > > honest) they might have > > > reached a different conclusion and I might not > > still have my gall bladder! > > > > > > Aren't gallstones relatively common and do they > > necessarily even have to be > > > removed if they're there? The reason I ask (and > > someone can enlighten me) > > > is that I wonder how many others with liver > > disease > > are mistakenly assumed > > > to have gall bladder conditions they don't > > actually > > have, when the problem > > > is basically poor function due to a failing liver? > > > > > > Take care, > > > Geri > > > > > > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 1999 Report Share Posted July 16, 1999 Jody, Just about all of us sympathize with you when it comes to frustration with the way we've been treated by some of our doctors. Patients are becoming better educated and a so-so medic can no longer get by with just mumbo-jumbo, though some of them don't have the picture yet. I'm wondering if there is a relationship somehow between liver disease, gallstones-gallbladder problems and kidney stones. I haven't heard anyone else mention kidney stones, but in late 1993 I had a stone that was 1.5 cms. (extremely large) removed. It was very unusual and exceptionally hard, I was told. I have a vague recollection of reading somewhere that the same things that can cause gallstones also can cause kidney stones. I'd love to hear from anyone who knows more or anything about this. Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 1999 Report Share Posted July 16, 1999 Geri, I also had a stone which passed through a salivary gland a year or so ago.. extremely unusual. I bet there is some correlation between our disease and making stones. Intersting Jody === ISO B-family DOB 5-23-61 b-name: Compton *VOTE TO RE-ESTABLISH ADOPTEES RIGHTS TO KNOW THEIR FAMILIES** ---Geri Spang <spangs@...> wrote: > > From: Geri Spang <spangs@...> > > Jody, > Just about all of us sympathize with you when it comes to frustration with > the way we've been treated by some of our doctors. Patients are becoming > better educated and a so-so medic can no longer get by with just > mumbo-jumbo, though some of them don't have the picture yet. > > I'm wondering if there is a relationship somehow between liver disease, > gallstones-gallbladder problems and kidney stones. I haven't heard anyone > else mention kidney stones, but in late 1993 I had a stone that was 1.5 > cms. (extremely large) removed. It was very unusual and exceptionally > hard, I was told. I have a vague recollection of reading somewhere that > the same things that can cause gallstones also can cause kidney stones. > I'd love to hear from anyone who knows more or anything about this. > Take care, > Geri > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 1999 Report Share Posted July 16, 1999 Geri, I also had a stone which passed through a salivary gland a year or so ago.. extremely unusual. I bet there is some correlation between our disease and making stones. Intersting Jody === ISO B-family DOB 5-23-61 b-name: Compton *VOTE TO RE-ESTABLISH ADOPTEES RIGHTS TO KNOW THEIR FAMILIES** ---Geri Spang <spangs@...> wrote: > > From: Geri Spang <spangs@...> > > Jody, > Just about all of us sympathize with you when it comes to frustration with > the way we've been treated by some of our doctors. Patients are becoming > better educated and a so-so medic can no longer get by with just > mumbo-jumbo, though some of them don't have the picture yet. > > I'm wondering if there is a relationship somehow between liver disease, > gallstones-gallbladder problems and kidney stones. I haven't heard anyone > else mention kidney stones, but in late 1993 I had a stone that was 1.5 > cms. (extremely large) removed. It was very unusual and exceptionally > hard, I was told. I have a vague recollection of reading somewhere that > the same things that can cause gallstones also can cause kidney stones. > I'd love to hear from anyone who knows more or anything about this. > Take care, > Geri > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 1999 Report Share Posted July 16, 1999 Jody, Even before I developed a kidney stone, urinalysis often showed some " crystalization " . Last urinalysis I had was a few months ago, and again, there was that crystalization. I'd have to look up old records to find exact terms, but there is a particularly hard calc that the kidneys sometimes produce, that result in stones. " oxylite " .... something, I think. I wouldn't be at all surprised to learn that those of us with gallstones or with the salivary stone you mention turn out to have that same type of crystalization. If our livers are misfunctioning, it seems quite possible they could be producing these stones. I've heard about salivary stones someplace else. They're very painful, aren't they? And can cause some serious problems? I don't envy you. The kidney stone was bad enough. Mine was detected in Switzerland after my gynecologist discovered that I had profuse blood in urinalysis. The technician who did the ultrasound told me he'd never seen a stone that large and found it incredible no one had discovered it earlier, but I suspect it developed fairly rapidly. Coincidentally or otherwise, two of my three daughters and my only granddaughter have all had problems with very hard, large kidney stones, and this happened to all of them while they were in their late teens. I pray that they won't also develop autoimmune diseases. Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 1999 Report Share Posted July 16, 1999 Jody, Were you aware that all your postings come through twice. SueB. ---------- > From: Jody Compton <intrigued1@...> > onelist; onelist > Subject: Re: [ ] SueB.gallbladder > Date: Friday, 16 July 1999 3:31 > > From: Jody Compton <intrigued1@...> > > Geri, > They Xray'd me til I was glowing in the dark. I was > bent in half with pain and on a constant flow of > morphine without much help. So, they felt the only > way to find out was to cut me open. The surgeon > originally said the GB looked fine but the pathology > on it said chronic inflammation..I wonder now why the > liver bx wasnt done when he thought the GB didnt > " look bad " ..who knows..The first ERCP after the > surgery saw a stone. they couldnt get it so they > reopened me..the surgeon didnt see it. again no liver > bx was done.. extremely frustrating!! > I have since changed doctors..I fired one GI guy who > told me it was irritable bowel and that I should just > learn to live with the pain.. I feel Im in better > hands now... but we all really have to ask questions > and make them work for the diagnosis they want to > give us..If they dont like it..then they dont get > paid by us. > They work for us!! their arrogance allows them to > forget that..Wow..Im bitter huh? Im scared too so > bear with me everyone.. > Jody > > > > === > ISO B-family > DOB 5-23-61 > b-name: Compton > *VOTE TO RE-ESTABLISH ADOPTEES RIGHTS TO KNOW THEIR > FAMILIES** > > > > > > > ---Geri Spang <spangs@...> wrote: > > > > From: Geri Spang <spangs@...> > > > > Jody, > > I was put through all kinds of gallbladder > diagnostic tests before I had > > the liver biopsy that identified cirrhosis and > ultimately AIH. > > > > During the 18 days before the final diagnosis, I > had a gallbladder and > > liver sonography (ultrasound), a CT scan of the > abdomen, an " Axial > > Tomography " and finally an " Endoscopic > Cholangiopancreatography with > > biopsy " . They didn't have any preconceptions about > what was wrong so they > > were checking for multiple possibilities. Maybe > that was a good thing for > > my sake. They also withdrew some fluid from my > abdomen for analysis. It > > probably sounds terrible but I was well medicated > and only felt minimal > > pain. All of the test results mention the gall > bladder and gallstone > > possibilities, which were ruled out. > > > > Which makes me wonder why a doctor would do > gallbladder surgery if > > gallstones aren't confirmed? Or, do they sometimes > have to do exploratory > > surgery to identify them? Makes me suspect that > some doctors are quick to > > cut, but I hope that's not really true. > > > > I had been scheduled for a liver biopsy before I > was hospitalized and it > > was done on an " emergency " basis a few weeks ahead > of schedule. As I > > recall, that was the last procedure they did and > they were very nervous > > about it because of my elevated prothrombin time. > It might be too risky to > > do a liver biopsy at the same time they're doing > gallbladder surgery? > > > > Incidentally, my Mom had something wrong with her > gallbladder that made her > > deathly ill and it wasn't stones or sludge. They > isolated the problem > > through exploratory surgery and afterwards they > told me that it had somehow > > become badly infected. Wonder how that can happen? > > > > > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 1999 Report Share Posted July 20, 1999 I too have gall stones....Had gall bladder attack, very painful....goes right thru to your back......was sent to er.....I was told that I could have surgery but if I ate properly,no fatty foods, and didn't have any more attacks I could just live with them....I chose to live with them.... Luanne Ty's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 1999 Report Share Posted July 22, 1999 Luanne, I wish someone had told me that before my surgery. SueB. ---------- > From: BBNLU@... > onelist > Subject: Re: [ ] SueB.gallbladder > Date: Wednesday, 21 July 1999 6:05 > > From: BBNLU@... > > I too have gall stones....Had gall bladder attack, very painful....goes right > thru to your back......was sent to er.....I was told that I could have > surgery but if I ate properly,no fatty foods, and didn't have any more > attacks I could just live with them....I chose to live with them.... > Luanne Ty's mom > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.