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Amy,

We must have seen each other often because I am at the Deptford Mall all the

time. My daughter works at 's Secret.

Shireen

>From: daveamycrazykids@...

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>Subject: [ ] Re: Shireen

>Date: Sun, 15 Oct 2000 20:52:11 EDT

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>From sentto-165537-23883-971657538-shireen42 Sun Oct 15 17:56:19 2000

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> Shireen I do live pretty close to you I think. I live near Deptford

>or

>near the Deptford Mall my second home.

>

>AMY

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Hi ,

I am SUPPOSED to be on a low fat, low sugar diet. But I dont diet. I try

not to eat foods with a lot of sugar, but otherwise I dont follow my docs

advice about diet. I am about 100 lbs overweight! But I hate dieting and

refuse to do it. I would rather die sooner and happy than later and hungry.

Shireen

>From: mhe3053904@...

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>Subject: Re: [ ] Shireen

>Date: Mon, 16 Oct 2000 02:10:10 EDT

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>

>Shireen - you know it really gets to me the way doctors blame everything on

>weight,

>I know sometimes excess weight can cause pain in legs and feet, etc. But it

>is not

>the answer to everything. I was 100lbs most of my life turned 40 had a

>hysterectomy, quit smoking and gave up caffeine and all hell broke loose t

>gained if

>I looked at food. I have tried to start drinking at least one cup of

>coffee

>a day but I

>really feel it, should it effect my liver like that? I desperately need

>the

>caffeine boost.

>You mentioned in one of your posts about you are on a low sugar, low fat

>diet

>can you share what you are eating? Any suggestions would be a big help.

>Thanks so

>much. Hugs,

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,

You know there is a type of coffee made by Maxwell House with only half the

caffeine. Or you could use instant and use part decaffineated and regular

mixed together.

Shireen

>From: mhe3053904@...

>Reply- egroups

> egroups

>Subject: Re: [ ] Shireen

>Date: Mon, 16 Oct 2000 02:10:10 EDT

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>

>Shireen - you know it really gets to me the way doctors blame everything on

>weight,

>I know sometimes excess weight can cause pain in legs and feet, etc. But it

>is not

>the answer to everything. I was 100lbs most of my life turned 40 had a

>hysterectomy, quit smoking and gave up caffeine and all hell broke loose t

>gained if

>I looked at food. I have tried to start drinking at least one cup of

>coffee

>a day but I

>really feel it, should it effect my liver like that? I desperately need

>the

>caffeine boost.

>You mentioned in one of your posts about you are on a low sugar, low fat

>diet

>can you share what you are eating? Any suggestions would be a big help.

>Thanks so

>much. Hugs,

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How true Shireen I am so tired of watching everyone else eat and I sit there

and

starve. A friend of ours just had a very bad liver infection they put him on

a diet

of 50fat grams a day, he is starving and is a tooth pic. I want a large

pizza so

bad. I like your way of thinking. Hug's

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  • 1 month later...

Thats how it started with my husband. He went to the ER with ches pain

thinking he was having a heart attack. After all the testing was done and

visiting the pulmonary dept for PFT's etc turned out to be Sarcoidosis

(another Auto Immune Disorder). It took about 4 months to finally confirm

the diagnosis, lots of tests along the way, hang in there....

Jen :)

On Wed, 06 Dec 2000 05:28:13 , egroups wrote:

> Gayle,

>

> I was having feelings of pressure in my chest as if something was sitting

on

> it. I went to emergency room and was admitted under cardiac service.

> Yesterday they did an echocardiogram, tried to do a stress test and did

a

> pulmonary function test. Today they did a carciac catheterization.

Result

> - heart fine, lungs causing the pain and need further evaluation by lung

> doctors.

>

> Shireen

>

>

> >From: galye@...

> >Reply- egroups

> > egroups

> >Subject: Re: [ ] Shireen

> >Date: Tue, 5 Dec 2000 23:04:52 EST

> >

> >Allright Shireen,

> >How are you now? What kind of chest pains are you having. What did they

do

> >for you in the hospital? I have chest pains and have had for a very long

> >time. They give me Adalat to calm chest pains and control my High blood

> >pressure. But the docs never say much to me. I am going to have an

> >Echocardiogram at the end of this month.

> >

> > gayle/trans.6-99

> >galye@... ^OO^

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

>

>

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Gayle,

I was in five days-8hours waiting in ER. What do you hate about the lung

doctors? Only thing they did that I did not like was bronchoscopy.

Shireen

>From: galye@...

>Reply- egroups

> egroups

>Subject: Re: [ ] Shireen

>Date: Wed, 6 Dec 2000 01:20:56 EST

>

>Shireen,

>Relief the heart is fine. But here is the issue of breathing again and lung

>health. I hate seeing the lung doctors they scare me more than all of them.

>Hope you feel better. You stayed overnight? Take care.

>

> gayle/trans.6-99

>galye@... ^OO^

>

>

>

>

>

>

>

>

>

>

>

>

>

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,

My brother was diagnosed with sarcoidosis (he was an MD), they did surgery

but at the age of 45 sucummed. If you have more information on sarcoidosis,

please let me know.

With prayers,

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Sarcoid udually isn't fatal but can be in about 5%. There is info on the

disease I believe at the American Lung Assoc Site. My husbands MD gave hima

pamphlet from there with stats on Sarcoid. Usual treatment is steroids. They

put him on prednisone and now on oral inhalers. How odd that I had never

heard of this disease before. How odd that there are so many Auto Imminue

Disorders floating around out there. Makes you wonder about our

environement.

Jen

On Thu, 7 Dec 2000 17:23:43 -0500, egroups wrote:

> ,

> My brother was diagnosed with sarcoidosis (he was an MD), they did

surgery

> but at the age of 45 sucummed. If you have more information on

sarcoidosis,

> please let me know.

> With prayers,

>

>

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,

How is sarcoidosis treated?

Shireen

>From: Canfield <jcando@...>

>Reply- egroups

> egroups

>Subject: Re: [ ] Shireen

>Date: Wed, 6 Dec 2000 15:48:00 -0800 (PST)

>

>Thats how it started with my husband. He went to the ER with ches pain

>thinking he was having a heart attack. After all the testing was done and

>visiting the pulmonary dept for PFT's etc turned out to be Sarcoidosis

>(another Auto Immune Disorder). It took about 4 months to finally confirm

>the diagnosis, lots of tests along the way, hang in there....

>

>Jen :)

>

>

>On Wed, 06 Dec 2000 05:28:13 , egroups wrote:

>

> > Gayle,

> >

> > I was having feelings of pressure in my chest as if something was

>sitting

>on

> > it. I went to emergency room and was admitted under cardiac service.

> > Yesterday they did an echocardiogram, tried to do a stress test and

>did

>a

> > pulmonary function test. Today they did a carciac catheterization.

>Result

> > - heart fine, lungs causing the pain and need further evaluation by

>lung

> > doctors.

> >

> > Shireen

> >

> >

> > >From: galye@...

> > >Reply- egroups

> > > egroups

> > >Subject: Re: [ ] Shireen

> > >Date: Tue, 5 Dec 2000 23:04:52 EST

> > >

> > >Allright Shireen,

> > >How are you now? What kind of chest pains are you having. What did

>they

>do

> > >for you in the hospital? I have chest pains and have had for a very

>long

> > >time. They give me Adalat to calm chest pains and control my High

>blood

> > >pressure. But the docs never say much to me. I am going to have an

> > >Echocardiogram at the end of this month.

> > >

> > > gayle/trans.6-99

> > >galye@... ^OO^

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> >

> >

>_______________________________________________________________________________\

______

> > Get more from the Web. FREE MSN Explorer download :

>http://explorer.msn.com

> >

>

>

>

>

>

>_______________________________________________________

>Tired of slow Internet? Get @Home Broadband Internet

>http://www.home.com/xinbox/signup.html

>

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, , et all,

I found out I have pulmonary hypertension. According to info on the net, I

have only 3 to 6 years to live. Tell me I am having a bad dream!

Shireen

>From: " Gelo " <dagelo@...>

>Reply- egroups

>< egroups>

>Subject: Re: [ ] Shireen

>Date: Thu, 7 Dec 2000 17:23:43 -0500

>

>,

>My brother was diagnosed with sarcoidosis (he was an MD), they did surgery

>but at the age of 45 sucummed. If you have more information on

>sarcoidosis,

>please let me know.

>With prayers,

>

>

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Hi Jen,

I think you are right about environmental toxins accounting for such an

incredible increase in autoimmune diseases...some marine biologists in FL

blame the water, yet still the psychologists blame stress. Hope we can

survive both.

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Shireen,

Sarcoidosis sometimes is not treated and generally goes away. Some

people are put on steroids. My husband just went through two weeks of

prednisone (he had to beg for it) and now on some kind of oral steroid

inhaler.

Before his diagnosis, he thought he was having a heart attack, chest

pain, difficulty breathing, and you could hear crackling in his lungs. The

xray tech couldn't even get him to get enough air in his lungs to take a

proper xray while in the ER and they had to call him back for a second film.

They saw swollen nodes in the xray, requested a cat scan and found a ton of

swollen nodes in his lungs and around his heart. The did a biopsy vs a

bronchoscopy and when they went in, they were so alarmed with all the nodes

that just came to surface their first reaction was that it was lymphoma. The

pathologist biopsied and froze the node and confirmed it wasn't. Just a real

bad case of Sarcoidosis.

My Gastro saw me in the hallway during the surgery and came to see me.

He was suprised to hear that my husband had sarcoidosis as its usually seen

in Black men. My husband is norweigan/scandinavian. History of this disease

is also present in northen europeans so perhaps this is how he got it.

There is also speculation that this disease is somehow related to the

environment. My husband works with paper products and recently a report came

out about the " triplicate forms " (carbonless paper) and how they can be

toxic, especially to those who use them often. We wonder but don't know.

Oppps... sorry for ranting on...

Jen

On Fri, 08 Dec 2000 06:28:04 , egroups wrote:

> ,

>

> How is sarcoidosis treated?

>

> Shireen

>

>

> >From: Canfield <jcando@...>

> >Reply- egroups

> > egroups

> >Subject: Re: [ ] Shireen

> >Date: Wed, 6 Dec 2000 15:48:00 -0800 (PST)

> >

> >Thats how it started with my husband. He went to the ER with ches pain

> >thinking he was having a heart attack. After all the testing was done

and

> >visiting the pulmonary dept for PFT's etc turned out to be Sarcoidosis

> >(another Auto Immune Disorder). It took about 4 months to finally

confirm

> >the diagnosis, lots of tests along the way, hang in there....

> >

> >Jen :)

> >

> >

> >On Wed, 06 Dec 2000 05:28:13 , egroups wrote:

> >

> > > Gayle,

> > >

> > > I was having feelings of pressure in my chest as if something was

> >sitting

> >on

> > > it. I went to emergency room and was admitted under cardiac

service.

> > > Yesterday they did an echocardiogram, tried to do a stress test and

> >did

> >a

> > > pulmonary function test. Today they did a carciac catheterization.

> >Result

> > > - heart fine, lungs causing the pain and need further evaluation by

> >lung

> > > doctors.

> > >

> > > Shireen

> > >

> > >

> > > >From: galye@...

> > > >Reply- egroups

> > > > egroups

> > > >Subject: Re: [ ] Shireen

> > > >Date: Tue, 5 Dec 2000 23:04:52 EST

> > > >

> > > >Allright Shireen,

> > > >How are you now? What kind of chest pains are you having. What did

> >they

> >do

> > > >for you in the hospital? I have chest pains and have had for a very

> >long

> > > >time. They give me Adalat to calm chest pains and control my High

> >blood

> > > >pressure. But the docs never say much to me. I am going to have an

> > > >Echocardiogram at the end of this month.

> > > >

> > > > gayle/trans.6-99

> > > >galye@... ^OO^

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > >

> > >

>

>_______________________________________________________________________________\

______

> > > Get more from the Web. FREE MSN Explorer download :

> >http://explorer.msn.com

> > >

> >

> >

> >

> >

> >

> >_______________________________________________________

> >Tired of slow Internet? Get @Home Broadband Internet

> >http://www.home.com/xinbox/signup.html

> >

>

>

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Shireen,

Do you have Primary or Seconday Pulmonary Hypertension. My niece was diagnosed

over 7

years ago and she is doing great. She is married, bought a house and my sister

in law is

carrying her baby (invitro) and she is due in June. My niece is on disability

and also

due to our high altitude is on 2 liters of oxygen. She was in the trials for

the new

meds that were out and she has responded great. Please don't be scared. There

is a alot

that the internet hasn't told you. There is also a support group. Hang in

there.

Cyndi

(Colorado)

susan johnson wrote:

> , , et all,

>

> I found out I have pulmonary hypertension. According to info on the net, I

> have only 3 to 6 years to live. Tell me I am having a bad dream!

>

> Shireen

>

> >From: " Gelo " <dagelo@...>

> >Reply- egroups

> >< egroups>

> >Subject: Re: [ ] Shireen

> >Date: Thu, 7 Dec 2000 17:23:43 -0500

> >

> >,

> >My brother was diagnosed with sarcoidosis (he was an MD), they did surgery

> >but at the age of 45 sucummed. If you have more information on

> >sarcoidosis,

> >please let me know.

> >With prayers,

> >

> >

>

>

________________________________________________________________________________\

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>

>

>

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Cyndi,

Thank you for those helpful words. I guess it is secondary due to COPD and

asthma.

Shireen

>From: yankeeig@...

>Reply- egroups

> egroups

>Subject: Re: [ ] Shireen

>Date: Sat, 09 Dec 2000 09:40:35 -0700

>

>Shireen,

>Do you have Primary or Seconday Pulmonary Hypertension. My niece was

>diagnosed over 7

>years ago and she is doing great. She is married, bought a house and my

>sister in law is

>carrying her baby (invitro) and she is due in June. My niece is on

>disability and also

>due to our high altitude is on 2 liters of oxygen. She was in the trials

>for the new

>meds that were out and she has responded great. Please don't be scared.

>There is a alot

>that the internet hasn't told you. There is also a support group. Hang in

>there.

>

>Cyndi

>(Colorado)

>

>susan johnson wrote:

>

> > , , et all,

> >

> > I found out I have pulmonary hypertension. According to info on the

>net, I

> > have only 3 to 6 years to live. Tell me I am having a bad dream!

> >

> > Shireen

> >

> > >From: " Gelo " <dagelo@...>

> > >Reply- egroups

> > >< egroups>

> > >Subject: Re: [ ] Shireen

> > >Date: Thu, 7 Dec 2000 17:23:43 -0500

> > >

> > >,

> > >My brother was diagnosed with sarcoidosis (he was an MD), they did

>surgery

> > >but at the age of 45 sucummed. If you have more information on

> > >sarcoidosis,

> > >please let me know.

> > >With prayers,

> > >

> > >

> >

> >

>_______________________________________________________________________________\

______

> > Get more from the Web. FREE MSN Explorer download :

>http://explorer.msn.com

> >

> >

> >

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Hello Shireen,

I didn't know that. Besides Santa Claus we do have another white bearded guy

over here in the December month. I do think this is typical Dutch. He is a

bishop comming from Spain and is called Sinterklaas. He arrives here in

Holland in the third week of November by boat with his helpers called

" zwarte Piet = black Piet' and with his white horse 'Schimmel'.

All children give him a big welcome in the harbor. He actually lookes like

'the pope', but is all dressed up in red. His helpers are black man and

woman all dressed up in colourfull clothing and whenever they come across

children they give them ginger-nuts and other candy.

Untill the 5th of December (that is his birthday) children are allowed to

place a shoe by the fireplace/ or nowadays central heating. They put notes

in their shoe for Sinterklaas, a carrot for the horse, sing special

Sinterklaas songs and then they go to bed. Over night Sinterklaas and his

helpers go on the roof and put present down the chimney so the next morning

when the children wake up they will find a present in their shoe. This is so

funny.

And on December 5th in the evening children are waiting for loud knocking on

the frontdoor, and when the door is opened there usually is a big bag full

of presents. These couple of weeks are really exciting for children, candy

and presents everywhere!

Take care

Loes, The Netherlands

Re: [ ] Loes

> >Date: Wed, 13 Dec 2000 09:27:38 +0100

> >

> >

> >

> >

> >Hello Shireen & Carolyn,

> >

> >In the Netherlands we don't have any special Christmas traditions other

> >than

> >in the US. For most people here Christmas is all about the celebration of

> >the birth of Jezus Christ. For me Christmas is all about love for family,

> >friend and life. We decorate our houses with trees, lights and christmas

> >balls. Everywhere you look you see houses decorated and candles

everywhere.

> >The 25th and the 26th are normally spent amongst family, friends and/ or

> >loved-ones with luxurious meals, music, songs and presents under the

tree.

> >So I don't think this differs from Christmas in your country.

> >

> >For all the lovely people here:

> >

> >

> >I wish you a dreamy and merry Christmas

> >

> >I wish you

> >the Joy of Christmas:

> >that is Hope.

> >

> >I wish you

> >the Spirit of Christmas:

> >that is Peace.

> >

> >I wish you

> >the Hart of Christmas:

> >that is Love.

> >

> >

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> >Greetings Loes, The Netherlands

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  • 4 weeks later...

I didn't even know I had a kidney stone, but they found red blood cells in my urine, and went looking for the cause. I had the staghorn type that doesn't move. Look up Kidney stones and E..S.W.L. , that's the Lithotripsy method of breaking up stones.

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  • 4 months later...
  • 1 year later...

Dear Shireen,

My husband has developed lots of allergies recently. We don't believe that it will be anything more than that and nobody has indicated that we should worry, even knowing my health history and our sensitivity to anything autoimmune. His family seems to develop more severe allergies as they get older, so we just deal with them.

Don't worry unless someone gives you an informed reason to.

Amy

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Thank you for your response. It is comforting.

Shireen

>From: holzboog@...

>Reply-

>

>Subject: [ ] Re: Shireen

>Date: Thu, 24 Oct 2002 13:54:54 EDT

>

>Dear Shireen,

> My husband has developed lots of allergies recently. We don't

>believe

>that it will be anything more than that and nobody has indicated that we

>should worry, even knowing my health history and our sensitivity to

>anything

>autoimmune. His family seems to develop more severe allergies as they get

>older, so we just deal with them.

> Don't worry unless someone gives you an informed reason to.

>

>Amy

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