Re: Budesonide?

[Guest guest]

Hi Lyn,

Are you taking Lasix? You will certainly swell being on steroids just something you have to deal with. There are different kinds of steroids where one won't work another type will. Be patient with yourself. I swell and have for 2 years post transplant. I am lucky however my transplant team wean every patient off steroids as soon as they can. I also have COPD and Asthma where I have attacks that put me in the hospital and they give me high doses of steroids every time. I hate Pred. makes me crazy but I know I have to do it. Takes a very long time to adjust your medications to your body. The docs call it your own recipe. Hang in there and do ask many questions to your care team they will give you some info just keep digging.

gayle trans/6-99 ^oo^

galye@...

[Guest guest]

In a message dated 10/21/01 1:32:31 PM Pacific Daylight Time, mimigrits@... writes:

Hi Lynne,

Thanks for posting.I have not heard of budesonide

before,I will look it up. Waking up choking sounds

frightening,what does the doc say about this fluid

retention? I'm not familiar with weight in stones.What equals

a stone in pounds. Ann AIH 4/1/01

Ann, I don't think budnisone is yet approved for use in the United States. It is another steroid that may have fewer (or at least different) side effects than prednisone.

A stone is 14 pounds.

Harper (AIH 5/00)

[Guest guest]

--- echoes_in_eternity@... wrote:

> A quick question. Has anyone or does anyone know of

> someone who has

> taken Budesonide for their AIH? This is currently

> what I'm on and it

> seems to be doing the trick for my liver. Its

> supposedly a steroid

> which goes straight to the liver and shouldn't cause

> any side

> effects. So yes, its doing the trick for my liver

> but my fluid

> retention has gotten ridiculous. I woke up during

> the night last

> night choking because the fluid had gathered so

> badly under my chin.

> Since I started the Budesonide, my fluid has gotten

> increasingly

> worse, I have been waking during the night with

> double the amount I

> had before sleeping, usually accompanied with huge

> fat lips. I've

> already got Arthritis and the extra fluid around my

> joints is making

> that even more painful. It seems with me, I have to

> keep swapping one

> set of stuff for another. I'm getting a little tired

> of it to be

> honest with you. I'm just happy I'm not a

> particularly vain person.

> Theres quite a few girls my age I know who'd be

> suicidal looking like

> I do at the moment. I look like I've been

> constructed out of water

> balloons! Trying to see the funny side but after 2

> and a half years

> of being patient where the fluid is concerned, I'm

> kind of running

> out of patience now that its getting WORSE on a

> medication thats

> supposed to be free of this. I've put 1 and a half

> stones on in less

> than a month.

>

> My Specialist told me a few months back I have an

> intolerance to

> steroids. So my question to him will be this, if I'm

> so intolerant to

> steroids, why put me on another steroid...just a

> different kind?? Oh

> I've ranted a little. I'm just a bit tired today.

> Getting up to the

> loo every hour during the night for 2 and a half

> years then choking

> must be catching up on me...lol.

>

> Thanks in advance.

> Lynne Clacher.

> Diagnosed - 24/05/00

> Currently on 10 mg Prednisone, 9mg Budesonide, 150mg

> Azathioprine

>

>

Hi Lynne,

Thanks for posting.I have not heard of budesonide

before,I will look it up. Waking up choking sounds

frightening,what does the doc say about this fluid

retention?

I'm not familiar with weight in stones.What equals

a stone in pounds. Ann AIH 4/1/01

pred 20mg imuran 100mg

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