Guest guest Posted November 12, 1999 Report Share Posted November 12, 1999 Dear Kay K: I've had numbness and tingling off and on in both arms and hands. I've attributed it to the prednisone and the pitting edema in my limbs. I was kind of surprised that your dermatologist would presume to tell you to get off of the medications that you're taking for the AIH. What reason did he give for wanting you to get off of them? Did you tell him that they were helping to bring your LFT's down? At least he had heard of AIH. I went and saw a dermatologist for some worrisome brown spots that had appeared all over. He said that he had never heard of AIH and acted like he thought I was making it up. He was a real piece of work all the way around and by far one of my worst doctor experiences! Hope you have a good weekend! Kathy (AIH) Seattle area Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 1999 Report Share Posted November 12, 1999 Geri, you know you could get references here in a New York minute! Question: is Atrieva a software you bought or something that can be downloaded? I wonder if the Climara patch works for perimenopause? Do you know? My only problem is night sweats but my FSH has yet to show I'm entering menopause. My dermatologist (I see him for the rashes and itching) prescribed Sumycin and Doxepin. My hepatologist didn't say anything about it. Then when I saw the dermatologist after my last biopsy, he asked why I was taking Actigall, Imuran AND prednisone. I told him about the AIH and PBC and HE wanted me to stop them, even tho' the hep didn't say a word! But I didn't want to stop them because they seemed to be controlling the rashes and itching that were making my life hell. I also take Wellbutrin to try to quit smoking, and the hepatologist has said nothing about that. Ginger, I don't know if cold is preferred to heat for migraines, but I do know ice is better for active inflammation, heat is better after it is under control. I have a prescription for darvocet, which helped me a lot when I damaged a rib. The only thing I have been told FOR SURE not to take is Tylenol, but the site someone, Geri, I think, posted about Tylenol was a real eye opener. Of course with migraine pain, a couple of Tylenol wouldn't begin to help. Peggy, what is dolobid? I have numbness and tingling in my left arm and it is unexplained. It started a couple of months ago. Geri, the more you talk about your mother, the more upset I get for you. I can't fathom how you have borne it. Have a good evening, all. KayK in Austin, AIH/PBC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 1999 Report Share Posted November 12, 1999 Kay, Any possible correlation between the numbness in your arm and the Wellbutrin? A friend of mine is having " funny " sensations that his doctor attributes to Wellbutrin. kak wrote: > > From: " kak " <majuli@...> > > Geri, you know you could get references here in a New York minute! > > Question: is Atrieva a software you bought or something that can be > downloaded? > > I have numbness and tingling in my left arm and it is unexplained. It > started a couple of months ago. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 1999 Report Share Posted November 12, 1999 Barbara, I don't know. I have been taking Wellbutrin for a year. Maybe there is some kind of build-up side-effect I don't know about, but why would an antidepressant cause such a thing? Why does his doc attribute his sensations to Wellbutrin? I guess I just want to know whether it is something to worry about. In my research I can't find anything that mentions to what it might be attributable. > Any possible correlation between the numbness in your arm and the > Wellbutrin? A friend of mine is having " funny " sensations that his > doctor attributes to Wellbutrin. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 1999 Report Share Posted November 12, 1999 Kathy, what is " pitting " edema? I was wondering why I only had this in my left arm (I am right-handed). To date, I haven't suffered the problems with edema many of you have, but, ironically, just about 30 minutes ago, I looked at how big my legs look (once my best feature; now my worst) and wondered if I shouldn't be on a diuretic. This group is so amazing for giving us new insights, questions to pursue, etc. I see my hep Tues. to get the results of my first labs since adding Imuran and Actigall to the Prednisone. I, thanks to this group, have compiled questions to ask him that I never would have thought of. Kathy, sorry to be misleading - the meds he wanted me off of (due to their being processed first and foremost in the liver) were meds he, the dermatologist, had prescribed. I have attained a beneficial advantage that I believe is very important. Even though my docs are very far away, they are all in the same building: the allergist, the dermatologist, my internist and my hepatologist. They all share computer access to my records, test results, etc We have all had crummy doc experiences, myself included. That's why I think a project to somehow summarize in a cogent, powerful, meaningful way all we know (have learned), all the sources we use, etc., etc. is so important. If I were not absolutely alone and didn't have to work, I would spearhead or be at least equal partners in such an endeavor. I know others have said this, but I mean it literally - this group has absolutely changed my life. Sorry to ramble, and thanks for sharing. Hope you have an ever better weekend! And please, could people who post, no matter how long they have been posting, for the benefit of all newcomers, put their dx after their handles! Like so: KayK, AIH/PBC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 1999 Report Share Posted November 13, 1999 Kay, Edema in the upper legs is a symptom of liver disease. Possibly other things, too, but that was one of the most startling things I noticed when I was blown up like a balloon. Like everything else, everyone may not have a problem, but I've always had " skinny " legs, so it was really noticeable on me. I had edema problems for years and didn't even recognize it. I had a plain gold wedding band that I never removed, but one day in 1989 I noticed that my finger was bleeding under the band. My hand was so swollen the band was cutting my finger. I finally got it off and I haven't been able to wear it since, though it might fit now since I'm taking diuretics and seem not to have much edema anymore. My upper legs still look puffy and of course my abdomen is always hard and swollen. After that I figured that my doctors must be right when they blamed my distended midsection on age and " natural " weight gain, so I didn't pay much attention. After all, many of us do tend to gain weight as we grow older, even if we were always slim. When my feet and ankles began to swell so badly I couldn't wear most of my shoes in 1997, I finally started looking for answers. That's when they discovered end-stage liver disease and Stage IV cirrhosis. I honestly don't recall feeling sick except during the weeks immediately preceding diagnosis, though I had a lot of oddball symptoms that I shrugged off because that was my doctors approach to them. I was put on heavy duty lasix immediately during and after hospitalization in 1997. I was taking 80 mg. lasix, but I don't remember if it was once or twice a day. I stayed on that level until I started Prednisone more than a month after diagnosis, I think. My memory of that period is a little hazy. I've been taking diuretics for two years now but I was put on a potassium sparing diuretic instead of straight lasix. They started me on Aldactone which was a great diuretic but also caused terrible breast tenderness. I was then switched to Ameloride. I've had to double the Ameloride and add lasix again (40 mgs. daily) during the past year or so to control edema. About a year ago, despite all of the diuretics, my feet and ankles became so swollen you couldn't tell I had bones. A short term on Aldactone (prescribed by my docs associate - and unprescribed immediately by my doctor a week later) brought the edema under control. Your doctor may not be prescribing diuretics yet because they aren't indicated. They apparently can be very hard on your kidneys. Take care, Geri/AIH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 1999 Report Share Posted November 15, 1999 In a message dated 11/12/1999 9:33:59 PM Eastern Standard Time, KATBERCOO@... writes: << He said that he had never heard of AIH and acted like he thought I was making it up. He was a real piece of work all the way around and by far one of my worst doctor experiences! >> Kathy, Maybe we should all write a book about the stupid doctors we've seen! That one would sure qualify! Hugs, (AIH?) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 1999 Report Share Posted November 15, 1999 In a message dated 11/12/1999 9:33:59 PM Eastern Standard Time, KATBERCOO@... writes: << He said that he had never heard of AIH and acted like he thought I was making it up. He was a real piece of work all the way around and by far one of my worst doctor experiences! >> Kathy, Maybe we should all write a book about the stupid doctors we've seen! That one would sure qualify! Hugs, (AIH?) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 1999 Report Share Posted November 15, 1999 In a message dated 11/12/1999 7:59:24 PM Eastern Standard Time, majuli@... writes: << I wonder if the Climara patch works for perimenopause? Do you know? My only problem is night sweats but my FSH has yet to show I'm entering menopause. >> Kay, Does your gyn know about the night sweats? Unless these diseases are causing it, and we know that anything is possible there! Otherwise, I'd think you should be on SOME kind of estrogen replacement. You should not have to suffer with night sweats. They were my first obvious symptom, and the gyn immediately put me on estrogen. Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 1999 Report Share Posted November 16, 1999 I use soy isoflavonoids, they are similar to estrogen, but none of the side effects. No prescription needed, can buy over the counter or health food store. J >From: La7de@... >Reply- onelist > onelist >Subject: Re: [ ] Bits 'n' Pieces >Date: Tue, 16 Nov 1999 07:46:36 EST >MIME-Version: 1.0 >From sentto-165537-8914-shireen42 Tue Nov 16 04:47:15 1999 >Received: from [209.207.164.55] by hotmail.com (3.2) with ESMTP id >MHotMailB9FA9D530005D821979AD1CFA43705350; Tue Nov 16 04:47:15 1999 >Received: (qmail 23652 invoked by alias); 16 Nov 1999 12:46:46 -0000 >Received: (qmail 23640 invoked from network); 16 Nov 1999 12:46:45 -0000 >Received: from unknown (209.207.164.239) by pop5.onelist.com with QMQP; 16 >Nov 1999 12:46:45 -0000 >Received: from unknown (HELO imo11.mx.aol.com) (198.81.17.1) by >mta1.onelist.com with SMTP; 16 Nov 1999 12:46:45 -0000 >Received: from La7de@... by imo11.mx.aol.com (mail_out_v24.4.) id >h.0.ca03935a (4557) for < onelist>; Tue, 16 Nov 1999 >07:46:37 -0500 (EST) >Message-ID: <0.ca03935a.2562ac2c@...> >X-Mailer: AOL 4.0 for Windows 95 sub 39 >Mailing-List: list onelist; contact > -owneronelist >Delivered-mailing list onelist >Precedence: bulk >List-Unsubscribe: <mailto: -unsubscribeONElist> > >In a message dated 11/12/1999 7:59:24 PM Eastern Standard Time, >majuli@... writes: > ><< > I wonder if the Climara patch works for perimenopause? Do you know? My > only problem is night sweats but my FSH has yet to show I'm entering > menopause. > >> >Kay, >Does your gyn know about the night sweats? Unless these diseases are >causing >it, and we know that anything is possible there! Otherwise, I'd think you >should be on SOME kind of estrogen replacement. You should not have to >suffer with night sweats. They were my first obvious symptom, and the gyn >immediately put me on estrogen. >Hugs, > > >------------------------------------------------------------------------ >Please support the American Liver Foundation! > >1.) To subscribe send e-mail to -subscribeonelist >2.) To UNsubscribe send to -unsubscribeonelist >3.) Digest e-mail format send to -digestonelist >4.) Normal e-mail format send to -normalonelist ><< text3.html >> Quote Link to comment Share on other sites More sharing options...
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