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Hi there

I haven't posted for a while but I have found the group very helpful

and would just like to say first of all that is is great to have

these sort of forums because often one can feel very alone with this

condition. I live in Ireland where there is one treatment and one

treatment only available and that is Eltroxin (synthetic T4).

Just over a year ago I decided to try something else as I just did

not feel well on this drug. Despite my blood results appearing

normal I remained unwell and no one from my GP to my Endocrinologist

could help me. So I decided to self medicate and ordered Tertroxin

(T3)from the internet. I kept my Doc informed of what I was doing

and he agreed to monitor me but he would not prescribe Eltroxin so

that meant taking the t3 on it's own. Tertroxin seemed to help some

of the symptoms in particular the fluid retention and my

depression. While on Eltroxin I had also been taking parox for the

depression which I never felt comfortable with and I eventully had

to wean myself off it.

However I still suffer from severe fatigue, muscle weakness, joint

stiffness and I have chronic urine infections (I don't know if this

is related to the hypothyroidism or not). My doctor wants me to

start taking Eltroxin again but I would have to stop the Tertroxin

and quite frankly I am not at all happy about that. At the moment i

am not sure what to do. I noted in one of the posts that someone was

taking Novothyral and that it was a combined (T4 & T3)treatment. I

had never heard of this before and does anyone know anymore about it.

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Hi,

Novothyral is synthetic T4 + T3 manufactured by Merck (a German pharmaceutical

company). In Belgium, where I live, it is called Novothyral; in France the same

drug is called Euthyral.

If you live in Ireland, it should not be too difficult for you to find a top

doc in Belgium. We have plenty of them (check www.geocities.com/thyroide);

Thierry Hertoghe, Dr Cooremans etc...they are all excellent, and they have one

thing in common: they prescribe Armour or synthetic combination drugs like

Novothyral. Dr Hertoghe, who is my endo, speaks excellent English and has also

written an excellent book that I would like to recommend to all people suffering

some kind of hormonal disorder: " The hormone solution " .

Belgium seems to be famous among Europeans because this country has a lot of

top docs and also many pharmacies carrying Armour. I know people come here from

France, the Netherlands etc to get Armour.

If you have ordered T3 on the net, why not order T4 as well (Euthyrox,

Syntroid etc)? They are all available from net pharmacies.

Good luck,

Catarina

---------------------------------

DSL Something to write home about. Just $16.99/mo. or less

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Hi there,

have you had tests of your free T3 and T4? I also did T3 only treatment

for some months but found that I needed T4 as well.

Your dosing seems a bit random from the way you have written about

it....a health log is a must if you are self medicating - do you do one?

I found that the T3 cleared up my depression (it was bad) and strain

injuries that I had - not all the stiffness has gone.

I couldn't say that taking T4 has alleviated any of my symptoms but it

acted as a " stabilising background " for the T3 - this is not scientific

at all just how it feels for me - the T3 alone was not enough - I felt

up and down on it even though my symptoms were better - when I took T4

alone I got very sick and then when I combined both it worked much

better.

I take time release t3 as the tertroxin makes me jittery.

You don't have to stop the T4 just take less and experiment till you

have the right proportion - this is where the log is invaluable - takes

the subjectivity out of it.

Kerry

T3 only

Hi there

I haven't posted for a while but I have found the group very helpful

and would just like to say first of all that is is great to have

these sort of forums because often one can feel very alone with this

condition. I live in Ireland where there is one treatment and one

treatment only available and that is Eltroxin (synthetic T4).

Just over a year ago I decided to try something else as I just did

not feel well on this drug. Despite my blood results appearing

normal I remained unwell and no one from my GP to my Endocrinologist

could help me. So I decided to self medicate and ordered Tertroxin

(T3)from the internet. I kept my Doc informed of what I was doing

and he agreed to monitor me but he would not prescribe Eltroxin so

that meant taking the t3 on it's own. Tertroxin seemed to help some

of the symptoms in particular the fluid retention and my

depression. While on Eltroxin I had also been taking parox for the

depression which I never felt comfortable with and I eventully had

to wean myself off it.

However I still suffer from severe fatigue, muscle weakness, joint

stiffness and I have chronic urine infections (I don't know if this

is related to the hypothyroidism or not). My doctor wants me to

start taking Eltroxin again but I would have to stop the Tertroxin

and quite frankly I am not at all happy about that. At the moment i

am not sure what to do. I noted in one of the posts that someone was

taking Novothyral and that it was a combined (T4 & T3)treatment. I

had never heard of this before and does anyone know anymore about it.

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The only tests done here in Ireland as a matter of routine are tsh

and T4. I have been taking synthetic T3 (20mcg)for the last year

and my doctor has had to write on the lab form in CAPITAL LETTERS

PLEASE TEST FOR T3 as the they only seem to want to test for T4. I

have had to buy it over the internet because it is not available in

Ireland. That is how bad it is here. There is no choice for people

whatsoever. I would be quite happy to take T4 and T3 but my doctor

has refused to prescribe Eltroxin while I am taking Tertroxin.

I get so frustrated sometimes as the medical profession here are so

rigid its T4 or nothing. We have one Endocrinologist here in County

Galway and he pointed out to me that I should not be looking for

answers on the internet. I was informed that he had been a

specialist for over thirty years and there was only one thyroid test

that had any significance at all and that was the TSH. He also

pointed out to me that the only treatment that works is T4.

As far as I am concerned this is nonsense because I am the one who

has to live with this condition and I know for sure that for me T4

and especially Eltroxin most definitely does not work!

This is one of the reasons I asked about the Novothyral if this is

a combination drug and I am able to purchase it myself without a

prescription then I would just love to try it out. I have no faith

in health care in Ireland whatsoever. Up until three years ago I

was a fully functioning human being holding down a job (I had

previously been a nurse in Scotland) Now there are days when I can

hardly get out of bed, I get so tired. It really is a disgrace.

Sorry for ranting on but I really envy all of you who have doctors

who listen and are prepared to try and find ways to put you on the

road to recovery.

>

> Hi there,

> have you had tests of your free T3 and T4? I also did T3 only

treatment

> for some months but found that I needed T4 as well.

>

> Your dosing seems a bit random from the way you have written about

> it....a health log is a must if you are self medicating - do you

do one?

>

> I found that the T3 cleared up my depression (it was bad) and

strain

> injuries that I had - not all the stiffness has gone.

>

> I couldn't say that taking T4 has alleviated any of my symptoms

but it

> acted as a " stabilising background " for the T3 - this is not

scientific

> at all just how it feels for me - the T3 alone was not enough - I

felt

> up and down on it even though my symptoms were better - when I

took T4

> alone I got very sick and then when I combined both it worked much

> better.

> I take time release t3 as the tertroxin makes me jittery.

>

> You don't have to stop the T4 just take less and experiment till

you

> have the right proportion - this is where the log is invaluable -

takes

> the subjectivity out of it.

> Kerry

>

> T3 only

>

>

> Hi there

>

> I haven't posted for a while but I have found the group very

helpful

> and would just like to say first of all that is is great to have

> these sort of forums because often one can feel very alone with

this

> condition. I live in Ireland where there is one treatment and one

> treatment only available and that is Eltroxin (synthetic T4).

>

> Just over a year ago I decided to try something else as I just did

> not feel well on this drug. Despite my blood results appearing

> normal I remained unwell and no one from my GP to my

Endocrinologist

> could help me. So I decided to self medicate and ordered

Tertroxin

> (T3)from the internet. I kept my Doc informed of what I was doing

> and he agreed to monitor me but he would not prescribe Eltroxin so

> that meant taking the t3 on it's own. Tertroxin seemed to help

some

> of the symptoms in particular the fluid retention and my

> depression. While on Eltroxin I had also been taking parox for

the

> depression which I never felt comfortable with and I eventully had

> to wean myself off it.

>

> However I still suffer from severe fatigue, muscle weakness, joint

> stiffness and I have chronic urine infections (I don't know if

this

> is related to the hypothyroidism or not). My doctor wants me to

> start taking Eltroxin again but I would have to stop the Tertroxin

> and quite frankly I am not at all happy about that. At the moment

i

> am not sure what to do. I noted in one of the posts that someone

was

> taking Novothyral and that it was a combined (T4 & T3)treatment. I

> had never heard of this before and does anyone know anymore about

it.

>

>

>

>

>

>

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First of all let me say thank you to everyone who has replied to my

posts. I will definitely take on board the various pieces of advice

you have given. I was particularly interested in 's info about

the Endocrinologist in Ireland where I live. I read the article by

Dr McGovern and I have to say he impressed me a lot more

than the man I was referred to in Galway.

I think one of the major things with any illness is to find a doctor

who will listen and take on board what you are saying to them. Alot

of the time thatis down to luck but of course it's also down to

geography and need I say it money. We all should be treated as

individuals in a holistic manner keeping in mind that our physical

and emotional well being are directly linked to one another.

I am sure there are many of you like myself who have left the

Doctor's surgery at times feeling that this is all in your mind and

you are a hypochondriac wasting his or her PRECIOUS time. One of

the doctor's in my family practice actually said to me on one

occasion, " What is it you want us to do? Your blood tests are fine

and you are on the correct medication. Eltroxin is the only

treatment we have, there is nothing else. " I had previously asked

this woman what kind of hypothyroidism I had and was I suffering

from Hashimotos? Her response was to shrug her shoulders and say

that she didn't thinks so. I later found out it was Hashimoto's.

I have to say that this woman is not typical of the doctor's in our

practice but how many people like myself have went to her and came

out feeling worse than when they went in!

> >

> > Hi there,

> > have you had tests of your free T3 and T4? I also did T3 only

> treatment

> > for some months but found that I needed T4 as well.

> >

> > Your dosing seems a bit random from the way you have written

about

> > it....a health log is a must if you are self medicating - do you

> do one?

> >

> > I found that the T3 cleared up my depression (it was bad) and

> strain

> > injuries that I had - not all the stiffness has gone.

> >

> > I couldn't say that taking T4 has alleviated any of my symptoms

> but it

> > acted as a " stabilising background " for the T3 - this is not

> scientific

> > at all just how it feels for me - the T3 alone was not enough -

I

> felt

> > up and down on it even though my symptoms were better - when I

> took T4

> > alone I got very sick and then when I combined both it worked

much

> > better.

> > I take time release t3 as the tertroxin makes me jittery.

> >

> > You don't have to stop the T4 just take less and experiment till

> you

> > have the right proportion - this is where the log is invaluable -

> takes

> > the subjectivity out of it.

> > Kerry

> >

> > T3 only

> >

> >

> > Hi there

> >

> > I haven't posted for a while but I have found the group very

> helpful

> > and would just like to say first of all that is is great to have

> > these sort of forums because often one can feel very alone with

> this

> > condition. I live in Ireland where there is one treatment and

one

> > treatment only available and that is Eltroxin (synthetic T4).

> >

> > Just over a year ago I decided to try something else as I just

did

> > not feel well on this drug. Despite my blood results appearing

> > normal I remained unwell and no one from my GP to my

> Endocrinologist

> > could help me. So I decided to self medicate and ordered

> Tertroxin

> > (T3)from the internet. I kept my Doc informed of what I was

doing

> > and he agreed to monitor me but he would not prescribe Eltroxin

so

> > that meant taking the t3 on it's own. Tertroxin seemed to help

> some

> > of the symptoms in particular the fluid retention and my

> > depression. While on Eltroxin I had also been taking parox for

> the

> > depression which I never felt comfortable with and I eventully

had

> > to wean myself off it.

> >

> > However I still suffer from severe fatigue, muscle weakness,

joint

> > stiffness and I have chronic urine infections (I don't know if

> this

> > is related to the hypothyroidism or not). My doctor wants me to

> > start taking Eltroxin again but I would have to stop the

Tertroxin

> > and quite frankly I am not at all happy about that. At the

moment

> i

> > am not sure what to do. I noted in one of the posts that someone

> was

> > taking Novothyral and that it was a combined (T4 & T3)treatment.

I

> > had never heard of this before and does anyone know anymore

about

> it.

> >

> >

> >

> >

> >

> >

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  • 2 years later...

>

> Hi everyone,

> Haven't written for some time, however Have been reading my emails

on a regular basis. Is there anyone out there who takes T3 only?. I'm

also on 50mg of Hydro cortisone split dose. Since starting the T3 four

weeks ago Ive lost quite a bit of weigh without trying. I am pleased

as my very puffy pitted ankles have disappeared and I can breath so

much more easily and don't get breathless like before. I'm on 50mg. I

couldn't convert the T4 properly and only managed to get up to 45mg of

Armour before getting weird head pains. I'm under the careful eye of

Dr Peatfield. I just wandered if anyone shared my experiences. I would

like to chat with u.

> Thanks

> Bev x

hi Bev

I am a newbie on the board. May I first say I cannot discuss yet the

T3 issue which u raise, but I am hoping to be able to soon. I have

been begging for an alternative treatment to T4 for over 18 months now

since I found out about it on the net. I have asked the doc for

Armour, but maybe T3 would be better.In your experience, what is wrong

with Armour? and how did you find out you needed cortisone? I cannnot

get them to test for this.

Do you think cytomel T3 topped up with a little T4 might be the best

treatment. I ask you in particular because you mention the

breathlessness which I have been living with for years and is really

one of the worse parts of the condition. Plus of course the pitted

swollen fatty body eeeeeuwww lol.

Oh by the why, where is your Doc located? I might need another opinion.

God Bless

Dawn

>

>

>

________________________________________________________________________________\

____

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

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>

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Hi Bev I was like you got up to 1 grain armour and had headaches which did not stop. Dr P advised me to try T3 and 1/2 grain of armour, but still got headaches so went to just T3 and pain, fatigue and brain fog dissappearerd gradually, and eventually when I was on about 100mg T3 I was able to exercise again and the weight just fell off me. Currently just on 20 mg Cortef waiting for appointment with Dr Burrows at huddersfield Caroline Beverley <bevmiller48@...> wrote: there anyone out there who takes T3 only?. I'm also on 50mg of Hydro cortisone split dose. Since starting the T3 four weeks ago Ive lost quite a bit of weigh without trying. I am pleased as my very puffy pitted ankles have disappeared and I can breath so much more easily and don't get breathless like before. I'm on 50mg. I couldn't convert the T4 properly and only managed to get up to 45mg of Armour before getting weird head pains. I'm under the careful eye of Dr Peatfield. I just wandered if anyone shared my experiences. I would like to chat with u. Thanks Bev x .

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Hi Bev

I am so pleased to hear you are doing well on T3 - it has been a struggle for you to get there, but there are quite a numbver of people just using T3 and they are absolutley fine. No doubt others will come along if they are reading messages at the moment. Dr P is having another clionic at my home on 28th and 30th March if you need a follow oup appointment by the way.

Luv - Sheila

Hi everyone,

Haven't written for some time, however Have been reading my emails on a regular basis. Is there anyone out there who takes T3 only?. I'm also on 50mg of Hydro cortisone split dose. Since starting the T3 four weeks ago Ive lost quite a bit of weigh without trying. I am pleased as my very puffy pitted ankles have disappeared and I can breath so much more easily and don't get breathless like before. I'm on 50mg. I couldn't convert the T4 properly and only managed to get up to 45mg of Armour before getting weird head pains. I'm under the careful eye of Dr Peatfield. I just wandered if anyone shared my experiences. I would like to chat with u.

Thanks

Bev x

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Hi Bev,

Glad to hear T3 does it for you. I usually have T3 and Armour, but on odd supply

problem occasions I have had T3 alone and got on fine, but seem to be missing

the spark I get in combo with Armour. I can’t take too much Armour as I

get problems with T4 build up. Fuzzy head, joint pain.

Hi

everyone,

Haven't

written for some time, however Have been reading my emails on a regular basis.

Is there anyone out there who takes T3 only?. I'm also on 50mg of Hydro

cortisone split dose. Since starting the T3 four weeks ago Ive lost quite a bit

of weigh without trying. I am pleased as my very puffy pitted ankles have

disappeared and I can breath so much more easily and don't get breathless like

before. I'm on 50mg. I couldn't convert the T4 properly and only managed to get

up to 45mg of Armour before getting weird head pains. I'm under the careful eye

of Dr Peatfield. I just wandered if anyone shared my experiences. I would like

to chat with u.

Thanks

Bev

x

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newshound, and know-it-all with Mobile. Try

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Hi ,

How much Armour do you take?. Your right about the spark thing. Im sure I felt better when I still took a very tiny ammount of Armour whilst on the T3 as well. Will try 30mg again otherwise Im pleased at the difference the T3 has made so far.

Thanks Bev

RE: T3 only

Hi Bev,

Glad to hear T3 does it for you. I usually have T3 and Armour, but on odd supply problem occasions I have had T3 alone and got on fine, but seem to be missing the spark I get in combo with Armour. I can¢t take too much Armour as I get problems with T4 build up. Fuzzy head, joint pain.

Hi everyone,

Haven't written for some time, however Have been reading my emails on a regular basis. Is there anyone out there who takes T3 only?. I'm also on 50mg of Hydro cortisone split dose. Since starting the T3 four weeks ago Ive lost quite a bit of weigh without trying. I am pleased as my very puffy pitted ankles have disappeared and I can breath so much more easily and don't get breathless like before. I'm on 50mg. I couldn't convert the T4 properly and only managed to get up to 45mg of Armour before getting weird head pains. I'm under the careful eye of Dr Peatfield. I just wandered if anyone shared my experiences. I would like to chat with u.

Thanks

Bev x

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Hi Sheila,

Glad to see you survived the dreaded floods. Hebden Bridge managed to get on the BBC news. I dont need to See Dr Peatfield for an appointment however I would like to come to the the get to gether on the 30th.

Luv Bev

Re: T3 only

Hi Bev

I am so pleased to hear you are doing well on T3 - it has been a struggle for you to get there, but there are quite a numbver of people just using T3 and they are absolutley fine. No doubt others will come along if they are reading messages at the moment. Dr P is having another clionic at my home on 28th and 30th March if you need a follow oup appointment by the way.

Luv - Sheila

Hi everyone,

Haven't written for some time, however Have been reading my emails on a regular basis. Is there anyone out there who takes T3 only?. I'm also on 50mg of Hydro cortisone split dose. Since starting the T3 four weeks ago Ive lost quite a bit of weigh without trying. I am pleased as my very puffy pitted ankles have disappeared and I can breath so much more easily and don't get breathless like before. I'm on 50mg. I couldn't convert the T4 properly and only managed to get up to 45mg of Armour before getting weird head pains. I'm under the careful eye of Dr Peatfield. I just wandered if anyone shared my experiences. I would like to chat with u.

Thanks

Bev x

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Hi Caroline,

I live in Hebden Bridge my GP wanted me to see Dr Burrows about a year ago however he was on holiday for three weeks, so ended up paying to see a really arrogant pompous consultant who said even though my cortisol results were below normal he wouldn't recommend hydro cortisone, so my GP wouldn't also. That's why I took matters in to my own hands and started seeing Dr Peatfield. My GP doesn't have a clue about what I'm on. I haven't been back to see him since last October. How did your GP react to you taking Hydro cortisone and T3 before referring you?.

Re: T3 only

Hi Bev

I was like you got up to 1 grain armour and had headaches which did not stop. Dr P advised me to try T3 and 1/2 grain of armour, but still got headaches so went to just T3 and pain, fatigue and brain fog dissappearerd gradually, and eventually when I was on about 100mg T3 I was able to exercise again and the weight just fell off me.

Currently just on 20 mg Cortef waiting for appointment with Dr Burrows at huddersfield

Caroline

Beverley <bevmiller48> wrote:

there anyone out there who takes T3 only?. I'm also on 50mg of Hydro cortisone split dose. Since starting the T3 four weeks ago Ive lost quite a bit of weigh without trying. I am pleased as my very puffy pitted ankles have disappeared and I can breath so much more easily and don't get breathless like before. I'm on 50mg. I couldn't convert the T4 properly and only managed to get up to 45mg of Armour before getting weird head pains. I'm under the careful eye of Dr Peatfield. I just wandered if anyone shared my experiences. I would like to chat with u.

Thanks

Bev x

..

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I have put your name down for our TPA Get Together on Saturday, 29th March. It will be great to see you again Bev.

luv - Sheila

Hi Sheila,

Glad to see you survived the dreaded floods. Hebden Bridge managed to get on the BBC news. I dont need to See Dr Peatfield for an appointment however I would like to come to the the get to gether on the 30th.

Luv Bev

Re: T3 only

Hi Bev

I am so pleased to hear you are doing well on T3 - it has been a struggle for you to get there, but there are quite a numbver of people just using T3 and they are absolutley fine. No doubt others will come along if they are reading messages at the moment. Dr P is having another clionic at my home on 28th and 30th March if you need a follow oup appointment by the way.

Luv - Sheila

Hi everyone,

Haven't written for some time, however Have been reading my emails on a regular basis. Is there anyone out there who takes T3 only?. I'm also on 50mg of Hydro cortisone split dose. Since starting the T3 four weeks ago Ive lost quite a bit of weigh without trying. I am pleased as my very puffy pitted ankles have disappeared and I can breath so much more easily and don't get breathless like before. I'm on 50mg. I couldn't convert the T4 properly and only managed to get up to 45mg of Armour before getting weird head pains. I'm under the careful eye of Dr Peatfield. I just wandered if anyone shared my experiences. I would like to chat with u.

Thanks

Bev x

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Hi Bev My GP does not know I am on either hydro cortisone or T3. he has referred me to Dr Burrows, because I told him I wanted him to,still no appointment but that's another story. I have to decide whether to tell Dr Burrows I have self treated successfully on T3 and that armour gave me headaches. I will not mention the HC as he dows not believe in adrenal fatigue. I am currently on 20mg but not sure if it is enough, I have reduced down from 40 mg as I felt best when I was on 20 mg before so wanted to get to 20 mg before seeing Dr B. Hope things are going well with you. Caroline Beverley <bevmiller48@...> wrote: . How did your GP react to you taking Hydro cortisone and T3 before referring you?. .

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Hi Bev,

I originally took 4 grains

Armour and 40mcg T3, but now, after problems getting adrenals sorted, take 3

grains and 70mcgT3.

Some folk do fine on 50mcg T3 alone, so I’m

a bit of a hard case!

Hi ,

How much Armour do you

take?. Your right about the spark thing. Im sure I felt better when I still

took a very tiny ammount of Armour whilst on the T3 as well. Will try 30mg

again otherwise Im pleased at the difference the T3 has made so far.

Thanks

Bev

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Well thanks Bev now I have a little bit more to go on. I am saving

hard for the tests for the adrenals so I shall not go on the nutri

till I am tested. I am not glad you have high blood pressure but glad

because you could reassure me about the cortisol with my bp. I have

had a diastolic of 112 so it does go way up.

Keep up the good work

cheers

Dawn

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  • 2 months later...
Guest guest

Hi

Still going through older postings. I too am self-treating, and have

worked up to similar levels of HC and T3. I have the impression of

being on the mend, ever so slowly, which is only to be expected after

perhaps 60 yrs of hypo'ism.

Somewhere I saw, I think, that cortisol, mainly, keeps you warm during

the day and thyroid hormones at night, and this info may be helpful in

judging dosage, along with the findings of the many experts and the

feedback of experiences on this web site. Also interesting is info from

other sources: I learned that coaches for the UK national racing-

cycling squad keep close track of cortisol levels (what they do about

it is no doubt a closely guarded secret), and that these levels rise

during endurance exercise, with corresponding temporary depression of

the immune system. Some athletes use lots of glutamine and vit C after

a workout, said to bring down cortisol, but the jury seems to be out

still on the effectiveness of glutamine. A few hours after exercising

for a good length of time in my case, my temp drops quite markedly. I'd

like to find out whether this is a good plan, but I've tried an extra

10 or so mg of HC in those circumstances, even late in the day, without

impairing sleep.

I'm a bit loath to go much above 20 mg of HC (except as above) but

predict that 50 or 60 mg of T3 (but maybe even more -- dosage must

relate to lean mass & I'm a bit above ave for a man) might be the right

dose eventually, together with lots of vits, minerals and sprouted

things, and not forgetting plenty of coconut, desiccated (goes down

well with muesli) and virgin oil.

Rgds, Hans

>

> Hi Bev

>

> My GP does not know I am on either hydro cortisone or T3. he has

referred me to Dr Burrows, because I told him I wanted him to,still no

appointment but that's another story. I have to decide whether to tell

Dr Burrows I have self treated successfully on T3 and that armour gave

me headaches. I will not mention the HC as he dows not believe in

adrenal fatigue. I am currently on 20mg but not sure if it is enough, I

have reduced down from 40 mg as I felt best when I was on 20 mg before

so wanted to get to 20 mg before seeing Dr B.

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Guest guest

Sorry, I should have referred to mcg rather than mg of T3 in my reply a

short while ago.

H

>

> Hi Bev

>

> My GP does not know I am on either hydro cortisone or T3. he has

referred me to Dr Burrows, because I told him I wanted him to,still no

appointment but that's another story. I have to decide whether to tell

Dr Burrows I have self treated successfully on T3 and that armour gave

me headaches. I will not mention the HC as he dows not believe in

adrenal fatigue. I am currently on 20mg but not sure if it is enough, I

have reduced down from 40 mg as I felt best when I was on 20 mg before

so wanted to get to 20 mg before seeing Dr B.

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  • 9 months later...

Hi

I take T3 and T4, I have never had a problem getting my T3 from my

local chemist.

Lov Lizzie

> Have also read that I might not be able to get the liothyronine from

> the Chemists easily (I have got the prescription but want to go to my

> local chemist and can't get there until Saturday as I work in the week).

>

> Any feed back from anyone on T3 only would be greatly appreciated.

>

> Thanks

>

>

>

> a

>

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Hi

I take T3 and T4 and haven't had any problems with them. The important

thing is to go slowly with T3, starting at a low dose (twice a day)

and gradually building up to your recommended dosage over weeks.

Your chemist may not be currently supplying T3 to any customers but

that shouldn't be a problem. They may have to order it in but it

should only take 1 day.

Cutting the 20mg T3 tablets in two is pretty easy don't worry.

Good luck!

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Hi a,

I have never had problems with getting T3 from a chemist- I

use my local Boots, which also has an in surgery branch. I have never

needed to have special letter either as this med is in the British

Pharmacopoeia. The first time you may have a small wait while the

Chemist gets it in for you, unless there is someone else in the area who

takes it too, but nothing like the delays in getting Armour that are

sometimes experienced. Just walk in there, sign the back and hand it

over with your exemption card!!

I found that I tolerated the T3 well- there tend to be problems if you

start on too high a dose, or have adrenal issues.

Personally, especially as you are nervous, I'd start with half or

quarter dose, for a few days to see how it goes first. I find I can

quite accurately bite the pills into quarters- it doesn't matter if it's

a bit wonky as you can take the other bit in the next dose, just take

the bigger bit in the morning. Don't take the second dose too late or it

may cause insomnia.

Subject: T3 Only

Hi Guys,

Went to see endo other day and this time he wants to try me on T3 only.

Have already found out that I will have to be cutting pills in half as

Endo wants me to try 20mg in the morning and 10mg in the evening and

the pills only come in 20mg.

Have also read that I might not be able to get the liothyronine from

the Chemists easily (I have got the prescription but want to go to my

local chemist and can't get there until Saturday as I work in the week).

Any feed back from anyone on T3 only would be greatly appreciated.

Thanks

a

------------------------------------

TPA is not medically qualified. Consult with a qualified medical

practitioner before changing medication.

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Hi,

I take T4 and T3. LOVE the T3, great stuff. I know some people cannot

tolerate T4 on it's own, but I don't know about T3. I do know some

people do take T3 alone though. As regards getting hold of it, I get

it from boots. Generally though, most pharmacy's can order it within a

day or two. Also, once you have got it the pharmacy will automatically

re-order it. I use a pill cutter. T3 tablets are very easy to cut

equally. They are flat and have a score down the middle. If I recall

correctly, I got my pill cutter from Burrows and close, although I'd

imagine that they can be bought from all pharmacy's. Just had a

thought (now theres a rarity) Give your pharmacy a ring, they will

probably order it in advance for you. I'd definetley give the T3 a go

though. Good luck with it.

Luv Justeen

>

> Hi Guys,

>

> Went to see endo other day and this time he wants to try me on T3 only.

>

> Am a bit scared of this as since being diagnosed as Hypo in Oct 2007, I

> have been reading up a lot on treatments, and have read some accounts

> of people not being able to tolerate T3 only.

>

> Have already found out that I will have to be cutting pills in half as

> Endo wants me to try 20mg in the morning and 10mg in the evening and

> the pills only come in 20mg.

>

> Have also read that I might not be able to get the liothyronine from

> the Chemists easily (I have got the prescription but want to go to my

> local chemist and can't get there until Saturday as I work in the week).

>

> Any feed back from anyone on T3 only would be greatly appreciated.

>

> Thanks

>

>

>

> a

>

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Consider

yourself extremely luck that you have found a doctor that will give you a trial

of T3. T3 is the DOMINANT hormone - the hormone that makes everything in your

body and brain tick. T4 is mainly inactive and heeds to convert to T3 in the

liver and kidneys and many of us are unable to convert, so we need T3 - but

sadly, many doctors don't even know that it is T3 we need. However, I

would play safe and not start on the dose your endocrinologist has recommended.

This is far too high a dose to start with especially if your body has not been

getting the T3 it needed previously. I would first start with 10 mcgs to get

your body used to it for a few days, and then increase this dose with another

10mcgs, but take the second dose in the middle of the afternoon. This is

because T3 has a very short half life and for some people, after a few hours of

their first dose, they start to feel the afternoon 'slump' and this is because

the first T3 has been used up, and they need a booster. If you manage fine

after a couple of weeks or so on 20 mcgs, then try the further increase, but

please don't rush this. It can be frightening if you take too much T3 at once

as you can get palpitations, missed heart beats, feeling dizzy, sweating and

generally feeling spaced out - it is not a good feeling. If ever you do get

such an adverse reaction, then don't take any more T3 that day, and the

following day, cut your dose back by 10 mcgs and again, stay on that for a

couple more weeks.

Remember

also you may have any one of the associated conditions that go along with being

hypothyroid and you can read about these on our website under Hypothyroidism.

If you do have any of the conditions suggested, you might need to get these

treated in order for your body to be able to absorb thyroid hormone replacement.

Luv -

Sheila

Went to see endo other day and this time he wants to try me on T3 only.

Am a bit scared of this as since being diagnosed as Hypo in Oct 2007, I

have been reading up a lot on treatments, and have read some accounts

of people not being able to tolerate T3 only.

Have already found out that I will have to be cutting pills in half as

Endo wants me to try 20mg in the morning and 10mg in the evening and

the pills only come in 20mg.

Have also read that I might not be able to get the liothyronine from

the Chemists easily (I have got the prescription but want to go to my

local chemist and can't get there until Saturday as I work in the week).

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Dear a,

I know one woman who was on T3 only for 25 years. And then her doc

retired. The new doc put her on T4 and she did a tail spin in mood,

energy, and weight. Once she was back on T3, her health returned.

The other woman was on T4 and still suffering for two years.

Getting enough T3 helped her. Dropping T4 did little more than let

her TSH come out of the cellar.

You can get Cytomel in 5 mcg pills.

Have a great day,

>

> Hi Guys,

>

> Went to see endo other day and this time he wants to try me on T3

only.

>

> Am a bit scared of this as since being diagnosed as Hypo in Oct

2007, I

> have been reading up a lot on treatments, and have read some

accounts

> of people not being able to tolerate T3 only.

>

> Have already found out that I will have to be cutting pills in

half as

> Endo wants me to try 20mg in the morning and 10mg in the evening

and

> the pills only come in 20mg.

>

> Have also read that I might not be able to get the liothyronine

from

> the Chemists easily (I have got the prescription but want to go to

my

> local chemist and can't get there until Saturday as I work in the

week).

>

> Any feed back from anyone on T3 only would be greatly appreciated.

>

> Thanks

>

>

>

> a

>

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I used to question why we are given T4 as a t'ment when we need T3, so I am surprised to read of someone on T3 only. I have read that T3 does not cross the blood brain barrier which is why we are usually given T4, which does cross it, and as it also (usually) converts to T3 we get what we need.... Apparently, so I've read, the brain needs T4. What is true? How can someone survive on T3 only? What about her brain....?? Would like someone to explain if possible, thanksAnne

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