Guest guest Posted December 30, 2005 Report Share Posted December 30, 2005 Hi there I haven't posted for a while but I have found the group very helpful and would just like to say first of all that is is great to have these sort of forums because often one can feel very alone with this condition. I live in Ireland where there is one treatment and one treatment only available and that is Eltroxin (synthetic T4). Just over a year ago I decided to try something else as I just did not feel well on this drug. Despite my blood results appearing normal I remained unwell and no one from my GP to my Endocrinologist could help me. So I decided to self medicate and ordered Tertroxin (T3)from the internet. I kept my Doc informed of what I was doing and he agreed to monitor me but he would not prescribe Eltroxin so that meant taking the t3 on it's own. Tertroxin seemed to help some of the symptoms in particular the fluid retention and my depression. While on Eltroxin I had also been taking parox for the depression which I never felt comfortable with and I eventully had to wean myself off it. However I still suffer from severe fatigue, muscle weakness, joint stiffness and I have chronic urine infections (I don't know if this is related to the hypothyroidism or not). My doctor wants me to start taking Eltroxin again but I would have to stop the Tertroxin and quite frankly I am not at all happy about that. At the moment i am not sure what to do. I noted in one of the posts that someone was taking Novothyral and that it was a combined (T4 & T3)treatment. I had never heard of this before and does anyone know anymore about it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2005 Report Share Posted December 30, 2005 Hi, Novothyral is synthetic T4 + T3 manufactured by Merck (a German pharmaceutical company). In Belgium, where I live, it is called Novothyral; in France the same drug is called Euthyral. If you live in Ireland, it should not be too difficult for you to find a top doc in Belgium. We have plenty of them (check www.geocities.com/thyroide); Thierry Hertoghe, Dr Cooremans etc...they are all excellent, and they have one thing in common: they prescribe Armour or synthetic combination drugs like Novothyral. Dr Hertoghe, who is my endo, speaks excellent English and has also written an excellent book that I would like to recommend to all people suffering some kind of hormonal disorder: " The hormone solution " . Belgium seems to be famous among Europeans because this country has a lot of top docs and also many pharmacies carrying Armour. I know people come here from France, the Netherlands etc to get Armour. If you have ordered T3 on the net, why not order T4 as well (Euthyrox, Syntroid etc)? They are all available from net pharmacies. Good luck, Catarina --------------------------------- DSL Something to write home about. Just $16.99/mo. or less Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2005 Report Share Posted December 30, 2005 Hi there, have you had tests of your free T3 and T4? I also did T3 only treatment for some months but found that I needed T4 as well. Your dosing seems a bit random from the way you have written about it....a health log is a must if you are self medicating - do you do one? I found that the T3 cleared up my depression (it was bad) and strain injuries that I had - not all the stiffness has gone. I couldn't say that taking T4 has alleviated any of my symptoms but it acted as a " stabilising background " for the T3 - this is not scientific at all just how it feels for me - the T3 alone was not enough - I felt up and down on it even though my symptoms were better - when I took T4 alone I got very sick and then when I combined both it worked much better. I take time release t3 as the tertroxin makes me jittery. You don't have to stop the T4 just take less and experiment till you have the right proportion - this is where the log is invaluable - takes the subjectivity out of it. Kerry T3 only Hi there I haven't posted for a while but I have found the group very helpful and would just like to say first of all that is is great to have these sort of forums because often one can feel very alone with this condition. I live in Ireland where there is one treatment and one treatment only available and that is Eltroxin (synthetic T4). Just over a year ago I decided to try something else as I just did not feel well on this drug. Despite my blood results appearing normal I remained unwell and no one from my GP to my Endocrinologist could help me. So I decided to self medicate and ordered Tertroxin (T3)from the internet. I kept my Doc informed of what I was doing and he agreed to monitor me but he would not prescribe Eltroxin so that meant taking the t3 on it's own. Tertroxin seemed to help some of the symptoms in particular the fluid retention and my depression. While on Eltroxin I had also been taking parox for the depression which I never felt comfortable with and I eventully had to wean myself off it. However I still suffer from severe fatigue, muscle weakness, joint stiffness and I have chronic urine infections (I don't know if this is related to the hypothyroidism or not). My doctor wants me to start taking Eltroxin again but I would have to stop the Tertroxin and quite frankly I am not at all happy about that. At the moment i am not sure what to do. I noted in one of the posts that someone was taking Novothyral and that it was a combined (T4 & T3)treatment. I had never heard of this before and does anyone know anymore about it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 The only tests done here in Ireland as a matter of routine are tsh and T4. I have been taking synthetic T3 (20mcg)for the last year and my doctor has had to write on the lab form in CAPITAL LETTERS PLEASE TEST FOR T3 as the they only seem to want to test for T4. I have had to buy it over the internet because it is not available in Ireland. That is how bad it is here. There is no choice for people whatsoever. I would be quite happy to take T4 and T3 but my doctor has refused to prescribe Eltroxin while I am taking Tertroxin. I get so frustrated sometimes as the medical profession here are so rigid its T4 or nothing. We have one Endocrinologist here in County Galway and he pointed out to me that I should not be looking for answers on the internet. I was informed that he had been a specialist for over thirty years and there was only one thyroid test that had any significance at all and that was the TSH. He also pointed out to me that the only treatment that works is T4. As far as I am concerned this is nonsense because I am the one who has to live with this condition and I know for sure that for me T4 and especially Eltroxin most definitely does not work! This is one of the reasons I asked about the Novothyral if this is a combination drug and I am able to purchase it myself without a prescription then I would just love to try it out. I have no faith in health care in Ireland whatsoever. Up until three years ago I was a fully functioning human being holding down a job (I had previously been a nurse in Scotland) Now there are days when I can hardly get out of bed, I get so tired. It really is a disgrace. Sorry for ranting on but I really envy all of you who have doctors who listen and are prepared to try and find ways to put you on the road to recovery. > > Hi there, > have you had tests of your free T3 and T4? I also did T3 only treatment > for some months but found that I needed T4 as well. > > Your dosing seems a bit random from the way you have written about > it....a health log is a must if you are self medicating - do you do one? > > I found that the T3 cleared up my depression (it was bad) and strain > injuries that I had - not all the stiffness has gone. > > I couldn't say that taking T4 has alleviated any of my symptoms but it > acted as a " stabilising background " for the T3 - this is not scientific > at all just how it feels for me - the T3 alone was not enough - I felt > up and down on it even though my symptoms were better - when I took T4 > alone I got very sick and then when I combined both it worked much > better. > I take time release t3 as the tertroxin makes me jittery. > > You don't have to stop the T4 just take less and experiment till you > have the right proportion - this is where the log is invaluable - takes > the subjectivity out of it. > Kerry > > T3 only > > > Hi there > > I haven't posted for a while but I have found the group very helpful > and would just like to say first of all that is is great to have > these sort of forums because often one can feel very alone with this > condition. I live in Ireland where there is one treatment and one > treatment only available and that is Eltroxin (synthetic T4). > > Just over a year ago I decided to try something else as I just did > not feel well on this drug. Despite my blood results appearing > normal I remained unwell and no one from my GP to my Endocrinologist > could help me. So I decided to self medicate and ordered Tertroxin > (T3)from the internet. I kept my Doc informed of what I was doing > and he agreed to monitor me but he would not prescribe Eltroxin so > that meant taking the t3 on it's own. Tertroxin seemed to help some > of the symptoms in particular the fluid retention and my > depression. While on Eltroxin I had also been taking parox for the > depression which I never felt comfortable with and I eventully had > to wean myself off it. > > However I still suffer from severe fatigue, muscle weakness, joint > stiffness and I have chronic urine infections (I don't know if this > is related to the hypothyroidism or not). My doctor wants me to > start taking Eltroxin again but I would have to stop the Tertroxin > and quite frankly I am not at all happy about that. At the moment i > am not sure what to do. I noted in one of the posts that someone was > taking Novothyral and that it was a combined (T4 & T3)treatment. I > had never heard of this before and does anyone know anymore about it. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 First of all let me say thank you to everyone who has replied to my posts. I will definitely take on board the various pieces of advice you have given. I was particularly interested in 's info about the Endocrinologist in Ireland where I live. I read the article by Dr McGovern and I have to say he impressed me a lot more than the man I was referred to in Galway. I think one of the major things with any illness is to find a doctor who will listen and take on board what you are saying to them. Alot of the time thatis down to luck but of course it's also down to geography and need I say it money. We all should be treated as individuals in a holistic manner keeping in mind that our physical and emotional well being are directly linked to one another. I am sure there are many of you like myself who have left the Doctor's surgery at times feeling that this is all in your mind and you are a hypochondriac wasting his or her PRECIOUS time. One of the doctor's in my family practice actually said to me on one occasion, " What is it you want us to do? Your blood tests are fine and you are on the correct medication. Eltroxin is the only treatment we have, there is nothing else. " I had previously asked this woman what kind of hypothyroidism I had and was I suffering from Hashimotos? Her response was to shrug her shoulders and say that she didn't thinks so. I later found out it was Hashimoto's. I have to say that this woman is not typical of the doctor's in our practice but how many people like myself have went to her and came out feeling worse than when they went in! > > > > Hi there, > > have you had tests of your free T3 and T4? I also did T3 only > treatment > > for some months but found that I needed T4 as well. > > > > Your dosing seems a bit random from the way you have written about > > it....a health log is a must if you are self medicating - do you > do one? > > > > I found that the T3 cleared up my depression (it was bad) and > strain > > injuries that I had - not all the stiffness has gone. > > > > I couldn't say that taking T4 has alleviated any of my symptoms > but it > > acted as a " stabilising background " for the T3 - this is not > scientific > > at all just how it feels for me - the T3 alone was not enough - I > felt > > up and down on it even though my symptoms were better - when I > took T4 > > alone I got very sick and then when I combined both it worked much > > better. > > I take time release t3 as the tertroxin makes me jittery. > > > > You don't have to stop the T4 just take less and experiment till > you > > have the right proportion - this is where the log is invaluable - > takes > > the subjectivity out of it. > > Kerry > > > > T3 only > > > > > > Hi there > > > > I haven't posted for a while but I have found the group very > helpful > > and would just like to say first of all that is is great to have > > these sort of forums because often one can feel very alone with > this > > condition. I live in Ireland where there is one treatment and one > > treatment only available and that is Eltroxin (synthetic T4). > > > > Just over a year ago I decided to try something else as I just did > > not feel well on this drug. Despite my blood results appearing > > normal I remained unwell and no one from my GP to my > Endocrinologist > > could help me. So I decided to self medicate and ordered > Tertroxin > > (T3)from the internet. I kept my Doc informed of what I was doing > > and he agreed to monitor me but he would not prescribe Eltroxin so > > that meant taking the t3 on it's own. Tertroxin seemed to help > some > > of the symptoms in particular the fluid retention and my > > depression. While on Eltroxin I had also been taking parox for > the > > depression which I never felt comfortable with and I eventully had > > to wean myself off it. > > > > However I still suffer from severe fatigue, muscle weakness, joint > > stiffness and I have chronic urine infections (I don't know if > this > > is related to the hypothyroidism or not). My doctor wants me to > > start taking Eltroxin again but I would have to stop the Tertroxin > > and quite frankly I am not at all happy about that. At the moment > i > > am not sure what to do. I noted in one of the posts that someone > was > > taking Novothyral and that it was a combined (T4 & T3)treatment. I > > had never heard of this before and does anyone know anymore about > it. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2008 Report Share Posted January 25, 2008 > > Hi everyone, > Haven't written for some time, however Have been reading my emails on a regular basis. Is there anyone out there who takes T3 only?. I'm also on 50mg of Hydro cortisone split dose. Since starting the T3 four weeks ago Ive lost quite a bit of weigh without trying. I am pleased as my very puffy pitted ankles have disappeared and I can breath so much more easily and don't get breathless like before. I'm on 50mg. I couldn't convert the T4 properly and only managed to get up to 45mg of Armour before getting weird head pains. I'm under the careful eye of Dr Peatfield. I just wandered if anyone shared my experiences. I would like to chat with u. > Thanks > Bev x hi Bev I am a newbie on the board. May I first say I cannot discuss yet the T3 issue which u raise, but I am hoping to be able to soon. I have been begging for an alternative treatment to T4 for over 18 months now since I found out about it on the net. I have asked the doc for Armour, but maybe T3 would be better.In your experience, what is wrong with Armour? and how did you find out you needed cortisone? I cannnot get them to test for this. Do you think cytomel T3 topped up with a little T4 might be the best treatment. I ask you in particular because you mention the breathlessness which I have been living with for years and is really one of the worse parts of the condition. Plus of course the pitted swollen fatty body eeeeeuwww lol. Oh by the why, where is your Doc located? I might need another opinion. God Bless Dawn > > > ________________________________________________________________________________\ ____ > Be a better friend, newshound, and > know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2008 Report Share Posted January 25, 2008 Hi Bev I was like you got up to 1 grain armour and had headaches which did not stop. Dr P advised me to try T3 and 1/2 grain of armour, but still got headaches so went to just T3 and pain, fatigue and brain fog dissappearerd gradually, and eventually when I was on about 100mg T3 I was able to exercise again and the weight just fell off me. Currently just on 20 mg Cortef waiting for appointment with Dr Burrows at huddersfield Caroline Beverley <bevmiller48@...> wrote: there anyone out there who takes T3 only?. I'm also on 50mg of Hydro cortisone split dose. Since starting the T3 four weeks ago Ive lost quite a bit of weigh without trying. I am pleased as my very puffy pitted ankles have disappeared and I can breath so much more easily and don't get breathless like before. I'm on 50mg. I couldn't convert the T4 properly and only managed to get up to 45mg of Armour before getting weird head pains. I'm under the careful eye of Dr Peatfield. I just wandered if anyone shared my experiences. I would like to chat with u. Thanks Bev x . Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2008 Report Share Posted January 26, 2008 Hi Bev I am so pleased to hear you are doing well on T3 - it has been a struggle for you to get there, but there are quite a numbver of people just using T3 and they are absolutley fine. No doubt others will come along if they are reading messages at the moment. Dr P is having another clionic at my home on 28th and 30th March if you need a follow oup appointment by the way. Luv - Sheila Hi everyone, Haven't written for some time, however Have been reading my emails on a regular basis. Is there anyone out there who takes T3 only?. I'm also on 50mg of Hydro cortisone split dose. Since starting the T3 four weeks ago Ive lost quite a bit of weigh without trying. I am pleased as my very puffy pitted ankles have disappeared and I can breath so much more easily and don't get breathless like before. I'm on 50mg. I couldn't convert the T4 properly and only managed to get up to 45mg of Armour before getting weird head pains. I'm under the careful eye of Dr Peatfield. I just wandered if anyone shared my experiences. I would like to chat with u. Thanks Bev x Be a better friend, newshound, and know-it-all with Mobile. Try it now. No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.10/1241 - Release Date: 24/01/2008 09:58 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2008 Report Share Posted January 26, 2008 Hi Bev, Glad to hear T3 does it for you. I usually have T3 and Armour, but on odd supply problem occasions I have had T3 alone and got on fine, but seem to be missing the spark I get in combo with Armour. I can’t take too much Armour as I get problems with T4 build up. Fuzzy head, joint pain. Hi everyone, Haven't written for some time, however Have been reading my emails on a regular basis. Is there anyone out there who takes T3 only?. I'm also on 50mg of Hydro cortisone split dose. Since starting the T3 four weeks ago Ive lost quite a bit of weigh without trying. I am pleased as my very puffy pitted ankles have disappeared and I can breath so much more easily and don't get breathless like before. I'm on 50mg. I couldn't convert the T4 properly and only managed to get up to 45mg of Armour before getting weird head pains. I'm under the careful eye of Dr Peatfield. I just wandered if anyone shared my experiences. I would like to chat with u. Thanks Bev x Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2008 Report Share Posted January 26, 2008 Hi , How much Armour do you take?. Your right about the spark thing. Im sure I felt better when I still took a very tiny ammount of Armour whilst on the T3 as well. Will try 30mg again otherwise Im pleased at the difference the T3 has made so far. Thanks Bev RE: T3 only Hi Bev, Glad to hear T3 does it for you. I usually have T3 and Armour, but on odd supply problem occasions I have had T3 alone and got on fine, but seem to be missing the spark I get in combo with Armour. I can¢t take too much Armour as I get problems with T4 build up. Fuzzy head, joint pain. Hi everyone, Haven't written for some time, however Have been reading my emails on a regular basis. Is there anyone out there who takes T3 only?. I'm also on 50mg of Hydro cortisone split dose. Since starting the T3 four weeks ago Ive lost quite a bit of weigh without trying. I am pleased as my very puffy pitted ankles have disappeared and I can breath so much more easily and don't get breathless like before. I'm on 50mg. I couldn't convert the T4 properly and only managed to get up to 45mg of Armour before getting weird head pains. I'm under the careful eye of Dr Peatfield. I just wandered if anyone shared my experiences. I would like to chat with u. Thanks Bev x Be a better friend, newshound, and know-it-all with Mobile. Try it now. Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2008 Report Share Posted January 26, 2008 Hi Sheila, Glad to see you survived the dreaded floods. Hebden Bridge managed to get on the BBC news. I dont need to See Dr Peatfield for an appointment however I would like to come to the the get to gether on the 30th. Luv Bev Re: T3 only Hi Bev I am so pleased to hear you are doing well on T3 - it has been a struggle for you to get there, but there are quite a numbver of people just using T3 and they are absolutley fine. No doubt others will come along if they are reading messages at the moment. Dr P is having another clionic at my home on 28th and 30th March if you need a follow oup appointment by the way. Luv - Sheila Hi everyone, Haven't written for some time, however Have been reading my emails on a regular basis. Is there anyone out there who takes T3 only?. I'm also on 50mg of Hydro cortisone split dose. Since starting the T3 four weeks ago Ive lost quite a bit of weigh without trying. I am pleased as my very puffy pitted ankles have disappeared and I can breath so much more easily and don't get breathless like before. I'm on 50mg. I couldn't convert the T4 properly and only managed to get up to 45mg of Armour before getting weird head pains. I'm under the careful eye of Dr Peatfield. I just wandered if anyone shared my experiences. I would like to chat with u. Thanks Bev x Be a better friend, newshound, and know-it-all with Mobile. Try it now. No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.10/1241 - Release Date: 24/01/2008 09:58 Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2008 Report Share Posted January 26, 2008 Hi Caroline, I live in Hebden Bridge my GP wanted me to see Dr Burrows about a year ago however he was on holiday for three weeks, so ended up paying to see a really arrogant pompous consultant who said even though my cortisol results were below normal he wouldn't recommend hydro cortisone, so my GP wouldn't also. That's why I took matters in to my own hands and started seeing Dr Peatfield. My GP doesn't have a clue about what I'm on. I haven't been back to see him since last October. How did your GP react to you taking Hydro cortisone and T3 before referring you?. Re: T3 only Hi Bev I was like you got up to 1 grain armour and had headaches which did not stop. Dr P advised me to try T3 and 1/2 grain of armour, but still got headaches so went to just T3 and pain, fatigue and brain fog dissappearerd gradually, and eventually when I was on about 100mg T3 I was able to exercise again and the weight just fell off me. Currently just on 20 mg Cortef waiting for appointment with Dr Burrows at huddersfield Caroline Beverley <bevmiller48> wrote: there anyone out there who takes T3 only?. I'm also on 50mg of Hydro cortisone split dose. Since starting the T3 four weeks ago Ive lost quite a bit of weigh without trying. I am pleased as my very puffy pitted ankles have disappeared and I can breath so much more easily and don't get breathless like before. I'm on 50mg. I couldn't convert the T4 properly and only managed to get up to 45mg of Armour before getting weird head pains. I'm under the careful eye of Dr Peatfield. I just wandered if anyone shared my experiences. I would like to chat with u. Thanks Bev x .. Looking for last minute shopping deals? Find them fast with Search. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2008 Report Share Posted January 26, 2008 I have put your name down for our TPA Get Together on Saturday, 29th March. It will be great to see you again Bev. luv - Sheila Hi Sheila, Glad to see you survived the dreaded floods. Hebden Bridge managed to get on the BBC news. I dont need to See Dr Peatfield for an appointment however I would like to come to the the get to gether on the 30th. Luv Bev Re: T3 only Hi Bev I am so pleased to hear you are doing well on T3 - it has been a struggle for you to get there, but there are quite a numbver of people just using T3 and they are absolutley fine. No doubt others will come along if they are reading messages at the moment. Dr P is having another clionic at my home on 28th and 30th March if you need a follow oup appointment by the way. Luv - Sheila Hi everyone, Haven't written for some time, however Have been reading my emails on a regular basis. Is there anyone out there who takes T3 only?. I'm also on 50mg of Hydro cortisone split dose. Since starting the T3 four weeks ago Ive lost quite a bit of weigh without trying. I am pleased as my very puffy pitted ankles have disappeared and I can breath so much more easily and don't get breathless like before. I'm on 50mg. I couldn't convert the T4 properly and only managed to get up to 45mg of Armour before getting weird head pains. I'm under the careful eye of Dr Peatfield. I just wandered if anyone shared my experiences. I would like to chat with u. Thanks Bev x Be a better friend, newshound, and know-it-all with Mobile. Try it now. No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.10/1241 - Release Date: 24/01/2008 09:58 Looking for last minute shopping deals? Find them fast with Search. No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.10/1241 - Release Date: 24/01/2008 09:58 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2008 Report Share Posted January 26, 2008 Hi Bev My GP does not know I am on either hydro cortisone or T3. he has referred me to Dr Burrows, because I told him I wanted him to,still no appointment but that's another story. I have to decide whether to tell Dr Burrows I have self treated successfully on T3 and that armour gave me headaches. I will not mention the HC as he dows not believe in adrenal fatigue. I am currently on 20mg but not sure if it is enough, I have reduced down from 40 mg as I felt best when I was on 20 mg before so wanted to get to 20 mg before seeing Dr B. Hope things are going well with you. Caroline Beverley <bevmiller48@...> wrote: . How did your GP react to you taking Hydro cortisone and T3 before referring you?. . Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 Hi Bev, I originally took 4 grains Armour and 40mcg T3, but now, after problems getting adrenals sorted, take 3 grains and 70mcgT3. Some folk do fine on 50mcg T3 alone, so I’m a bit of a hard case! Hi , How much Armour do you take?. Your right about the spark thing. Im sure I felt better when I still took a very tiny ammount of Armour whilst on the T3 as well. Will try 30mg again otherwise Im pleased at the difference the T3 has made so far. Thanks Bev Be a better friend, newshound, and know-it-all with Mobile. Try it now. Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2008 Report Share Posted January 29, 2008 Well thanks Bev now I have a little bit more to go on. I am saving hard for the tests for the adrenals so I shall not go on the nutri till I am tested. I am not glad you have high blood pressure but glad because you could reassure me about the cortisol with my bp. I have had a diastolic of 112 so it does go way up. Keep up the good work cheers Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2008 Report Share Posted April 24, 2008 Hi Still going through older postings. I too am self-treating, and have worked up to similar levels of HC and T3. I have the impression of being on the mend, ever so slowly, which is only to be expected after perhaps 60 yrs of hypo'ism. Somewhere I saw, I think, that cortisol, mainly, keeps you warm during the day and thyroid hormones at night, and this info may be helpful in judging dosage, along with the findings of the many experts and the feedback of experiences on this web site. Also interesting is info from other sources: I learned that coaches for the UK national racing- cycling squad keep close track of cortisol levels (what they do about it is no doubt a closely guarded secret), and that these levels rise during endurance exercise, with corresponding temporary depression of the immune system. Some athletes use lots of glutamine and vit C after a workout, said to bring down cortisol, but the jury seems to be out still on the effectiveness of glutamine. A few hours after exercising for a good length of time in my case, my temp drops quite markedly. I'd like to find out whether this is a good plan, but I've tried an extra 10 or so mg of HC in those circumstances, even late in the day, without impairing sleep. I'm a bit loath to go much above 20 mg of HC (except as above) but predict that 50 or 60 mg of T3 (but maybe even more -- dosage must relate to lean mass & I'm a bit above ave for a man) might be the right dose eventually, together with lots of vits, minerals and sprouted things, and not forgetting plenty of coconut, desiccated (goes down well with muesli) and virgin oil. Rgds, Hans > > Hi Bev > > My GP does not know I am on either hydro cortisone or T3. he has referred me to Dr Burrows, because I told him I wanted him to,still no appointment but that's another story. I have to decide whether to tell Dr Burrows I have self treated successfully on T3 and that armour gave me headaches. I will not mention the HC as he dows not believe in adrenal fatigue. I am currently on 20mg but not sure if it is enough, I have reduced down from 40 mg as I felt best when I was on 20 mg before so wanted to get to 20 mg before seeing Dr B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2008 Report Share Posted April 24, 2008 Sorry, I should have referred to mcg rather than mg of T3 in my reply a short while ago. H > > Hi Bev > > My GP does not know I am on either hydro cortisone or T3. he has referred me to Dr Burrows, because I told him I wanted him to,still no appointment but that's another story. I have to decide whether to tell Dr Burrows I have self treated successfully on T3 and that armour gave me headaches. I will not mention the HC as he dows not believe in adrenal fatigue. I am currently on 20mg but not sure if it is enough, I have reduced down from 40 mg as I felt best when I was on 20 mg before so wanted to get to 20 mg before seeing Dr B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2009 Report Share Posted January 27, 2009 Hi I take T3 and T4, I have never had a problem getting my T3 from my local chemist. Lov Lizzie > Have also read that I might not be able to get the liothyronine from > the Chemists easily (I have got the prescription but want to go to my > local chemist and can't get there until Saturday as I work in the week). > > Any feed back from anyone on T3 only would be greatly appreciated. > > Thanks > > > > a > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2009 Report Share Posted January 27, 2009 Hi I take T3 and T4 and haven't had any problems with them. The important thing is to go slowly with T3, starting at a low dose (twice a day) and gradually building up to your recommended dosage over weeks. Your chemist may not be currently supplying T3 to any customers but that shouldn't be a problem. They may have to order it in but it should only take 1 day. Cutting the 20mg T3 tablets in two is pretty easy don't worry. Good luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2009 Report Share Posted January 27, 2009 Hi a, I have never had problems with getting T3 from a chemist- I use my local Boots, which also has an in surgery branch. I have never needed to have special letter either as this med is in the British Pharmacopoeia. The first time you may have a small wait while the Chemist gets it in for you, unless there is someone else in the area who takes it too, but nothing like the delays in getting Armour that are sometimes experienced. Just walk in there, sign the back and hand it over with your exemption card!! I found that I tolerated the T3 well- there tend to be problems if you start on too high a dose, or have adrenal issues. Personally, especially as you are nervous, I'd start with half or quarter dose, for a few days to see how it goes first. I find I can quite accurately bite the pills into quarters- it doesn't matter if it's a bit wonky as you can take the other bit in the next dose, just take the bigger bit in the morning. Don't take the second dose too late or it may cause insomnia. Subject: T3 Only Hi Guys, Went to see endo other day and this time he wants to try me on T3 only. Have already found out that I will have to be cutting pills in half as Endo wants me to try 20mg in the morning and 10mg in the evening and the pills only come in 20mg. Have also read that I might not be able to get the liothyronine from the Chemists easily (I have got the prescription but want to go to my local chemist and can't get there until Saturday as I work in the week). Any feed back from anyone on T3 only would be greatly appreciated. Thanks a ------------------------------------ TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2009 Report Share Posted January 27, 2009 Hi, I take T4 and T3. LOVE the T3, great stuff. I know some people cannot tolerate T4 on it's own, but I don't know about T3. I do know some people do take T3 alone though. As regards getting hold of it, I get it from boots. Generally though, most pharmacy's can order it within a day or two. Also, once you have got it the pharmacy will automatically re-order it. I use a pill cutter. T3 tablets are very easy to cut equally. They are flat and have a score down the middle. If I recall correctly, I got my pill cutter from Burrows and close, although I'd imagine that they can be bought from all pharmacy's. Just had a thought (now theres a rarity) Give your pharmacy a ring, they will probably order it in advance for you. I'd definetley give the T3 a go though. Good luck with it. Luv Justeen > > Hi Guys, > > Went to see endo other day and this time he wants to try me on T3 only. > > Am a bit scared of this as since being diagnosed as Hypo in Oct 2007, I > have been reading up a lot on treatments, and have read some accounts > of people not being able to tolerate T3 only. > > Have already found out that I will have to be cutting pills in half as > Endo wants me to try 20mg in the morning and 10mg in the evening and > the pills only come in 20mg. > > Have also read that I might not be able to get the liothyronine from > the Chemists easily (I have got the prescription but want to go to my > local chemist and can't get there until Saturday as I work in the week). > > Any feed back from anyone on T3 only would be greatly appreciated. > > Thanks > > > > a > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2009 Report Share Posted January 27, 2009 Consider yourself extremely luck that you have found a doctor that will give you a trial of T3. T3 is the DOMINANT hormone - the hormone that makes everything in your body and brain tick. T4 is mainly inactive and heeds to convert to T3 in the liver and kidneys and many of us are unable to convert, so we need T3 - but sadly, many doctors don't even know that it is T3 we need. However, I would play safe and not start on the dose your endocrinologist has recommended. This is far too high a dose to start with especially if your body has not been getting the T3 it needed previously. I would first start with 10 mcgs to get your body used to it for a few days, and then increase this dose with another 10mcgs, but take the second dose in the middle of the afternoon. This is because T3 has a very short half life and for some people, after a few hours of their first dose, they start to feel the afternoon 'slump' and this is because the first T3 has been used up, and they need a booster. If you manage fine after a couple of weeks or so on 20 mcgs, then try the further increase, but please don't rush this. It can be frightening if you take too much T3 at once as you can get palpitations, missed heart beats, feeling dizzy, sweating and generally feeling spaced out - it is not a good feeling. If ever you do get such an adverse reaction, then don't take any more T3 that day, and the following day, cut your dose back by 10 mcgs and again, stay on that for a couple more weeks. Remember also you may have any one of the associated conditions that go along with being hypothyroid and you can read about these on our website under Hypothyroidism. If you do have any of the conditions suggested, you might need to get these treated in order for your body to be able to absorb thyroid hormone replacement. Luv - Sheila Went to see endo other day and this time he wants to try me on T3 only. Am a bit scared of this as since being diagnosed as Hypo in Oct 2007, I have been reading up a lot on treatments, and have read some accounts of people not being able to tolerate T3 only. Have already found out that I will have to be cutting pills in half as Endo wants me to try 20mg in the morning and 10mg in the evening and the pills only come in 20mg. Have also read that I might not be able to get the liothyronine from the Chemists easily (I have got the prescription but want to go to my local chemist and can't get there until Saturday as I work in the week). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2009 Report Share Posted January 27, 2009 Dear a, I know one woman who was on T3 only for 25 years. And then her doc retired. The new doc put her on T4 and she did a tail spin in mood, energy, and weight. Once she was back on T3, her health returned. The other woman was on T4 and still suffering for two years. Getting enough T3 helped her. Dropping T4 did little more than let her TSH come out of the cellar. You can get Cytomel in 5 mcg pills. Have a great day, > > Hi Guys, > > Went to see endo other day and this time he wants to try me on T3 only. > > Am a bit scared of this as since being diagnosed as Hypo in Oct 2007, I > have been reading up a lot on treatments, and have read some accounts > of people not being able to tolerate T3 only. > > Have already found out that I will have to be cutting pills in half as > Endo wants me to try 20mg in the morning and 10mg in the evening and > the pills only come in 20mg. > > Have also read that I might not be able to get the liothyronine from > the Chemists easily (I have got the prescription but want to go to my > local chemist and can't get there until Saturday as I work in the week). > > Any feed back from anyone on T3 only would be greatly appreciated. > > Thanks > > > > a > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 I used to question why we are given T4 as a t'ment when we need T3, so I am surprised to read of someone on T3 only. I have read that T3 does not cross the blood brain barrier which is why we are usually given T4, which does cross it, and as it also (usually) converts to T3 we get what we need.... Apparently, so I've read, the brain needs T4. What is true? How can someone survive on T3 only? What about her brain....?? Would like someone to explain if possible, thanksAnne Quote Link to comment Share on other sites More sharing options...
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