Guest guest Posted September 15, 1999 Report Share Posted September 15, 1999 In a message dated 9/13/99 11:21:11 PM Pacific Daylight Time, shireen42@... writes: << From: " susan johnson " <shireen42@...> Who ever said coffee is a vice? J Hi Group-- I will just jump right back in, I have been gone for about 45 days and actually may have to leave again soon. Here's some info on coffee: it can cause exhausted adrenal glands, blood sugar swings, acid imbalance and mineral depletion. This is due to the tannins in the coffee and also black tea, caffeine is not really a big problem. No Pred in Georgia crbdjb@... >From: " S Pickrel " <PICKREL@...> > >Hi , >I drink coffee everyday. My Doctor never said I couldn't. I would hate to >give up my one and only vice left! >Athie AIH >----- Original Message ----- > > > > From: Wheeler <nancy@...> > > > > Athie, > > > > I have had the same feelings as you about drinking alcohol.. I never > > used to care one way or another about it, but did take an occasional > > drink socially. Now that my dr. has told me I must never use alcohol I > > am feeling nostalgic and thinking about the holiday season and me with > > my festive 7up. I gave up caffeine also, though dr. now says for that > > once or twice a week would be all right. I guess that means Pepsi for > > the holidays. : ) Usually I drink just artesian well water. A > > margarita really would taste good! > > > > AIH Oregon Coast > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 1999 Report Share Posted September 15, 1999 Hi , How have you been? I see your still med free!! Are your lft's still normal? Glad that your back. CRBDJB@... wrote: > From: CRBDJB@... > > In a message dated 9/13/99 11:21:11 PM Pacific Daylight Time, > shireen42@... writes: > > << From: " susan johnson " <shireen42@...> > > Who ever said coffee is a vice? > > J > > Hi Group-- > > I will just jump right back in, I have been gone for about 45 days and > actually may have to leave again soon. Here's some info on coffee: it can > cause exhausted adrenal glands, blood sugar swings, acid imbalance and > mineral depletion. This is due to the tannins in the coffee and also black > tea, caffeine is not really a big problem. > > No Pred in Georgia > crbdjb@... > > > >From: " S Pickrel " <PICKREL@...> > > > >Hi , > >I drink coffee everyday. My Doctor never said I couldn't. I would hate to > >give up my one and only vice left! > >Athie AIH > >----- Original Message ----- > > > > > > From: Wheeler <nancy@...> > > > > > > Athie, > > > > > > I have had the same feelings as you about drinking alcohol.. I never > > > used to care one way or another about it, but did take an occasional > > > drink socially. Now that my dr. has told me I must never use alcohol I > > > am feeling nostalgic and thinking about the holiday season and me with > > > my festive 7up. I gave up caffeine also, though dr. now says for that > > > once or twice a week would be all right. I guess that means Pepsi for > > > the holidays. : ) Usually I drink just artesian well water. A > > > margarita really would taste good! > > > > > > AIH Oregon Coast > > > > >> > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 1999 Report Share Posted September 15, 1999 Hey -- Thanks for the welcome back! So far so good on my liver function tests, but the real test will be next Tuesday when I go see my gastro doc. I have so much to tell the group I hesitate to begin because I really do not know how active I can be right now. Some of you may remember I left town to be with my father for lung cancer surgery and that went okay, but the cancer is already back or should I say there was a short period of time they could not detect it and now it seems my father is terminal and I am not sure when I will have to go back to Texas. It may even be this weekend and therefore I would not get to my gastro doc for my next tests. Some of you may also remember that the American Liver Foundation was looking for people treating their liver disease with alternative medicine. For now to make a very long story short I went to Bethesda, land to speak at the National Institute of Health's conference for Complimentary and Alternative Medicine in Chronic Liver Disease. I still have not had time to begin to digest the overwhelming amount of information I was exposed to during this 3 day conference. In time I hope to disseminate as much information as I can to this group. One thing of great importance, I think, is I have the directory of all the attendees to the conference and can share names and telephone numbers of traditional and alternative doctors for some of you that may still be looking. There was only about 200 doctors there and a lot of those were from other countries, so there was not complete representation from the US. In fact, there was not one doctor there from Georgia, my home state. Anyway it was real cool thing to do and I got to meet some really smart people, like research doctors that never meet patients, so it was cool for them too. I guess the best thing out of this for me is that the NIH is now going to test my blood and see if they can come up with a more definitive diagnosis, since this has been one of my biggest complaints about traditional medicine, and I know there are several in this group that share this concern, because your AIH also does not meet all the markers of the disease. I could go on forever and ever, so if some of you have specific questions, that may be an easier way for me to handle this. By the way my key point in my talk, was first for myself so that I can be sure I am healthy and then feel confident in getting pregnant and being a healthy mom, and second key point was for all the people who are told they need prednisone and immuran to live, I want to make it possible for them to have safer treatment options. Also I want to eliminate the trial and error diagnosis of AIH. Fire away with your questions! No Pred in Georgia crbdjb@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 1999 Report Share Posted September 16, 1999 , My thoughts and prayers are with you and your father. It is much easier to deal without own diseases sometimes than it is someone we love. I look forward to hearing about what you learned at the alternative meeting conference. This is exciting----thank you, Joan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 1999 Report Share Posted September 16, 1999 What a neat thing you did! When is the next confererence and where will it be held? I'm new to this arena and have learned an awful lot about AIH in just 3 short months. I see how this disease is so dibillitating both before the diagnosis when everyone thinks you're crazy because you don't know what's wrong and then once the diagnosis, the wait and uncertainty stresses even the closest of partners and families. It's only through education and tireless work by people who are concerned that this awful disease will be recognized as the beast it is. I know it will not happen overnight, but thanks to people like you the ball stays in the right courts. I appreciate the time and effort you made! Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 1999 Report Share Posted September 16, 1999 , Wow, that conference must have been very exciting for you! I'm glad you got to go. At this point my only question is do you have anyone on that list from florida? Thanks a bunch... (AIH) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 1999 Report Share Posted September 16, 1999 In a message dated 9/16/99 4:02:45 AM Pacific Daylight Time, Pieicus@... writes: << , My thoughts and prayers are with you and your father. It is much easier to deal without own diseases sometimes than it is someone we love. I look forward to hearing about what you learned at the alternative meeting conference. This is exciting----thank you, Joan >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 1999 Report Share Posted September 19, 1999 , You and your father are in our prayers during this most difficult time. God be with you and your family. CRBDJB@... wrote: > From: CRBDJB@... > > Hey -- > > Thanks for the welcome back! So far so good on my liver function tests, but > the real test will be next Tuesday when I go see my gastro doc. I have so > much to tell the group I hesitate to begin because I really do not know how > active I can be right now. > > Some of you may remember I left town to be with my father for lung cancer > surgery and that went okay, but the cancer is already back or should I say > there was a short period of time they could not detect it and now it seems my > father is terminal and I am not sure when I will have to go back to Texas. > It may even be this weekend and therefore I would not get to my gastro doc > for my next tests. > > Some of you may also remember that the American Liver Foundation was looking > for people treating their liver disease with alternative medicine. For now > to make a very long story short I went to Bethesda, land to speak at the > National Institute of Health's conference for Complimentary and Alternative > Medicine in Chronic Liver Disease. I still have not had time to begin to > digest the overwhelming amount of information I was exposed to during this 3 > day conference. In time I hope to disseminate as much information as I can > to this group. One thing of great importance, I think, is I have the > directory of all the attendees to the conference and can share names and > telephone numbers of traditional and alternative doctors for some of you that > may still be looking. There was only about 200 doctors there and a lot of > those were from other countries, so there was not complete representation > from the US. In fact, there was not one doctor there from Georgia, my home > state. > > Anyway it was real cool thing to do and I got to meet some really smart > people, like research doctors that never meet patients, so it was cool for > them too. I guess the best thing out of this for me is that the NIH is now > going to test my blood and see if they can come up with a more definitive > diagnosis, since this has been one of my biggest complaints about traditional > medicine, and I know there are several in this group that share this concern, > because your AIH also does not meet all the markers of the disease. > > I could go on forever and ever, so if some of you have specific questions, > that may be an easier way for me to handle this. By the way my key point in > my talk, was first for myself so that I can be sure I am healthy and then > feel confident in getting pregnant and being a healthy mom, and second key > point was for all the people who are told they need prednisone and immuran to > live, I want to make it possible for them to have safer treatment options. > Also I want to eliminate the trial and error diagnosis of AIH. > > Fire away with your questions! > > No Pred in Georgia > crbdjb@... > > > Please support the American Liver Foundation! > > 1.) To subscribe send e-mail to -subscribeonelist > 2.) To UNsubscribe send to -unsubscribeonelist > 3.) Digest e-mail format send to -digestonelist > 4.) Normal e-mail format send to -normalonelist Quote Link to comment Share on other sites More sharing options...
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