Re: Autoimmune Hepatitis Checkup

[Guest guest]

Hi ,

I have lived with this disease for about 15 years now. It is possible. I

have to tell you that every case is quite different. I have been fortunate

to be able to be off most of my medications and I attribute much of that to

lifestyle changes. Depending on the doctor, most will try to lower the

prednisone while keeping the Imuran, IF the enzymes are normal.

[Guest guest]

,

Welcome. I know you will find hope and a newfound knowledge from this

group.

I have had this disease for around 2 1/2 years now. ALT'S AND AST'S

originally were in the 2000's. With the medication I am lucky to be classed

as being in remission. I have had a flare-up (where the numbers go up for

no apparent reason) but am getting back to normal now.

I have the pain in the URQ all the time. Whether the counts are high or

not. I know what you are saying about the way you feel when you are laying

down. I am only able to lay for maximum of 5 hours before it gets to the

stage that I have to get up and get the pressure of the liver off whatever

it is resting against. Terrible feeling isn't it. You are lucky to be on a

reasonably small dose of pred at this time.

I hope all goes well with you and you wean off the pred really quickly and

with no complications. Best of luck.

SueB.

----------

> From: <williamc@...>

> ' onelist'

> Subject: [ ] Autoimmune Hepatitis Checkup

> Date: Tuesday, 27 July 1999 9:59

>

> From: <williamc@...>

>

> All,

>

> I have to say.. what a wonderful place to voice my concerns about my

malady.

> I never knew this existed until recently, and I thank whoever set it up.

On

> to my question, I have a routine checkup for my Autoimmune Hepatitis this

> Wednesday. It's been 8 months since I was diagnosed, and I'm currently

> taking 10mg Prednizone, and 50MG of Immuran. Everything I've read has

> indicated that I can get off the " worst " drug in history soon!!.. I hope

> so.. I've not gotten some of the significant side effects, I've only

gained

> about 10 lbs.

>

> It's funny, I had this disease for at least 10 years before anyone knew

what

> it was.. they all thought that I had elevated enzyme counts.. until a

> wonderful doctor indicated that it wasn't NORMAL!!..

>

> But, what can I expect at 8 months? Will I see significant change? I

still

> get periodic uncomfort in my upper right quad...(it's like you know

you're

> liver is there!! " ) anyone experience this?...like when you're

sleeping..you

> can feel something against your ribs.. so.. I'm worried that the

> inflammation hasn't decreased..?

>

> I tell you though.. I'm still pretty scared about this disease.. and

would

> love to hear from people who've had this for a long time and have had

> successful treatment.. My worst fear is a transplant, but everything I

read

> seems to dispel this.

>

> Thanks for your support, I look forward to hearing from all of you.

>

> Regards,

> --

> w i l l i a m q. c o l e m a n

>

>

> ---------------------------

[Guest guest]

Hi ,

Just wanted to reply to your E-mail and let you know

that i too have the discomfort in the upper abdomen.

Its so strange, I cant work out what it is. I got my

labs done and my enzymes are still normal. However, i

have this discomfort on my right side just beneath my

rib cage and hurts on pressure. Its more of a dull

ache as if I have been kicked in the side. More

noticiable is the tenderness in the centre just

beneath the triangle of the rib cage. I went to the

doctor about this and he is stumped. He suggested

liver inflammation even though my enzymes are normal.

Does anyone know if it is possible to have liver

inflammation with low LFT's? Anyway, Im going to have

an ultrasound and hopefully that will give me some

answers. Last time i had an ultrasound all it showed

was sludge in my gall bladder.

I hope you are well

Take care

Elena

--- <williamc@...> wrote:

> From: <williamc@...>

>

> All,

>

> I have to say.. what a wonderful place to voice my

> concerns about my malady.

> I never knew this existed until recently, and I

> thank whoever set it up. On

> to my question, I have a routine checkup for my

> Autoimmune Hepatitis this

> Wednesday. It's been 8 months since I was

> diagnosed, and I'm currently

> taking 10mg Prednizone, and 50MG of Immuran.

> Everything I've read has

> indicated that I can get off the " worst " drug in

> history soon!!.. I hope

> so.. I've not gotten some of the significant side

> effects, I've only gained

> about 10 lbs.

>

> It's funny, I had this disease for at least 10 years

> before anyone knew what

> it was.. they all thought that I had elevated enzyme

> counts.. until a

> wonderful doctor indicated that it wasn't NORMAL!!..

>

> But, what can I expect at 8 months? Will I see

> significant change? I still

> get periodic uncomfort in my upper right

> quad...(it's like you know you're

> liver is there!! " ) anyone experience this?...like

> when you're sleeping..you

> can feel something against your ribs.. so.. I'm

> worried that the

> inflammation hasn't decreased..?

>

> I tell you though.. I'm still pretty scared about

> this disease.. and would

> love to hear from people who've had this for a long

> time and have had

> successful treatment.. My worst fear is a

> transplant, but everything I read

> seems to dispel this.

>

> Thanks for your support, I look forward to hearing

> from all of you.

>

> Regards,

> --

> w i l l i a m q. c o l e m a n

>

>

> ---------------------------

[Guest guest]

Hi ,Just wanted to reply to your E-mail and let

you know

that i too have the discomfort in the upper abdomen.

Its so strange, I cant work out what it is. I got my

labs done and my enzymes are still normal. However, i

have this discomfort on my right side just beneath my

rib cage and hurts on pressure. Its more of a dull

ache as if I have been kicked in the side. More

noticiable is the tenderness in the centre just

beneath the triangle of the rib cage. I went to the

doctor about this and he is stumped. He suggested

liver inflammation even though my enzymes are normal.

Does anyone know if it is possible to have liver

inflammation with low LFT's? Anyway, Im going to have

an ultrasound and hopefully that will give me some

answers. Last time i had an ultrasound all it showed

was sludge in my gall bladder.I hope you are wellTake

careElena

--- <williamc@...> wrote:

> From: <williamc@...>

>

> All,

>

> I have to say.. what a wonderful place to voice my

> concerns about my malady.

> I never knew this existed until recently, and I

> thank whoever set it up. On

> to my question, I have a routine checkup for my

> Autoimmune Hepatitis this

> Wednesday. It's been 8 months since I was

> diagnosed, and I'm currently

> taking 10mg Prednizone, and 50MG of Immuran.

> Everything I've read has

> indicated that I can get off the " worst " drug in

> history soon!!.. I hope

> so.. I've not gotten some of the significant side

> effects, I've only gained

> about 10 lbs.

>

> It's funny, I had this disease for at least 10 years

> before anyone knew what

> it was.. they all thought that I had elevated enzyme

> counts.. until a

> wonderful doctor indicated that it wasn't NORMAL!!..

>

> But, what can I expect at 8 months? Will I see

> significant change? I still

> get periodic uncomfort in my upper right

> quad...(it's like you know you're

> liver is there!! " ) anyone experience this?...like

> when you're sleeping..you

> can feel something against your ribs.. so.. I'm

> worried that the

> inflammation hasn't decreased..?

>

> I tell you though.. I'm still pretty scared about

> this disease.. and would

> love to hear from people who've had this for a long

> time and have had

> successful treatment.. My worst fear is a

> transplant, but everything I read

> seems to dispel this.

>

> Thanks for your support, I look forward to hearing

> from all of you.

>

> Regards,

> --

> w i l l i a m q. c o l e m a n

>

>

> ---------------------------

[Guest guest]

Elena,

Me too on all the abdominal discomfort!

Anita g.

[Guest guest]

Hi, I have the same upper right quadrant pain and my

LFTs have been eleveted and also normal at times. But

the one constant has been the sedimentation rate also

called Sed Rate or ESR. I have noticed that when the

liver hurts the most my sed rate is in the upper 50s

or low 60s. Sed rates determine an inflammation in

the body. Unfortunately it doesnt say for sure if its

coming from the liver or joint pains. But over the

last year I have noticed that my joints feel pretty

good (for my joints) and yet my sed rate is 65 an all

time high for me. Im convinced its my liver causing

this elevation. I wont get confirmation til I see the

liver doc in a week. Thats my therory as Ive done my

own research on my health. Some doctors seem to

watch the sed rates closely others dont give it much

importances..

Jody

===

ISO B-family

DOB 5-23-61

b-name: Compton

*VOTE TO RE-ESTABLISH ADOPTEES RIGHTS TO KNOW THEIR

FAMILIES**

---Elena P <brit71@...> wrote:

>

> From: Elena P <brit71@...>

>

> Hi ,

> Just wanted to reply to your E-mail and let you know

> that i too have the discomfort in the upper abdomen.

> Its so strange, I cant work out what it is. I got my

> labs done and my enzymes are still normal. However, i

> have this discomfort on my right side just beneath my

> rib cage and hurts on pressure. Its more of a dull

> ache as if I have been kicked in the side. More

> noticiable is the tenderness in the centre just

> beneath the triangle of the rib cage. I went to the

> doctor about this and he is stumped. He suggested

> liver inflammation even though my enzymes are normal.

> Does anyone know if it is possible to have liver

> inflammation with low LFT's? Anyway, Im going to have

> an ultrasound and hopefully that will give me some

> answers. Last time i had an ultrasound all it showed

> was sludge in my gall bladder.

> I hope you are well

> Take care

> Elena

>

> --- <williamc@...> wrote:

> > From: <williamc@...>

> >

> > All,

> >

> > I have to say.. what a wonderful place to voice my

> > concerns about my malady.

> > I never knew this existed until recently, and I

> > thank whoever set it up. On

> > to my question, I have a routine checkup for my

> > Autoimmune Hepatitis this

> > Wednesday. It's been 8 months since I was

> > diagnosed, and I'm currently

> > taking 10mg Prednizone, and 50MG of Immuran.

> > Everything I've read has

> > indicated that I can get off the " worst " drug in

> > history soon!!.. I hope

> > so.. I've not gotten some of the significant side

> > effects, I've only gained

> > about 10 lbs.

> >

> > It's funny, I had this disease for at least 10

years

> > before anyone knew what

> > it was.. they all thought that I had elevated

enzyme

> > counts.. until a

> > wonderful doctor indicated that it wasn't

NORMAL!!..

> >

> > But, what can I expect at 8 months? Will I see

> > significant change? I still

> > get periodic uncomfort in my upper right

> > quad...(it's like you know you're

> > liver is there!! " ) anyone experience this?...like

> > when you're sleeping..you

> > can feel something against your ribs.. so.. I'm

> > worried that the

> > inflammation hasn't decreased..?

> >

> > I tell you though.. I'm still pretty scared about

> > this disease.. and would

> > love to hear from people who've had this for a long

> > time and have had

> > successful treatment.. My worst fear is a

> > transplant, but everything I read

> > seems to dispel this.

> >

> > Thanks for your support, I look forward to hearing

> > from all of you.

> >

> > Regards,

> > --

> > w i l l i a m q. c o l e m a n

> >

> >

> > ---------------------------

[Guest guest]

Hi, I have the same upper right quadrant pain and my

LFTs have been eleveted and also normal at times. But

the one constant has been the sedimentation rate also

called Sed Rate or ESR. I have noticed that when the

liver hurts the most my sed rate is in the upper 50s

or low 60s. Sed rates determine an inflammation in

the body. Unfortunately it doesnt say for sure if its

coming from the liver or joint pains. But over the

last year I have noticed that my joints feel pretty

good (for my joints) and yet my sed rate is 65 an all

time high for me. Im convinced its my liver causing

this elevation. I wont get confirmation til I see the

liver doc in a week. Thats my therory as Ive done my

own research on my health. Some doctors seem to

watch the sed rates closely others dont give it much

importances..

Jody

===

ISO B-family

DOB 5-23-61

b-name: Compton

*VOTE TO RE-ESTABLISH ADOPTEES RIGHTS TO KNOW THEIR

FAMILIES**

---Elena P <brit71@...> wrote:

>

> From: Elena P <brit71@...>

>

> Hi ,

> Just wanted to reply to your E-mail and let you know

> that i too have the discomfort in the upper abdomen.

> Its so strange, I cant work out what it is. I got my

> labs done and my enzymes are still normal. However, i

> have this discomfort on my right side just beneath my

> rib cage and hurts on pressure. Its more of a dull

> ache as if I have been kicked in the side. More

> noticiable is the tenderness in the centre just

> beneath the triangle of the rib cage. I went to the

> doctor about this and he is stumped. He suggested

> liver inflammation even though my enzymes are normal.

> Does anyone know if it is possible to have liver

> inflammation with low LFT's? Anyway, Im going to have

> an ultrasound and hopefully that will give me some

> answers. Last time i had an ultrasound all it showed

> was sludge in my gall bladder.

> I hope you are well

> Take care

> Elena

>

> --- <williamc@...> wrote:

> > From: <williamc@...>

> >

> > All,

> >

> > I have to say.. what a wonderful place to voice my

> > concerns about my malady.

> > I never knew this existed until recently, and I

> > thank whoever set it up. On

> > to my question, I have a routine checkup for my

> > Autoimmune Hepatitis this

> > Wednesday. It's been 8 months since I was

> > diagnosed, and I'm currently

> > taking 10mg Prednizone, and 50MG of Immuran.

> > Everything I've read has

> > indicated that I can get off the " worst " drug in

> > history soon!!.. I hope

> > so.. I've not gotten some of the significant side

> > effects, I've only gained

> > about 10 lbs.

> >

> > It's funny, I had this disease for at least 10

years

> > before anyone knew what

> > it was.. they all thought that I had elevated

enzyme

> > counts.. until a

> > wonderful doctor indicated that it wasn't

NORMAL!!..

> >

> > But, what can I expect at 8 months? Will I see

> > significant change? I still

> > get periodic uncomfort in my upper right

> > quad...(it's like you know you're

> > liver is there!! " ) anyone experience this?...like

> > when you're sleeping..you

> > can feel something against your ribs.. so.. I'm

> > worried that the

> > inflammation hasn't decreased..?

> >

> > I tell you though.. I'm still pretty scared about

> > this disease.. and would

> > love to hear from people who've had this for a long

> > time and have had

> > successful treatment.. My worst fear is a

> > transplant, but everything I read

> > seems to dispel this.

> >

> > Thanks for your support, I look forward to hearing

> > from all of you.

> >

> > Regards,

> > --

> > w i l l i a m q. c o l e m a n

> >

> >

> > ---------------------------

[Guest guest]

Hi, I have the same upper right quadrant pain and my

LFTs have been eleveted and also normal at times. But

the one constant has been the sedimentation rate also

called Sed Rate or ESR. I have noticed that when the

liver hurts the most my sed rate is in the upper 50s

or low 60s. Sed rates determine an inflammation in

the body. Unfortunately it doesnt say for sure if its

coming from the liver or joint pains. But over the

last year I have noticed that my joints feel pretty

good (for my joints) and yet my sed rate is 65 an all

time high for me. Im convinced its my liver causing

this elevation. I wont get confirmation til I see the

liver doc in a week. Thats my therory as Ive done my

own research on my health. Some doctors seem to

watch the sed rates closely others dont give it much

importances.. Oh one more thing.. the normal limits

for the sed rate are 0-20 for women 1-10 for men.

Jody

===

ISO B-family

DOB 5-23-61

b-name: Compton

*VOTE TO RE-ESTABLISH ADOPTEES RIGHTS TO KNOW THEIR

FAMILIES**

---Elena P <brit71@...> wrote:

>

> From: Elena P <brit71@...>

>

> Hi ,

> Just wanted to reply to your E-mail and let you know

> that i too have the discomfort in the upper abdomen.

> Its so strange, I cant work out what it is. I got my

> labs done and my enzymes are still normal. However, i

> have this discomfort on my right side just beneath my

> rib cage and hurts on pressure. Its more of a dull

> ache as if I have been kicked in the side. More

> noticiable is the tenderness in the centre just

> beneath the triangle of the rib cage. I went to the

> doctor about this and he is stumped. He suggested

> liver inflammation even though my enzymes are normal.

> Does anyone know if it is possible to have liver

> inflammation with low LFT's? Anyway, Im going to have

> an ultrasound and hopefully that will give me some

> answers. Last time i had an ultrasound all it showed

> was sludge in my gall bladder.

> I hope you are well

> Take care

> Elena

>

> --- <williamc@...> wrote:

> > From: <williamc@...>

> >

> > All,

> >

> > I have to say.. what a wonderful place to voice my

> > concerns about my malady.

> > I never knew this existed until recently, and I

> > thank whoever set it up. On

> > to my question, I have a routine checkup for my

> > Autoimmune Hepatitis this

> > Wednesday. It's been 8 months since I was

> > diagnosed, and I'm currently

> > taking 10mg Prednizone, and 50MG of Immuran.

> > Everything I've read has

> > indicated that I can get off the " worst " drug in

> > history soon!!.. I hope

> > so.. I've not gotten some of the significant side

> > effects, I've only gained

> > about 10 lbs.

> >

> > It's funny, I had this disease for at least 10

years

> > before anyone knew what

> > it was.. they all thought that I had elevated

enzyme

> > counts.. until a

> > wonderful doctor indicated that it wasn't

NORMAL!!..

> >

> > But, what can I expect at 8 months? Will I see

> > significant change? I still

> > get periodic uncomfort in my upper right

> > quad...(it's like you know you're

> > liver is there!! " ) anyone experience this?...like

> > when you're sleeping..you

> > can feel something against your ribs.. so.. I'm

> > worried that the

> > inflammation hasn't decreased..?

> >

> > I tell you though.. I'm still pretty scared about

> > this disease.. and would

> > love to hear from people who've had this for a long

> > time and have had

> > successful treatment.. My worst fear is a

> > transplant, but everything I read

> > seems to dispel this.

> >

> > Thanks for your support, I look forward to hearing

> > from all of you.

> >

> > Regards,

> > --

> > w i l l i a m q. c o l e m a n

> >

> >

> > ---------------------------

[Guest guest]

Hi, I have the same upper right quadrant pain and my

LFTs have been eleveted and also normal at times. But

the one constant has been the sedimentation rate also

called Sed Rate or ESR. I have noticed that when the

liver hurts the most my sed rate is in the upper 50s

or low 60s. Sed rates determine an inflammation in

the body. Unfortunately it doesnt say for sure if its

coming from the liver or joint pains. But over the

last year I have noticed that my joints feel pretty

good (for my joints) and yet my sed rate is 65 an all

time high for me. Im convinced its my liver causing

this elevation. I wont get confirmation til I see the

liver doc in a week. Thats my therory as Ive done my

own research on my health. Some doctors seem to

watch the sed rates closely others dont give it much

importances.. Oh one more thing.. the normal limits

for the sed rate are 0-20 for women 1-10 for men.

Jody

===

ISO B-family

DOB 5-23-61

b-name: Compton

*VOTE TO RE-ESTABLISH ADOPTEES RIGHTS TO KNOW THEIR

FAMILIES**

---Elena P <brit71@...> wrote:

>

> From: Elena P <brit71@...>

>

> Hi ,

> Just wanted to reply to your E-mail and let you know

> that i too have the discomfort in the upper abdomen.

> Its so strange, I cant work out what it is. I got my

> labs done and my enzymes are still normal. However, i

> have this discomfort on my right side just beneath my

> rib cage and hurts on pressure. Its more of a dull

> ache as if I have been kicked in the side. More

> noticiable is the tenderness in the centre just

> beneath the triangle of the rib cage. I went to the

> doctor about this and he is stumped. He suggested

> liver inflammation even though my enzymes are normal.

> Does anyone know if it is possible to have liver

> inflammation with low LFT's? Anyway, Im going to have

> an ultrasound and hopefully that will give me some

> answers. Last time i had an ultrasound all it showed

> was sludge in my gall bladder.

> I hope you are well

> Take care

> Elena

>

> --- <williamc@...> wrote:

> > From: <williamc@...>

> >

> > All,

> >

> > I have to say.. what a wonderful place to voice my

> > concerns about my malady.

> > I never knew this existed until recently, and I

> > thank whoever set it up. On

> > to my question, I have a routine checkup for my

> > Autoimmune Hepatitis this

> > Wednesday. It's been 8 months since I was

> > diagnosed, and I'm currently

> > taking 10mg Prednizone, and 50MG of Immuran.

> > Everything I've read has

> > indicated that I can get off the " worst " drug in

> > history soon!!.. I hope

> > so.. I've not gotten some of the significant side

> > effects, I've only gained

> > about 10 lbs.

> >

> > It's funny, I had this disease for at least 10

years

> > before anyone knew what

> > it was.. they all thought that I had elevated

enzyme

> > counts.. until a

> > wonderful doctor indicated that it wasn't

NORMAL!!..

> >

> > But, what can I expect at 8 months? Will I see

> > significant change? I still

> > get periodic uncomfort in my upper right

> > quad...(it's like you know you're

> > liver is there!! " ) anyone experience this?...like

> > when you're sleeping..you

> > can feel something against your ribs.. so.. I'm

> > worried that the

> > inflammation hasn't decreased..?

> >

> > I tell you though.. I'm still pretty scared about

> > this disease.. and would

> > love to hear from people who've had this for a long

> > time and have had

> > successful treatment.. My worst fear is a

> > transplant, but everything I read

> > seems to dispel this.

> >

> > Thanks for your support, I look forward to hearing

> > from all of you.

> >

> > Regards,

> > --

> > w i l l i a m q. c o l e m a n

> >

> >

> > ---------------------------

[Guest guest]

Welcome to the group...Hope you find all that you need here...the main thing

being lots of people who will become your friends and really care about what

you are going thru...

My name is Luanne and I'm here because of my 16 yr old son who has Crohns,

RH,PSC and AIH....You can ask any questions here and someone will come up

with some answers for you...or just wish you well if they don't know the

answers...

Luanne Ty's mom

[Guest guest]

Hi Jody,

Thanks for the reply. Thats something i havent thought

of. I will look into the sed rate next time i get my

labs. Are you saying that you had liver tenderness

even when your enzymes were normal? Both LFT's are

really low, my SGOT is only 15.

Elena

--- Jody Compton <intrigued1@...> wrote:

> From: Jody Compton <intrigued1@...>

>

> Hi, I have the same upper right quadrant pain and my

> LFTs have been eleveted and also normal at times.

> But

> the one constant has been the sedimentation rate

> also

> called Sed Rate or ESR. I have noticed that when the

> liver hurts the most my sed rate is in the upper 50s

> or low 60s. Sed rates determine an inflammation in

> the body. Unfortunately it doesnt say for sure if

> its

> coming from the liver or joint pains. But over the

> last year I have noticed that my joints feel pretty

> good (for my joints) and yet my sed rate is 65 an

> all

> time high for me. Im convinced its my liver causing

> this elevation. I wont get confirmation til I see

> the

> liver doc in a week. Thats my therory as Ive done my

> own research on my health. Some doctors seem to

> watch the sed rates closely others dont give it much

> importances.. Oh one more thing.. the normal limits

> for the sed rate are 0-20 for women 1-10 for men.

> Jody

>

> ===

> ISO B-family

> DOB 5-23-61

> b-name: Compton

> *VOTE TO RE-ESTABLISH ADOPTEES RIGHTS TO KNOW THEIR

> FAMILIES**

>

>

>

>

>

>

> ---Elena P <brit71@...> wrote:

> >

> > From: Elena P <brit71@...>

> >

> > Hi ,

> > Just wanted to reply to your E-mail and let you

> know

> > that i too have the discomfort in the upper

> abdomen.

> > Its so strange, I cant work out what it is. I got

> my

> > labs done and my enzymes are still normal.

> However, i

> > have this discomfort on my right side just beneath

> my

> > rib cage and hurts on pressure. Its more of a dull

> > ache as if I have been kicked in the side. More

> > noticiable is the tenderness in the centre just

> > beneath the triangle of the rib cage. I went to

> the

> > doctor about this and he is stumped. He suggested

> > liver inflammation even though my enzymes are

> normal.

> > Does anyone know if it is possible to have liver

> > inflammation with low LFT's? Anyway, Im going to

> have

> > an ultrasound and hopefully that will give me some

> > answers. Last time i had an ultrasound all it

> showed

> > was sludge in my gall bladder.

> > I hope you are well

> > Take care

> > Elena

> >

> > --- <williamc@...> wrote:

> > > From: <williamc@...>

> > >

> > > All,

> > >

> > > I have to say.. what a wonderful place to voice

> my

> > > concerns about my malady.

> > > I never knew this existed until recently, and I

> > > thank whoever set it up. On

> > > to my question, I have a routine checkup for my

> > > Autoimmune Hepatitis this

> > > Wednesday. It's been 8 months since I was

> > > diagnosed, and I'm currently

> > > taking 10mg Prednizone, and 50MG of Immuran.

> > > Everything I've read has

> > > indicated that I can get off the " worst " drug in

> > > history soon!!.. I hope

> > > so.. I've not gotten some of the significant

> side

> > > effects, I've only gained

> > > about 10 lbs.

> > >

> > > It's funny, I had this disease for at least 10

> years

> > > before anyone knew what

> > > it was.. they all thought that I had elevated

> enzyme

> > > counts.. until a

> > > wonderful doctor indicated that it wasn't

> NORMAL!!..

> > >

> > > But, what can I expect at 8 months? Will I see

> > > significant change? I still

> > > get periodic uncomfort in my upper right

> > > quad...(it's like you know you're

> > > liver is there!! " ) anyone experience

> this?...like

> > > when you're sleeping..you

> > > can feel something against your ribs.. so.. I'm

> > > worried that the

> > > inflammation hasn't decreased..?

> > >

> > > I tell you though.. I'm still pretty scared

> about

> > > this disease.. and would

> > > love to hear from people who've had this for a

> long

> > > time and have had

> > > successful treatment.. My worst fear is a

> > > transplant, but everything I read

> > > seems to dispel this.

> > >

> > > Thanks for your support, I look forward to

> hearing

> > > from all of you.

> > >

> > > Regards,

> > > --

> > > w i l l i a m q. c o l e m a n

> > >

> > >

> > > ---------------------------

[Guest guest]

Welcome to the " Ab " club.

Are your enzymes normal, and where abouts is the

discomfort?

Elena

Oh by the way, I have a funny one for you all! when I

told my doctor about the discomfort he was not only

stumped but also convinced that im a hypochondriac

with all this in my head. So he said that im probably

having the pain because im aware i have AIH and im

clenching my stomach muscles over my liver area to

protect it!.....Huh?!

--- AGo2864215@... wrote:

> From: AGo2864215@...

>

> Elena,

>

> Me too on all the abdominal discomfort!

>

> Anita g.

>

> ---------------------------

[Guest guest]

Just came across this page on the web about smooth

muscle antibodies. It interested me as i have a titer

of 1:180 and thought it was positive in just AIH.

However this is also saying SLE and PBC. Did anybody

know that already? I thought people with PBC tested

negative for Smooth muscle.....Hmmmmm

Screening titre: 1:20

Introduction

Auto-immune diseases are caused by a disorder of the

cellular and/or humoral immunological reaction. These

reactions which normally occur against external

influences may under certain circumstances turn

against the body itself and thereby cause various

diseases.

ASMA

Antibodies to smooth, unstriated muscle occurs in

various liver diseases, for example acute and chronic

hepatitis, primary biliary cirrhosis, and other forms

of liver cirrhosis.

Furthermore, the detection of ASMA supports the

diagnosis of SLE, infectious mononucleosis, breast and

ovarian carcinoma, and malignant melanomas.

APCA

Circulating antibodies against the structures of the

parietal cell of the gastric mucosa are generally due

to pernicious anemia. They may, however, also be

detected with other diseases of the stomach (chronic

atrophic gastritis, gastric ulcer), diseases of the

thyroid (Hashimoto's thyroiditis, myxedema), and more

rarely with hypoferric anemia, diabetes mellitus, and

in older patients.

Assessment

The determination is performed using tissue sections

of rat stomach. A serum is considered positive if a

green fluorescence of specific cell structures of the

tissue sections is visible.

The tissue section of rat stomach allows the

differentiation between various antibodies within one

test area and may thus be applied as a diagnostic test

for the following autoimmune antibodies. (In case of

diverse antibodies it is advisable to look for further

diagnostic identification.)

Antibodies to smooth muscle (ASMA):

Indication of the presence of ASMA is given by a

fluorescence of the smooth muscle fibres of the blood

vessels of kidney and stomach, of muscularis mucosa,

tunica muscularis ventriculi, as well as the

inter-glandular contractile fibrillae of the stomach

mucosa.

Antibodies to parietal cells (APCA):

Finely granular fluorescence of the parietal cells in

the gastric mucous membrane indicate APCA.

Note: Since AMA may also react with parietal cells,

anti-mitochondrial antibodies (with renal tubules)

should be excluded in the APCA assessment.

===

Elena AIH

San Diego, CA

[Guest guest]

Elena,

Well.. my enzyme have always hovered around 200+ for about 10 years.. until

a doctor finally understood what was going on.. so.. the last time I had

blood drawn was about 5 months ago.. and they were down about 40% after

three months of therapy with Prenizone and Imuran.. so.. I'm hoping that

with this checkup.. I will be around normal, or under twice normal..

crossing my fingers..

The discomfort is in the upper right quad.. right at the base of my rib

cage.. it feels like I know where my liver is...

Re: [ ] Autoimmune Hepatitis Checkup

From: Elena P <brit71@...>

Welcome to the " Ab " club.

Are your enzymes normal, and where abouts is the

discomfort?

Elena

Oh by the way, I have a funny one for you all! when I

told my doctor about the discomfort he was not only

stumped but also convinced that im a hypochondriac

with all this in my head. So he said that im probably

having the pain because im aware i have AIH and im

clenching my stomach muscles over my liver area to

protect it!.....Huh?!

--- AGo2864215@... wrote:

> From: AGo2864215@...

>

> Elena,

>

> Me too on all the abdominal discomfort!

>

> Anita g.

>

> ---------------------------

[Guest guest]

Elena,

Excuse the language, but don't some doctors come out with some crap!!!! As

if you don't know anything about anything especially your own body. I'm

sure you could teach them a thing or too.

SueB.

----------

> From: Elena P <brit71@...>

> onelist

> Subject: Re: [ ] Autoimmune Hepatitis Checkup

> Date: Wednesday, 28 July 1999 8:51

>

> From: Elena P <brit71@...>

>

> Welcome to the " Ab " club.

> Are your enzymes normal, and where abouts is the

> discomfort?

> Elena

> Oh by the way, I have a funny one for you all! when I

> told my doctor about the discomfort he was not only

> stumped but also convinced that im a hypochondriac

> with all this in my head. So he said that im probably

> having the pain because im aware i have AIH and im

> clenching my stomach muscles over my liver area to

> protect it!.....Huh?!

>

> --- AGo2864215@... wrote:

> > From: AGo2864215@...

> >

> > Elena,

> >

> > Me too on all the abdominal discomfort!

> >

> > Anita g.

> >

> > ---------------------------

[Guest guest]

I had the same sort of thing happen. I was an

inpatient with this horrible URQ pain..This doc

tested and tested..all they could determine was my

LFTs were elevated. He says " You probably have

irritable bowel and a low threshold for pain. "

????????????????

I looked up at him from the fetal position and

said " F*** you and your fired!! "

They are so arrogant that they just cant say Im

stumped you should see this other doctor..

SHEESSHH!!!

Jody

===

ISO B-family

DOB 5-23-61

b-name: Compton

*VOTE TO RE-ESTABLISH ADOPTEES RIGHTS TO KNOW THEIR

FAMILIES**

---milko <milko@...> wrote:

>

> From: " milko " <milko@...>

>

> Elena,

> Excuse the language, but don't some doctors come

out with some crap!!!! As

> if you don't know anything about anything

especially your own body. I'm

> sure you could teach them a thing or too.

> SueB.

>

> ----------

> > From: Elena P <brit71@...>

> > onelist

> > Subject: Re: [ ] Autoimmune

Hepatitis Checkup

> > Date: Wednesday, 28 July 1999 8:51

> >

> > From: Elena P <brit71@...>

> >

> > Welcome to the " Ab " club.

> > Are your enzymes normal, and where abouts is the

> > discomfort?

> > Elena

> > Oh by the way, I have a funny one for you all!

when I

> > told my doctor about the discomfort he was not only

> > stumped but also convinced that im a hypochondriac

> > with all this in my head. So he said that im

probably

> > having the pain because im aware i have AIH and im

> > clenching my stomach muscles over my liver area to

> > protect it!.....Huh?!

> >

> > --- AGo2864215@... wrote:

> > > From: AGo2864215@...

> > >

> > > Elena,

> > >

> > > Me too on all the abdominal discomfort!

> > >

> > > Anita g.

> > >

> > > ---------------------------

[Guest guest]

I had the same sort of thing happen. I was an

inpatient with this horrible URQ pain..This doc

tested and tested..all they could determine was my

LFTs were elevated. He says " You probably have

irritable bowel and a low threshold for pain. "

????????????????

I looked up at him from the fetal position and

said " F*** you and your fired!! "

They are so arrogant that they just cant say Im

stumped you should see this other doctor..

SHEESSHH!!!

Jody

===

ISO B-family

DOB 5-23-61

b-name: Compton

*VOTE TO RE-ESTABLISH ADOPTEES RIGHTS TO KNOW THEIR

FAMILIES**

---milko <milko@...> wrote:

>

> From: " milko " <milko@...>

>

> Elena,

> Excuse the language, but don't some doctors come

out with some crap!!!! As

> if you don't know anything about anything

especially your own body. I'm

> sure you could teach them a thing or too.

> SueB.

>

> ----------

> > From: Elena P <brit71@...>

> > onelist

> > Subject: Re: [ ] Autoimmune

Hepatitis Checkup

> > Date: Wednesday, 28 July 1999 8:51

> >

> > From: Elena P <brit71@...>

> >

> > Welcome to the " Ab " club.

> > Are your enzymes normal, and where abouts is the

> > discomfort?

> > Elena

> > Oh by the way, I have a funny one for you all!

when I

> > told my doctor about the discomfort he was not only

> > stumped but also convinced that im a hypochondriac

> > with all this in my head. So he said that im

probably

> > having the pain because im aware i have AIH and im

> > clenching my stomach muscles over my liver area to

> > protect it!.....Huh?!

> >

> > --- AGo2864215@... wrote:

> > > From: AGo2864215@...

> > >

> > > Elena,

> > >

> > > Me too on all the abdominal discomfort!

> > >

> > > Anita g.

> > >

> > > ---------------------------

[Guest guest]

I have been reading a ton of info regarding the

smooth muscle SMA and the mitochondrial ab or AMA. It

says that people with a pos AMA and SMA are the ones

with PSC, and that ones with neg AMA and SMA but have

a Pos ANA antinuclear ab ANA are the ones with

autoimmune cholangitis. Now at the moment I dont

remember what it says about the AIH. I will read more

and post it here when I find it..

Jody

===

ISO B-family

DOB 5-23-61

b-name: Compton

*VOTE TO RE-ESTABLISH ADOPTEES RIGHTS TO KNOW THEIR

FAMILIES**

---Elena P <brit71@...> wrote:

>

> From: Elena P <brit71@...>

>

>

>

> Just came across this page on the web about smooth

> muscle antibodies. It interested me as i have a titer

> of 1:180 and thought it was positive in just AIH.

> However this is also saying SLE and PBC. Did anybody

> know that already? I thought people with PBC tested

> negative for Smooth muscle.....Hmmmmm

>

> Screening titre: 1:20

>

>

> Introduction

>

>

> Auto-immune diseases are caused by a disorder of the

> cellular and/or humoral immunological reaction. These

> reactions which normally occur against external

> influences may under certain circumstances turn

> against the body itself and thereby cause various

> diseases.

>

> ASMA

> Antibodies to smooth, unstriated muscle occurs in

> various liver diseases, for example acute and chronic

> hepatitis, primary biliary cirrhosis, and other forms

> of liver cirrhosis.

> Furthermore, the detection of ASMA supports the

> diagnosis of SLE, infectious mononucleosis, breast

and

> ovarian carcinoma, and malignant melanomas.

>

> APCA

> Circulating antibodies against the structures of the

> parietal cell of the gastric mucosa are generally due

> to pernicious anemia. They may, however, also be

> detected with other diseases of the stomach (chronic

> atrophic gastritis, gastric ulcer), diseases of the

> thyroid (Hashimoto's thyroiditis, myxedema), and more

> rarely with hypoferric anemia, diabetes mellitus, and

> in older patients.

>

>

>

> Assessment

>

>

> The determination is performed using tissue sections

> of rat stomach. A serum is considered positive if a

> green fluorescence of specific cell structures of

the

> tissue sections is visible.

>

> The tissue section of rat stomach allows the

> differentiation between various antibodies within one

> test area and may thus be applied as a diagnostic

test

> for the following autoimmune antibodies. (In case of

> diverse antibodies it is advisable to look for

further

> diagnostic identification.)

>

>

> Antibodies to smooth muscle (ASMA):

>

> Indication of the presence of ASMA is given by a

> fluorescence of the smooth muscle fibres of the blood

> vessels of kidney and stomach, of muscularis mucosa,

> tunica muscularis ventriculi, as well as the

> inter-glandular contractile fibrillae of the stomach

> mucosa.

>

> Antibodies to parietal cells (APCA):

>

> Finely granular fluorescence of the parietal cells in

> the gastric mucous membrane indicate APCA.

>

>

> Note: Since AMA may also react with parietal cells,

> anti-mitochondrial antibodies (with renal tubules)

> should be excluded in the APCA assessment.

>

>

>

> ===

> Elena AIH

> San Diego, CA

> ---------------------------

[Guest guest]

I have been reading a ton of info regarding the

smooth muscle SMA and the mitochondrial ab or AMA. It

says that people with a pos AMA and SMA are the ones

with PSC, and that ones with neg AMA and SMA but have

a Pos ANA antinuclear ab ANA are the ones with

autoimmune cholangitis. Now at the moment I dont

remember what it says about the AIH. I will read more

and post it here when I find it..

Jody

===

ISO B-family

DOB 5-23-61

b-name: Compton

*VOTE TO RE-ESTABLISH ADOPTEES RIGHTS TO KNOW THEIR

FAMILIES**

---Elena P <brit71@...> wrote:

>

> From: Elena P <brit71@...>

>

>

>

> Just came across this page on the web about smooth

> muscle antibodies. It interested me as i have a titer

> of 1:180 and thought it was positive in just AIH.

> However this is also saying SLE and PBC. Did anybody

> know that already? I thought people with PBC tested

> negative for Smooth muscle.....Hmmmmm

>

> Screening titre: 1:20

>

>

> Introduction

>

>

> Auto-immune diseases are caused by a disorder of the

> cellular and/or humoral immunological reaction. These

> reactions which normally occur against external

> influences may under certain circumstances turn

> against the body itself and thereby cause various

> diseases.

>

> ASMA

> Antibodies to smooth, unstriated muscle occurs in

> various liver diseases, for example acute and chronic

> hepatitis, primary biliary cirrhosis, and other forms

> of liver cirrhosis.

> Furthermore, the detection of ASMA supports the

> diagnosis of SLE, infectious mononucleosis, breast

and

> ovarian carcinoma, and malignant melanomas.

>

> APCA

> Circulating antibodies against the structures of the

> parietal cell of the gastric mucosa are generally due

> to pernicious anemia. They may, however, also be

> detected with other diseases of the stomach (chronic

> atrophic gastritis, gastric ulcer), diseases of the

> thyroid (Hashimoto's thyroiditis, myxedema), and more

> rarely with hypoferric anemia, diabetes mellitus, and

> in older patients.

>

>

>

> Assessment

>

>

> The determination is performed using tissue sections

> of rat stomach. A serum is considered positive if a

> green fluorescence of specific cell structures of

the

> tissue sections is visible.

>

> The tissue section of rat stomach allows the

> differentiation between various antibodies within one

> test area and may thus be applied as a diagnostic

test

> for the following autoimmune antibodies. (In case of

> diverse antibodies it is advisable to look for

further

> diagnostic identification.)

>

>

> Antibodies to smooth muscle (ASMA):

>

> Indication of the presence of ASMA is given by a

> fluorescence of the smooth muscle fibres of the blood

> vessels of kidney and stomach, of muscularis mucosa,

> tunica muscularis ventriculi, as well as the

> inter-glandular contractile fibrillae of the stomach

> mucosa.

>

> Antibodies to parietal cells (APCA):

>

> Finely granular fluorescence of the parietal cells in

> the gastric mucous membrane indicate APCA.

>

>

> Note: Since AMA may also react with parietal cells,

> anti-mitochondrial antibodies (with renal tubules)

> should be excluded in the APCA assessment.

>

>

>

> ===

> Elena AIH

> San Diego, CA

> ---------------------------

[Guest guest]

Hi

Like yourself, I've only been diagnosed in the last several months. I'm

now on 25mg Pred (and dropping), and 50mg Imuran. My treatment plans also

include aiming to get off the Pred (YAY)! I haven't had too many side

effects either. Joint and muscle pain for the first month. I also have

" bad " days, where I'm depressed, tired, achy, and irritable ...fun. But,

those are becoming less frequent. Oh yes, and acne. But, I'll take these

to some of the other! I also had an appointment yesterday. My doctor said

we will try to taper off pred and see how that goes, though she said some

people have a hard time of this. I'm assuming that means my levels may go

up again..? Then, I will be on Imuran (azathioprine) for 2 years. At this

time, if my levels are ok, I'll try going med free and see how it goes. If

I relapse (bad word), then she said I will be on pred and imuran for life.

SCARY STUFF. She also seems to think I will relapse, because according to

her 80% of people with AIH relapse.

Anyways, sorry I'm not one of the long term experts...I just wanted to say

" hi " because our situations seem very similar right now.... Happy to meet

you!!

>From: <williamc@...>

>Reply- onelist

> " ' onelist' " < onelist>

>Subject: [ ] Autoimmune Hepatitis Checkup

>Date: Mon, 26 Jul 1999 16:59:08 -0700

>

>From: <williamc@...>

>

>All,

>

>I have to say.. what a wonderful place to voice my concerns about my

>malady.

>I never knew this existed until recently, and I thank whoever set it up.

>On

>to my question, I have a routine checkup for my Autoimmune Hepatitis this

>Wednesday. It's been 8 months since I was diagnosed, and I'm currently

>taking 10mg Prednizone, and 50MG of Immuran. Everything I've read has

>indicated that I can get off the " worst " drug in history soon!!.. I hope

>so.. I've not gotten some of the significant side effects, I've only gained

>about 10 lbs.

>

>It's funny, I had this disease for at least 10 years before anyone knew

>what

>it was.. they all thought that I had elevated enzyme counts.. until a

>wonderful doctor indicated that it wasn't NORMAL!!..

>

>But, what can I expect at 8 months? Will I see significant change? I

>still

>get periodic uncomfort in my upper right quad...(it's like you know you're

>liver is there!! " ) anyone experience this?...like when you're sleeping..you

>can feel something against your ribs.. so.. I'm worried that the

>inflammation hasn't decreased..?

>

>I tell you though.. I'm still pretty scared about this disease.. and would

>love to hear from people who've had this for a long time and have had

>successful treatment.. My worst fear is a transplant, but everything I

>read

>seems to dispel this.

>

>Thanks for your support, I look forward to hearing from all of you.

>

>Regards,

>--

>w i l l i a m q. c o l e m a n

>

>

>---------------------------

[Guest guest]

Hi everyone,

This is hilarious!!..but not really. I just had an appointment yesterday,

and I asked the doctor about my liver and kidney aches and pains. She asked

me how I knew they were my liver and kidney hurting. When I showed her

where they were, and explained myself, she dismissed it and said that since

my levels are ALT 50 and AST 88 there should be no discomfort. She said

it's probably muscle pain.

Here's a big " WHATEVER " !!

>From: Jody Compton <intrigued1@...>

>Reply- onelist

> onelist, onelist

>Subject: Re: [ ] Autoimmune Hepatitis Checkup

>Date: Wed, 28 Jul 1999 07:25:06 -0700 (PDT)

>

>From: Jody Compton <intrigued1@...>

>

>I had the same sort of thing happen. I was an

>inpatient with this horrible URQ pain..This doc

>tested and tested..all they could determine was my

>LFTs were elevated. He says " You probably have

>irritable bowel and a low threshold for pain. "

>????????????????

>I looked up at him from the fetal position and

>said " F*** you and your fired!! "

>They are so arrogant that they just cant say Im

>stumped you should see this other doctor..

>SHEESSHH!!!

>Jody

>

>

>

>

>===

>ISO B-family

>DOB 5-23-61

>b-name: Compton

>*VOTE TO RE-ESTABLISH ADOPTEES RIGHTS TO KNOW THEIR

>FAMILIES**

>

>

>

>

>

>

>---milko <milko@...> wrote:

> >

> > From: " milko " <milko@...>

> >

> > Elena,

> > Excuse the language, but don't some doctors come

>out with some crap!!!! As

> > if you don't know anything about anything

>especially your own body. I'm

> > sure you could teach them a thing or too.

> > SueB.

> >

> > ----------

> > > From: Elena P <brit71@...>

> > > onelist

> > > Subject: Re: [ ] Autoimmune

>Hepatitis Checkup

> > > Date: Wednesday, 28 July 1999 8:51

> > >

> > > From: Elena P <brit71@...>

> > >

> > > Welcome to the " Ab " club.

> > > Are your enzymes normal, and where abouts is the

> > > discomfort?

> > > Elena

> > > Oh by the way, I have a funny one for you all!

>when I

> > > told my doctor about the discomfort he was not only

> > > stumped but also convinced that im a hypochondriac

> > > with all this in my head. So he said that im

>probably

> > > having the pain because im aware i have AIH and im

> > > clenching my stomach muscles over my liver area to

> > > protect it!.....Huh?!

> > >

> > > --- AGo2864215@... wrote:

> > > > From: AGo2864215@...

> > > >

> > > > Elena,

> > > >

> > > > Me too on all the abdominal discomfort!

> > > >

> > > > Anita g.

> > > >

> > > > ---------------------------

[Guest guest]

Hi Kathy,

You know what I think is the craziest thing about the reactions of these

doctors? They treat us like hypochondriacs, yet we have been diagnosed with

AIH. We HAVE an illness. On top of this, it's a rare illness, which means

the medical field is still in the process of learning. It angers me when

they don't take notes on my symptoms. Ah well...we know better, don't we?

I wish we all didn't have these discomforts, but it is reassuring to know

others experience them as well...especially after a doctor's appointment!!!

Have fun dreams Kathy....

>From: KATBERCOO@...

>Reply- onelist

> onelist

>Subject: Re: [ ] Autoimmune Hepatitis Checkup

>Date: Thu, 29 Jul 1999 01:17:35 EDT

>

>From: KATBERCOO@...

>

>Dear :

>

>I can't tell you how many times I've been told the same thing! It seems

>that

>so many doctors have the 'if I can't see it, it doesn't exist' mentality.

>It

>is so frustrating to those of us who have almost constant discomfort of one

>kind or another.

>

>Kathy (AIH)

>Seattle area

>

>---------------------------

[Guest guest]

Dear :

I can't tell you how many times I've been told the same thing! It seems that

so many doctors have the 'if I can't see it, it doesn't exist' mentality. It

is so frustrating to those of us who have almost constant discomfort of one

kind or another.

Kathy (AIH)

Seattle area

[Guest guest]

Does anyone know of a doctor that is open to help from the patient????????

I dont know of any.

J

>From: Lynn <CEN32195@...>

>Reply- onelist

> onelist

>Subject: Re: [ ] Autoimmune Hepatitis Checkup

>Date: Thu, 29 Jul 1999 00:33:28 -0700

>MIME-Version: 1.0

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>Mailing-List: list onelist; contact

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>

>From: Lynn <CEN32195@...>

>

>I have been really busy the last few days, but have been trying to keep up

>with

>the mail. I was interested to know if anyone does keep a journal of their

>aches

>and pains and symptoms and thoughts etc. If we all did this daily or

>whenever

>something occurs, this may help people in the future. It would give all

>these

>Drs. that really have know idea of them some help. Could be a really neat

>thing. What do ya'all think? Lynn in Wa. AIH

>

>emily simpson wrote:

>

> > From: " emily simpson " <esimpson7@...>

> >

> > Hi Kathy,

> >

> > You know what I think is the craziest thing about the reactions of these

> > doctors? They treat us like hypochondriacs, yet we have been diagnosed

>with

> > AIH. We HAVE an illness. On top of this, it's a rare illness, which

>means

> > the medical field is still in the process of learning. It angers me

>when

> > they don't take notes on my symptoms. Ah well...we know better, don't

>we?

> > I wish we all didn't have these discomforts, but it is reassuring to

>know

> > others experience them as well...especially after a doctor's

>appointment!!!

> >

> > Have fun dreams Kathy....

> >

> >

> >

> > >From: KATBERCOO@...

> > >Reply- onelist

> > > onelist

> > >Subject: Re: [ ] Autoimmune Hepatitis Checkup

> > >Date: Thu, 29 Jul 1999 01:17:35 EDT

> > >

> > >From: KATBERCOO@...

> > >

> > >Dear :

> > >

> > >I can't tell you how many times I've been told the same thing! It

>seems

> > >that

> > >so many doctors have the 'if I can't see it, it doesn't exist'

>mentality.

> > >It

> > >is so frustrating to those of us who have almost constant discomfort of

>one

> > >kind or another.

> > >

> > >Kathy (AIH)

> > >Seattle area

> > >

> > >---------------------------

[Guest guest]

I have been really busy the last few days, but have been trying to keep up with

the mail. I was interested to know if anyone does keep a journal of their aches

and pains and symptoms and thoughts etc. If we all did this daily or whenever

something occurs, this may help people in the future. It would give all these

Drs. that really have know idea of them some help. Could be a really neat

thing. What do ya'all think? Lynn in Wa. AIH

emily simpson wrote:

> From: " emily simpson " <esimpson7@...>

>

> Hi Kathy,

>

> You know what I think is the craziest thing about the reactions of these

> doctors? They treat us like hypochondriacs, yet we have been diagnosed with

> AIH. We HAVE an illness. On top of this, it's a rare illness, which means

> the medical field is still in the process of learning. It angers me when

> they don't take notes on my symptoms. Ah well...we know better, don't we?

> I wish we all didn't have these discomforts, but it is reassuring to know

> others experience them as well...especially after a doctor's appointment!!!

>

> Have fun dreams Kathy....

>

>

>

> >From: KATBERCOO@...

> >Reply- onelist

> > onelist

> >Subject: Re: [ ] Autoimmune Hepatitis Checkup

> >Date: Thu, 29 Jul 1999 01:17:35 EDT

> >

> >From: KATBERCOO@...

> >

> >Dear :

> >

> >I can't tell you how many times I've been told the same thing! It seems

> >that

> >so many doctors have the 'if I can't see it, it doesn't exist' mentality.

> >It

> >is so frustrating to those of us who have almost constant discomfort of one

> >kind or another.

> >

> >Kathy (AIH)

> >Seattle area

> >

> >---------------------------