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Jeannie:

My TSH is .05 and I take .125 Synthroid too. I also still have the hypo

symptoms, but not everyday. I feel great about 3 days out of 5, but the

other 2 I feel drugged I'm so tired. I was diagnosed last Sept. so it's been

almost a year. My hair has fallen out 4 times! About every third month it

falls out for a month! Right now I'm in a re-growth stage! I hate the

unpredictability in life. I was never sick in my life until I got this, and

this year I've had all the symptoms along with carpal tunnel (miraculously

disappeared after 3 months), painful joints to where I was tested for Lupus,

rheumatoid arthritis etc. - all negative, period irregularity, acne, pinched

nerve in foot where I limped for a month (diagnosed as Morton's Neuroma),

folliculitis (infected hair follicles - another unknown and incurable

disorder!), dry eyes, of course the weight problems and Lord I don't know

what all else. I feel like a hypochondriac, and I know my family is sick of

hearing me complain!!!!!

Anyway... about the low TSH readings ... I did read that if you are on too

HIGH of a dose and your number gets below " normal " you can suffer the same

symptoms, or of course you can become hyperthyroid. I did ask my endo if I

could be on too much and she said I should stay where I am, because any time

you alter the dose (either way) you can suffer a period of adjustment with

severe symptoms. I agreed because I don't want any more symptoms!!!

Are you taking lots of vitamin supplements? I notice any time I miss a few

doses in a row my hair starts falling out... I don't think I'm imagining it!

I take a multi, a high dose complex B, a magnesium/calcium/zinc, a biotin and

another calcium each day. I probably should add others but I'm not sure

what! It really helps me to take the supplements.

Anyway, good luck and hang in there!

marylee in houston

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Lee,

I have was diagnosed with hypothyroid about 10 years

ago at the age of 32. I started out taking Armour

Thyroid, but after several years my doctor changed me

to Synthroid. He said that they were going to quit

making Armour. I think I did much better on Armour,

but I can't convince my doctor to let me take it

again. I have suffered from all of the symptoms you

have mentioned. I had a hysterectomy 5 1/2 years ago.

I was bleeding and cramping so badly and couldn't

tell when one cycle began and ended. I now think that

my thyroid might have had something to do with this.

Nine months after the hysterectomy I was diagnosed

with a benign menigioma brain tumor in the area of the

brain that controls your hearing and vision. My Nero

surgeon sent me to an ear, nose, and throat specialist

for a hearing test. He found another tumor on the

left side of my thyroid gland. I was also diagnosed

with an enlarged pituary gland (first they thought

that it was also a tumor). I had the brain tumor

removed, then the thyroid tumor removed two weeks

later. They are still watching the enlarged pituary

gland.

I also have had Carpal Tunnel. The nerve damage

finally became so bad that I had surgery on both wrist

this past April. It has made a big difference. The

pain and numbness is nearly all gone.

I guess that instead of complaining about being so

tired, I should be grateful to be alive, but sometimes

it is hard to go about daily living. I work full time

as an administrative secretary to the deputy

superintendent over Professional Development and

Personnel at a 4A school district in East Texas. We

hired 32 new employees this summer, so my department

has been extremely busy. On top of that my daughter

go married last summer and my son is getting married

in 4 weeks. While this last wedding is not as

involved as the first, I am still doing a lot for the

event. Maybe I will feel better once things calm

down.

Thanks for responding. It is nice to hear from

someone who is going through what your are. You don't

feel so alone. Thanks and good luck.

Jeannie

in Texas

--- gold61@... wrote:

> Jeannie:

> My TSH is .05 and I take .125 Synthroid too. I also

> still have the hypo

> symptoms, but not everyday. I feel great about 3

> days out of 5, but the

> other 2 I feel drugged I'm so tired. I was

> diagnosed last Sept. so it's been

> almost a year. My hair has fallen out 4 times!

> About every third month it

> falls out for a month! Right now I'm in a re-growth

> stage! I hate the

> unpredictability in life. I was never sick in my

> life until I got this, and

> this year I've had all the symptoms along with

> carpal tunnel (miraculously

> disappeared after 3 months), painful joints to where

> I was tested for Lupus,

> rheumatoid arthritis etc. - all negative, period

> irregularity, acne, pinched

> nerve in foot where I limped for a month (diagnosed

> as Morton's Neuroma),

> folliculitis (infected hair follicles - another

> unknown and incurable

> disorder!), dry eyes, of course the weight problems

> and Lord I don't know

> what all else. I feel like a hypochondriac, and I

> know my family is sick of

> hearing me complain!!!!!

>

> Anyway... about the low TSH readings ... I did read

> that if you are on too

> HIGH of a dose and your number gets below " normal "

> you can suffer the same

> symptoms, or of course you can become hyperthyroid.

> I did ask my endo if I

> could be on too much and she said I should stay

> where I am, because any time

> you alter the dose (either way) you can suffer a

> period of adjustment with

> severe symptoms. I agreed because I don't want any

> more symptoms!!!

>

> Are you taking lots of vitamin supplements? I

> notice any time I miss a few

> doses in a row my hair starts falling out... I don't

> think I'm imagining it!

> I take a multi, a high dose complex B, a

> magnesium/calcium/zinc, a biotin and

> another calcium each day. I probably should add

> others but I'm not sure

> what! It really helps me to take the supplements.

>

> Anyway, good luck and hang in there!

> marylee in houston

>

>

>

>

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>after several years my doctor changed me to Synthroid. He said that they

>were going to quit making Armour.

Either he lied, or the makers of Synthroid lied to him.

>I think I did much better on Armour, but I can't convince my doctor to let

>me take it again.

Then fire your doctor and find one who will.

He is your employee, and you are the boss. Don't forget that!

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

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  • 5 years later...

Below are my results from last year. I left my recent results in the

doctor's office yesterday, but will post those when I receive them via

mail.

TSH 7.00 (0.45-5.50)

Thyroxine Free 0.87 (0.75-2.00)

Free T3 2.01 (1.45-3.48)

Free T4 0.86 (0.71-1.85)

Thyroglobulin Autoantibodies 41* (range <40 IU/ML)

Thyroid Peroxidase Autoantibodies >625* (range <35 IU/ML

What is the difference between the Thyroxine Free score and the Free

T3 and Free T4 scores? Also, what do my auto-antibodie numbers mean to

all of you? Thanks

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  • 5 years later...

Hi sheila thank you for all your information and your valueble advice. I thought

I would just to give you a bit of my medical history.

As I said i had radiation to my thyroid 2 years ago and TSH levels have been all

over the place. Now its within 'normal' range and I am ill all the time with

tiredness, no energy or stamina. my knee and neck joints are very painful but no

swelling, as well as all other associated illnesses. The endo tried me on t3 as

well as the Levo but after a week my knees hurt so much I could hardly walk. I

stopped it for a week and my knees recovered a bit, then started the t3 again

after another week my joints were unbearable again, so I stopped it all

together. The endo said my illness has nothing to do with the thyroid and reckon

I have depression and Fibromyalgia.

What I am saying is because I couldn't tolerate the synthetic t3, will I have

the same problem with the Natural 'thyroid'?

My tablets have not arrived yet and cant wait to try them as I have been on the

sick from work now since July and if this carries on I will lose my house etc.

Thanks for your help Sheila

Avril x

>

> Hello Avril - with an endoprat like that, you are better off looking after

>

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