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Re: New/Returning Member

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,

This may seem like a strange question, but are your in-laws Ken & Rosie

Stirratt? If so, you are married to my cousin! Ken is my mother's

(SandyQuillin) sister. Someone (either Aunt Donna or Uncle Kenny) had told

me to get in touch with you, that you had been dx'd with AIH several years

ago and were doing good. Sorry to hear that your tests came back elevated.

I was just diagnosed in January of this year with AIH, so needless to say I

haven't had any experience with the living donor transplant, but this is

definitely the place to look for answers!

AIH (01/01)

Illinois

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Guest guest

Hi ,

Babycolt98102690@...

Who is Genny and part of this group has been approved to be a living donor

for her daughter Jodi. They are partly through the testing process I

believe.

I hope your lab test respond to the increase in medication and that the

enzyme increase is temporary.

Welcome back,

April - Elyse's Mom

Elyse (15 yrs old -AIH 1/01)

[ ] New/Returning Member

> Hi. I became a member when first diagnosed with AIH in May 98. Very

> helpful group in learning about the disease and some of the overwhelming

> feelings. Have had normal LFT's for over a year by taking Cellcept (a

> stronger anti-rejection drug than Imuran) and 10mg Prednisone. Then all

of

> a sudden this month in my blood tests my ALT has skyrocketed. Luckily I

> feel good. My Hepetologist decided to retest and ALT came back even

higher

> than the first test a week earlier. So he put me back up to 40mg

Prednisone

> every day with 5mg taper down every 2 weeks. He hopes that will bring

> things back down to normal again.

>

> I have one sister and she and I are looking into living doner transplant.

> She is a healthy mom with 3 kids so I was very shocked that she would even

> consider it. I'm 34 and she is 30. We are still in the early

investigation

> stages though. Anyone here had any experience with Living Doner

Transplant?

>

>

>

> (Indiana, AIH 5/98)

>

>

>

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Hi ,

I'm on Cellcept too. I was diagnosed in aug 00, and was transferred

from imuran to cell cept within 2 months of starting my meds. I'm now

on 7.5 pred 2gs cellcept.

How are you finding cellcept? what dosage are you on? how long have

you been taking it? What are your side effects, I get bouts of bad

tummy, the last one lasted the whole easter, fun! ( sorry about all

the questions, but I haven't been in contact with a non transplant

patient who is on cell cept too).

I'm encouraged to hear that you had normal lft's for a year, at least

all the side effects of cell cept won't be for nothing!

Best wishes

(age 21, London UK)

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