Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 please! reconsider surgery and get your thyroid levels fixed first. Then you may not need surgery. Gracia > Thank you for your input. I am going back to my endocrinologist in a > month (it will have been two months since I was last checked) to > check my levels. Considering the way I feel, I probaly do need my > dose increased. I have no energy at all and all I want to do is > sleep. I also am having a horrible time with insomnia, so that > doesn't help with my fatigue. This is really a tough time for me too > because I am also about to undergo back surgery in two weeks to > remove a disc in my thoractic spine (herniated disc)that is pressing > on my nerves and causing pain that wraps around from my back to my > abdomen. I just want to feel normal again and hope that I can get my > thyroid regulated. I am only 28, and I feel like I'm a lot older due > to how I feel. It is just frustrating to have to wait to see what my > dr. wants to do and it's usually a very conservative treatment. > -Sarie > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 I have some of the same issues. My doctor started me on .025 mg. I just had labs drawn today and my TSH is even higher than before I started on Synthroid. She's increasing my dose to .050 mg. When I started taking .025 of Synthroid, my TSH was 14.3. Dunno my T3 or T4 since it wasn't done at the time. Currently, after being on Synthroid for 8 weeks, my TSH is now 14.7 and my T4 is .56. I asked why she couldn't give me a larger dose and she said she was following medical protocol. She said that's what they teach you in med school about titrating thyroid hormones. She said she had another patient whose TSH was 400 and that the patient came back within normal range on .025 mg Synthroid. Then she went on to say that if I wanted to see a different physician, feel free. She may have said that because she's a Veterans Affairs doc and knows I can't afford to go elsewhere. Edie Chuck wrote: Ask your doctor to explain the cautious approach. My initial dose was 75 mcg, a typical starting dose, and I am male, so my full dose was 100 mcg, at least initially, increased at 4 weeks. Three years later, I am at 125 mcg. Chuck, Thank you for your input. I am going back to my endocrinologist in a month (it will have been two months since I was last checked) to check my levels. Considering the way I feel, I probaly do need my dose increased. I have no energy at all and all I want to do is sleep. I also am having a horrible time with insomnia, so that doesn't help with my fatigue. This is really a tough time for me too because I am also about to undergo back surgery in two weeks to remove a disc in my thoractic spine (herniated disc)that is pressing on my nerves and causing pain that wraps around from my back to my abdomen. I just want to feel normal again and hope that I can get my thyroid regulated. I am only 28, and I feel like I'm a lot older due to how I feel. It is just frustrating to have to wait to see what my dr. wants to do and it's usually a very conservative treatment. -Sarie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 I wholeheartedly concur! I had back surgery at L4-L5 for a herniated disk and now wonder if I might not have had it if I had been properly diagnosed as hypo. My back surgery did NOT alleviate my pain. As a matter of fact, it made it worse. Re: Re: Not sure if Synthroid is working please! reconsider surgery and get your thyroid levels fixed first. Then you may not need surgery. Gracia > Thank you for your input. I am going back to my endocrinologist in a > month (it will have been two months since I was last checked) to > check my levels. Considering the way I feel, I probaly do need my > dose increased. I have no energy at all and all I want to do is > sleep. I also am having a horrible time with insomnia, so that > doesn't help with my fatigue. This is really a tough time for me too > because I am also about to undergo back surgery in two weeks to > remove a disc in my thoractic spine (herniated disc)that is pressing > on my nerves and causing pain that wraps around from my back to my > abdomen. I just want to feel normal again and hope that I can get my > thyroid regulated. I am only 28, and I feel like I'm a lot older due > to how I feel. It is just frustrating to have to wait to see what my > dr. wants to do and it's usually a very conservative treatment. > -Sarie > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Sarie, You wrote: > Thank you for your input. I am going back to my endocrinologist in a > month (it will have been two months since I was last checked) to > check my levels. ... You might want to download some recommendations from the manufacturer on how to prescribe T4 before you go in. Your endo probably won't appreciate your participation in your treatment decisions, but at least you might prevent some of the boneheaded decisions we hear about here all the time: http://www.synthroid.com/patientinfo/menu0_2.jsp Best of luck, Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Gracia, You wrote to Sarie: > > please! reconsider surgery and get your thyroid levels fixed first. Then > you may not need surgery. Very succinctly put. Sarie, for once Gracia and I agree 100%. Please mark it on your calendars. I have a dog that blew out his knee (ACL). After six weeks on doggie Synthroid (with some painkillers and anti-inflammatory, too), he was back to normal with no recurrence for over six months. HypoT is associated with both back and joint problems. The vet recommended several thousand dollars worth of surgery, which only offered about a 50% chance of success. Thanks to Gail for suggesting this alternative treatment. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Edie, You wrote: > I have some of the same issues. My doctor started me on .025 mg. I just > had labs drawn today and my TSH is even higher than before I started on > Synthroid. She's increasing my dose to .050 mg. You might also want to download the actual protocols I posted earlier. Your doc may have slept through that class or at least misunderstood something. In many ways, TSH is more an indication of HOW LONG you are hypoT rather than how severely. Consequently, if you go on too low a dose, your symptoms don't get any better, and your pituitary ups the TSH to try to get things under control. So, increasing TSH even after medication would be expected in your case. I understand your being stuck in the system, but you need to do something quickly to get proper treatment before it damages other organs. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Chuck, I definitely appreciate the .pdf file on Synthroid. It definitely indicates that I should be on a larger dose! Now, I hope that I can get her to listen. Thank you so much. Edie You wrote: You might also want to download the actual protocols I posted earlier. Your doc may have slept through that class or at least misunderstood something. In many ways, TSH is more an indication of HOW LONG you are hypoT rather than how severely. Consequently, if you go on too low a dose, your symptoms don't get any better, and your pituitary ups the TSH to try to get things under control. So, increasing TSH even after medication would be expected in your case. I understand your being stuck in the system, but you need to do something quickly to get proper treatment before it damages other organs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 LOL OK I will. 5/12/06 Gracia Gracia, You wrote to Sarie: > > please! reconsider surgery and get your thyroid levels fixed first. Then > you may not need surgery. Very succinctly put. Sarie, for once Gracia and I agree 100%. Please mark it on your calendars. -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.392 / Virus Database: 268.5.6/337 - Release Date: 5/11/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2006 Report Share Posted May 13, 2006 Edie, Please post the protocols / PDF file again. Thanks. --- Edie <ediemarie@...> wrote: > Chuck, > > I definitely appreciate the .pdf file on Synthroid. > It definitely indicates > that I should be on a larger dose! Now, I hope that > I can get her to > listen. Thank you so much. > > Edie > > You wrote: > > You might also want to download the actual protocols > I posted earlier. > > Your doc may have slept through that class or at > least misunderstood > something. In many ways, TSH is more an indication > of HOW LONG you are > hypoT rather than how severely. Consequently, if you > go on too low a > dose, your symptoms don't get any better, and your > pituitary ups the TSH > to try to get things under control. So, increasing > TSH even after > medication would be expected in your case. I > understand your being stuck > in the system, but you need to do something quickly > to get proper > treatment before it damages other organs. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 I have not it is expensive. Let me know if you find out , Barb C svjuan54 <svjuan54@...> wrote: Has anyone taken and had good results with Alvidar Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 , Thanks to Chuck, here's the link: http://www.synthroid.com/patientinfo/menu0_2.jsp For the .pdf file, click on: " Download Synthroid Prescribing Information " Edie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 Great. Thanks, Edie. --- Edie <ediemarie@...> wrote: > , > > Thanks to Chuck, here's the link: > > http://www.synthroid.com/patientinfo/menu0_2.jsp > > For the .pdf file, click on: > > " Download Synthroid Prescribing Information " > > Edie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 , You wrote: > Edie, > Please post the protocols / PDF file again. That was through: http://www.synthroid.com/patientinfo/menu0_2.jsp Chuck Quote Link to comment Share on other sites More sharing options...
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