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RE: Re: Not sure if Synthroid is working

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please! reconsider surgery and get your thyroid levels fixed first. Then

you may not need surgery.

Gracia

> Thank you for your input. I am going back to my endocrinologist in a

> month (it will have been two months since I was last checked) to

> check my levels. Considering the way I feel, I probaly do need my

> dose increased. I have no energy at all and all I want to do is

> sleep. I also am having a horrible time with insomnia, so that

> doesn't help with my fatigue. This is really a tough time for me too

> because I am also about to undergo back surgery in two weeks to

> remove a disc in my thoractic spine (herniated disc)that is pressing

> on my nerves and causing pain that wraps around from my back to my

> abdomen. I just want to feel normal again and hope that I can get my

> thyroid regulated. I am only 28, and I feel like I'm a lot older due

> to how I feel. It is just frustrating to have to wait to see what my

> dr. wants to do and it's usually a very conservative treatment.

> -Sarie

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I have some of the same issues. My doctor started me on .025 mg. I just

had labs drawn today and my TSH is even higher than before I started on

Synthroid. She's increasing my dose to .050 mg. When I started taking .025

of Synthroid, my TSH was 14.3. Dunno my T3 or T4 since it wasn't done at

the time. Currently, after being on Synthroid for 8 weeks, my TSH is now

14.7 and my T4 is .56.

I asked why she couldn't give me a larger dose and she said she was

following medical protocol. She said that's what they teach you in med

school about titrating thyroid hormones. She said she had another patient

whose TSH was 400 and that the patient came back within normal range on .025

mg Synthroid. Then she went on to say that if I wanted to see a different

physician, feel free. She may have said that because she's a Veterans

Affairs doc and knows I can't afford to go elsewhere.

Edie

Chuck wrote:

Ask your doctor to explain the cautious approach. My initial dose

was 75 mcg, a typical starting dose, and I am male, so my full dose

was 100 mcg, at least initially, increased at 4 weeks. Three years

later, I am at 125 mcg.

Chuck,

Thank you for your input. I am going back to my endocrinologist in a

month (it will have been two months since I was last checked) to

check my levels. Considering the way I feel, I probaly do need my

dose increased. I have no energy at all and all I want to do is

sleep. I also am having a horrible time with insomnia, so that

doesn't help with my fatigue. This is really a tough time for me too

because I am also about to undergo back surgery in two weeks to

remove a disc in my thoractic spine (herniated disc)that is pressing

on my nerves and causing pain that wraps around from my back to my

abdomen. I just want to feel normal again and hope that I can get my

thyroid regulated. I am only 28, and I feel like I'm a lot older due

to how I feel. It is just frustrating to have to wait to see what my

dr. wants to do and it's usually a very conservative treatment.

-Sarie

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I wholeheartedly concur! I had back surgery at L4-L5 for a herniated disk

and now wonder if I might not have had it if I had been properly diagnosed

as hypo. My back surgery did NOT alleviate my pain. As a matter of fact,

it made it worse.

Re: Re: Not sure if Synthroid is working

please! reconsider surgery and get your thyroid levels fixed first. Then

you may not need surgery.

Gracia

> Thank you for your input. I am going back to my endocrinologist in a

> month (it will have been two months since I was last checked) to

> check my levels. Considering the way I feel, I probaly do need my

> dose increased. I have no energy at all and all I want to do is

> sleep. I also am having a horrible time with insomnia, so that

> doesn't help with my fatigue. This is really a tough time for me too

> because I am also about to undergo back surgery in two weeks to

> remove a disc in my thoractic spine (herniated disc)that is pressing

> on my nerves and causing pain that wraps around from my back to my

> abdomen. I just want to feel normal again and hope that I can get my

> thyroid regulated. I am only 28, and I feel like I'm a lot older due

> to how I feel. It is just frustrating to have to wait to see what my

> dr. wants to do and it's usually a very conservative treatment.

> -Sarie

>

>

>

>

>

>

>

>

>

>

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Sarie,

You wrote:

> Thank you for your input. I am going back to my endocrinologist in a

> month (it will have been two months since I was last checked) to

> check my levels. ...

You might want to download some recommendations from the manufacturer on

how to prescribe T4 before you go in. Your endo probably won't

appreciate your participation in your treatment decisions, but at least

you might prevent some of the boneheaded decisions we hear about here

all the time:

http://www.synthroid.com/patientinfo/menu0_2.jsp

Best of luck,

Chuck

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Gracia,

You wrote to Sarie:

>

> please! reconsider surgery and get your thyroid levels fixed first. Then

> you may not need surgery.

Very succinctly put. Sarie, for once Gracia and I agree 100%. Please

mark it on your calendars. :)

I have a dog that blew out his knee (ACL). After six weeks on doggie

Synthroid (with some painkillers and anti-inflammatory, too), he was

back to normal with no recurrence for over six months. HypoT is

associated with both back and joint problems. The vet recommended

several thousand dollars worth of surgery, which only offered about a

50% chance of success. Thanks to Gail for suggesting this alternative

treatment.

Chuck

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Edie,

You wrote:

> I have some of the same issues. My doctor started me on .025 mg. I just

> had labs drawn today and my TSH is even higher than before I started on

> Synthroid. She's increasing my dose to .050 mg.

You might also want to download the actual protocols I posted earlier.

Your doc may have slept through that class or at least misunderstood

something. In many ways, TSH is more an indication of HOW LONG you are

hypoT rather than how severely. Consequently, if you go on too low a

dose, your symptoms don't get any better, and your pituitary ups the TSH

to try to get things under control. So, increasing TSH even after

medication would be expected in your case. I understand your being stuck

in the system, but you need to do something quickly to get proper

treatment before it damages other organs.

Chuck

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Chuck,

I definitely appreciate the .pdf file on Synthroid. It definitely indicates

that I should be on a larger dose! Now, I hope that I can get her to

listen. Thank you so much.

Edie

You wrote:

You might also want to download the actual protocols I posted earlier.

Your doc may have slept through that class or at least misunderstood

something. In many ways, TSH is more an indication of HOW LONG you are

hypoT rather than how severely. Consequently, if you go on too low a

dose, your symptoms don't get any better, and your pituitary ups the TSH

to try to get things under control. So, increasing TSH even after

medication would be expected in your case. I understand your being stuck

in the system, but you need to do something quickly to get proper

treatment before it damages other organs.

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LOL OK I will.

5/12/06

Gracia

Gracia,

You wrote to Sarie:

>

> please! reconsider surgery and get your thyroid levels fixed first. Then

> you may not need surgery.

Very succinctly put. Sarie, for once Gracia and I agree 100%. Please

mark it on your calendars. :)

--

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.1.392 / Virus Database: 268.5.6/337 - Release Date: 5/11/2006

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Edie,

Please post the protocols / PDF file again.

Thanks.

--- Edie <ediemarie@...> wrote:

> Chuck,

>

> I definitely appreciate the .pdf file on Synthroid.

> It definitely indicates

> that I should be on a larger dose! Now, I hope that

> I can get her to

> listen. Thank you so much.

>

> Edie

>

> You wrote:

>

> You might also want to download the actual protocols

> I posted earlier.

>

> Your doc may have slept through that class or at

> least misunderstood

> something. In many ways, TSH is more an indication

> of HOW LONG you are

> hypoT rather than how severely. Consequently, if you

> go on too low a

> dose, your symptoms don't get any better, and your

> pituitary ups the TSH

> to try to get things under control. So, increasing

> TSH even after

> medication would be expected in your case. I

> understand your being stuck

> in the system, but you need to do something quickly

> to get proper

> treatment before it damages other organs.

>

>

>

>

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I have not it is expensive. Let me know if you find out , Barb C

svjuan54 <svjuan54@...> wrote: Has anyone taken and had good results with

Alvidar

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