Dealing With Other's Fears

[Guest guest]

Greetings all,

Although new to this AIH business, I too have seen people get that look of

" Is this guy contagious? " when I have to politely explain why I really don't

want to have a beer or a glass of wine. The best way I've found of getting

around that " look " is to describe AIH as " arthritis of the liver " . This

seems to work as they don't associate arthritis with the concept of

infectious.

Waiting for my latest LFT numbers as I write this. I haven't felt this

nervous since I was back in school writing finals. Fingers (and many other

parts as well) are crossed but I suspect things haven't changed since

April's biopsy.

Melbourne

[Guest guest]

Get the same thing. We need to find another name for this disease!

Hope your labs are ok. I understand the pressure on the waiting front. I

normally ring every 5 mins to see if the results are in.

Have a good one

Mark

mcgray@...

[ ] Dealing With Other's Fears

> From: " Barrett, " <.Barrett@...>

>

> Greetings all,

>

> Although new to this AIH business, I too have seen people get that look of

> " Is this guy contagious? " when I have to politely explain why I really

don't

> want to have a beer or a glass of wine. The best way I've found of

getting

> around that " look " is to describe AIH as " arthritis of the liver " . This

> seems to work as they don't associate arthritis with the concept of

> infectious.

>

> Waiting for my latest LFT numbers as I write this. I haven't felt this

> nervous since I was back in school writing finals. Fingers (and many

other

> parts as well) are crossed but I suspect things haven't changed since

> April's biopsy.

>

>

> Melbourne

>

> ------------------------------------------------------------------------

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[Guest guest]

,

Good luck with your numbers. I got mine today. AST normal for the first

time in 2 1/2 years ALT 86 best it has ever been and the others are coming

down also. Great feeling. Only problem is that going withdrawal from

weaning off pred. to low too quick they tell me have to increase it for a

little while yet. Terrible side affects from it. But at least the good news

is the numbers are going the right way this time.

I'll keep my fingers crossed for you for good results.

Sue B. NSW.

----------

> From: Barrett, <.Barrett@...>

> ' onelist'

> Subject: [ ] Dealing With Other's Fears

> Date: Tuesday, 1 June 1999 14:04

>

> From: " Barrett, " <.Barrett@...>

>

> Greetings all,

>

> Although new to this AIH business, I too have seen people get that look

of

> " Is this guy contagious? " when I have to politely explain why I really

don't

> want to have a beer or a glass of wine. The best way I've found of

getting

> around that " look " is to describe AIH as " arthritis of the liver " . This

> seems to work as they don't associate arthritis with the concept of

> infectious.

>

> Waiting for my latest LFT numbers as I write this. I haven't felt this

> nervous since I was back in school writing finals. Fingers (and many

other

> parts as well) are crossed but I suspect things haven't changed since

> April's biopsy.

>

>

> Melbourne

>

> ------------------------------------------------------------------------

> Give back to your community through " Grow to Give. "

> http://www.ONElist.com

> See homepage for details.

> ------------------------------------------------------------------------

> Please support the American Liver Foundation!

>

> 1.) To subscribe send e-mail to -subscribeonelist

> 2.) To UNsubscribe send to -unsubscribeonelist

> 3.) Digest e-mail format send to -digestonelist

> 4.) Normal e-mail format send to -normalonelist

[Guest guest]

:

I like telling people that I have AIH because they look like they have to

back up to talk to you. I do not lie to them but when I tell them what it

is, I also end with saying that they will not get it like chicken pox etc.

People are so dumb sometimes.

Sue AIH

Wisconsin

[Guest guest]

I agree about the name. I always tell people I have an auto-immune

disorder. And then explain that my immune system is attacking my

liver. They understand that a little easier and don't ask if it is

contagious.

Still it is hard for people to understand that I have a liver disease

when I look perfectly fine. So when I say I am tired no one seems to

understan what I am saying like our fellow AIH members.

Hope you are feeling well!

Take care Lisel