Guest guest Posted June 5, 1999 Report Share Posted June 5, 1999 Geri: The rash started when I was in San Diego. It is getting worse. I itch alot but I tired to get into my doctor but couldn't. He has a new nurse and she would not budge on getting me to see him so I will wait until Monday. She suggested that I see this new doctor (old) but I said only Dr Burke knows my case and I am not going to spend the afternoon explaining my illness to some old doctor that would say it is in my head. I will let you know Monday. I only use Dove and sometimes some of the baths soaps with the scrubber but in our family none of us can use many soaps etc because My daughter and my husband have baby butt skin. Since AIH I put alot of cream all over my body. I have some cream - Vanicream that they use in the Mayo clinic on all floors in the doctors offices. I bought some and I couldn't believe the solf elbows I got when I used it. My elbows are so rough but not any more. Sue AIH Wisconsin PS Welcome back. I knew you were gone. I missed your answers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 1999 Report Share Posted June 6, 1999 Sue, What a dirty trick, for you to have to deal with a rash on your trip to San Diego. I hope it wasn't so much problem it interfered with our enjoyment of the occasion. I had a siege of itching today and took a Benadryl right away before it got out of control. It looked like it would develop into full scale hives and I wasn't ready to go through that again. Have you tried Benadryl for itching? It apparently is harmless since my doctor has even suggested I take it to help me sleep. Next time you run into a problem getting past your doctor's nurse and she won't get you in right away, tell her that you want the doctor to call you ASAP because you consider it to be an emergency situtation (but not life threatening.) She HAS to pass on the message, at least, and then let the doctor override the nurse's decision not to give you an appointment. If she refuses to pass on the message, she's going into some dangerous territory and creating some serious liability for her employer (the doctor.) Our egos need to be massaged a little. Those soaps and creams can go a long ways towards making us feel more " human " . I used to scrub my face with any old hand soap and used Zest for showers, figuring creams and lotions afterwards would take care of dry skin. But when my skin started becoming hypersensitive I discovered a whole new world of special bath gels, etc. Do you have to buy Vanicream in a pharmacy? I'd love to try it. It sounds like it's just what I could use right now. Lately, my skin is dry within 8 hours after I've showered. If I could break myself from playing with my computer, I'd be online more often. I'm always changing something and creating new problems that take me hours to clean up. This week has been hectic anyhow and the rest of the summer will be busy. Apparently everyone in our famillies have decided to come see us. Fortunately, not all at the same time, though some of them are dangerously close to overlapping each other. The nice thing about living in Las Vegas is that guests don't need to be entertained. They can always find plenty to do on their own. We just give them a key since we're not interested in sightseeing anymore, and tell them to be sure to lock the door when they get in. Tomorrow I'm going to make apricot jam. The strawberry jam turned out well although the berries I bought weren't great. Fortunately, jam is forgiving. Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 1999 Report Share Posted June 8, 1999 Geri: I got in today with my doctor as I wrote to . I can't do anything until I call the nurse that is head of the study group for the Budesonide. So I will call tomorrow. Did you say you don't work no more. Did you get long term disability insurance? I know you mention that you don't understand how some of the group work full time. Well, I am not full time and as of today I will only be 4 hours a day. Hoping for the Long Term Disability Insurance to kick in. Should know by the end of the week. Then of course I will be on vacation next week. We are going to Milwaukee to see the Brewers play because we have never been there and they are buiding them a new home so we want to see them play before they moved to the new stadium. As fo Vanicream, I found it at Target but I bought it at Rochester in a pharmacy in the shopping area that was connected to the clinic. I paid $13.00 for 16 oz and it was with a pump. Otherwise it is about $10.00. The people at Mayo say that they will put in on before they are completely dried and it really helps. I know that my elbows feel good The rest of my body I have other lotions for. Need alot with this body. Oh, by the way when I was showing the doctor the rash that was also on my chest, I said it is here also. I thought I was growing some new zoobies. Boy did he laugh when I told him what I meant. Well off to finish the rest of the mail. Take Care!! Sue AIH Wisconsi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 1999 Report Share Posted June 8, 1999 Sue, My only dream in life, is to travel to America and go and see a big baseball match. Lucky you going. SueB. ---------- > From: Roselle50@... > onelist > Subject: Re: [ ] Bumpy > Date: Tuesday, 8 June 1999 14:25 > > From: Roselle50@... > > Geri: > > I got in today with my doctor as I wrote to . I can't do anything until > I call the nurse that is head of the study group for the Budesonide. So I > will call tomorrow. > > Did you say you don't work no more. Did you get long term disability > insurance? > > I know you mention that you don't understand how some of the group work full > time. Well, I am not full time and as of today I will only be 4 hours a day. > Hoping for the Long Term Disability Insurance to kick in. Should know by > the end of the week. Then of course I will be on vacation next week. We are > going to Milwaukee to see the Brewers play because we have never been there > and they are buiding them a new home so we want to see them play before they > moved to the new stadium. > > As fo Vanicream, I found it at Target but I bought it at Rochester in a > pharmacy in the shopping area that was connected to the clinic. I paid > $13.00 for 16 oz and it was with a pump. Otherwise it is about $10.00. The > people at Mayo say that they will put in on before they are completely dried > and it really helps. I know that my elbows feel good The rest of my body I > have other lotions for. Need alot with this body. > > Oh, by the way when I was showing the doctor the rash that was also on my > chest, I said it is here also. I thought I was growing some new zoobies. > Boy did he laugh when I told him what I meant. > > Well off to finish the rest of the mail. > > Take Care!! > > Sue AIH > Wisconsi > > ------------------------------------------------------------------------ > With more than 20 million e-mails exchanged daily... > > ...ONElist is home to the liveliest discussions on the Internet! > ------------------------------------------------------------------------ > Please support the American Liver Foundation! > > 1.) To subscribe send e-mail to -subscribeonelist > 2.) To UNsubscribe send to -unsubscribeonelist > 3.) Digest e-mail format send to -digestonelist > 4.) Normal e-mail format send to -normalonelist Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 1999 Report Share Posted June 8, 1999 SueB: Come to America and I will take you to one. And all the pretty places in Wisconsin Sue AIH Wisconsin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 1999 Report Share Posted June 9, 1999 Sue, When I win the lottery I will hold you to that. I'd be there on the very next plane. SueB. ---------- > From: Roselle50@... > onelist > Subject: Re: [ ] Bumpy > Date: Wednesday, 9 June 1999 9:56 > > From: Roselle50@... > > SueB: > > Come to America and I will take you to one. And all the pretty places in > Wisconsin > > Sue AIH > Wisconsin > > ------------------------------------------------------------------------ > Looking to expand your world? > > ONElist has over 165,000 e-mail communities from which to choose! > ------------------------------------------------------------------------ > Please support the American Liver Foundation! > > 1.) To subscribe send e-mail to -subscribeonelist > 2.) To UNsubscribe send to -unsubscribeonelist > 3.) Digest e-mail format send to -digestonelist > 4.) Normal e-mail format send to -normalonelist Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 1999 Report Share Posted June 11, 1999 Sue, Hi. I'm getting slower and slower about keeping up with e-mail. It's just a phase! I'll be interested to hear how things go for you on Budesonide. Since I'm withdrawing from Prednisone now, if and when I have to start taking it again, I'll ask my doctor about it. So far their advice has been good, so I'll trust their judgement. You know the old saying, " if it's not broken, don't fix it " ? If Pred is working for me, no point in changing, but if it stops being effective It's good to know there's an alternative. No, I'm not working. I haven't worked for more than a year. I really do miss it for a number of reasons. I like having the structure in my life and I enjoy being around people. I don't have to tell you, I also enjoy the money. Not so motivated to work here in LV as I was before we moved here, though, since pay for idential work I did in San Francisco and Seattle is considerably lower here. It almost doesn't seem worth the effort. I'm not sure I could handle a job right now. Maybe part time, but not full time. When I feel good, I feel great, but it's too unpredictable and how do you explain to an employer that you simply have to lie down occasionally, or that you have too many aches and pains to walk around? I didn't apply for disability because it seemed like too much hassle. I probably should have. I've talked to my husband about us doing some kind of work at home. He's an engineer and I have some understanding of engineering terminology, so there are a number of things we could do together if we ever get organized. Hope you get this before you leave for vacation and do have a great time. You're a baseball fan, huh? My Dad was a high school coach and when I was a little girl he took me to games but my husband is strictly a tennis and golf fan so I've lost touch. Ever heard of a left handed pitcher named Ken Dahley? He was with the Blue Jays until he went out on disability. He's married to one of my first cousins and they live in St. Louis. He's pitched in the World Series but I don't remember which team he was with at the time. St. Louis? It was in 1988 or 1987, I think. I'm going to try to find Vanicream. It sounds like something I could use and that's not a bad price for 16 oz. I have a big problem with dry skin. I love that word zoobies. Wish I'd heard it earlier. The women in my family weren't shortchanged in the " zoobie " department, not even the skinny ones. It must be a genetic thing for some of us. Hope you have a great vacation. Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 1999 Report Share Posted June 11, 1999 Geri: I have to admit that I really don't sit and watch baseball but my husband is a baseball ,golf, curling etc nut. Since the Brewers are getting a new stadium next spring and none of our family have been to Milwaukee to see them play we decided to start our vacation a day earlier. We have gone to Minneapolis to see games because it is only 150 miles away compared to 350 to 400 miles away. I am hoping that when I get back from my trip that I will have my blood test back from the Mayo Clinic. I have been really tired this week. I don't know if it is because I am depressed that now I only work 4 hours a day or it is because of AIH. I have never not work since I was 16 years old so I guess it could be depression. I will be leaving Monday morning so I hope to have a good time and sit and read books while and her friend swim and etc. when we get to Wisconsin Dells. Talk to you soon take care! Sue AIH Wisconsin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 1999 Report Share Posted June 14, 1999 Sue, Took me awhile to answer, but I hope that you have a relaxing vacation and that you feel great. Sometimes getting away from home is what it takes to get perspective back. Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 1999 Report Share Posted June 18, 1999 Geri: Got home tonight from my vacation and went into work for one hour to get my A/P checks in the mail and came home. I had a wonderful time and 184 messages waiting for me. I am getting up in the morning and take my daugther to her first Drivers Education lesson. She will going every day for 2 hours a day for three weeks. Except for the 5th of July, that is why she is starting on a Friday. Otherwise we would of stayed longer. After gets to DE I will go out and get my dog Halo (boy I missed her) and 's dog Libby Jane. Go to the bank, mailbox and come home and rest. Sue AIH Wisconsin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 1999 Report Share Posted June 18, 1999 Sue, Sounds like you had a nice, restful vacation, but isn't it always great to be home again? As much as I love to travel, I love coming home even more. Believe it or not, my 22 year old nephew doesn't have a driver's license yet. He's in the Army, stationed in NY, and is coming home on the 25th. of this month. He'll be with us until July 9th., then goes back to NY and on July 15th., he leaves for Bosnia for 9 months. I'll worry about him a LOT. Bob is going to take him to (finally) get his driver's license while he's home. He says he has a military license but they don't work in the " real " world. I won't ride with the kids when they are learning to drive. I'm too nervous when anyone but Bob is driving. Glad you're home and I hope you're feeling great. I'll bet your little dog is happy to see you. Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 1999 Report Share Posted June 18, 1999 Sue, Welcome back. I'm sure Halo has missed you as much as you have missed her. How are you feeling? SueB. ---------- > From: Roselle50@... > onelist > Subject: Re: [ ] Bumpy > Date: Friday, 18 June 1999 13:50 > > From: Roselle50@... > > Geri: > > Got home tonight from my vacation and went into work for one hour to get my > A/P checks in the mail and came home. > > I had a wonderful time and 184 messages waiting for me. I am getting up in > the morning and take my daugther to her first Drivers Education lesson. She > will going every day for 2 hours a day for three weeks. Except for the 5th > of July, that is why she is starting on a Friday. Otherwise we would of > stayed longer. > > After gets to DE I will go out and get my dog Halo (boy I missed her) > and 's dog Libby Jane. Go to the bank, mailbox and come home and rest. > > Sue AIH > Wisconsin > > ------------------------------------------------------------------------ > Having difficulty getting " in synch " with list members? > > Try ONElist's Shared Calendar to organize events, meetings and more! > ------------------------------------------------------------------------ > Please support the American Liver Foundation! > > 1.) To subscribe send e-mail to -subscribeonelist > 2.) To UNsubscribe send to -unsubscribeonelist > 3.) Digest e-mail format send to -digestonelist > 4.) Normal e-mail format send to -normalonelist Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 1999 Report Share Posted June 19, 1999 SueB: I am feeling really good but I haven't heard about my last blood test yet. But I just have been getting tired otherwise I do feel pretty good. Ofcourse now that I only work 4 hours a day might be the reason I feel better. I was really stressed and my doctor knew this and that is why he only lets me work 4 hours a day. I have been getting a few things done around the home but now with working four hours a day I hope I can do more. Sue AIH Wisconsin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 1999 Report Share Posted June 23, 1999 Sue, So sorry to hear the news. My thoughts are with you. The best thing you can look at is that you had something to fall back on. Pred. may not be the best drug in the world as far as side affects go, but it is a life saver, nevertheless. I do hope you are feeling better by now. The anger and depression are normal courses for you to take, they will subside I am sure. Good luck with everything. SueB. ---------- > From: Roselle50@... > onelist > Subject: Re: [ ] Bumpy > Date: Saturday, 19 June 1999 14:10 > > From: Roselle50@... > > SueB: > > I am feeling really good but I haven't heard about my last blood test yet. > But I just have been getting tired otherwise I do feel pretty good. Ofcourse > now that I only work 4 hours a day might be the reason I feel better. I was > really stressed and my doctor knew this and that is why he only lets me work > 4 hours a day. I have been getting a few things done around the home but > now with working four hours a day I hope I can do more. > > Sue AIH > Wisconsin > > ------------------------------------------------------------------------ > Having difficulty getting " in synch " with list members? > > Try ONElist's Shared Calendar to organize events, meetings and more! > ------------------------------------------------------------------------ > Please support the American Liver Foundation! > > 1.) To subscribe send e-mail to -subscribeonelist > 2.) To UNsubscribe send to -unsubscribeonelist > 3.) Digest e-mail format send to -digestonelist > 4.) Normal e-mail format send to -normalonelist Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 1999 Report Share Posted June 23, 1999 Sue, How is going with the drivers ed? I'm sure our animals know when we are not altogether well. My dog never leaves my side when I am at my worst. His name is Nikki. I talk to him endlessly. He is a great listener. SueB. ---------- > From: Roselle50@... > onelist > Subject: Re: [ ] Bumpy > Date: Friday, 18 June 1999 13:50 > > From: Roselle50@... > > Geri: > > Got home tonight from my vacation and went into work for one hour to get my > A/P checks in the mail and came home. > > I had a wonderful time and 184 messages waiting for me. I am getting up in > the morning and take my daugther to her first Drivers Education lesson. She > will going every day for 2 hours a day for three weeks. Except for the 5th > of July, that is why she is starting on a Friday. Otherwise we would of > stayed longer. > > After gets to DE I will go out and get my dog Halo (boy I missed her) > and 's dog Libby Jane. Go to the bank, mailbox and come home and rest. > > Sue AIH > Wisconsin > > ------------------------------------------------------------------------ > Having difficulty getting " in synch " with list members? > > Try ONElist's Shared Calendar to organize events, meetings and more! > ------------------------------------------------------------------------ > Please support the American Liver Foundation! > > 1.) To subscribe send e-mail to -subscribeonelist > 2.) To UNsubscribe send to -unsubscribeonelist > 3.) Digest e-mail format send to -digestonelist > 4.) Normal e-mail format send to -normalonelist Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 1999 Report Share Posted June 23, 1999 Sue, How is going with the drivers ed? I'm sure our animals know when we are not altogether well. My dog never leaves my side when I am at my worst. His name is Nikki. I talk to him endlessly. He is a great listener. SueB. ---------- > From: Roselle50@... > onelist > Subject: Re: [ ] Bumpy > Date: Friday, 18 June 1999 13:50 > > From: Roselle50@... > > Geri: > > Got home tonight from my vacation and went into work for one hour to get my > A/P checks in the mail and came home. > > I had a wonderful time and 184 messages waiting for me. I am getting up in > the morning and take my daugther to her first Drivers Education lesson. She > will going every day for 2 hours a day for three weeks. Except for the 5th > of July, that is why she is starting on a Friday. Otherwise we would of > stayed longer. > > After gets to DE I will go out and get my dog Halo (boy I missed her) > and 's dog Libby Jane. Go to the bank, mailbox and come home and rest. > > Sue AIH > Wisconsin > > ------------------------------------------------------------------------ > Having difficulty getting " in synch " with list members? > > Try ONElist's Shared Calendar to organize events, meetings and more! > ------------------------------------------------------------------------ > Please support the American Liver Foundation! > > 1.) To subscribe send e-mail to -subscribeonelist > 2.) To UNsubscribe send to -unsubscribeonelist > 3.) Digest e-mail format send to -digestonelist > 4.) Normal e-mail format send to -normalonelist Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 1999 Report Share Posted June 24, 1999 SueB: I guess I am over the depression but still am lucky that I can least have something to take so I can get up every morning and be alive. I was just upsetting but ofcourse I will get over it and willl be laughing and cracking jokes again soon. Will let you know the numbers on my blood test I get Friday. Should know by Monday at the latest. Sue AIH Wisconsin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 1999 Report Share Posted June 24, 1999 SueB: is really doing good in her Driver's Education class. She has aced all the tests so far and really likes it. The next step will be driving. Help. I don't know if I am ready. I will take her out to my Mom's house and drive up and down the road. She lives on a dirt road 1 1/4 miles from the road. Halo is so funny. She was in 's room tonight when I got home from work. Libby Jane met me at the door barking until I said something. Then she ran up the stairs and pushed open 's bedroom door and let Halo out like to say Get her out of this room. They are getting along alot better. Well, Thanks for asking about and Halo. Take Care Sue AIH Wisconsin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 1999 Report Share Posted June 24, 1999 Sue, I get my blood test results on Friday also. We can compare. Hope yours have come down dramatically, that will be a positive step after your let down. I read your posting about your family. I too have lost my family. My mum, my dad and my brother all gone. Very sad. I wish I had my mum to help me through this time of my life (AIH). Although my husband is my strength. He knows how I feel probably before I do. He is just a saint. He must be to put up with me and my meds. You'll have to post a photo of the pets. I'll wait for good results for you. SueB. ---------- > From: Roselle50@... > onelist > Subject: Re: [ ] Bumpy > Date: Thursday, 24 June 1999 14:48 > > From: Roselle50@... > > SueB: > > I guess I am over the depression but still am lucky that I can least have > something to take so I can get up every morning and be alive. > > I was just upsetting but ofcourse I will get over it and willl be laughing > and cracking jokes again soon. > > Will let you know the numbers on my blood test I get Friday. Should know by > Monday at the latest. > > Sue AIH > Wisconsin > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 1999 Report Share Posted June 24, 1999 Sue, I think I took the wise move when my kids learnt to drive. I just paid for their lessons. My husband tried with all three of them, but they always ended up fighting over something. I opted not to get involved. I am glad I did, we are still friends and I know they have been taught properly, by a qualified instructor. I still get a little nervous when I drive with them. Hard to believe for me, that they have grown so much, and can drive themselves around. SueB. ---------- > From: Roselle50@... > onelist > Subject: Re: [ ] Bumpy > Date: Thursday, 24 June 1999 14:52 > > From: Roselle50@... > > > SueB: > > is really doing good in her Driver's Education class. She has aced all > the tests so far and really likes it. The next step will be driving. Help. > I don't know if I am ready. I will take her out to my Mom's house and drive > up and down the road. She lives on a dirt road 1 1/4 miles from the road. > > Halo is so funny. She was in 's room tonight when I got home from work. > Libby Jane met me at the door barking until I said something. Then she ran > up the stairs and pushed open 's bedroom door and let Halo out like to > say Get her out of this room. They are getting along alot better. > > Well, Thanks for asking about and Halo. > > Take Care > > Sue AIH > Wisconsin > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 1999 Report Share Posted June 25, 1999 SueB: My stepmother is 88 years old and doesn't understand about the AIH. She gets so confused about it so I sort not tell her everything. Will let you know about the lab test when I get it back If I don't write have a nice weekend. Sue AIH Wisconsin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 1999 Report Share Posted June 25, 1999 SueB: is worried about getting behind the wheel but I know she will do good. She is really has a good mind when it comes to making decisions about things. Sue AIH Wisconsin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 1999 Report Share Posted June 25, 1999 Sue, My mother-in-law is 88 also. She is great with understanding everything I tell her about the disease. She is extremely educated and a great support to me. I stay overnight at her house every 2 weeks when I have to go to see my specialist. She is very concerned about me. I got my labs back today. All are looking good. AST normal and ALT is only slightly elevated. Sugars are still higher than normal, but the pred has done that to me. GGT up, but not too high. Even my blood pressure is normal. Coming off the pred. certainly shows up in some of my tests. My local doc is extremely happy. Not happy with the symptoms from the withdrawal, but I see the specialist on Monday and we will, I am sure, decide if to preserver with decreasing or what. Have a great weekend, I am going to. SueB. ---------- > From: Roselle50@... > onelist > Subject: Re: [ ] Bumpy > Date: Friday, 25 June 1999 14:32 > > From: Roselle50@... > > SueB: > > My stepmother is 88 years old and doesn't understand about the AIH. She gets > so confused about it so I sort not tell her everything. > > Will let you know about the lab test when I get it back > > If I don't write have a nice weekend. > > Sue AIH > Wisconsin > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 1999 Report Share Posted June 25, 1999 Sue, how old is . My kids were 16 1/2 when they started to learn? Is it the same over there or what? SueB. ---------- > From: Roselle50@... > onelist > Subject: Re: [ ] Bumpy > Date: Friday, 25 June 1999 14:34 > > From: Roselle50@... > > SueB: > > is worried about getting behind the wheel but I know she will do good. > She is really has a good mind when it comes to making decisions about things. > > Sue AIH > Wisconsin > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 1999 Report Share Posted June 26, 1999 SueB: Good news on the tests. I was called today by the doctor's nurse and was told the numbers were high and she would put them in the mail for me. I know how to ready the report. I guess I just have to keep going on the prednisone but I start 20 mg tomorrow instead of 30. I have the moon face again and the big chin. But there is nothing I can do about it because I like to live!! Nice to hear that you have a nice relationship with your mother-in-law. Mine is 85 and she is not really a very nice person. But I try to ignore the rudness of her. Sue AIH Wisconsin Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.